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SoCalCH

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Posts posted by SoCalCH

    New cycle, new hope

    in General Board

    Posted

    Hi all,

    Been awhile. Had almost 7 months PF after my last cycle, which was the longest I ever suffered through. Towards the end of my last cycle I finally gave Verapamil a try. Wasn't sure to what extent it was working, as my cycle was winding down. I was also using Gabapentin before bed, as most of my attacks are at night, which seemed to help but, again, cycle was winding down. 

    Got my first, minor, attack a couple of weeks ago and immediately ceased alcohol intake and started the Verapamil (120mg IR 3x day) and Gabapentin (300mg nighttime). Since then I have had only minor pain and have been able to exercise (2nd biggest trigger behind alcohol). 

    I've never seen this combination discussed, so I figured I'd share. Of course, your mileage may vary.

    Best wishes to all of you. 

    • Like 2

    Long cycle, bad day

    in General Board

    Posted

    My acute treatment is o2 and caffeine as need be. Today neither has worked to do anything but temporarily reduce the pain. I've had little success in busting to break my cycle, though I've tried many times. Helps prolong remission for me though. 

    I'm thinking about maybe just one HBWR seed to abort.

    Long cycle, bad day

    in General Board

    Posted

    This has been the longest cycle I can remember having, coming up on 3 months. Over the last week I have had a number of pain free days interspersed with some mild/moderate pain. Last night I got two hits, both on the milder side. Woke up this morning with some mild cluster pain that I couldn't quite kick. This eventually turned into a very painful attack. It will not fully subside despite my best efforts. I've been awake for ~7 hours and have not had one PF moment. Even when the pain goes down its above shadow level. What gives?

    Baclofen

    in General Board

    Posted

    Update on this in case it ever helps anyone. After taking baclofen for a couple nights I actually got a few pain free nights without any form of medication. Two nights ago I was back to my usual number of hits which I attribute to using some cannabis before bed. Last night I again used 20mg baclofen and slept for 11 hours pain free. Woke up with very minor headache aborted in ~5-10 minutes with oxygen and energy drink. Likely will use the baclofen through the weekend and try to go without starting Sunday night to see if I can get back to PF with no drugs. 

    • Like 3

    Clusters making me restless, angry and causing problems with family.

    in General Board

    Posted

    @mikeh2017 At the risk of beating a dead horse, you 100% must get oxygen. It is the only thing that, for me, makes this curse manageable. I hope you're keeping your head up today and enjoying whatever pain free time you have. That's really the only way in which I feel I'm winning the battle.

    As for your original question I just try to immune my wife and family as much as possible. That becomes more doable with an effective abortive. Doesn't hurt that my attacks are nearly all while my wife sleeps.

    Best of luck and keep coming back. 

    • Like 1

    Baclofen

    in General Board

    Posted

    Took some Baclofen a couple nights ago for neck tightness and noticed that my nighttime hits were less severe and more easily done away with. Some were gone by the time I walked from my bedroom to my office where I keep my oxygen set up. Last night I took 20 mgs Baclofen before bed and slept through the night for the first time since my cycle started (other than busting nights). Has anyone else here tried/had any success with Baclofen? I see at least one small study that showed results. 

    Becoming unmanagable

    in General Board

    Posted

    On 4/30/2019 at 2:21 PM, Zookah said:

    Thank you all for your help im getting the o2 today and i got my vitamin d tested my doctor is advising against starting this d3 regimen but im going to go ahead and start it anyway because it isnt defecient but its not in the high end of the spectrum either. Thank you all so much for the help and advice, ive gone through 10 shots of my sumatriptan in the last 10 days and have been very depressed. If i werent for you guys and a glimmer of hope you gave me i probably wouldn't be here. Just wanted to thank you and also thank Batch for reaching out to me when nobody else would. 

    Get off the sumatriptan ASAP. Most believe, as do I, that while providing short term relief, it makes things much worse. The O2 is a godsend. There are other things out there that many have found help, at least according to my research. If you can't try MMs or the seeds you may want to go that route. Good luck. 

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