Shaun brearley
-
Posts
1,022 -
Joined
-
Last visited
-
Days Won
80
Posts posted by Shaun brearley
-
-
@Bejeeberwouldn't have missed it buddy .
-
4
-
-
-
-
-
-
@xlrsdhi my friend . This community is going strong buddy has been for years . USA has conferences every year but due to covid had to go vitual for a couple of years . But last year in Chicago was an open conference , and this year's US conference is in Orlando. This May we are holding are first ever UK and European conference in Glasgow . Stick around my friend you will get a lot of help and support from people that have suffered with CH for years plus support from people who care for people with CH
-
2
-
-
On 3/21/2023 at 5:22 PM, BoscoPiko said:
Hi XLRSD,
Glad you found us! I believe some of the planned conferences were virtual due to the rona outbreak
@BoscoPikos--t did the US have a different virus than the rest of the world ,RONA virus
-
2
-
-
5 hours ago, Royster said:
Already booked, really looking forward to it, only been on this site 1 week and already learnt more than I have in 24years of having cch, I'm looking forward to meeting you all and hopefully getting a better quality of life, by following the breakthrough clusterbusters has given to many.
@Roysterhope to meet up my friend
-
1
-
-
1 hour ago, BoscoPiko said:
Lol no @Shaun brearleythats me planning the route to your place.. If I gotta fly in that thing your coming with me!!
@BoscoPikogreat save me driving . Mind you got to be fair only it is only 2 hours 39 mins away from my house
-
On 3/16/2023 at 1:17 AM, BoscoPiko said:
Lol Jeeb I'm only living bi-carisouly through Kat! I do have a renewed sense of hope due to her success though!
@BoscoPiko checking out her route to Glasgow Airport .
-
2
-
-
@BoscoPikoglad Abby doo is getting better
-
1
-
-
7 hours ago, BoscoPiko said:
it would be nice to learn what folks do immediately after a ringing in a effort to prevent an attack?
@BoscoPikoI normally turn my mobile off and unplug the landline phone .No more ringing
-
4
-
-
See @kat_92we can lead a normal life !!!!! No need to be scared of flying anymore you did it
-
3
-
1
-
-
4 hours ago, BoscoPiko said:
Don't worry @Shaun brearley,
He knows the drill. All he has to do is manage to not worry as there is nothing else he can do if I'm getting hit. I am hopeful that I caught the creeper in time! Fingers, toes and all crossable extremities crosses!
@BoscoPikoMine are crossed , I will even cross my eyes
for you
-
4
-
-
@BoscoPikoI feel sorry for your hubby . He know has 2 to look after !!!
-
1
-
-
Lol love ya @spiny
-
3
-
-
23 hours ago, spiny said:
Kat, my Neuro prescribed it for me about a decade ago. He handed me the script with 'Ask on your site how this works.' My reply was 'I'm 15 pounds underweight. Where is your trash can?'
@spinySee I was right when I mistakenly called you skinny a while ago !!!
-
4
-
-
We have the 2 little s--tbags sleeping with us at night . It's a fight every night for every inch of the bed
-
2
-
-
See told you @BoscoPiko
She looks great and with your tender love and care , I'm sure she will be up and about in no time
-
1
-
-
Hi @Jackie mielniczekplease get off the topamax b4 your body starts getting used to it . So hard to get off it , and as people have said it will do nothing for your headaches .It will make you lose loads of weight plus you will start getting mood swings, plus you start to forget things , your short term memory gets shot to bits . Plus you start to miss words out of sentences when your speaking to people . Horrible med !!!!! You really need to see a headache specialist, get a proper diagnoses. Then if you have CH the first thing you need to get is O2 simple as that .
Good luck keep us posted
-
6
-
-
She will be fine @BoscoPikoand just think she will have you and your hubby waiting at home to look after her post op . So all good
.Got to keep the banter going @BoscoPikoit keeps the world going round
Good luck toorrow with everything
-
3
-
-
37 minutes ago, spiny said:
Leave age out of it and get new glasses. LOL.
Lol I just picked up a new pair of glasses on Saturday. Verifocols f---ing nightmare , move your head slightly and you lose all sight , can't get used to them, optician said all you have to do is point your nose at what you want to look at. God something so simple you would think !!!!!! Well for me no not at all .
-
1
-
1
-
-
Have you lot ever thought , it may be us that's at fault . It may be an AGE thing . Just a thought
tech and old age don't go together
-
4
-
-
You do make me smile @BoscoPiko
-
2
-
Pics from 1st Annual UK/European Patient Conference
in Advocacy, Events and Conferences
Posted
What a lady !!!!!