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Freud

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Posts posted by Freud

  1. And best part is there is no side effects except for may be drying you out. Although I fell asleep in my long post hit phase last night, and got a little dry.  It’s the exception for me. Unless you have severe COPD and you live at a saturation in the 80s there is no such thing as over use. 

    • Like 2
  2. I give up, I can’t find it.  It was a country song about CH.  a Neuro played it fir me at my first CH visit. He was just tickled pink to find it on his phone and played it for me. It was on iTunes but I can’t find it.  I’ll call the worthless doc or stop in and see if he can tell me what it is. 

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  3. PS, please look into Oxygen. I put it off for the first year I had CH and even though I have some stubborn CHs that it doesn’t always work for it’s truly a godsend. If you want to see if it works for you go to the ER during a hit aka attack and see if it helps. It has to be high flow, at least 15liters per min. Preferably 25LPM, but most ERs don’t have a regulator that goes that high. With a nonrebreather mask. 
     

    sorry if I sound like a broken record...

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  4. On 10/28/2021 at 1:18 PM, mhowcroft said:

    I also haven't revisited this as an option because I'm often at work during CH and cannot use any even moderately debilitating relief options. Just looking some someone who may have got through what I'm walking into to offer some advice.   

    Busting isn’t part of most peoples abortive agent. There are some that try the SPUT (Small piece under tongue) and have reportedly gotten relief, but that’s not been true for most that have tried it.  When we say busting aborts CH we mean aborts the cycle or gives you CH free time for chronic CH sufferers. I highly recommend connecting w @xxxand try the D protocol.  

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  5. Aside from the Vitamin D protocol which has a similar success rate to busting, oxygen will be your best friend.  It’s worth the money!  Are you sure insurance won’t cover it?  CMS approved it and insurance cos usually follow suit. Unless you’ve tried to get it in the last 6 months I’d try again. There is a trusted Dr list in the general board. May be one is close to you and you will get real help.  Where are you located?  My heart goes out to you. I couldn’t imagine how hard this is on you. 

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  6. Thank you @Rod H  I’m fighting the good fight.  Did manage to get a little nasal spray for my trip and to bridge to a new doc.  However one ketamine clinic I spoke w told me at home ketamine nasal spray is illegal in Florida.  I’m not sure if that’s just for Esketamine for depression or all ketamine.  I’m going to be devastated if they were right about the law.  I really need the oral troches and then the spray if the troches and oxygen don’t abort.  Less than a week till we move and I’m shitting bricks about not having oxygen if Apria won’t fill my tanks while I’m “on vacation “ until my health insurance gets switched.  Thank god CMS approved oxygen this year.  Thanks to all that pushed for it all these years.  

    • Like 1
  7. I noticed as others did that exercise, mainly in the form the form of sex either triggers a CH 50% of the time or does nothing. Otherwise I don’t consider fast pacing exercise (for me) the same as running or doing push ups like others have reported doing.  I noticed that the runners on here over the years sometimes report aborting w running or burpees but do get hit in the cool down phase sometimes. 
     

    as far as other pain during an attack, I’ve slammed my knee into a table by accident and hardly felt it or stubbed a toe.  But it has no effect on my CH hits.  Several compadre here have reported slamming head into things or punching things only to not get relief and end up w injuries.  Thankfully I’ve never gotten that frustrated.  

  8. I’ve been admitted for psych evaluation and the first thing they do is test you for drugs.  I’ve dosed the day before , less than 24 h told them I took it and they have told me “that’s not tested for”.  Unless it’s a government organization FBI, CIA, NSA type job it’s not tested for. There have been several CB members that work w the department of corrections that bust.  One kept it a secret, the other I know personally and his boss was supportive as he has witnessed said CB member get hit w a kipp 10 and ran to the welding tank to hit the O2...   Another person who has YouTube videos went so far as to have Stim implants in his brain that didn’t work bc he didn’t want to do something illegal but finally tried busting after a police friend told him he was being crazy.  

  9. When you go from doing heart surgery to not being able to do basic tasks of daily living fir 5/6 years w only a one month break after your first bust and never getting much results since.  W 6-10 attacks a day it takes its toll on you.  Vitamin D helped fir a short period then nothing.  Try again w D.  Never gave up but you need a Dr to follow labs and insurance that will pay fir it.    so far I haven’t given up I’m still here. Wanting to die and during are two different things. I don’t harm myself like other do (punch walls, smack head in the floor or walk to knock themselves out, drill holes in head or shooting self in head only to survive and still have CH is not my style). But when your CH is as bad as mine your brain wanders.  I’ve accomplished a lot in life. Save countless kids w congenital heart disease. Adults as well. Serious girlfriends, bla bla bla.  I don’t judge others here, I listen and try and help.   Some people don’t believe in euthanasia but I’ve practiced medicine fir over 10yrs before I had to give it up.  And some of us are DNR and people just don’t get it.  (Do not resuscitate).  Early in my career I couldn’t believe young nurses in their 50s would get DNR tattoo Ed on their bodies.  But I get it now.  

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  10. I’m not sure what your whole story is but we don’t all suffer the same way or have the same pain.  Euthanasia is not the same as suicide. And it’s not in my country.  You can’t just tell some one who’s chronic not to think about it.  Sadly life isn’t that easy.  I’ve been through more kinds of pain than most people should ever have to endure. Had my skin peeled off every day when I was burned fir months in end.  My CCH is that bad.  I don’t give up I’m exploring reasonable options. I wish it was that simple. I have living supportive / crazy family. But no kids just an aging dog.  No dependents otherwise.  

  11. Sorry it made you sad. Just trying to figure out how to make a living and pay fir my meds and have some quality of life.  
     

    on the subject of euthanasia I was reading a story of a guy who was in a country that had euthanasia and he applied fir it if gamma knife didn’t work. There was no follow up on his outcome though.  He had kids and a wife. So sad.  

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