ClusterSwarm got a reaction from Freud in This helped me- hopefully will help others
It seems like a loaded question. Simple answer is, you don’t need to bust anything if they don’t happen. The same way fat people can’t stick with the diet to lose weight is the same exact thing that I’ve noticed about cluster headache victims. They just can’t stick to a diet and I damn sure can’t give up fixes that they know in the long term is going to hurt him re-read my thread that I reposted
ClusterSwarm reacted to SHG in This helped me- hopefully will help others
Guys, I think there are some important things that needs to be said here.
First, histamine IS a trigger for CH, and in many cases foods high in histamine also contain other triggering agents. This includes all aged, preserved, smoked, cured, pickled and fermented foods and drinks, that are also rich in tyramine.
Of course, this does not necessarily mean that a law histamine diet will make a noticeable change for many, but some may benefit. It won't help too many people because (a) histamine is only one common trigger out of many and (b) food is hardly the only source of histamine. Histamine is not only consumed but mostly manufactured in the body, especially during CH attacks.
Benadryl is beneficial for some people as a short-term preventative, because it inhibits H1 receptors in the brain. It's also useful to prevent Vitamin D depletion due to allergic reaction, which is crucial for the D3 regimen in some people.
So, not a cure and not for everybody, but Benadryl and low histamine diet may help some people.
ClusterSwarm reacted to Brain on fire in This helped me- hopefully will help others
That was my point. Always good to eat healthy. It would be nice (in some ways) if we could 'undo' & start over. However, to do so we'd need an isolated island for a few centuries. I'm all for if it works, doesn't hurt/endanger anyone else & doesn't kill you... Do it & please be sure to share it!
ClusterSwarm reacted to Dana129 in This helped me- hopefully will help others
I’m glad ur doing well, but be vigilant, the truth is it is not a cure, just a preventative. Not even shrooms are a cure, clusters can change at any given time for whatever reason and break through whatever treatment you are using...now that you have your clusters under control, definitely would be worth while doing the d3 regimen along with preventiative busting (if busting is something u are prepared to do, probably worth it IMO)
ClusterSwarm got a reaction from CHfather in This helped me- hopefully will help others
First off I want to say that I want to thank you all. For years I’ve been trolling your forum and I have used so many of your tips and methods. Thank you
I think it would be best to start out with how we got here so stick with my. Btw I’m no writer so please don’t be to hard on me.
Im 40 years old and I have suffered with clusters since I was 14-15 years old. My family sent me to the best doctors money could buy. All the medical industry could offer me was drugs. I’m sure all of you know the story with primary care physicians .
Truth be told I’ve tried everything. When I say that I mean it. I’ve eaten or injected so much meds and drugs that about ten years ago it started to ware on my health. Then I found forums and found oxygen. The oxygen saved my life literally. I get emotional just thinking about it .
After years of trial and error with food and vitamins I saw on one of your forums some people were using Benadryl. You guys No the drill as soon as you see another would be cure of course the first thing you do is stop at the store pick it up and take it that night as soon as the monster comes. This was about two years ago.
One thing I want to say is that I am no doctor I’m a mechanic. Once I read that people were using Benadryl and getting some relief I started to really dig deep into histamines and the more I read about it the more I realize that some foods and some drinks are toxic. Not toxic in a way that you eat it or drink it and you immediately get sick but toxic in a way that overtime you could have an adverse effect on your health.
So I did a search and I studied for weeks what foods contain histamines that are bad for humans and any of you can do a simple search and find the same and one of the main things that I used to use to help with the pain from my cluster especially the day after was coffee or tea. As soon as I cut out Coffee And tea ie caffeine With a full list of histamine rich foods like sausage sandwich meat and things of that nature I noticed an immediate difference I was beginning a cluster cycle and normally my cycles are from 1 1/2 to 3 months I was into my first week and after about 5 to 7 days my cluster is faded away.
Please don’t get me wrong I’m in no way saying that this will work for everyone all I can tell you is I haven’t had a break since I was about 15 years old and now I’ve gone for almost 2 1/2 years with no problem .
When you try what I did don’t be tempted after a couple days to give up and go straight back because your headaches don’t go away right away things that are toxic in your bloodstream take some time to get out so give it a week or two what if you got to lose.
I really hope this helps somebody because cluster headaches are no joke I can’t tell you how many times I thought about ending my life. Thanks for listening