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Posts posted by xBoss

  1. Any headache condition is terrible. I hope you can get to the bottom of it. You had me thinking of my first experiences with cluster headache back in 1998ish. I had no idea what was going on and I went through it with no doctors thinking I was finally feeling a headache like people always complain about since I never had any type of headaches before that. Either way it will be OK though, just something to deal with. You got this. :)

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  2. 3 hours ago, lovemyfamalways@gmail.com said:

    Does anyone know if cooking oil is a trigger? I remember years ago there used to be a food list and I can’t seem to find it. Thanks everyone! Doing research for husband. 

    Smelling burning cooking oil can be a major trigger.

  3. I go off into the higher realms of consciousness during cycles. It's pretty easy to do when you are exhausted from no sleep and been tripping on stuff for weeks. :)

    During the worst attack in my life I heard dancing queen playing in my head note for note like it was really playing. That one was weird!

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  4. On 3/13/2024 at 4:13 AM, devonrex said:

    I have found after exertion or stress, once I begin to relax I get hit. Sleep that hypnic jerk can be just as you are hitting rem and the body thinks it is dying and it does a quick nerve pulse/jerk. Rem is a trigger for many. I have found stress can either trigger or ramp them up a lot. 

    I get those. They come and go. Doing decent right now but wow, they suck!

    • Like 1
  5. 55 minutes ago, Rod H said:

    I have the same experience as you xboss. 

    It's amazing how predictable CH can be. I was surprised though with nitrates being the same trigger. Never really was until the last time. :(

  6. That is a haul. I usually go crazy by week 10 if they do not stop due to the loss of sleep. Funny you say get off easy because that is exactly how I describe the first half of the cycle but then it goes big. Bust when you can because it is amazing help, I am getting close to three years PF!

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