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ClusterBusters

Brain on fire

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Everything posted by Brain on fire

  1. Brain on fire

    Nausea with D3 Regimen & Cofactors

    Copied & pasted from this post Link to the post It isn't from the D site (Batch doesn't own the site). It is from here (*2011).
  2. Brain on fire

    Nausea with D3 Regimen & Cofactors

    Uh, for the younger crowd. Not a live rabbit.
  3. Brain on fire

    Nausea with D3 Regimen & Cofactors

    Fortunate households had all 3 networks & a kid for a 'remote'. Really fortunate one's had another kid to stand with one hand on the rabbit ears. lol
  4. Brain on fire

    Nausea with D3 Regimen & Cofactors

    I do indeed recall the days when late night television was just bars on the screen. Innocence lost.
  5. Brain on fire

    Nausea with D3 Regimen & Cofactors

    Oh the crush I had on him!
  6. Brain on fire

    New poster - please help

    Well said @CHfather. The problem with med coctails is polypharmacy. That includes OTC.
  7. Brain on fire

    Nausea with D3 Regimen & Cofactors

    (1) Medication Interactions and Contraindications:    * Reactions to vitamin D3 are very rare as skin exposed to the UVB in direct sunlight produces vitamin D3 naturally. However, if you are allergic to sunlight, do not start this regimen without contacting your PCP or neurologist first. If you experience a reaction to this regimen including and not limited to, an upset stomach for more than a day, swelling in and around the mouth or face, or an obvious allergic reaction, discontinue the entire regimen and contact your family physician.   ** If you are presently taking verapamil as a cluster headache preventative or for a heart condition, studies have shown that after repetitive dosing with verapamil, the serum half-life can be in a range from 4.5 to 12 hours. Other studies indicated calcium supplements interfere with calcium channel blockers like verapamil. Calcium gluconate is also used to treat reactions to oral verapamil. Accordingly, in order to minimize a possible interaction with calcium that may limit verapamil effectiveness, separate the verapamil and calcium doses by at least 8 hours. Discus this regimen with your PCP, neurologist, or cardiologist in order to work out an optimum dosing schedule.   *** If you are presently using blood-thinning drugs such as Warfarin or Coumadin for cluster headache or for a heart condition, vitamin K is generally contraindicated. However, studies have found vitamin K2 to be an effective stabilizer in anticoagulant therapy, proving beneficial in situations of over-anticoagulation or when the response to therapy has been variable. See your PCP, neurologist, and or cardiologist. (4) Comorbidities: Some comorbid conditions may interfere with the capacity of the anti-inflammatory regimen to prevent CH. Some of these medical conditions include, but are not limited to: cardiac, thyroid, renal, hepatic, and pancreatic insufficiencies. Sub-clinical allergic reactions and sinusitis are also suspect. If you have one or more of these conditions, work with your PCP to make sure they are being treated. This may help make the anti-inflammatory regimen more effective as a CH preventative. I just copied & pasted what was relevant. **Edited to add: The link to the post is on page 2 of this thread***
  8. Brain on fire

    New poster - please help

    Nice that the indomethicin is handy as a diagnostic tool & treatment for HC.
  9. Brain on fire

    Nausea with D3 Regimen & Cofactors

    In a fairly recent post someone was reacting to one (or more) components of the regimin. I'll try to find & link it... Just in case... I think it was discontinue the D3 for 2 days if no probs it was the D3, if probs discontinue the magenesium for 2 days etc to isolate the problem
  10. Brain on fire

    Freud

    Always ask before hugging.
  11. Brain on fire

    Risk / Dangers of Oxygen?

    Wow! My oxygen Rx 20lpm STAT with non-rebreather mask 20mins as needed for cluster headaches. My primary care doc rocks! If says 'I don't know." I sit in room with while it gets looks up it. If not satisfied with what is found online "I'm going to makes some calls, be right back." Not once have I left that office without answers. No PAs, no nurse practioners just the nurse for vitals & I always see my doc. 1st appointment, spent 2 hours with me listening. That is the beauty of a small practice & a darned good doc!
  12. Brain on fire

    Freud

    One day I will give Freud a great big hug, shake his hand, thank him & we will converse.
  13. Brain on fire

    anyone else entering fall cycle?

    Hey @automator, many with episodic cluster headaches have episodes near the equinoxes.
  14. Starts today folks! Keep us posted.
  15. Brain on fire

    2019 Conference how is/was it?

    2014 Nashville. Maybe 2021, 2022 or 2023? This year was the 14th conference.
  16. Brain on fire

    Freud

    Freud has assisted so many on a 1 to 1 basis on this forum. He is an inspiration for other's to do the same. Just as he inspired you Mox.
  17. Brain on fire

    New sufferer with questions about O2

    Some folks (with Rx) pay for medical o2 out of pocket. You can search local suppliers call around & ask for cash prices.
  18. Brain on fire

    Freud

    Folks here are compassionate, but everyone doesn't come on everyday & some may have missed an opportunity to share the love
  19. Brain on fire

    Risk / Dangers of Oxygen?

    Hang in there @Exigeous you'll be ok.
  20. Brain on fire

    Risk / Dangers of Oxygen?

    If it turns out you have a different headache disorder (e.g. a hemicrania) oxygen won't work for it. @CHfather need your input (and other's).
  21. Brain on fire

    Risk / Dangers of Oxygen?

    I've used mine at 25 liters a minute for 25 minutes with no probs (trying to make sure a 3 hour hit was fully aborted. Are you seeing a headache specialist or just a neurologist?
  22. Brain on fire

    Risk / Dangers of Oxygen?

    A good doc will not fight you on the oxygen whether your insurance covers it or not! .As far as risks I only know folks with COPD (possibly other respiratory conditions) can't use it at flow rates this high. In Countries with universal healthcare some docs deny based on protocols/money/policies.
  23. Brain on fire

    60 minutes

    Retro Report on PBS. Two major news reports in two days, that is progress.
  24. Brain on fire

    BOOST small o2 tanks - worthless or?

    In the absence of oxygen you can try slamming down an ice cold energy shot (among other things)
  25. Brain on fire

    Thank you

    It can be bizarre, there is hope all over this forum. I had Chronic Cluster Headaches (everyday, no cycles & no breaks) until I found this forum, did a bunch of reading & asked a ton of questions.
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