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ClusterBusters

Brain on fire

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Everything posted by Brain on fire

  1. Brain on fire

    The 'driven' gene?

    Most of us here are driven to thrive despite cluster headaches, driven to find something that aborts, driven to find something that ends/prevents cycles or chronic cluster headaches. I pause to wonder... Is there a 'driven' gene?
  2. Brain on fire

    The 'driven' gene?

    Were you driven in other aspects pre-cluster headaches? I was labeled driven, pure passion to me. I was... 'driven' to perform, as a dancer, athelete, educationally, in my career & every aspect of my life.
  3. Brain on fire

    National Headache foundation article from last year

    Bless the one's who stand behind us when we need it & with us when we do.
  4. Brain on fire

    Gingavitas update

    Congrats! You may now breathe.
  5. Brain on fire

    Newb here

    There are trigger foods. They, like Cluster Headaches vary by the individual. Some are known by many in the community as clear cut triggers... Until you come across that one or two or... who are not triggered by them.
  6. Brain on fire

    National Headache foundation article from last year

    Find something that works only to have another med (for which there were alternatives you were not informed of) keep it from working for over a year! Without hesitation I give that a definitive... D#$% that sucks!
  7. Brain on fire

    Patient Registry

    Apparently it was, please disregard. Post has been removed.
  8. Brain on fire

    Here's a beer to avoid

    Not about to drink that!
  9. Brain on fire

    Newb here

    Hey Trucker, please let us know how you are. That goes for you too Jost!
  10. Brain on fire

    Patient Registry

    sciencecertification, is this spam?
  11. Brain on fire

    CGRP info with caveats

    This is about migraines, interesting reading though. https://www.ajmc.com/newsroom/icer-releases-final-evidence-report-on-efficacy-cost-effectiveness-of-cgrp-inhibitors-for-migraine
  12. Hi jh, you can get more info by searching Emgality here.
  13. Brain on fire

    Emgality Shot for Episodic Clusters

    Search Emgality here for more info.
  14. Brain on fire

    Emgality Shot for Episodic Clusters

    Hope Batch will chime in. These meds can't pass through the blood brain barrier. If it works for you more power to ya & by all means let us know!
  15. Brain on fire

    Australians beware

    17K elderly & disabled in Georgia lose Medicaid due to a computer glitch. Every night following the evening news a debate was required... I was just a kid.
  16. Brain on fire

    Australians beware

    and the pharmaceutical industry breaks the banks. Is it just me who sees something terribly wrong in the 'big picture'?
  17. Brain on fire

    Australians beware

    People who can't work are forced to chose between healthcare & food, the nanny keeps the job.
  18. 870 CGA fits E tanks, that is an 870 CGA.
  19. Brain on fire

    Australians beware

    Alabama too, neither could I...
  20. Brain on fire

    Australians beware

    Heard this, it isn't verbatim. Politicians should stop practicing medicine without a license. They have no right to choose what we do with our bodies.
  21. Brain on fire

    Happy birthday Dallas Denny

    Wooo whoo Dallas! Stick around...
  22. Brain on fire

    Chronic Cluster Patient Pain Free for 11 days

    Milelli, great point about 'slow carbs'!
  23. Brain on fire

    Chronic Cluster Patient Pain Free for 11 days

    Consider the level of physical activity. In my former triathlon life I ate healthy. I have had rhabdomyolysis, not related to over exertion. The last thing anyone would want is to have their muscles break down to the point you require dialysis to save your kidneys. Just sayin... Not good, not bad... IMHO whether it be fashion or diet a fad is just that, a fad. To clarify I have not labeled what the OP is actually eating as a fad. I hope this thread will be updated.
  24. Brain on fire

    2019 Patient Conference

    I thought scholarships were opening in April & being awarded in May...
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