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bye bye snake oil bullshit. I'm so happy seeing this unit failing badly and people realizing it fully.

That's beautifully written and of course very tough to read. I'm sure everyone here can relate. You're not asking, but if I had to give you advice for what to do on a very limited budget I would suggest starting the vitamin D3 regimen right away. I suppose the initial cost might not be low, and the monthly cost might be close to that gym membership, but I'd expect you to get pretty good results from it, as most people with CH have (including people with chronic CH). I'll list the ingredients at the end. You can read more about it here: https://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 I'd also suggest considering busting with rivea corymbosa (RC) seeds. You can buy the supply you need for under $20. Read about busting in the numbered files in the ClusterBuster Files section. RC seeds are covered in the file on LSA. Supplements in the D3 regimen: > Vitamin D3 (Cholecalciferol) 10,000 IU/day (Adjust as needed to keep serum 25(OH)D near 80 ng/mL) > Omega 3 Fish Oil 1000 to 2400 mg/day (Minimum of EPA 360 mg/day, DHA 240 mg/day) > Calcium * 220 to 500 mg/day > Magnesium 400 - 800 mg/day (magnesium chloride, glycinate or oxide) > Vitamin K2 (MK-4 & MK-7) MK-4 1000 mcg/day, MK-7 200 mcg/day (MK-7 preferred due to half-life) > Vitamin A (Retinol) * 900 mcg (3,000 IU) for men, 700 mcg (2,333 IU) for women (Maximum Dose) > Vitamin B 50 ** 3 month course, after that, the 7 B vitamins in the Mature Multi will be sufficient > Zinc * 10 mg/day > Boron * 1 mg/day minimum, 3 mg/day optimum * Included in the Kirkland brand Mature Multi in sufficient quantity ** Vitamin B 50 is a single pill formulated with the seven B vitamins plus 400 mcg of folic acid. Dr. Stasha Gominak, MD, a neurologist at ETMC, Tyler, TX, suggests a 3-month course of vitamin B 50 to address any deficiencies among the seven B vitamins. The anti-inflammatory regimen can be used by itself or as an adjuvant therapy along with the Standards of Care recommended treatments for CH

I tried Gammacore for a month for $498.00 (yes, it's $498.00 per month and it shuts off by itself on the last day and insurance will not pay). I found the device to be totally useless. I consider it as over-priced snake oil. I am chronic, but I don't think that would matter. I find that sumatriptan injections and oxygen are the only abortives that work for me. Nothing works as a prophylactic for me and I've tried nearly every med that you can think of. Sorry if I burst your bubble.

Batch's whole document is here: https://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708. At the bottom of page 2 is the table showing the ingredients, which I can't/don't know how to insert here, but is a lot easier to read. Of course, you should read the whole document. I'm going to quote some core things from pages 2, 5, and 6, but I'm not saying I'm not leaving out anything important! These quoted sections do not include the "loading" process to quickly ramp up D levels, which is described beginning at the bottom of page 7. Page 2: Anti-Inflammatory Regimen. The suggested nutrients and their doses used in the Anti-Inflammatory Regimen for adults are shown in Table 1 and Figure 2 below. Children with CH should receive a vitamin D3 dose of 50 IU per pound of body weight. The other nutrients and supplements should be taken at RDA for the appropriate age group. > Vitamin D3 (Cholecalciferol) 10,000 IU/day (Adjust as needed to keep serum 25(OH)D near 80 ng/mL) > Omega 3 Fish Oil 1000 to 2400 mg/day (Minimum of EPA 360 mg/day, DHA 240 mg/day) > Calcium * 220 to 500 mg/day > Magnesium 400 - 800 mg/day (magnesium chloride, glycinate or oxide) > Vitamin K2 (MK-4 & MK-7) MK-4 1000 mcg/day, MK-7 200 mcg/day (MK-7 preferred due to half-life) > Vitamin A (Retinol) * 900 mcg (3,000 IU) for men, 700 mcg (2,333 IU) for women (Maximum Dose) > Vitamin B 50 ** 3 month course, after that, the 7 B vitamins in the Mature Multi will be sufficient > Zinc * 10 mg/day > Boron * 1 mg/day minimum, 3 mg/day optimum * Included in the Kirkland brand Mature Multi in sufficient quantity ** Vitamin B 50 is a single pill formulated with the seven B vitamins plus 400 mcg of folic acid. Dr. Stasha Gominak, MD, a neurologist at ETMC, Tyler, TX, suggests a 3-month course of vitamin B 50 to address any deficiencies among the seven B vitamins. The anti-inflammatory regimen can be used by itself or as an adjuvant therapy along with the Standards of Care recommended treatments for CH Page 5. Order the following lab tests to establish a baseline before starting the anti-inflammatory regimen: o 25-Hydroxyvitamin D3 [25(OH)D3]. CPT Code 82306. Quest Diagnostics Test Name: 92888- QuestAssureD 25-OH Vitamin D (Total), LC/MS/MS. 95% of CHers with active bouts of cluster headache will have a 25(OH)D serum concentration ≤ 47 ng/mL, (117.2 nmol/L). Any 25(OH)D serum concentration < 50 ng/mL, (125 nmol/L) is grounds for starting this regimen. o Vitamin B12 (Cobalamin). CPT Code 82607 o Parathyroid Hormone (PTH) Intact and Total Calcium. CPT codes 83970, 82310. Establish baseline. o CBC (w/ Differential and Platelets). CPT Code 85025. (Abs) Eos >350 indicates possible allergy o Eosinophil Count, Nasal. CPT Code 89190 o Lab results for Erythrocyte Sedimentation Rate (ESR) CPT Code 85652, C-Reactive Protein (CRP) CPT Code 86140 and plasma viscosity may prove useful if inflammation is suspected Page 6. 50 mg/day (25 mg twice a day or 50 mg at bed time) Benadryl plus additional vitamin D3 up to 50,000 IU/day may be required to maintain a CH pain free response during periods of high pollen count resulting in an allergic reaction. Caution patient that Benadryl (Diphenhydramine hydrochloride) can and will cause drowsiness and not to drive when taking it if at all possible. Some CHers have reported that 12.5 mg Children’s Allergy Relief Liquid Benadryl taken twice a day is also very effective with less drowsiness.

