BoscoPiko
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Posts posted by BoscoPiko
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Thanks you guys!
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On 1/31/2023 at 3:58 AM, spiny said:
Keep us posted Bosco!! Thinking of you two today.
Well we made it through! Abby Girl went in yesterday for surgery and we got to pick her up around 10ish today. Some good news is that they did not need to place a screw into the bone to hold the mesh in-place meaning she will not have to go under again in 6 weeks to have it removed. Tough times for sure but Miss Abby Doo is home! I know this may sound like small potatoes to some but Abby is 11 years young and these types of surgeries are complicated at that age. Like @Bejeebersaid "modern surgical advances" have proven to make me a happy momma. Yea I wont sleep well for a few months as we now live in the dining room but we will make due. The point of this surgery was not to extend her life but to make the BEST of the end. I chose at a young age to not have little ones but never could escape being a fur baby momma.
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10 minutes ago, Bejeeber said:
Have been wondering about this - completely understood how stressy McNerve-Wracking it has to be, but I bet it will be a really successful procedure, and it'll be a case where we end up being really thankful for modern surgical advances. Still expecting to see springtime 2023 photos here of your pup bounding around pain free and carefree.
Our Cluster Bunny is like some kind of sociopath in that way.
Without reservation I'm sure I can speak for a whole gnarly load of clusterheads here when I say the same back atcha, double!
Thanks Jeeb. You all are the best.
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Well I have to say that all of you lift my spirts! I love the light hearted banter and mild jabs at one another. You all make my day each and every time I'm on here. I was speaking to my husband the other night and said to him that if all of social media worked like this site we would be golden. My pup goes in tomorrow morning for surgery and I am sick with worry. It's so nice to know that I have all of you! Of course my shadows chose to kick in big time today when I had to play hostess but .God willing I made it through. You all are the best thing that has happened to me in a long time. I appreciate you all very very much!
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9 minutes ago, jon019 said:
...no spit....there's a bug!!...i just lost another entire post here.
....and smartphone autocorrect comes from the devil's fingertips in my experience
Well at least I know it's not just my phone
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11 hours ago, Shaun brearley said:
You do make me smile @BoscoPiko
LOL @Shaun brearley it's real I swear! Just like all my auto correct typos
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Well I suppose it's a small problem to have in the scheme of things
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Seriously! It acts ok if not quoting but otherwise a serious irritation!
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Just wondering if I am the only one experiencing problems when trying to respond to a thread with my phone? When I try and respond, it lets me type a few words and then highlights the thread I am responding to and if I try and move forward it deletes the continent I am responding to? If I try and get past this issue it creates a huge blank space below my response as if I have hit the space bar a bunch of times? Is this just an isolated issue with my phone? Or is anyone else experiencing this?
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On 1/25/2023 at 11:43 PM, Jusnobody said:
jus nobody
Naw. Everyone on here is a SOMBODY. Tell all us what you do to mitigate your CH and what has been offered you to do as such. You may find yourself kindly surprised at all this community has to offer.
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1 minute ago, Darren said:
it would probably be good to track the maintenance doses, and remission time, etc.
Nothing wrong with doing as such and in fact it can be therapeutically beneficial. Seriously, it's high time for a cluster head to develop something usable by us thunder bunnies! Keep on keeping on!
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4 hours ago, jon019 said:
positive response to the question: " have you thought/considered/contemplated suicide?"
I so understand how this could be a favorite as I have a hard time believing that there is a Cluster Head out there that hasn't had this awful thought plague there mind. Sometimes it's hard (especially in the beginning) to imagine living forever this way. As for tracking meds and attacks, I initially used my outlook email calendar. I still shake my head when looking back and seeing my loggings of migraine. I no longer track the attacks as they have continued to morph, making tracking somewhat silly. There is something to be said about a diligent documenter and has proven helpful for some in the past. I now focus on things like supplement packaging, dosing levels and odd happenstances like warning signs as well as the last time I ingested something outside of pharma. Excel is a great tool as you can easily auto sum or create neat formulas like (cell such and such equals this or that). Now days I try and pre-package everything from morning intake, evening intake and for fuc8ks sake intake. It just makes my life a bit easier being able to grab a baggie although I do get the odd looks at Michael's craft store when buying out the small sized drug looking baggies...
