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Brain on fire

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Everything posted by Brain on fire

  1. Brain on fire

    Horses with cluster headaches

    Oh that is just sad https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6330979/
  2. Brain on fire


    Thank you CHfather, appreciated more than I can express. I will come to this post on the days I need to be reminded. I will contribute to this forum again just as soon as I am able. In the meantime I'd like to encourage other CHers to share & contribute.
  3. Brain on fire

    New to the group

    @Batch Exciting news. Who is doing the study?
  4. Brain on fire

    Nausea with D3 Regimen & Cofactors

    Copied & pasted from this post Link to the post It isn't from the D site (Batch doesn't own the site). It is from here (*2011).
  5. Brain on fire

    Nausea with D3 Regimen & Cofactors

    (1) Medication Interactions and Contraindications:    * Reactions to vitamin D3 are very rare as skin exposed to the UVB in direct sunlight produces vitamin D3 naturally. However, if you are allergic to sunlight, do not start this regimen without contacting your PCP or neurologist first. If you experience a reaction to this regimen including and not limited to, an upset stomach for more than a day, swelling in and around the mouth or face, or an obvious allergic reaction, discontinue the entire regimen and contact your family physician.   ** If you are presently taking verapamil as a cluster headache preventative or for a heart condition, studies have shown that after repetitive dosing with verapamil, the serum half-life can be in a range from 4.5 to 12 hours. Other studies indicated calcium supplements interfere with calcium channel blockers like verapamil. Calcium gluconate is also used to treat reactions to oral verapamil. Accordingly, in order to minimize a possible interaction with calcium that may limit verapamil effectiveness, separate the verapamil and calcium doses by at least 8 hours. Discus this regimen with your PCP, neurologist, or cardiologist in order to work out an optimum dosing schedule.   *** If you are presently using blood-thinning drugs such as Warfarin or Coumadin for cluster headache or for a heart condition, vitamin K is generally contraindicated. However, studies have found vitamin K2 to be an effective stabilizer in anticoagulant therapy, proving beneficial in situations of over-anticoagulation or when the response to therapy has been variable. See your PCP, neurologist, and or cardiologist. (4) Comorbidities: Some comorbid conditions may interfere with the capacity of the anti-inflammatory regimen to prevent CH. Some of these medical conditions include, but are not limited to: cardiac, thyroid, renal, hepatic, and pancreatic insufficiencies. Sub-clinical allergic reactions and sinusitis are also suspect. If you have one or more of these conditions, work with your PCP to make sure they are being treated. This may help make the anti-inflammatory regimen more effective as a CH preventative. I just copied & pasted what was relevant. **Edited to add: The link to the post is on page 2 of this thread***
  6. Brain on fire

    Intro / Vitamin D

    Wow that is a big change. Looking forward to the input on your update.
  7. Brain on fire

    Guest users. Welcome!

    It was brought to my attention I thanked the worng person. Thank you Jeff