xBoss
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Posts
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Days Won
23
Posts posted by xBoss
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On 9/4/2021 at 2:12 PM, Bejeeber said:
even for ultra consistent decades on end, then suddenly out of nowhere when you least expect it, pull the old switcheroo on you. This can even go for which side you get hit on.
Dear lord, switching sides sounds terrible. Part of handling the intense pain is being super used to it!
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Hey Bosco, sorry that you have joined our club but welcome! You seem like a cool cat, you will get along fine here.
You got this, a great place to be. It's a mental game, stay strong, I'm on year 23 after they hit when I was 27.
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I feel you Brad, busting is not working for me as well and I'm nearing day 100 on this cycle. Are you chronic or episodic? I'm hoping the end of this episode is close for us both! Hot soaks in the tub have been able to abort some of the attacks. Have you tried oxygen yet? Hang in there man, I'm trying to find some L to see if I can get a bust going. We both might need to look into D3.
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12 hours ago, jon019 said:
...mine a bell curve with slow ramp up...plateau...slow ramp down...and one last blaster at the end. considered myself fortunate in that i knew the "pattern" so could make plans for battling or getting on with life. whether this is his pattern or not only experience will tell...tho interrupting that with a preventive (busting, D3, verapamil) certainly worth the effort....
Same here. I find myself saying wow I'm getting off easy with these clusters for the first couple few weeks then it really gets bad. Tapers down in the end. Today I only had one attack that was about a seven. Working on day 70ish of hopefully no longer than 90. Glad it's getting better for him Paula!
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2 hours ago, jon019 said:
.....seems countintuitive ...N20 described as a "potent cerbral vasoldilator" which is just the opposite of what we want. would seem similar to nitroglycerine which can be used diagnostically to precipitate a CH hit....
...on the other hand....thc is discussed on every CH board i've ever been on.... and while it too is a potent vasodilator, there are folks who swear by its use. though i do not recall as an abortive (yikes, smoking tobacco for me during a hit was damn near suicide)...
....can only wildly speculate that vasodilation throughout body might reduce the pressure on the trigeminal nerve....but this is way beyond my knowing....
Yeah, cigs are horrible, they magnify the pain so much. weed doesn't help me much but it usually doesn't make it worse, sometimes maybe a little bit. O2 never worked for me but I never got it flowing enough. N2O is such a good temp pain killer that it has me wondering. Time to make some whipped cream. :p
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I love nitrous. Going to grab some whippets today and see if they can abort an attack. Probably have not done one since before I had CH which was 22 years ago!
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10 hours ago, Bejeeber said:
Yikes you guys, udderly nightmarish on both accounts.
@xBoss, when you got kicked out of remission, would this have been at a point in the cycle where alcohol consumption was still safe enough, but (confirming worst fears
) the epi packed that much more of a trigger punch?
Yeah, I was drinking beers and way out of cycle and I got hit hard after a dentist visit then busted it and got hit hard again after the next visit five weeks later. They were both extractions of molars and had tons of drugs put into my jaw. I now ask for low epi since they love the stuff for blood control and don't really want to go without it.
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I got kicked out of remission when I had a tooth extracted and blame the epi.
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I was getting hit just before the shot. Now I'm stuck in an unbustable state for the first time but the odds were against me. Probably not tied together but you never know.
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Nice, what is that Virginia?
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Hey all,
It's been pretty good for the last few years but I have a cycle trying to ramp up. Last night I got to about a level 6 of a full blown attack. Dosing as soon as this tea cools off.
I used my wifes albuterol inhaler a few times last week because I was smoking some cruddy weed. I wonder if the albuterol triggered this mess?
At any rate, time to slay this beast! GL warriors!
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I tried to microdose. It just didn't work for me. I prefer the megadose! :p
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I dose all the time (about 15 times a year) and besides a dentist trip triggering I have skipped three solid years of cycles and counting.
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I have six cats and magic on my side! Keep up the good fight my friends!
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I got married on 12/21
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Tinnitus club member here. I feel like it got worse from busting but maybe worse from CH. No rona yet...
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Keep tabs on those randoms. There was a trigger that made them happen. If you can ID the triggers you can avoid the random CH and then get to work on the episodes.
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4 hours ago, spiny said:
Excellent short video Tony!!!! I identified with it directly too.
I love that it is short and therefore more people will actually watch it!!
When it showed her on oxygen with tears coming down her left eye my left eye dropped a tear!
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Ah man that video hit home with the up all night CH after falling asleep bit. That one nearly crushed me.
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Hang in there brother.
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Hey Marlon. Welcome! I'm 49 and mine started when I was 27 and I also thought they were migraines or something since prior to that I never knew what a headache was except for maybe a hangover. Anyway, once per three years is not too bad! I'm once a year and this place has had me in remission for three years now! Hang in there and read up all the good info. You are in good company.
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I love it when a plan comes together! TY!
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So glad the research is back on after a 50 years ban or whatever it was.
Cry for help - 12 year sufferer
in General Board
Posted
Try out busting. Sorry it's been a mess for you. It's been a mess lately for many of us. GL!