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6 minutes ago, kat_92 said:
I don’t understand how a doctor can tell you to come off vitamins
No money Kat. Awful but as simple as that..
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I saw this post a bit ago and wanted to respond but I was on a tight schedule. First and foremost I couldn't agree more with @Bejeeber with regard to a second opinion from a headache specialist (headache specialist clinic). I was told.. when all this kill joy happened, that I was going to be allowed to see a headache specialist that turned out to be nothing more than a practicing nurse under a neuro. (Not down playing the wonderful nurses in our healthcare system) however the information I received was entirely migraine oriented (find a dark room, get a cold cloth, try to sleep (um can't happen during a hit) blah blah). My initial diagnosis was also migraine and I used to even log them as such on my calendar. I suppose I got lucky after tossing Doctor after Doctor out and being allowed to see a neuro that had a small clue. One thing I will never forget is the fact that he had seen my chart and told me as much but then asked me to tell him in my words what was going on and what I felt like when receiving a hit. I was almost stunned into silence but then everything came out like a flood. His response was " I can see (video appointment) that you are terrified to experience this again and I have no doubt this is CH. I felt relived that finally someone knew this was not migraine but at the same time devastated that I was afflicted with something so awful. I was lucky to get diagnosed after a year and change. Many wait years and years. Don't stop being an advocate for your self. I am a bit stunned that this gal, after your description still wanted to chalk all to migraine. My only question is the 12 to 24hrs. that you mentioned and somewhat makes me think it maybe this could be another awful form of head attack? Either way I sure hope you continue to PUSH. We know us best and I'm so sorry for your pain.
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You know... You @CHfather have helped so many (my self included) on here, I think you get a full pass with PJ wearing, a bit of weight gaining and aging to boot as well! I couldn't re-pay you for all the words I have had the chance to noodle on. Good Man indeed you are. Thanks for being you!
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32 minutes ago, Bejeeber said:
JoBo.
Ok Jeeb.. This bit reminded me of pulling a shaunjeeber!
41 minutes ago, jon019 said:and i have no recall of anything i said....
This too has happened to me bud. After all was said and done I strangely got kudos for sealing a deal that I remembered noda about. Was later told that I spoke to the trades involved in the project along with current economic escalation impact.. Maybe God has a soft spot for us.. I sure like to believe as much.
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4 hours ago, jon019 said:
..yeah....he's wrong!
Got to love a straight shooter
I completely agree with @jon019 on this one.
11 hours ago, kat_92 said:They claimed, it is better worth it to try sumatriptan before trying any kinds of shrooms or lsd.
This bit just makes me wonder about the influence being interjected on this individual. Seems that it could be a Dr. that disagrees with alternative medicine or even a family member that is unsettled by the thought of medicating with alternative (non-pharma) meds. Either way, my personal experience with triptans was awful. Sure, I got a good 20 to 30 minutes or so of reprieve from the use of the nasal sumatriptan and sometimes with maxalt as well. In the end what sealed the deal with me on triptans was a slowly ramping up cycle where I had believed my neuro that said I absolutely must take the medication at the slightest hint of an attack (I believe this to be true for migraine not so much CH). About a year ago, I did just that and experienced the looongest, worst hit filled cycle of my entire CH career! I hadn't understood the way my CH worked at the time and thought even one spike meant the end of the world as I knew it. Turns out that sometimes I get random spikes then nothing for months after. Since ditching the triptans (knock on wood) I have never experienced anything of that sort again. Do I still keep a few nasal sprays in my purse.. Yep I sure do because if I'm in a critical client meeting where I could stand to loos a project for the company I could use 30 minutes to buy me a close and am willing to suffer to keep the ball rolling at the firm. Anyhow I felt compelled to respond to this as my experience with triptans was so bad that I have road out many a hit without them for the simple fact that I knew in the end I would be better off for it.
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1 hour ago, Glenn said:
Point is, though, might be best not to go off verapamil.
