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Cluster96

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Posts posted by Cluster96

  1. On 5/26/2019 at 12:41 AM, Dave D said:

    Greg,

    25 year sufferer of CH here...  O2 is the only cure I've ever had. Thanks to a willing general practitioner I met 10 years ago who wrote me a prescription  and worked with my insurance company,  I was able to discover how wonderful it was. She has since moved away and my CH have gone away and come back, and it is a bit of a hassle to try to find understanding and knowledgeable doctors willing to help.  The first thing they want to do is prescribe migraine drugs that do nothing and sometimes make CHs worse. 

    CHs came back last week and rather than bothering with the prescription/insurance/rental route,  I went on craigslist and found several affordable resale oxygen concentrators for sale.  I'm one of the fortunate ones that have found success with O2 concentrators.  10-15ml is ideal,  but they are expensive.  I purchased a 5ml concentrator today and have already used it with success.   I have a technique that I use that cures my CH even with lower ml rates.   My advice is if you can afford it ($250-500),  try CRAIGSLIST.

    hope you find CH peace. 

    Dave 

    Thanks for the the resale oxygen advice.  I've been denied by my insurance and cannot ever seem to buy anything out-of-pocket like other people here.  I used to be lucky enough to rely on triptans which I had a great supply of, but toward the end of my cycle last year I seem to have developed a bad reaction to them (trouble swallowing, increased heartbeat and all of the other call 911 style contraindications you read about in the small print). 

    Cycle started again like clock-work and I'm excited to see if Oxygen can help out. 

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