YES!!! I have had this problem WAYYYY too many times to count...I got so upset about their bullshit "paperwork first" method of care that I leased my tank ($120/yr and I KEEP IT ALL THE TIME, even out of cycle...it costs me $120/yr to keep it in my basement (where it's been unattended for almost 4 years) Lo-and behold! They hit again and I have 02...totally worth the $500 to me...the beast can kiss my butt. I do that to avoid the nonsense you are going thru...however, my O2 supplier has sold the business and now the shit-show starts again with these people and their useless (to me) knowledge base and rafts of scripts and paperwork. It's nice that I still have some O2 in the monster M tank so I have time to deal with these clueless people who don't have a shmick of an idea what I (We) go through. I have no patience for the medical mafia anymore. They're as much use to me as a hat for a headless horseman. I've discovered in my 25 yrs that I must NEVER wait for onset and once I get something in place, NEVER let it lapse. I feel your pain, on several levels unfortunately. It's what we have to do as CH'ers...we can't count on the people that only do the work for the money, they are no use to us. Always be aware of those ones. Never take your car to be fixed by someone that doesn't even know how to change the oil...if you get my drift...lol. PF wishes for you friends! Nanu nanu! <3 Mike from ORK out!

I feel like reports regarding CBD oil are all over the map -- different types, different uses (aborting vs. preventing), different levels of success. If you just type CBD into the Search bar near the top right of the page, and be sure it's set for "All Content," you'll see more than 100 posts, which you can browse through. Enough reported successes, I would say, that it's worth trying.

My husband brought some home today for me to try... has anyone used this before and if so had any success with it?

Here is my story: I had a fairly painful headache on the day of Aug 18th (I rarely if ever get headaches). I then had about 3 more headaches over the next couple weeks during the day. Then a couple nights ago, I was woken two hours into my sleep with the most painful headache I've ever had--the epicenter around and behind my right eye. I was sitting on the floor, floored by this intense pain and confusion that went with it. I took two advils and the intense pain dissipated after around 20 minutes. I went to the ER and got a CT scan to rule out any bleeding. I came back home, went to sleep and was again woken with a very sharp, throbbing pain around my right eye though not quite as debilitating. since then I've had tons of water, d and magnesium and melatonin, and a small rc dose, and twice daily cannabis oil. I've had 3 nights pain free with a slight headache in the morning since. I have had some dizziness. A specialist told me it sounds like CH. Does the 3 nights pf post major attack mean it isn't? Or is this normal for ch?