These types of reports scare me. I wonder what your dosage was prior to increasing to 480 and what type of verapamil (ER or RR)? I am assuming you were on a lower dose prior with the "increased" wording in your message. Anyhow, I am happy you are finding relief at 480 which is where I am at. So glad you also got O2 as it really can be a game changer for so many. I struggle with the O2 and get "hit and miss" results but any score is better than none and most of my unsuccessful aborts happen when I was unable to get to the O2 quick enough. Since you got your 02 today, keep in mind that you will be in need of a non re-breather mask along with a regulator that allows at a minimum of 15-25 LPM flow rate which can be easily purchased online.
2 hours ago, Glenn said:I can hardly wait for my next headache, to see how it works! Not.
This made me laugh. Sorry I tend to appreciate humor of this sort. I may be demented in that way but blame God.. He made me this way..
2 hours ago, Glenn said:I had thought, why not -- hadn't had a cluster in years!
Jelly over this comment but do need to preach the D3 regimen which has kept me doing quite well for some time now. You can read about it on here by using the search bar. Wishing you the best!!
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3 hours ago, jon019 said:
...ok...i walked 5-16 mi/dy which felt great, not sure if any effect on CH. maintaining a consistent sleep routine, actually any routine, was very important for me....
I don't think the walking has any real effect on CH as far as prevention with the exception of a short term abort/reprieve. On some of my super long 3-4hr. attacks I will take a swift walk to get a little "banger break" but they always come back as soon as I sit down and relax for more than a minute or so. Consistent sleep is a biggie for me, interrupted schedule always has me shadowing super bad the morning after. Anyhow.. two cents for what it's worth.
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17 minutes ago, Bejeeber said:
She does look sexy with that shaved leg and stocking lol.
That's just what I was thinking! Naked leg an all! Oh and the bump Is like a strawberry (cherry is too much..).. Your the best Jeeb!
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First I need to say....Thanks to all my cluster head buddies for responding to my rant. Today was so stressful in that I had worked so hard to ensure a one and done visit but that didn't happen. I had contacted the surgery center one day after the appointment for todays surgery that had been set and asked about the fact that she was 8 days into the antibiotics for a UTI and had expressed that I wanted to know if it could in any way effect her ability for surgery. Was told no and to just get her in. I did bring her in at 10 am today only to receive the information that she needed to be tested for any infection prior to being released/approved for surgery so I was bummed as I specifically tried to avoid this hurdle. She is now home with a cast and shaved hind leg, urinalysis that is being processed and a completed ultrasound that shows a severed tendon that will need a wire mesh implant to be fixed. I suppose this is no biggie if your not an animal momma. We fasted her since 8pm last night and fully expected a surgery to fix her up today so to say the least we are bummed/disappointed in ourselves for not doing better for her. I fully understand that with this post not being CH related It may not warrant much response and that's ok as this is just me unwinding and needing to vent.
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20 hours ago, Alicia Clusterhead said:
but if I can keep cheese in my life while keeping the headaches out
LOL I have to admit that this bit made me laugh. I am a lover of all things cheese as well. I think the nixing of dairy is legit to a degree, but I have been on the D reg for quite some time with wonderful results and I have not cut the cheese (pun intended)
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3 hours ago, kat_92 said:
insurance isn’t covering the nasal spray. $1,300 out of pocket I told them where to shove it
This is just rubbish and so frustrating! So sorry you are dealing with this. I have your old meds that you accidentally left behind during your previous visit. I can get them back to you if you would like?
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8 minutes ago, Bejeeber said:
but the inhaler form was terrifically effective for inducing vomiting.
LOL Jeeb only you can put a spin on something awful and make if funny....
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Issues Responding With Mobile
in General Board
Posted
Hey @spiny, yes the harness is a huge help!
You know it! That girl wont budge and sleeps sideways
Oh how I wish it was a real bed... We are currently sleeping in the dining room on a bunch of mattress toppers
Our house was built in the 80's when it was cool to have a drop down into the living room which is a no-go at the moment for Abby. I feel like I just spent the night camping in a poorly scouted spot atop a bunch of rocks!