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Posts posted by xBoss

  1. 2 hours ago, jon019 said:

    ...just a different game x...more like chess than checkers...

    It's weird. I play online poker as a semi pro which is incredibly hard to do after 25 years of the game elevating but certain life stuff crushes me and I'm basically helpless.

  2. 23 hours ago, kat_92 said:

    Oh no @xBoss sorry to hear that. Did the L work at least? How many years was MM working for you before your cycle threw you for a loop?

    It worked great. In about 3 months I will be PF for two years. The mushrooms worked for two years but I may have abused them. I was doing monthly preventative busting.


    • Like 4
  3. 4 hours ago, kat_92 said:

    I have a feeling that if something like this actually went through, getting it prescribed for CH would be almost as challenging as getting oxygen. It would be an uphill battle. I don’t want to be negative, but I just think it would happen that way. I am planning to start growing my own MM soon. 

    It's super easy. I have never had a failed crop.

    • Like 1
  4. 11 hours ago, jon019 said:

    .....i'll chime in too....same fears but dang it, there was stuff to do! more than 20 trips and never hit once in air or just after. carried imi or zomig and energy drink on plane just in case, oxygen at the destination usually through Lincare travel program. you adapt, clusterheads are good at that! get your well prepared first one out of the way....it gets less anxiety inducing every time after that......

    The only time flying got me was when I was dumb enough to drink a couple beers before a flight. It was a nightmare! I flew about 60 times that year and the rest were fine. Crazy thing was it was just one giant attack with no cycle.

    • Like 1
  5. 18 hours ago, Darren said:

    If there's one thing that I've learned over the years; it's that just when you think you have cluster headaches figured out...they change. Unfortunately, I don't you can ever know with any certainty. You just have to hope for the best, but, be prepared for the worst. 

    Yep, no normal for me anymore. They have shifted from early in the year to mid to late and back again.

    • Like 1
  6. 10 hours ago, KIF said:

    Hi I’m new. Not firmly diagnosed by my neurologist yet (says he’s not convinced) but I and an ER doctor suspect cluster. Mine have always been side locked to the right side today I was woken up with one of the worst ones I’ve ever had on my right side with poker like eye pain and Lots of Tearing and red eye. It subsided within 30 minutes and I was able to go back to sleep Then about two hours later woke up with my left eye just mildly irritated and watering and puffy. I’ve never noticed both sides affected before, although I didn’t have severe pain on the left more irritated . Does this happen to others? Thanks 

    Sure sounds like CH

  7. Hey, Sorry you are hurting. Try a super hot soak or shower but I like the soaks. They can abort the attack just like oxygen can and quickly. It does not work for everybody but it works for me! GL Warrior.




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