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Posts posted by 81007

  1. I think I had the COVID-19 disease. I have been coughing for 46 days. I believe I caught it on a flight back from the UK. I arrived back in the USA on 16 February and started coughing the evening of the 18th of February. I was tested on the 19th of March by the National Guard using a nasal swab.

    The test came back NEGATIVE. I have had a severe cough now for 46 days. I think I had the virus and had shed by the time I was tested.

    I have spent most of the last 46 days in bed as the cough lessens when you lie down.

  2. I think dragon is right about a parasitical cause. I will post the results when the lab tests come back. I just pray that is not an unknown virus.

    Just remember the first airplane flew in 1903. Penicillin did not come about until 1929.

    Disclaimer: I maybe wrong about the hypothetical causative agent. I am not a doctor of medicine.

  3. On 1/13/2020 at 11:34 AM, CJW said:

    81007 has asked have you ever been around cats? why? I have no idea, but in an earlier post I have asked for a spreadsheet, excel format we can all ask any question under the sun, with all questions and answers being unanimous. my goal is to see any and all outrageous questions may be statistically tallied. I have seen the other apps for which are not on this site and are not followed as close as all other post here. I too believe my condition was caused my head trauma many years ago. you brake a leg and incur some sort of nerve damage the problem remains in the effected area. still a firm believer there is a common cause for all.

    nobism site is nice for all that technical data, I'm thinking more of the outrages or common Q and A. sorry if I'm beating a dead horse. PK (post killer) :rolleyes: cya.

    I ask because I never had cluster headaches until I was around some barn cats. Particulary a feral cat. These cats are well known for harboring the parasite "toxoplasmo gondii" and this parasite is known for causing headaches. This parasite is also found in soil, cows, sheep,etc.

    Forutunately most patients infected with T. Gondii are asymptomatic. Links below are to the suspected pathogen and various research efforts.




  4. It snowed last night. I woke up with the worst CH ever. I tried treating it with Indomethacin.No results from that medication. I tried 50mg sumatriptan and a 6mg injector. No results from that either. I ended up in the ER. Seems the weather changes are an EXTREME trigger.

  5. I had a remission of two months. I overdosed on folinic acid. I took ten capsules of 400 micrograms with 6 micrograms of B 12.

    I took them at 8PM and woke at 2AM to vomit. It got me two months of no CH's.

    Folinic acid is one medication of a toxoplasmosis treatment protocol. Folinic acid is the primary ingredient of Leucovorin.

    Toxoplasmosis treatment link below


  6. I have been chronic for over a year. I am now doing a trial of pyrimethamine, since I believe I am simply having arterial inflammation due a protozoan call toxoplasma gondii. Toxoplasma gondii is parasite transmitted mainly household cats. My hypothesis is that some CCH sufferers are having an inflammatory reaction to this parasite. Most humans are asymptomatic. This parasite can infect most mammals including farm animals such as sheep, cows, etc.

  7. I had a ketamine infusion for chronic cluster headache. The experience was quite pleasant. I had no real side effects. About 2 hours after the IV I had a pretty bad CH. I was under the impression a treatment would stop the headaches. The infusion lasted about an hour. Now I am finding out that for a remission to occur the treatment needs to last 4 days. Anybody on this forum receive this treatment?

  8. I cut my 100 milligram sumatriptan pills in half. I don't have rebound headaches, but I wait until it is a full blown attack before I take the pill. I don't think I could take not having any meds. I'm chronic with 3 attacks a day. Oxygen helps a lot.

  9. Well that is good news. I was hoping somebody was going to post a positive result from ketamine. I'm guessing you are using a nasal spray on only the side affected? I am considering get the intravenous infusion. Supposedly they don't want you to drive until the next day after the IV treatment. The theory is that the ketamine causes a "neuroplastic repair" to the brain. Seems there a few ketamine clinics opening up in Colorado with so many many veterans with PTSD being treated with ketamine. 

  10. Last year I sliced my hand open. Got six stitches. A couple times I almost burnt the house down, left food in the oven. With the CH's I tend to want to stay still as possible. I just got over of a CH the other day and was doing the laundry. When I opened the clothes dryer door, the heat made my head hurt again. I closed the door and went to lie down. I sometimes get a headache from going outside in the heat, I quickly rush back in the house. Southern Colorado is having a heatwave and is a desert , so it is very dry.

    So basically I find that being still keeps the pain to a minimum, while raging, shouting and moving about is counter productive. I fear collateral damage from the CH. I keep trying to explain to the local VA clinic that driving 300 miles round trip to get Sumatriptan from Denver is dangerous, but they really don't care. Military facilities in Colorado Springs refused me more Sumtriptan last week too. All my concerns seem to fall on deaf ears. And they all wonder why veterans commit suicide...


  11. I have an attack,  I take 100mg sumatriptan. Pain goes away for 6-12 hours. I wash the pill down with can of redbull and hyperventilate O2@15 lpm for 15 minutes. Usually stops the attack. 95% of the time...

    Verapamil had my blood pressure so low, I could not get out of a chair.

    No indomethacin yet.

    D3 does nothing.

    Got the mask.

    My guess is I have a case of acute chronic cluster headache that is extremely refractory. Usually 3 attacks a day.

    I seem to have lots of triggers. Smells, foods, weather, you name it, I probably have it. Processed foods seem the worst.

    I don't pace or fidget when I have CH. I lay down in the bed and try to stay calm. Moving about makes it worse.

    I asked for Emgality and got Ajovy. Doctor did not listen. 

    I am getting a new neurologist this month. Seen about 6 doctors over the last 3 years. Finally got a diagnosis April 2018.


  12. Hi DD,

               Yeah they are rationing 9 pills a month. I managed to get another doctor to give me Ajovy and sumatriptan injectors. I called TEVA pharmaceutical and they admitted Ajovy does not work for CH. Getting a new civilian doctor soon, if he can't get me the ketamine. I will go to a ketamine clinic.I have had three sinus surgeries and they did not help with the headaches. I was exposed to radioactive beryllium oxide in military service and it has been nothing but a big coverup since then. I have been considering treatment in Mexico as a very last resort. I saw a doctor in Mexico a few months ago and his fee was $8.

  13. As soon as I get a regular attack schedule, it seems to change. I use Red Bull to speed up the medication absorption rate. Usual protocol is 100mg sumatriptan succinate pill, 1 can of Red Bull chugged and hyperventilate oxygen for 15 minutes. I have tried MM the last few weeks and have managed to reduce the sumatriptan to 50mg. I was military and am now retired. But the VA and the military are being very stingy with the sumatriptan. The verapamil I was prescribed made me so weak I had a hard time getting out of a chair. Last night a CH seemed to go on forever. Finally stopped it with a Q-tip soaked in lidocaine stuffed up the nostril. Stopped it within a minute. Sometimes that doesn't work either.

    I am going to see if I can get a physician to put me on a treatment of ketamine intravenous to stop my chronic cluster headaches. I am reading good things about ketamine in a sub anesthetic dosage. Hypothesis is that it works by neuroplastic repair.

  14. The sumatriptan 6 milligram injectors only last me 2 hours, then the attack returns. The 100 milligram sumatriptan succinate pills keep the CH away for 6 to 12 hours. The injectors work really fast and abort the CH in 1 to 20 minutes. The pills take 20 minutes to an hour and a half to work. If i had to choose between the pills or shots, I'd take the pills. The relief is longer with the pills.

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