xBoss
-
Posts
780 -
Joined
-
Last visited
-
Days Won
58
Posts posted by xBoss
-
-
-
11 hours ago, jon019 said:
.....i'll chime in too....same fears but dang it, there was stuff to do! more than 20 trips and never hit once in air or just after. carried imi or zomig and energy drink on plane just in case, oxygen at the destination usually through Lincare travel program. you adapt, clusterheads are good at that! get your well prepared first one out of the way....it gets less anxiety inducing every time after that......
The only time flying got me was when I was dumb enough to drink a couple beers before a flight. It was a nightmare! I flew about 60 times that year and the rest were fine. Crazy thing was it was just one giant attack with no cycle.
-
1
-
-
-
Yep, Michigan is headed this way as well. Good news!
-
4
-
-
If you really do have CH you are light years ahead of about 99% of all sufferers since most of us went through years of hell to figure it out and get diagnosed so you have that going for you. AND you are on cluster busters!
-
5
-
-
18 hours ago, Darren said:
If there's one thing that I've learned over the years; it's that just when you think you have cluster headaches figured out...they change. Unfortunately, I don't you can ever know with any certainty. You just have to hope for the best, but, be prepared for the worst.
Yep, no normal for me anymore. They have shifted from early in the year to mid to late and back again.
-
1
-
-
Nice, ty for the share. Wish I could have been there.
-
23 years later and I am still self diagnosed. These jokers have no way to tell except to listen to the patients words.
-
5
-
-
10 hours ago, KIF said:
Hi I’m new. Not firmly diagnosed by my neurologist yet (says he’s not convinced) but I and an ER doctor suspect cluster. Mine have always been side locked to the right side today I was woken up with one of the worst ones I’ve ever had on my right side with poker like eye pain and Lots of Tearing and red eye. It subsided within 30 minutes and I was able to go back to sleep Then about two hours later woke up with my left eye just mildly irritated and watering and puffy. I’ve never noticed both sides affected before, although I didn’t have severe pain on the left more irritated . Does this happen to others? Thanks
Sure sounds like CH
-
I never hallucinate regardless of the dose or if it's shrooms or LSD. I did a couple times about 25 years ago and then it was over.
-
On 8/10/2022 at 3:50 PM, jon019 said:
....just wanna throw in for those contemplating welding O2 and coming across this thread in future.....NEVER tell them you gonna breathe it or you are gonna have to find a new shop....
....and i have to say...i am totally shocked they would ship a full tank ($125...yikes!!), and i bet it's by ground...planes have gone down from O2 tank "incidents". have witnessed a broken stem tank going through cement wall ....and a chlorine tank explosively leaking for no apparent reason (that gas is eerie green)..
My dad ran a racing shop his whole life and he has friends that had a tank torpedo through walls before!
-
Hot soaks in the tub work like a charm for me.
-
4
-
-
I gave my opinion last year when I had the worst cycle of my life after the shots. Might have just been a coincidence but it was terrible.
-
1
-
1
-
-
OMG, sorry to hear that Shaun.
-
1
-
-
The crazy thing about CH is it can only be diagnosed and treated from the patients words.
-
3
-
-
My left eye which is my cluster side has been getting worse than the other eye for years. I need a new prescription right now ever since last years 6 month cycle.
-
Hey, Sorry you are hurting. Try a super hot soak or shower but I like the soaks. They can abort the attack just like oxygen can and quickly. It does not work for everybody but it works for me! GL Warrior.
-
3
-
-
I pray that my daughter will not have them. She is two years away from when mine started at age 27
-
1
-
-
On 3/7/2022 at 8:31 AM, BustOrNothing said:
One of my attacks came after blowing a candle out and breathing in the smoke of the wicks. After that, no blowing out candles only capping them to put it out. This lead to cooking things at lower heat to not burn it and avoiding smoke entirely.
Especially hard because smoking Mari makes the stomach and mood feel better but don’t want to do it so that I don’t trigger a CH.
Burning cooking oil used to trigger me instantly but the strange thing is that it stopped being a trigger a couple years ago.
-
2
-
-
That will do it. Hope it ends soon Mark
-
I get bad neck issues, knots in shoulders as well every cycle. My range of motion is very limited and sometimes tension headaches. My cycle is due soon as well.
-
17 hours ago, CHfather said:
So you still might want to consider doing as many do and setting up a welding O2 system.
My bad, missed this. I may have to hit you up once I'm ready.
-
8 hours ago, EmpiresBurn said:
and yes please before everyone jumps on the O2 being the best. I live in the US and that's just not happening at this current time I've gone down that road with 2 regular doctors and 3 Neurologist and 1 Headache specialist. It's currently not in the cards for me as an option.
You can always go gonzo and do the welding oxygen. The route I am about to take...
-
1
-
-
3 hours ago, EmpiresBurn said:
Thanks everyone. I'm still trying to figure out this beast. January was pretty much 1 hit a day at nighttime and now as we have progressed into February it's moved to an afternoon hit and nighttime. So I feel it's ramping up to a climax. Hopefully at least.
Not too bad at all. My worst is about 7 hits a day but there are people that have 14 or more.
-
1
-
Hippy Holidaze ya'll
in General Board
Posted
Happy Holidays!