Vickle

I'm a bad clencher. I think I do it as a reaction to a headache, not because of it. Will clench when I shadow. I have a night guard now...that helps.

Thanks! I don't know why it turned it sideways when I posted.

Pfw's everyone. ;D

The Urban Shaman has been pretty good.

They won't ship it to me in Canada. lol

Not working so far. Shadowville.

Keep your friends close and your enemies closer. I remain on his fb group as a means to keep a watchful eye out for individuals that might need to get directed to some meaningful advice. Keeping a low profile there. His carnies have come at me a couple times now. With full on complaints to FB about me. Which is absolutely hilarious to me. Hugs to every person looking to make meaningful contribution to our cause and/or just genuinely supporting fellow ch'ers. <3

I have no clue what you should actually be given. But IV Demerol worked for me a couple times. Injections and pills were a waste of time and $.

Tony, have you given any thought to using alternative treatments to aid detox? I detoxed in January, and tool black charcoal and a mix of orange juice with a teaspoon of cream of tar tar. Weird...but it seemed to help.

Diamondmaker, Yes!!! That's exactly it.

Oooooh yeah! Started trying out the water method today. Dunno I'd it's gonna help...but I feel all squeaky clean.

CHfather...thank you especially for figuring it all out for me. My brain is mush right now.

Thank you all for your amazing advice and knowledge. I do have the opti mask. Demand valve is next on my list of purchases. I will try holding o2 in my lungs while bag re inflates. Funny, when I first started using 02, I hated the mask on my face. Now I like it, a comforting feeling. Thanks again everyone.

I think the Canadians will have to swarm the US for BOL..lol. Muah ha ha haaaa! Road trip!!!!

The wrong massage will trigger both ch and migraines for me. Yet, the right kind can relieve it a smidge. Go figure.

What do you do when 25lpm is not enough? I'm sucking that thing dry tonight. Desperate for that bag to fill faster.

I love these.

I would just like to offer my unwavering appreciation and respect for all of the advocates who attended HOH or wanted to attend HOH. There is so much that goes into that event and to know that cluster headaches is being represented and advocated by a group this is so rich in knowledge and passion inspires me to no end. Thank you all from the bottom of my heart.

Cheers! Thank You!! ;D

I know I saw it on here somewhere... :-) Can someone point me in the direction of the Hawaiin Baby Woodrose information? Greatly apprectiated. Thanks!

Yay! Fingers crossed I can get my stuff together in time to go. Last year was great to attend my first one as the lonely Canuck. lol Was great to meet so many of you and learn so much.

I'm on twitter. Thanks for posting. VictoriaHames1 on twitter

Thanks for the link FG. I'm taking a trip in this week to the Urban S.

Honestly...hadn't occured to me to order the RC Seeds. Sounds corny, but true. Thanks for the heads up. I need to get on that.

Finally am getting my chance to ween off ALL my meds. My headache doc was fired while my GP works hard to get me into a decent Neuro. Now, I wasn't expecting to finally convince my doc what I wanted and needed to do. Crap...no ready. I had ordered my mm kit. not started it...sitting on my heals trying to find excuses why I didn't need to start growing them. So now I'm down to my last two meds. Whiplash is starting to kick in. DOH!!! This is one of those occasions where you "better be careful what you wish for, cause you just got it". Don't get me wrong, deliriously happy to come off meds... I have o2 and 12 oral triptans a month. Fingers crossed...and a prayer to two maybe.