Jump to content

Clusternana

Members
  • Posts

    11
  • Joined

  • Last visited

Posts posted by Clusternana

  1. Yes mine is bending over as well, my crying is emotional fight with spouse, that type. I know the one you are talking about though were the tears just come down from the pain of an attack. Hope you’re having a good day

    Thanks for responding !

  2. Does anyone else experience a ch when they are in a cycle (I’m cronic so I have the several times a day everyday) but do you notice crying or holding back tears or being really upset makes them worse? Like a 10?

     

    thanks

  3. Thanks! that what I do too, I get my electric blanket out if I can and wrap up. I just thought it was an such and side effect to the CH but I’m glad to hear from others they have the same issue

  4. My neurologist suggested Botox injections today at our visit. The last time I was there we did an Occipital nerve block and as soon as I got in my car to leave I was hit with a CH, needless to say it didn’t work because they continued. Has anyone had experience with Botox?

    Thanks!

  5. Hi everyone, I have been suffering from episodic cluster headaches for 20 years. Approximately 6 months ago they became 4-6 daily lasting 2-3 hours each. My neurologist put me on steroids, on Topamax 50mg, High flow oxygen, Indocin, added verapamil to the blood pressure medication I already take for high blood pressure and did Ocipital nerve block yesterday. Nothing besides the steroids stops the attack for a short amount of time and he won’t write for another round. I’m desperate for help. Thanks!

×
×
  • Create New...