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ClusterBusters

Freud

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Everything posted by Freud

  1. Thanks for sharing! For me it’s the MM that does the trick, I’m a CCH so no risk of converting me. I’m just a bit uneasy taking these wrapping doses if it’s not working. Every time my CH returns inbetween mm doses my Dr ups me 80mg. My doc thinks I need a backup to the mm at least until I get my supplies up. I stopped taking the depakote it was doing nothing and I don’t like the potential side effects.
  2. A normal heart and vascular system can compensate amazingly well for most people. I am still amazed it works to lower people’s pressure who need it for that.
  3. Wasn’t aware it affected your gums, I’ll look out for it. Right now I feel like the MM are the only thing that works. My cardiologist is amazed how much I’m on with out it affecting my blood pressure.
  4. Interesting ER IR combo. I have CCH just finished my first year. My first headache md was titrating it every 3 months totally worthless. My new doc I travel over night to see but it’s totally worth it. He titrates every 7-10 days but insisted I see a local cardiologist to check my ekg and bp. I suppose if there are others out there it helps I’ll continue on it. He thinks I need a backup to MM being that I ran out and haven’t gotten my grows down to a science yet.
  5. Thanks for the replies guys keep em coming.
  6. Freud

    Is weed that bad for CH?

    My headache Dr Brian Grosberg in CT recommends canibis and supposedly the researcher at Harvard that passed away was a supporter to according to my doc... at the peak of an attack it doesn’t touch the pain. But it helps me relax as I’m dealing with the post attack Adrenalin rush jitters. Definitely doesn’t trigger attacks for me. I also smoke a cig while I’m waiting for my sumatriptan injection to kick in.
  7. Freud

    Episodic CH sufferer - new here

    I’m not sure if the community is aware of this newer drug Zembrace or not, but it saves my a$$ when I have real bad hits or something important to do. It’s half strength sumatriptan so you can take 4 doses a day instead of 2. How many mg do you take when splitting an autoinjector? My insurance will only pay for 16 injections a month. So I save them for important days. I have been able to stockpile some since successfully busting with MM.
  8. Thanks for sharing your update Tom. Searching for info on CBD can be overwhelming. I have spent a lot of time looking at dosing and brands for family members with chronic pain and RA. I have found that this company (https://www.lazarusnaturals.com/ ) makes one of the highest quality products for the price. Don’t get me wrong they are not cheap but their high concentration products can last quite a while. In comparison to Toms 15mg/1ml the Lazarus is 50mg/1ml. I highly recommend the tasteless high concentration product. It is by far the best tasting (it really is tasteless) CBD product I’ve tried. I started taking it today even though I just had a successful bust last Saturday. As far as dosing goes I have found that 15mg/day is low dose (highly recommended for anti anxiety effects), 50mg-200mg/day low-moderate dosage (also good for anxiety, inflammation and pain), 600mg/day and above (reccomended adult dose for epilepsy). I did come across some information that said you loose the anti anxiety effects at higher doses. Dosage information on the web can be some what vague but that’s what I was able to gleam. Happy busting Brian
  9. Freud

    Think I've Finally Figured It Out...Maybe?

    FYI your smells aren’t a sign you’re going crazy, my mother suffers from the exact same thing it is a real medical condition: phantomsmia or phantom smells. Hope this helps. https://www.your.md/condition/phantosmia/
  10. Freud

    recommended doctor list

    I would add Dr Brian Grossberg in West Hartford CT ‭(860) 696-2925‬ he specializes in HAs takes a while to get in but it’s worth the wait.
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