[Apparently not CH. Am I just a baby?]

On 8/8/2024 at 8:49 PM, CHfather said:

Please remember to ask the dentist not to use anesthetic with epinephrine.  If you do have CH, it will almost certainly trigger attacks.

I guess it is to help with bleeding. My dentist refused to use zero epi but he did cut it way down. It sure does trigger them!

[Cluster Headache Question - this is new to me]

Any headache condition is terrible. I hope you can get to the bottom of it. You had me thinking of my first experiences with cluster headache back in 1998ish. I had no idea what was going on and I went through it with no doctors thinking I was finally feeling a headache like people always complain about since I never had any type of headaches before that. Either way it will be OK though, just something to deal with. You got this.

[Foods that trigger CH's]

Nitrates

[Foods that trigger CH's]

3 hours ago, lovemyfamalways@gmail.com said:

Does anyone know if cooking oil is a trigger? I remember years ago there used to be a food list and I can’t seem to find it. Thanks everyone! Doing research for husband. 

Smelling burning cooking oil can be a major trigger.

[Has anyone used / had success with GammaCore?]

Yeah, those are a price gouge. Crazy how it could work forever but they set it to self destruct. I don't think I have seen too many positive experiences here with gamma core. Hopefully more people chime in.

[Wouldn't it be nice...]

I go off into the higher realms of consciousness during cycles. It's pretty easy to do when you are exhausted from no sleep and been tripping on stuff for weeks.

During the worst attack in my life I heard dancing queen playing in my head note for note like it was really playing. That one was weird!

[A few questions please.]

On 3/13/2024 at 4:13 AM, devonrex said:

I have found after exertion or stress, once I begin to relax I get hit. Sleep that hypnic jerk can be just as you are hitting rem and the body thinks it is dying and it does a quick nerve pulse/jerk. Rem is a trigger for many. I have found stress can either trigger or ramp them up a lot. 

I get those. They come and go. Doing decent right now but wow, they suck!

[A few questions please.]

Stress has put me into cycle a couple few times for sure. Sorry for your loss.

[It’s always the beer!]

I drank a 6'r tonight and gave the beast the middle finger. Smoke em if you got em warriors. I don't let the beast dictate my shiz.  Hi all! 

[Pain relief quick fix at home ( not permanent) wish it was . Does anyone else do this??]

I fully promote the hot soak and have aborted 100's of attacks that way. Sometimes 6 times a night like an oxygen user. Edit, big hits never abort that easy though...

 

[Developed cluster headaches after giving up caffeine?]

When my CH started it was only 20 minute attacks and just a couple few hits per week. It has progressed to more of a classic full blown CH since. With grandma being diagnosed it def smells like CH or combo migraine ch. I hope you can get it figured out! Great forum you are on. GL!

[Remission stories]

They can be pretty random. It seems like the remission periods drop more often in the first 10-15 years of having CH.

[It’s always the beer!]

55 minutes ago, Rod H said:

I have the same experience as you xboss. 

It's amazing how predictable CH can be. I was surprised though with nitrates being the same trigger. Never really was until the last time.

[It’s always the beer!]

I like beers and do fine outside of a cycle. When the cycle is near I will get kip 5 pain about an hour after drinking some for about a week then it's full blown attacks if I drink a beer in cycle.

[Happy new year]

Happy new year my fellow warriors!

[New music for CH folks post.]

Lorn is still one of my fav's

 

https://www.youtube.com/@Lornnn

 

 

[Happy Holidays]

Happy holidays Rod & all!

[First Post, better late than never]

Hey Hey!

 

Welcome to the forum. It's a battle brother, I have 25 years under my belt and I still start to lose my mind after about week 5 or so. The no sleep part is what does it for me. You seem to be very informed about all things CH! I wish you well fellow warrior. 

[Cluster Headache Medication & Psychedelic Use Survey]

I still have to get an eye doc to sign off on my potential rust on the lens before the MRI doc will run the MRI then my regular doc can clear me for a neuro referral where I have to tell him the words for the diagnosis. And all of that is just so I can maybe get some oxygen for next time.

[Cluster Headache Medication & Psychedelic Use Survey]

On 12/9/2023 at 6:02 PM, Bejeeber said:

 

It seems like a good, worthwhile survey, so it's time to throw the competitive gauntlet down: Are YOU cool enough (you get to talk about mushrooms and stuff) to take this one on??!!! 

The last CB survey I tried to take told me to take a hike because I don't have the diagnosis. I guess my brain tumor chills out when I use L M and D. :p 

[Woots to Bosco!!!]

[Im finally pain free.]

Nice! Yeah, 11 weeks is a haul. I'm just coming down from about 8 weeks. I thought I was fully in the clear but woke up a couple times last night with the best I can describe as half hits. They should be done soon.

[PLEASE READ: Heart-wrenching news involving our beloved spiny's family, and how we can help]

Terrible, I am sorry Spiny.

[No dark mode for a headache website?]

Hey CB, I was just thinking about how all my sites and apps are set to dark mode but you cannot do that here. Today is a light hurts day and I really wish you guys had that!

[First-time / long-time]

That is a haul. I usually go crazy by week 10 if they do not stop due to the loss of sleep. Funny you say get off easy because that is exactly how I describe the first half of the cycle but then it goes big. Bust when you can because it is amazing help, I am getting close to three years PF!