Hey Tim, You need the rest of the anti-inflammatory regimen supplements that go along with vitamin D3. The following photo illustrates what I've been taking for more than 4 years and they work just fine for me in preventing my CH. The vitamin D3 cofactors: magnesium, zinc, boron, vitamin A (retinol), vitamin B complex and vitamin K2 complex are all very important in metabolizing vitamin D3 to gain the optimum CH preventative capacity. Omega-3 fish oil is another important anti-inflammatory that helps prevent CH. If you take the above supplements by brand you'll be getting what is shown in the following table/ Try to see your PCP for the 25(OH)D lab test. It will help let us know if you've elevated your serum 25(OH)D up to a therapeutic level around 80 ng/mL for most CHers. That usually requires 10,000 IU/day vitamin D3. Accordingly, at some point, you may need to taper your vitamin D3 back down a bit. Take care and please keep us posted. V/R, Batch

Greeneyes, 2,000 IU/day of vitamin D3 is not enough! If your doctor said your vitamin D3 a.k.a., serum 25(OH)D was low, it was likely less than 30 ng/mL... Ask to be sure. If it is that low, you need to start a vitamin D3 loading schedule of 50,000 IU/day for 12 days, then drop back to an initial vitamin D3 maintenance dose of 10,000 IU/day. Try to pick up some 10,000 IU vitamin D3 liquid softgel capsules and take five (5) of them a day for 12 days along with 400 mg/day magnesium, 1000 to 2000 mg Omega-3 fish oil and the Kirkland brand Mature Multi... You can order the Super K once you've got the CH beast under control. Here's what I take. The 12-day/2-Week accelerated vitamin D3 loading schedule will elevate your serum 25(OH)D up to 80 ng/mL per the following chart. I suspect you'll be mostly CH pain free by the end of the first week on this loading schedule... Read the treatment protocol and give a copy to your neurologist. Instead of the 5 hour energy drinks, try sucking Ice Cold Water from a straw or suck on a fudge sickle. Chilling the roof of your mouth with ice water or ice cream is just as effective as a 5 hour energy drink and a lot better for you. Take care and please keep us posted. V/R, Batch

Kimbrit, Welcome to Clusterbusters. We know what you've been going through and the good news is it doesn't need to be that way... There are many "old hands" experienced in controlling CH here to help you. Your concerns about taking Carbamazepine are valid...Why neurologists prescribe antiepileptics for cluster headache is baffling... It is not among the Standards of Care recommended interventions (prophylaxis) for cluster headache (CH). The odds are very high you are vitamin D3 deficient and that deficiency is contributing to the frequency, severity and duration of your episodic CH. I have an online survey that's been running since December of 2011 of CHers taking the anti-inflammatory regimen to prevent their CH. This regimen contains 10,000 IU/day vitamin D3, Omega-3 Fish Oil and the vitamin D3 conutrients: magnesium, zinc, boron, vitamin A (retinol), vitamin B complex and vitamin K2 complex. The first part of this survey requests CHers to see their PCP or neurologist to get the lab test of their 25(OH)D, the first metabolite of vitamin D3 that's used to measure its status. The normal reference range for 25(OH)D is 30 to 100 ng/mL. As of last March, 2017, 215 CHers have completed and submitted their surveys. The following normal distribution chart illustrates their baseline 25(OH)D serum concentrations. Better than 80% of CHers taking the anti-inflammatory regimen experienced a significant reduction in the frequency of their CH from an average of 3 CH/day down to 3 CH/week in the first 30 days. Better than 50% of CHers taking this regimen experienced a complete and lasting cessation of CH symptoms as long as they remain on this regimen. You can download the latest version of the anti-inflammatory regimen CH preventative treatment protocol at the following link. Be sure to share a copy with your PCP or neurologist. That way you’ll both singing from the same sheet music when you ask for the 25(OH)D lab test. http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 Henry Lahore, the brains and brawn behind the VitaminDWiki website posted this link for me on 21 January, 2017. As of 21 July, readers have downloaded 2440 copies of this treatment protocol... You can also scan the following QR code with your smart phone and it will download a pdf copy of the treatment protocol to your phone. The QR Scanner app is free. It takes less than 10 seconds to download and install. This is a very safe regimen of vitamins and minerals. There have not been any adverse reactions reported that required medical attention. On the contrary, there's a long list of health benefits from taking this regimen over and above preventing your CH. Take care and please keep us posted. V/R, Batch

