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ClusterBusters

Freud

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Everything posted by Freud

  1. I wish mine were related to eating but I have found no such correlation. I get hit the same 3 times a day and it’s usually before meals. Plus random ones in the middle of the night. Keep us posted.
  2. Have you tried psychedelics? You can prevent a cycle by using psychedelics.
  3. Freud

    Cluster rules

    Mit, I think your rule can apply to a lot of cluster heads but not everyone. There are plenty of people that also have great results with psychadellics. It’s rare some one says triptans stop working. They aren’t my answer, I save them for true emergencies instead of going to the ER or when I have something important to do. For many O2 works without fail. For others their clusters change and seeds don’t work any more but mm or L does. I do agree it can be hard to figure out and stay on top of.
  4. I pace like a mad man too. When on the O2 I rock. In the middle of the night I call it the cluster shuffle mixed with the pp dance (often when I wake up I’ve gotta head to the O2 but the bathroom is calling.
  5. Freud

    CH, Marijuana and Me

    That’s so funny boss. Smoking bothers my throat but has no effect on my ch posative or negative. So interesting.
  6. Freud

    Topamax?

    Type busting in the search bar. Or if one of the mods can move the thread we can discuss it further.
  7. Freud

    Topamax?

    It’s a nasty drug and 3rd line treatment. I have a medical background and my doc won’t even recommend the stuff. Side effects are nasty. The sad thing is we will try almost anything to get the headaches to stop. I myself rely on psychedelics. Have you considered busting? It’s less dangerous than any of the pharma
  8. Freud

    Sumatripton help

    Valid points made by all. I forgot who it was but one of the regular posters was talking about the initial trials of imatrex and heart attacks. Hopefully some one will chime in. The other problem is most insurance companies will pay for 16-20 injections a month I have min of 60-90 CH a month. Sadly my insurance only covers them at 50% making them unaffordable. But when I got my 2 month break from busting. I stockpiled 40 injections. I save them for important days/ family or friend functions when I don’t want to be toughing it out.
  9. Freud

    Sumatripton help

    The answer is yes, there is a daily maximum amt of sumatriptan one can safely consume for injectable it’s 12mg. Depending on which injectable you use that could be 2 shots or 4 shots (zembrace). The triptans are a double edge sword. They have been shown to increase severity and number of attacks. Several people have posted they think they went from episodic CH to chronic CH from excessive sumatriptan use. There are also heart precautions with high usage. It’s not a totally benign Rx, but it feels like it’s gods gift to CH.
  10. Freud

    Cluster rules

    So true, I’m on a shit ton of verapamil and still getting CHs. My doc wants me to continue it as he thinks I need a back up to mm. I think we’re going to have a long talk including BHDs rule. Thanks Chris this one hits home.
  11. Freud

    Gamacore

    I’m so sorry buddy, I shipped it out last week. I had no interest then someone popped up who had success with an older model. I can tell you if you’re episodic it may be worth a shot. Are subsequent months cheaper being that you don’t need a new device? They sent me txt msgs about zero copay options and special no cost programs. My insurance wouldn’t cover it either but I’m chronic and it doesn’t really work for us.
  12. Freud

    POSSIBLE FIX

    I do however totally understand wanting the pain to stop and taking drastic measures! No judgment.
  13. Freud

    POSSIBLE FIX

    Medically coke IS bad it increases the hearts need for oxygen and decreases supply! You do the math.
  14. Freud

    POSSIBLE FIX

    That’s interesting funtimes, didn’t picture the cigars either. E3r that’s one hell of a way to attack them. I’m scared of coke so I don’t touch the stuff. I’m chronic, long story short I was on another blocking med that takes a long time to get out of your system but I did achieve a 2 month break with mm when I was in monthly and not quarterly injections.
  15. Freud

    POSSIBLE FIX

    What little freedoms in life I’m left with after the CHs I enjoy. I happen to eat a diversified diet. I smoke, and use medical marajauana is that a drug? I use mushrooms and LSD to treat my clusters do they count as drugs?
  16. Freud

    POSSIBLE FIX

    I’m on 800mg and I wish it did something. I’ll be increasing soon too.
  17. Freud

    POSSIBLE FIX

    Verapamil is first line rx therapy many people have tried it by the time they get here.
  18. Freud

    Gamacore

    I found a person with ECH who has an old device that has gotten relief with it. The give away is over.
  19. Freud

    strange changes to my clusters

    Those are abortive methods. Busting refers to using psychedelics to prevent or stop a cycle of episodic CH or to stop and prevent chronic CH.
  20. Freud

    strange changes to my clusters

    Mark Verapamil did nothing at what dose did you give up. It quite often takes 800-1000mg a day to see results. Lithium is a second or third line therapy. Drop Boatman a note he recently tried lithium. The thing is you can’t bust when you’re on lithium so you may see less people that use it here for that reason alone.
  21. Freud

    CH, Marijuana and Me

    I’m so sorry this country is so ass backwards where marajuana is not legal. I’m even more sorry for the pain and suffering of CHs. Here are your options the way I see it. Since you’re not fully in cycle busting could prove to be successful, RC seeds probably the easiest option there. No insurance, try welding O2? Many people do it and have great success. No triptans no problem. It’s a double edged sword any way. Lastly you could try the D3 regimen. Many people have had success with it in decreasing severity and frequency. Hope this helps Brisn
  22. Freud

    Gamacore

    Still don’t have any interest, if you’re curious and have CH or migraines it’s your’s.
  23. Freud

    Gamacore

    I’m not getting any interest so if you’d like this gammacore to be your’s and you’re episodic. Drop me a line please.
  24. Freud

    Cbd oil

    This may be spam I see nothing but seeds for sale.
  25. Freud

    New to forum/ not the Demon

    Look at the files on busting. Are you episodic or chronic. The imatrex inj can make the clusters worse. It’s a double edge sword. Oxygen is a godsend. Works faster then the trex.
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