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Shaun brearley

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Posts posted by Shaun brearley

    OXYGEN NO LONGER WORKING?

    in General Board

    Posted

    2 hours ago, CHfather said:

    @DanP, it is commonly found that O2 is less effective when tanks have less oxygen in them.  This can happen when the tanks are as much as half full, and it seems to be very common at 1/3 full or less.  If you can vary the flow rate of your regulator, people say that increasing it as the tank becomes less full is one way to cope with this situation, before resorting to a new tank.  I hope this is the issue for you, since it's pretty easily fixable.

    Sorry @CHfatherforgot about tanks below a third being less affective 

    OXYGEN NO LONGER WORKING?

    in General Board

    Posted

    3 hours ago, DanP said:

    thanks for the replys! Hopefully last night was an anomaly and it will work as it normally does tonight.  Shaun- why do you say that triptans are a nightmare? I've heard that before, but they do work- at least for me- are the side effects really bad? I haven't noticed anything but have always been careful to not use more than once a day.

    @DanPit's great that your only using once a day. but temptation is always there to use more as the relief from the pain is so fast, triptans can cause really bad rebound attacks that can be alot worse than your initial attacks, plus triptans can prolong your cycle, you only need 2mg to abort with triptans so consider splitting your injection (easily done) I've been down the dark rabbit hole with triptans, I got to a state where I was using up to 5 injections a day, prolonged my cycle by around 3months with headbanging attack day and night, my body became so weak and after each injection I'd feel like I was going to have a heart attack, so please be really careful with them, don't get me wrong I still carry them with me if I out in public or go on holiday because it's not great to get an attack in public, but I never use them at home anymore I'd rather ride the pain if my O2 doesn't work but I'm lucky at present as O2 works for me, I do change my breathing techniques know and again, have you ever tried busting? And get on D3 ragime it really help alot of use 

    • Like 2

    New Member – Looking for Insights & Support

    in General Board

    Posted

    1 hour ago, Craigo said:

    Welcome, sorry you had to find us but glad you found CB. I had a chuckle at Shaun’s comment but I would agree we are a lovely but mad bunch. I am sure you’ll get the support you need here. I’d be another of the replies to encourage you to investigate the vitamin D3 anti-inflammatory regimen; has worked beautifully for me with eCH.

    @Craigoonly speaking the true my friend, we have to be mad to put up with this 

    New episode leading to preventative treatment

    in General Board

    Posted

    Hi @Subreally good that you have a neuro that understands CH, that's the first step and normal that's one of the hardest, as for verapamil really works well for chronic and episodic,but not for everyone, biggest problem with varap is the dosage needed to be affective for CH, with it being a blood pressure med it can cause serious damage ie heart block, really need to get on O2 life changer for most CH, as for samatriptain injections, just be careful can lead you down a horrible dark rabbit hole that really hard to get out of, have a look at the D3 vit ragime, again works for loads of us and your shadows may well respond to ginger, 

    • Like 3

    Taurine Dosage

    in General Board

    Posted

    3 hours ago, Bejeeber said:

    I guess I've just personally been clueless and totally missing out - gonna head straight to the garage and rummage behind boxes and stuff in hopes of making up for lost time.

    I'm with you bej, spiders for breakfast dinner and tea from know on!!!!!! 

    • Haha 2

    Home remedy

    in General Board

    Posted

    Fair play to you, I defo don't have sex on my mind when under attack but my just ask the wife to do me a favour next time I get an attack, 

    God if this takes off,us cluster heads will be known for being druggies and sex pest, can you imagine walking down the street getting an attack and just asking a stranger to jack you off, :lol:

    • Haha 1
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