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ClusterBusters

Freud

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Everything posted by Freud

  1. Freud

    Short break

    You got my night time hits the last 2 days! Sorry buddy wish I could take them back! Batch has been communicating with me fairly often so in my reply today I told him about what’s been going on w you. May be he has something to add. I have gotten a better day or two a few days after a dose but I’m hoping this is related to my D and not the L i took on wed. I’m holding off on busting now so I can see what the D is doing... feel better buddy. I hope that damn hip heals fast so you can at least get back to a cluster shuffle ASAP. Wishing you well and PF days ahead. Brian
  2. You probably need a doctor to order the test and pay out of pocket for it. If you were to tell a doc you took the loading dose they are kind of obligated to run the test and often call it an overdose... that’s what my friend in the states had to do. Hope this helps.
  3. Freud

    Short break

    Just make sure you flex your leg muscles while you sit. This keeps the venous blood moving and helps prevent DVTs and thus PEs. Stay on the aspirin for sure. I’m also fairly certain you’re getting up and moving around. This is paramount to preventing DVT/PE. You mentioned you thought you found your D sweet spot, what was it? I hope you can get yourself to that sweet spot real soon. God knows you deserve a break from the CCH at s minimum to just rehab and recover. Pain free wishes! And a speedy rehab/ recovery!
  4. Freud

    End-of-Cycle Anxiety

    *bump,update* https://www.allergan.com/news/news/thomson-reuters/allergan-announces-phase-3-results-for-rapastinel
  5. Freud

    New Orleans - Help request (oxygen)

    Try Apria you’ll need a script before they will give you a price sometimes but it’s worth a shot 1510 Kuebel St New Orleans, LA 70123 United States +1 (504) 734-0563
  6. Freud

    New Orleans - Help request (oxygen)

    There have been several people that traveled for work and got hotel deliveries. Hopefully some one will have info for you.
  7. Freud

    Sphenopalatine Ganglion Block

    There is also a much painless way to do a spg block. W a long cutip applicator and dripping viscous lidocaine down the cutip to the SPG...
  8. Freud

    Sphenopalatine Ganglion Block

    Have you tried busting?
  9. Freud

    Vitamin D3 Levels

    You can also write A message in his wall asking for help...
  10. Freud

    Vitamin D3 Levels

    Hmm, that happened to me once, but then it allowed me to message him. He will see this post where i tagged his name. He pretty much looks at every vit D post as well. Give him a little time, he’s kind of off grid with limited internet access atm.
  11. Freud

    Vitamin D3 Levels

    Looks like you’re missing the K, https://www.amazon.com/Life-Extension-Advanced-Complex-softgels/dp/B004GW4S0G send @Batch a message he’ll respond...
  12. Freud

    Exercise / Running while in Cycle

    I pace a shit ton does that count. Lol. I log a lot of steps...
  13. Freud

    Exercise / Running while in Cycle

    I have seen people post that running, push ups, exercise helps them abort an attack. But in the year or so I’ve been here I do not recall some one saying it triggers them...
  14. Freud

    Guest users. Welcome!

    So I just found the feature to browse online users. 13 pages of guests! Folks join us, if you have CH or are helping some one with CH join it will make all the difference! pain free wishes freud
  15. If you don’t mind us asking who are you going to see in the states, there are plenty of good CH Docs here and a lot that are a waste of time....
  16. Freud

    Slashdot article , FDA approval

    Opening : The Law Isn't Ready For Psychedelic Medicine from the ready-or-not-here-it-comes dept. Matt Lamkin reports via Scientific American: In March, the Food and Drug Administration approved esketamine, a drug that produces psychedelic effects, to treat depression -- the first psychedelic ever to clear that bar. Meanwhile the FDA has granted "breakthrough therapy" status -- a designation that enables fast-tracked research -- to study MDMA (also called "ecstasy") as a treatment for post-traumatic stress disorder and psilocybin as a treatment for major depression. While these and other psychedelic drugs show promise as treatments for specific illnesses, FDA approval means doctors could also prescribe them for other, "off-label" purposes -- including enhancing the quality of life of people who do not suffer from any disorder. Hence if MDMA gains approval as a treatment for PTSD, psychiatrists could prescribe the drug for very different purposes. Yet while the FDA generally does not regulate physicians' prescribing practices, a federal law called the Controlled Substances Act bars them from writing prescriptions without a "legitimate medical purpose." Although this prohibition aims to prevent doctors from acting as drug traffickers, the law does not explain which purposes qualify as "legitimate," nor how to distinguish valid prescriptions from those that merely enable patients' illicit drug abuse. Would prescribing a psychedelic drug simply to promote empathy or increase "life satisfaction" fall within the scope of legitimate medicine -- or would these practices render the physician a drug dealer? To many the answer may seem obvious: to qualify as a "medical" use, a drug must be prescribed to treat an illness. But in fact, medical practice has always included interventions aimed at promoting the well-being of healthy individuals. "At a time when 'lifestyle drugs' are marketed as consumer products, it is increasingly difficult to draw a bright line that distinguishes legitimate medical practices from their illicit cousins," adds Lamkin. "If prescribing mind-altering drugs to help healthy people achieve desirable mental states falls within the bounds of legitimate medicine, what is left of the concept of recreational use?".
  17. Yes but CH runs the gamut. You’re not alone but rare. There are some that cycle 2 times a year , every other, every 3 rd year... we all have a different number of attacks....
  18. Freud

    Emgality

    I’ve never been told an exact MOA of verapamil on CH, I was under the impression it’s like oxygen. They really don’t know why it helps. Where did you get that info from? Well so what your saying is if the verapamil initially increases your threshold, stopping it or if it became less effective your threshold would lower back to baseline not decrease your threshold per se. imho you’d end up back where you started not worse off?
  19. I have also been told by my pervious doc that it can take months to work. So I’m surprised they only studied it less than a month out. That placebo group is strange!
  20. From what brief exchange I had w BHD, it has a wide range of “help” for different patients. He’s had patients go from chronic to episodic, others that just get a reduction, some remission and yet others no relief. He thinks it’s worth trying for some one that is uncontrolled like me. However we both agreed to wait until I was fully detoxed from the invega and can say for sure if psychedelics will work for me. It’s my last option...
  21. You’re best off making a new post or searching for CBD in this website to see what people’s experience has been. It is a drug. Not so much a recreational drug like thc, but a drug none the less...
  22. Freud

    half time

    I don’t think CBD is an alternative to thc. They have totally different effects on the body. CBD is not psychoactive, thc is... they have different uses... they both have a great place in health and medicine. CBD has become a fad, they put it in everything from human edibles, soaps, even dog foods like you said. It’s said to have a calming effect on people at lower doses. Helps raise the seizure threshold... modulate pain...its very safe.
  23. Freud

    Emgality

    I think it is highly unlikely being that it’s supposed to lower CGRP, which elevates during an attack. I have never heard of verapamil worsening CH, did you mean sumatriptan?
  24. Freud

    Guest users. Welcome!

    Wow, crawlers are an interesting thing. It’s like the matrix. Lol. Glad we got one not bot... welcome
  25. Freud

    Emgality

    The results are mixed, it works better for episodic cluster than chronic. The study found that 77% of the patients saw a 50% reduction in headaches. A doc that was involved in the study told me that people respond differently and it can take a few months to become effective. Few get remissions but it does happen... worth a shot if your insurance company will cover it. If they don’t there is an assistance program from Lilly if you go to their website. Good luck and lain free wishes, you might want to consider busting. Have you clicked on the blue button for new users? Please keep us updated! pain free wishes! brian
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