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ryanegal

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Posts posted by ryanegal

  1. Yes, I know that list all too well--I get all of those CH symptoms too, and a couple that you listed under migraine and the whole list of triggers, with one huge difference being the urge to lay down. For me, laying down makes a CH attack worse, and it seems to be one aspect that differentiates CH from migraine, although it might not be the same for everyone. I definitely agree with Pebbles regarding the oxygen--really effective for me in aborting a CH attack. I luckily have a big giant tank which lasts for a while--small tanks can go quickly because of the high flow. Acupuncture and high dose magnesium are also helpful in reducing the frequency/severity. I've had clusters with and without those, and there's a definite difference for me.

    I don't have experience with most of the meds you mentioned, although I have read that lithium is helpful for some chronic CH sufferers. It sounds like maybe it didn't help for you though. I agree with you about Imitrex--not my favorite at all, but better than an attack. I luckily live where dipyrone is still available--it is not used in many places because of a very rare but very serious potential side effect. It's really too bad because for most people it's a safe, effective pain reliever--I find it very tolerable compared to and indeed more effective than triptans, ergotamine, etc. I only take that though if I'm not at home near the O2, which is the fastest way to stop the pain for me. If you have CH, and it sounds like that could very well be the case, high flow oxygen may be the answer. I read about oxygen therapy a few years ago, but it wasn't until last year that I finally got some and it has made all the difference in the world, including making being in an active cycle a little less stressful. When an attack comes, instead of stressing about having to yet again take some harsh meds and hoping and waiting for them to kick in, I know relief is 8 - 15 minutes away, no side effects. If you haven't tried it, maybe it would be worth having a chat with your doctor about it. Best of luck!

  2. I tried verapamil for 4 years and still on it . I take 360 mg at nights. Primary side that I had to deal with was constipation, it will take couple of months to resolve from person to person. Never experienced fatigue side effect. Based on my knowledge it is drug of choice for many CHers. 

  3. Hello,

           I have been following this forum for past one month, and noticed that members are advised to get O2  or Trex shots upon onset of CH. I have seen 4 neuros post CH diagnosis and non of them encouraged me either of these options, this goes back around 20 years in Dallas area.

     

    I am really curious to learn more about these options so that I am better prepared for next cycle.

     

    thanks 

  4. Wanted to update everyone that Cyambalta 60mg has controlled my CH. I have been fighting this cycle for 2 months and good to have relief. One side effect that I am having is insomnia, but ir has not bothered me that much. Thanks CHfather for above comments....I have also started in D3. 

     

    For those fighting CH....please keep fighting, there could be some thing that will work for you.

  5. CHfather,

          I have been suffering with episodic CH for 20 yrs now, episodes happen almost once an year. For some reason I have never used oxygen, doctors never recommended it. I am currently on Verapamil and Cymbalta. Using Prodrin and Advil 400 - 600 mg to control headaches. 

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