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Freud

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Posts posted by Freud

  1. Found this document that reviews a lot of GONB greater occipital nerve block...  mainly in migraine but I’m still scanning it to find the CH study. https://www.uhcprovider.com/content/dam/provider/docs/public/policies/comm-medical-drug/occipital-neuralgia-headache-treatment.pdf#page3

    Not what I was looking for but may answer your questions if they just do one: https://www.mdedge.com/clinicalneurologynews/article/56433/pain/occipital-nerve-block-cluster-headache-two-thumbs

    still not what I’m looking for but a good resource  scroll down to the chart and you can click the numbers to see the study... https://headachejournal.onlinelibrary.wiley.com/doi/full/10.1111/head.12053

    BBL when I find the CH one. 

  2. So I just got home. Drove dad across NJ all day, threw my M tank in the car and as it happens I was lucky enough to get a migraine last night that’s being a persistent bugger. And the Ch doesn’t scare it away any more they both occur simultaneously. So I haven’t looked up the study yet to give you numbers on avg pain free or reduction of severity time. All I know is if they will do it 3 consecutive days (fairly positive that’s what the study did but I’ll dig it up) you get the best results. The only real side. Effects besides the standard ones for steroids which can rarely include a vascular necrosis of the hip the main risk is balding at the injection site with frequent blocks. The steroid risk is minimized greatly compared to oral or IV doses. I would try it for sure. Everyone responds differently as usual... they did help me though. The first time I went to him to beg for some kind of help, he did the occipital and SPG blocks and it did stop the CH I was having dead in its tracks. Even if they won’t do the consecutive blocks it’s worth a try if it costs you nothing but travel and stuff. 

     

    I will I’ll do my best to find the study so you’re armed with the info. When is this supposed to happen?

  3. So I just got home. Drove dad across NJ all day, threw my M tank in the car and as it happens I was lucky enough to get a migraine last night that’s being a persistent bugger. And the Ch doesn’t scare it away any more they both occur simultaneously. So I haven’t looked up the study yet to give you numbers on avg pain free or reduction of severity time. All I know is if they will do it 3 consecutive days (fairly positive that’s what the study did but I’ll dig it up) you get the best results. The only real side. Effects besides the standard ones for steroids which can rarely include a vascular necrosis of the hip the main risk is balding at the injection site with frequent blocks. The steroid risk is minimized greatly compared to oral or IV doses. I would try it for sure. Everyone responds differently as usual... they did help me though. The first time I went to him to beg for some kind of help, he did the occipital and SPG blocks and it did stop the CH I was having dead in its tracks. Even if they won’t do the consecutive blocks it’s worth a try if it costs you nothing but travel and stuff. 

     

    I will I’ll do my best to find the study so you’re armed with the info. When is this supposed to happen?

  4. I haven’t read all the posts, I just had a Sec to stop by, but I got occipital blocks and spg blocks done twice a week by a pain doc. He did both sides which seemed odd to me, I went for 8-10weeks. Ended up w a 8K bill and they helped but didn’t stop my CH. I have come to find out by my neuro who had trained the pain doc I saw. So he knew he was doing unnecessary procedures!!!  Then I found out he wasn’t doing the greater occipital blocks properly. There was a study my old doc showed me last appointment that was 3 greater occipital nerve blocks in a 72 hr period w steroids as well as lidocaine did provide significant relief in the study pts. I’ll look for it. I’d try it see if they would do the 3 in 72 hr period. Here in the states insurance companies will only pay for one block every 2 weeks!

  5. Wow, I believe batch will say take Benadryl, check for infections. A friend did the same thing and he was walking around w bad bronchitis/ pneumonia. His D came up when the antibiotics were done...  let’s see if my prediction is right. 

    • Like 1
  6. No clogged nose stage.  My CH is not the same as your CH. my nose doesn’t do much for the majority of my CH. I’m getting 8-12 attacks a day.  The intensity isn’t always runny nose, clogged nose and eye pain. A lot of mine temporal head pain, neck pain. Then alternating in severity eye pain then head pain, then stabbing pain in the SPG. Then all at once or any combo of them. But clogged nose only happens if it’s a 10 and I can’t help but cry it hurts so bad. All Clusterheads are different!

  7. My CH is not the same as your CH. my nose doesn’t do much for the majority of my CH. I’m getting 8-12 attacks a day.  The intensity isn’t always runny nose, clogged nose and eye pain. A lot of mine temporal head pain, neck pain. Then alternating in severity eye pain then head pain, then stabbing pain in the SPG. Then all at once or any combo of them. But clogged nose only happens if it’s a 10 and I can’t help but cry it hurts so bad. All Clusterheads are different!

