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Posts posted by Freud

  1. It’s definately not a trigger for me.  I like it for the period after the attack breaks.  I’ve been experimenting with edibles using the magic butter machine. A good strong cookie dulls the pain. But you have to time it perfectly.  Cookie kicks in in 45 min-1 1/2hr. So if you get hit the same time every day you can time it. When I got attacks pre busting I would get hit every night between 7-8pm and the cookies helped. It was Girl Scout cookies. 

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  2. Tired is understandable but don’t give up. Try the D3 regime that Batch posts about. Any questions and he’s happy to answer. Also you can go the welding O2 option. My insurance just changed and they want $1600 a month for my trex injections so I’m left with what I stockpiled over a 2 month remission (I’m chronic CH).  Have you considered growing your own mushrooms. The LSA seed option doesn’t have the grow time and could work also. You have options stay positive. 

  3. Thanks for never getting tired of putting the info out there Batch!  This post convinced me to give it a try and recommend it to my sister with RA. I’ve been taking 10k units of D3 but have to add the cofactors.  I’ve been getting success with MM but it would be nice to have a good back up. Do you use MM too?




  4. It may be easier if you could have some one from back home buy them and ship them. D3 is pretty common in the states, may be France (I think that’s where you said you were from). Most importantly you can’t give up. I know this shit sucks, but you will get through it. Have you ever tried a big tapered dose of steroids?  It works for some people.  There is also an occipital nerve block that helped me a lot could be easy to find some one that could do it. An SPG nerve block also helps and requires no needles. They stick long qtips in you’re nose and drip lidocaine jelly down them. There is always something to try but I draw the line at putting things in my brain. There is always MM, LSA, LSD...

  5. The only negative is that your dose has to be strong enough to feel some of the mm but not necessarily trip. A bad trip is the biggest risk second to serotonin syndrome. Which is rare and usually do to taking other drugs that I mentioned with the MM. I don’t mind tripping so i dose higher than some. Some of us also require higher doses. And tragically sometimes the mushrooms just stop working. CHs are always changing from what I’ve read here from long time sufferers. I wish the 3 of you luck!

  6. I honestly didn’t think I’d take another psychedelic until I found this place. I’m just 2 grows in but the mm gave me a 2 month break and it was a godsend. I plan on dosing 1-2 times a month to keep them away as I have chronic CH. 

  7. They will have no known interaction. You have to refrain from the triptans while using mm. Also antidepressants in the SSRI family. Otherwise you are safe. Some one chime in if I’m missing something please. 

  8. Hey LFR welcome to the fam, sorry you have to be here. We all understand how overwhelming CH can be, especially going undiagnosed and suffering for that long. It sounds like it’s time to find a new neuro/ headache Specialisl. I would highly recommend oxygen. There is a lot here just dedicated to that topic alone. D3 has worked for many here as well as energy shots. For me the single most helpful thing has been magic or medicinal mushrooms. It gave me my first break from CCH in over a year. My Dr is very supportive and referred me to this community. The people here are great, I can’t say enough good things. 

  9. On 9/7/2018 at 1:35 PM, Siegfried said:

    I took it for 5 weeks and it did not do anything... or nearly anything. I often have weak migraines on the left side and yes they did stop during my verapamil period, but it had no effect on the right side where the heavy stuff sits. Most important reason for stopping it was that it did not play well with Zomig.

    What did you mean by “...it did not play well with Zomig”?  5 weeks is a relatively short period of time to try verapamil. It needs to be titrated up at a moderate to slow pace 80mg every 7-10days if no relief. That’s with EKGs and BP check a few days after starting new dose. Some people require really high doses to quell the cluster beast. As high as 1000mg! I’m currently at 640mg/day. 

  10. Any decent headache specialist usually orders a head CT or MRI to rule out pituitary tumors and aneurysms. There is a really low incidence of them occurring with CH. 


    now that hat you have this extra info what are your options if you don’t mind me asking. 



  11. I’m sure at some point I’m going to reach a threshold dose. Either I will have to come off from side effects (low BP or slow heart rate) or my headaches won’t come back. However, now that I’ve gotten a grow under my belt and have optimized things I should have enough to dose once or twice a month and keep them at bay. In that case I think I want to come off the verapamil I’m now up to 640mg a day. 



  12. Thanks for sharing!  For me it’s the MM that does the trick, I’m a CCH so no risk of converting me. I’m just a bit uneasy taking these wrapping doses if it’s not working. Every time my CH returns inbetween mm doses my Dr ups me 80mg. My doc thinks I need a backup to the mm at least until I get my supplies up. I stopped taking the depakote it was doing nothing and I don’t like the potential side effects. 

  13. Interesting ER IR combo. I have CCH just finished my first year. My first headache md was titrating it every 3 months totally worthless. My new doc I travel over night to see but it’s totally worth it. He titrates every 7-10 days but insisted I see a local cardiologist to check my ekg and bp. I suppose if there are others out there it helps I’ll continue on it. He thinks I need a backup to MM being that I ran out and haven’t gotten my grows down to a science yet. 

  14. I’ve seen some talk about verapamil lately and was wondering if anyone has had success with it without busting. My MD is titrating me up and thinks I need a backup to MM. being that you have to get it down to a science before you always have it at hand. If it does work for you how much are you on. I’m currently on 560mg a day divided into 3 doses. 

  15. My headache Dr Brian Grosberg in CT recommends canibis and supposedly the researcher at Harvard that passed away was a supporter to according to my doc...  at the peak of an attack it doesn’t touch the pain. But it helps me relax as I’m dealing with the post attack Adrenalin rush jitters. Definitely doesn’t trigger attacks for me. I also smoke a cig while I’m waiting for my sumatriptan injection to kick in. 

  16. 3 hours ago, CHfather said:


    [Started this before Jon's post . . . Nothing to add, really, but a couple of thoughts.]

    For some people, the nasal spray is fully effective, so it makes sense to have tried it first. (And in fact there is some evidence that it is less likely to cause rebounds than the injections (I confess to not being a 100% believer that judiciously used injections cause rebounds, but it's probably safer to accept that they do and try to avoid them).  At this point, can you contact your doc to say the nasal isn't working and ask for injections?  (If you get that, note that you can take apart the autoinjector and self-administer much smaller doses, which will make the effects much more tolerable and save $): https://clusterbusters.org/forums/topic/2446-extending-imitrex/).

    You can use welding O2 to set up an O2 system if you need to. At least 15% of people with CH do it that way (my guess).



    I’m not sure if the community is aware of this newer drug Zembrace or not, but it saves my a$$ when I have real bad hits or something important to do. It’s half strength sumatriptan so you can take 4 doses a day instead of 2. How many mg do you take when splitting an autoinjector?  My insurance will only pay for 16 injections a month. So I save them for important days. I have been able to stockpile some since successfully busting with MM. 

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