Thank you both for your feedback! I currently take 720mg total Verapamil daily and would love to stop with the Motrin but I think it is a mental thing that I just need to overcome. I had my blood pressure tested and was told I can not up the Verapamil at this time. I am a big coffee drinker and at one point cut it out of my daily ritual all together thinking it may decrease the amount of headaches I get in a day, but that did not help at all. I will try the 5 hour energy trick to see if that helps at all. I have given up drinking alcohol all together as that seems to be a trigger for me. I have read about the busting techniques here on this site and am interested in trying them all. I have printed out the D3 regimen to read over and think I can do that when I am in the study. The next study I was getting into is the one on the home page here for the Psilocybin in Connecticut. It is only about a 3 and a half hour drive from my house outside of Philadelphia. I am open to try anything as the clusters are non stop and I don't think anything can make it much worse. I know that I can get a placebo but after a set amount of time they usually bring you back in for the real thing. The only reason I join the studies is to try to find a solution that may one day be something we can all legally do to help with our issue. I would rather not take the triptans as I feel they will cause other issues in the long run. I currently take it in pill form, i have had injections in the past and they do work fast. The injections that I had were a compressed air type that shoot the medication into your leg, I have had about 6 of them that did not work (failed to fire off the medication). The insurance that I have does not pay for anything until I meet a $6,000 deductible so I kind of shy away from getting them because they are about $200 a shot for me. The longest PF streak I have had in the last 4 years has been 5 days. the last 3 months have been hell with up to 5 hits a day. My family is very understanding and they do what they can to help me out. My wife must be a saint, she will stand by with a box of tissues, bags of ice, water bottles and a hand full of pills for me. I just do not know how to repay her. I can only treat her to so many steak dinners! My wife also found something about putting Frankincense oil on the roof of your mouth to about the attack. It does seem to help at times but have not seen that mentioned in anyone's bag of tricks yet. She just puts 2 drops on a small piece of paper towel or a tissue and puts it on my tongue then I hold it to the roof of my mouth for a minute and spit it back out. I do have better supplies coming in to get this oxygen set up the proper way and find it kind of odd that the doctors do not have a setup that fits our needs. I was in the hospital ER one night and I did not even get a aspirin to help me, so fed up with the lack of help I just got up and walked out only to get a bill from them for no help at all. All this crap is going on on top of dealing with every day life.. I just wanted to vent here a little as I know you all deal with the same if not worse. Thank you for responding and I will be sure to read on and on and on.

First I would like to thank you for signing up for a trial! Some who have tried to do one are already aged out of the parameters being set. Others just cannot do it. Those who do are thought of as Hero's by most of us. Me included! Family: It is really hard on them. There isn't a lot that they can do to help except give you space, but I do have a couple of ideas. Some CHer's like a cool wash cloth during or after a hit. If you grab some caffeine on your way to the O2 to slam down, which is a really good idea BTW, perhaps someone can grab it and bring it to you. Even being able to do the smallest job to help you will please them. Let them know that you really appreciate their desire to help, but perhaps that you would like some help after the hit is over. Glass of water, washcloth, etc. Maybe let the kids know that you would love it if they could continue with whatever they were already doing while you are killing the pain? And likely you can let your wife know that kids noises do not add to your pain so she does not worry about keeping them quiet. But you need a place to be alone while you kill the hit. Maybe that will give you a start. I think that most of us try to hide our pain from our families. We don't want them to know. Later, we find out that they would have been a lot better off if we had explained it to them. If you can employ their help at some point they will be happier and so will you. Side note: I have a cat who is my O2 buddy. He always follows me to the O2 unless the dog gets in his way. He lies on the floor, not wanting pets or attention, just about a foot away to keep me company. It is nice to have him there to pet when I am doing my post hit breathing and no longer in pain. It is great that you are getting your O2 set up properly. The CH mask is the best!!! Just make sure that you have a good seal to keep out ambient air. Or use the breathing tube instead of the mask. Many find that the best way. I can't tolerate the pressure on my face, so I only use the tube. You may find that you need a 'barb' to make the connection of the tubing to the tank. It has a screw on one end to screw into the regulator and a stepped up post on the other is the barb that you push the tubing onto. Just do not use any oil or grease on any connection! That may require a trip to Lowes or an auto parts store. Just make sure that the threads are the correct number and pitch. I would take the regulator with me to get the part. Or the guy you ordered the mask from may still carry them. He supplied mine years ago. I suggest that you read the O2 file in the Clusterbuster Files setcion of the board. Proper use is paramount! Have you been able to read up on aids like caffeine? Taken at the very beginning of a hit they can reduce your pain and abort time. Many use Energy shots, Energy drinks, or coffee (hot or cold as you desire). They also can work to kill shadows too. I don't know that Motrin helps, but the Trex injections do. You are limited to two in 24 hours though. Pills are too slow for CHers and are best given to Migrainers. The nasal spray is in the middle. Unfortunately they can increase the number of hits and also extend a cycle too. In addition, insurance will normally cover only 9- 12 injections per month.So, that kind of leaves you hanging for many of the hits. Injections can be split into three doses though and still be effective. So that does help. I would strongly suggest that you read up on the D3 Regimen in the Clusterbuster Files board. It is just vitamins and works as an anti-inflammatory. Very easy to do and just requires a trip to Walmart or the drug store. It can reduce the severity of your hits and slow the ramp up time down. Both are good things. Some have gone PF on that alone!! What does of Verapamil are you taking? