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xBoss

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Posts posted by xBoss

  1. On 3/7/2022 at 8:31 AM, BustOrNothing said:

    One of my attacks came after blowing a candle out and breathing in the smoke of the wicks. After that, no blowing out candles only capping them to put it out. This lead to cooking things at lower heat to not burn it and avoiding smoke entirely. 

    Especially hard because smoking Mari makes the stomach and mood feel better but don’t want to do it so that I don’t trigger a CH.

    Burning cooking oil used to trigger me instantly but the strange thing is that it stopped being a trigger a couple years ago.

    • Like 2
  2. 8 hours ago, EmpiresBurn said:

    and yes please before everyone jumps on the O2 being the best. I live in the US and that's just not happening at this current time I've gone down that road with 2 regular doctors and 3 Neurologist and 1 Headache specialist. It's currently not in the cards for me as an option. 

    You can always go gonzo and do the welding oxygen. The route I am about to take...

    • Like 1
  3. 3 hours ago, EmpiresBurn said:

    Thanks everyone. I'm still trying to figure out this beast. January was pretty much 1 hit a day at nighttime and now as we have progressed into February it's moved to an afternoon hit and nighttime. So I feel it's ramping up to a climax. Hopefully at least. 

    Not too bad at all. My worst is about 7 hits a day but there are people that have 14 or more.

    • Like 1
  4. 7 minutes ago, EmpiresBurn said:

    So this probably isn't a sign of a cycle coming to an end?

    It's so different for each person but for me it ramps up before it tapers down. You may be at the beginning of stage two of three etc. 

    • Like 1
  5. 1 hour ago, EmpiresBurn said:

    When they switch do they usually continue at the original time as well or switch from one time to the other?

    They switch all over the place time wise. Usually it's a couple weeks of right on time three times a day starting at 9pm then they go to every time you fall asleep all night then switch to random day hits. Early on in my cluster career they were like clockwork for the most part but it just keeps changing. Oh, and I have never used pharma for CH but I was trying to bust so many that was a factor.

    • Like 1
  6. On 11/12/2021 at 6:08 AM, spiny said:

    That is pretty cool xBoss!!!

     

    It is growing. I hope more states join soon.

     

    "A Republican Missouri lawmaker introduced a bill this month to give residents with serious illnesses legal access to a range of psychedelic drugs like psilocybin, ibogaine and LSD  through an expanded version of the state’s existing right-to-try law."

     

    https://www.marijuanamoment.net/michigan-activists-file-psychedelics-legalization-ballot-initiative-for-2022/?fbclid=IwAR1xTXdfXIPc3v4oPyhxEpDsSJ1RwsDZYI45snUGLlwyRnFWumIJmJTaXhU

    • Like 1
  7. It gets harder every year to succeed with a claim. About 20 years ago it was cake. My wife was denied after a three year effort and she has all kinds of issues and has been hospitalized many times. 

  8. On 1/27/2022 at 4:48 AM, Shaun brearley said:

    Just can't bear the sight of food when in cycle . Plus I vomit like no tomorrow when under attack.  I lose so much weight when I'm in cycle then take months trying to put it back on again

    Wow, I did not know this was a thing. Sorry mate. :(

    • Like 1
    • Sad 1
  9. I know we are talking about visual input being a trigger but I do believe that the EMF from phones can be a possible trigger as well. Not sure if you are running straight 5g or wifi on the thing but cellular service can affect our nervous system. I am very sensitive to it and I get a numb face and hands when I'm on a long phone call. I hate it and feel that it has a negative effect to us CH folks.

    • Like 3
  10. 9 hours ago, Shaun brearley said:

    Not tried that yet . Instead of hot soak does a hot shower work ? 

    I used to do the hot showers when in massive pain and it helped. I'm not sure if I knew how to abort CH back then. I think the hot soaks work due to a big change in blood pressure or blood flow so the shower would probably work but maybe a little bit less effective. I have still not done oxy for aborts so this was my replacement. Def. getting a tank for the next cycle which seems to be coming soon because I'm getting muscle lock and tension lately.

    • Like 1
  11. 3 hours ago, Shaun brearley said:

    Sometime if your lucky you can abort the attack with the energy drink or strong black coffee without having to hit the o2 . I think in the US the best energy drink is the 5hour energy shot . Sorry don't know the brand we don't get it over here in UK 

    Hot soaks also work for me. Every cluster head should at least try it. Works the same way, you have to do it ASAP or it won't work. I must have aborted 100 hits that way the last cycle.

    • Like 4
  12. Remissions are pretty normal for us episodics. I recently skipped two years and then it came back strong and lasted nearly six months. There is really no baseline, CH can vary widely from person to person or year to year. Cycles will vary as well, you can start out slow then they pick up and you are getting hit seven times a day for an hour plus per hit. Mine usually start slow then ramp up and then go down during the whole cycle. Try to keep tabs on it all with a journal so you can get a better understanding of how it all plays out. GL warrior! 

    • Like 5
  13. On 12/17/2021 at 1:26 AM, Juss said:

    Soundtrack Days of Thunder, Hans Zimmer

    I have built motors, decked heads, welded custom exhausts, helped build cars, even made the cut for NASCAR school to become a builder of stock cars, if you lived it you would understand. When Duvall talks to the car while building it, some of us do that. This was a great era. I'm glad I declined the offer, stock car racing has declined drastically since Allison.

     

    I miss those days, have not restored or built a car in 16 years.

     

    Nice, my family has been in NASCAR a long time. Last name is Keselowski

     

    • Like 1
  14. 16 hours ago, Juss said:

    @xBoss Good morning. How fluid are you? That's all I remember.

    Sadly, I don’t remember much of what my Grandmother taught me. I was in the CFU (Croatian Fraternal Union).

    Concerning your roots, why stay in the US? Everyone in the know is flocking to Hungary, Poland, and Czech, before they lock us in. A lot of my family is moving back to the old country, which they fled from, go figure. I may do the same before I can’t. That said, I doubt it would be any Slavic nation. Pay attention, freedom is only left where you are from. 

    Having known people move to Ukraine after the collapse, I have been privy to seeing our collapse. Those in Ukraine have more freedom than we do. 

    I'm I'm 3rd generation and the language is lost. My great grandparents actually hid their Russian identity and stopped passing the culture down when they moved to the USA since there was anti Russian sentiment forming. We came from Galicia which is no longer and is now Poland and Ukraine. I so wish I could move to that area or Prague or something like you mention but my girls think I'm crazy and don't want to. Plus the money would be too tight.

    • Like 1
  15. 1 minute ago, BoscoPiko said:

    Wow @xBoss showing your eclectic side with this one :P

    ha, this one is more my love for Eastern Europe. My last name came from right on the Ukraine and Poland border. I feel that Western culture ruins us and makes us sad and I wish we could go back to simpler times like they still live today in this video.

     

    • Like 1
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