  8. Ewww, I have a perfect record turning down trips to the honky tonks. Lol. I did read about a new BBQ joint in the observer article I posted. It made me think twice about going there. I think it was in Farmersbranch in an unassuming location.  I’ll have to find it again. Do you do pizza and beer DD?  Enos in Bishops arts district could be a cool outing. 

  9. Unfortunately many people have posted about diets here. Be it keto diets or histamine free diets, some have said it helped them. However, some times it’s just coincidence. Spontaneous remissions do happen to episodic and chronics. It’s rare, but I am skeptical. Like Dana says it’s no cure but may have been a trigger for you. We all have different triggers. If you want to see how many people found a cure only to find out it wasn’t search  in the search field for “cure”. Start with the oldest post and read to current. There are over 25 pages of cures. I hope to god you never get another CH. but please don’t use the word cure here. Thank you for sharing hopefully it helps someone else. 

    • Like 1
  10. Ok @Racer1_NC despite one of my good friends having a great busy sushi place, this place Yutaka hands down is the most amazing sushi offerings I have ever had. His fish is so decadent it just melts in your mouth. My friends place burnt down a few months after he redid his whole place and I had no where to eat sushi. So I tried this small and pricy place yutaka. I sat down w a friend and asked chef yutaka if we could eat omakase “chef’s choice”. I am convinced outside of Japan I will never have sushi that good. He will only do omikase on nights where he doesn’t feel overwhelmed so it’s probably not an option and ran at least $150 a person but it was worth every penny!  This was in a different life I was working so much I was happy I got home to eat before everything closed most nights. 

    On a more affordable note there is a market that does all prepared food called Eatzi’s. There were 3 in the metroplex, the busiest was the one in Oaklawn in Dallas but there is one in grapevine close to the hotel. It’s the same food as all the other markets just not as busy. Friday night the in house bakers make pizza I think there are only 3 to choose from and they make it until they run out of dough. An amazing option on Friday night!  All the food there is fresh, made in house and was a staple in my diet. I’m probably going to do eatzi’s on Friday unless I go to the bishop’s art district and go to Eno’s pizzaria. They have a pie called the pigleywiggley that is amazing. Plus others and good beer on tap if you’re one of the people that can drink. Taco kitchen is another great place. I prefer the one in Dallas over the one closer to the hotel if it’s still open. There are a ton of high end $$$ places in Dallas I have left off except for yutaka. I am attaching a link to a new article by the Dallas observer of the top 100. I haven’t lived there in over 5 years so a lot has changed. I’ll come up w a few more, just have to look them up and make sure they are still open. Looking forward to meeting you. https://www.dallasobserver.com/top-100-dallas-restaurants/yutaka-sushi-bistro-6455527

     

    wow I almost forgot Bolsa  just amazing,  if you’re a vegetarian (my Gf at the time was) they will cook a special meal to meet your needs off the menu  

     

    Brian

  11. 12 hours ago, Racer1_NC said:

     

    I'll be there. Flying in that Tuesday.....

     

    Very cool, Dallas has an amazing food scene. Since you’re going early I have a few recommendations if you’re interested. I’d say “Fuel City” tacos are a must. It’s a gas station that’s open 24h and is always busy. There tacos are freaking amazing. I’m pretty sure I’m going to cab/Uber there if anyone is interested. Oishii sushi is great, one of my good friends owns it and sitting at the sushi bar is like the show cheers. The moth is another great place. Amazing beers on tap and the food is real good. I’ve got a few more but I’ll stop there. 

     

    Edit: I realize beer is out for many of us but a friend that went last year told me he was in shock by how many people were drinking.  He said he started asking people how they were able to drink and everyone told him I use MM, L...  And thats when he concluded this busting stuff is for real.

  12. That’s great, I wish my parents wanted to go. Honestly I think living with me has them at there limit. My CH is at its all time worst and it’s taking a toll on them. The only good thing about this debilitating CCH is I had to move back in with them, and have found my father half dead from septic shock 4-6 times in the last year. If it wasn’t for this CCH I would have never been here to save him.  In a former life I did high risk neonatal and adult critical care...  so as miserable as I’ve been CCH saved my father’s life. Hope my little story helps y’all see the silver lining in some of this.looking forward to meeting you!

  13. Hey fellow clusterheads and supporters.  After several people have strongly encouraged me to go to the CB conference, my parents decided to send me this year. I’m a little apprehensive bc I’m going through a M tank a day right now and my CH is at its all time worst. However, it will get me out of the house and submerged in a community of fellow sufferers. Bostonheadachedoc feels that it is important for me to meet other chronics. Most of the CH people I have become friends with and/or have met in person are episodic. I’m not sure it makes a difference we all suffer the same excruciating pain. But none the less I am now booked and looking forward to meeting many of you. So I figured I’d make this post to see who’s going to make sure I at least get to shake your hands. 

     

    Pain free wishes!

     

    Brian

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