[Has anyone completely stopped their cycles?]

I dose all the time (about 15 times a year) and besides a dentist trip triggering I have skipped three solid years of cycles and counting. 

[just wanted to say hello again after 18 months pain free *laugh cry*]

I have six cats and magic on my side! Keep up the good fight my friends!

[Happy Solstice ya'll!]

I got married on 12/21

[Cluster Headache Tinnitis after Covid]

Tinnitus club member here. I feel like it got worse from busting but maybe worse from CH. No rona yet... 

[I'm not alone?]

Keep tabs on those randoms. There was a trigger that made them happen. If you can ID the triggers you can avoid the random CH and then get to work on the episodes. 

[A short story about cluster "suicide" headaches]

4 hours ago, spiny said:

Excellent short video Tony!!!! I identified with it directly too.

I love that it is short and therefore more people will actually watch it!! 

When it showed her on oxygen with tears coming down her left eye my left eye dropped a tear!

[A short story about cluster "suicide" headaches]

Ah man that video hit home with the up all night CH after falling asleep bit. That one nearly crushed me.

[Clusters making me restless, angry and causing problems with family.]

Hang in there brother. 

[I am new here]

Hey Marlon. Welcome! I'm 49 and mine started when I was 27 and I also thought they were migraines or something since prior to that I never knew what a headache was except for maybe a hangover. Anyway, once per three years is not too bad! I'm once a year and this place has had me in remission for three years now! Hang in there and read up all the good info. You are in good company.

[Headzup: High Dose Vitamin D Plus Multivitamin in the Prevention of Cluster Headache]

I love it when a plan comes together! TY!

["A scientific first: How psychedelics bind to key brain cell receptor"]

So glad the research is back on after a 50 years ban or whatever it was.

[Exploding head syndrome]

The only pattern I can think of is that it tends to happen more often when I am more in need of sleep or more tired I guess. Yeah, lately it makes me feel like the doorbell was ringing. Such a weird thing. Us clusterheads def. have some quirky issues so it's good to try and find correlations. My spectrum of nero type issues is CH, EHS, panic attacks, cold seizures, ringing in the ears, mild tremors in the hands.....

[My first share - My experience]

Welcome to the family. May your journey be awesome.

[Exploding head syndrome]

I get them. I cannot stand the instant jerk wake up with the feeling that I was not breathing. It always seems like it was loud but loud in a weird different way from normal loud. Hard to describe.

[Waiting on my 2nd cycle]

Year 23 here but life is better now. GL on your journey NRay, this is the best place to be!

[Fall is coming]

Yep, the fall is my time of year as well. Already been working on it.

[New Member -20 years of this- Pittsburgh]

Year 23 here. You are in good hands! Welcome to the bust club.

[IMPORTANT signs along the way]

I used to build websites for a living. It was too much screen time so I had to mostly retire. I wear high grade UV protected prescription sunglasses all day every day (see my avatar!). It seems to help with the light pain and discomfort.

My neck and shoulders are always messed up even though I beat the beast with busting. The TMJ does not help the situation.

I find certain sitting postures can be a trigger for me. Mostly a position like sitting up in bed watching tv or the couch can do it.

Side sleeper here, on my back I get anxiety from the gravity pulling on my lungs and the belly is a no go for comfort.

[Doctor says I have cluster headaches, I'm not quite sure]

It's going to take some more time and data to know for sure. Cluster headaches can vary in pain from not too bad to horrible. People in major pain can get hot and break into a sweat but not maintain a fever. I drip in sweat sometimes. Study a list of the major symptoms and keep tabs on it, in the case of cluster headaches you will know more than your doctor. All they can really do is listen to your words and make a diagnosis.

[A Cluster Headache Is]

If my house was not a house from 1940 and built like a tank I would have holes in the walls by now  Hang in there girl!

[Is your pain on the same side that you hold a phone?]

On 3/27/2020 at 8:01 PM, igdc said:

No. And non-ionizing radiation doesn't... ugh. No.

Doesn't what?

 

I'm not talking about radiation that causes cancer. It's a 100% fact that there is a huge field around cell phones. The brain is electrical, this is the same priciple as gammacore.

[Is your pain on the same side that you hold a phone?]

I was curious because I am a left hander and I hold the phone to my left side and that is where I get the pain. My clusters also started around the time of cell phones back in 1998. I can also feel the EMF coming from cell phones and they make my face and hands buzz if I am on a long call. I know clusters have existed before cell phne usage but I wonder if they are able to help trigger them.

[Longest possible period of maximum suffering?]

I reached new tens last year and had to slide my scale. Most of them used to be 20-60 minutes but they have gone three hours+ in recent times. You def. wonder if it will ever end past the three hour mark. The good news is that busting is working. Hang in there!

[Is this really cluster headache?]

Not all CH's are max pain kip 10's. This last cycle I am working out only had a few horrible ones, the rest were more like level 8's

 

GL! And hang in there.

[o2 noob help please]

1 hour ago, Brain on fire said:

@xBoss stop that! Pleeeeze?

Hoping it was a horrible slapback. I took some MM yesterday and got hit about 4 hours after it wore off. Fingers crossed for tonight. They all happen from 11PM to 6AM. How you doing?