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ClusterBusters

Brain on fire

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Status Replies posted by Brain on fire

  1. Hey Brain, just FYI, I couldn't have blown the little sucker out because, you see, it was hiding within the soft tissue inside my nostril, where it didn't even show up on the MRI's (5 of them over the years), partly because soft tissue within soft tissue doesn't really show up in an MRI.  But if the doctors who were examining my MRI's had been LOOKING for a possible parasite, they just might have noticed a particular SHAPE that might have showed up in the tissue of my nostril, but ONLY if they were looking for it.  I pray for your Fire in your brain to be pout out.

    I'm done now, I think.

    1. Brain on fire

      Brain on fire

      You couldn't have blown it out but you did.

  2. I thought when I posted my story today that it WAS public, where anybody could see it.  Now I see this message to make a "public" posting, that anybody can see.  I ask the "board owners", what does it take to make my original posting "public"?

    1. Brain on fire

      Brain on fire

      I am not a moderator. I have chronic ch now under control using the methods here. We have a member who had a 10 year remission & plenty who have 2+ year remissions. The cause & cure for YOU are still a big secret to us. Why not share?

    2. (See 2 other replies to this status update)

  3. I thought when I posted my story today that it WAS public, where anybody could see it.  Now I see this message to make a "public" posting, that anybody can see.  I ask the "board owners", what does it take to make my original posting "public"?

    1. Brain on fire

      Brain on fire

      Your post re Cure is in the General forum which is public. Reading the New User's blue banner addresses that. Curious your post shares your suffering with CH, that you've "Cured" your CH but mentions absolutely nothing about how.

    2. (See 2 other replies to this status update)

  4. Hey Batch,

    I've been browsing the forms for sometime, and usually after every attack. I'm currently 21 and I am on a cycle that I feel will never end. 
    I take Verapamil (I swear does nothing) and I tried prednisone (which usually works, but this time its so bad I get dizzy and cry, and from guy to guy, we hate crying)

    I feel like there is no end.. anyway, I saw your d3 regime and I really want to give it a shot, but for the life of me, I cant seem to grasp what to do, and reading that pdf makes my head spin!

    I would sincerely appreciate the help, and will do anything to have a really simple guide or maybe amazon links to stuff you use or something. 

    If we could skype that would also be amazing, I've never actually talked to someone who goes through the same thing.. I swear no one understands.

    Sorry for lengthy message. 

    Thank you! P.s hoping someone at-least sees this, batch cannot receive PMs.

    1. Brain on fire

      Brain on fire

      Beat me to the punch Batch. Sent instructions to the link.

    2. (See 1 other reply to this status update)

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