[Cluster headaches and ulcerative colitis]

I have both UC & I am CCH since 2012 - ask me any questions you have. And yes I have found stuff that helps. Nothing makes them go entirely away, but I have found ways to lower the intensity and number of attacks, and manage life with this condition. And my other health issues. Feel free to ask me anything.

 

 

[D3 Regimen and Upset Stomach]

I have ulcerative colitis, and food allergies. As a result I have found many alternative ways to get my Vitamins. For example, I had a lot of trouble getting my D to increase. What worked for me was irradiated baby bella or button mushrooms. (I take store bought mushrooms, spread them on a plate & let them get direct sunlight for about 20 minutes. I just open the window and put the plate on a shelf on my sill. It increases the vitamin D.) To “activate” my body to actually use the Vitamin D, my neurologist recommended in addition to supplements, that I use a light box in winter and actually sit in the sun in the summer. It helps. My vitamin D was 8.0 when I started and is almost 24.5 now.

For the magnesium: If I’m “D” I use a supplement that is a blend of different types of magnesium (life extension brand) if l’m “C” I use milk of magnesia. When in a flare I have to avoid the magnesium completely so I soak in epsom salt - it absorbs through the skin. But can be time consuming.

To get the rest, I often use sublingual or liquid vitamins, I use the lowest doses I can to minimize gut irritation. I also don’t take the all every day. Vitamin A was one that used to irritate me, so I alternated it every 2 days, then, I found a meal replacement shake (Spirutein) that didn’t aggravate me, and started to get some of my vitamins that way. 
 

If the vitamins don’t work, try whole food sources to get your nutrients.
Find a good health food store, it’s a great resource. 
You can try juicing fruits and veggies to get your nutrients too

Finally, if you figure out the vitamin or supplement that is aggravating your condition, post it, and ask for help or ideas. 
 

Good luck, I wish you pain-free days and rest-filled nights.

[Looking for Current or Former Clusterhead that experienced a near death situation.]

 I just found this thread while searching for something else. I can see it’s a bit old. I almost drowned at age 5. PM me if you want the whole story. 

[vyepti]

I was just offered this by my Neurologist, wondering if it helped you. I’m CCH. 

[Cluster Headache Awareness T Shirts]

Got 3, but, sad to say the sizes were way off. 

I’ll be donating all of them to goodwill. 

 

This was why I asked if they were true to size.

I ordered women’s 2x (size 18-20) and instead received a misses XXL (size 12-14)

fyi - XXL and 2x are not the same size.

XXL is a misses size meaning juniors/young adult sized.

Whereas 2x is a women’s plus size - a very big difference in sizes

The art work was nice though...sad I can’t wear either of my shirts.

Neither can my mom, I also ordered her a shirt

 

 

 

[Cluster Headache Awareness T Shirts]

Got mine: 2- “Lady suffering ” in Kelly and Navy, for me.

Same in grey for mom, my support person.

My sister is ordering one in pink.

 

Thanks for posting this Dallas Denny!

And many thanks to the artist!

[Cluster Headache Awareness T Shirts]

Thanks for the quick reply!

[Cluster Headache Awareness T Shirts]

I was wondering on the women’s shirt, are these relaxed or form fitting?

And are they true to size?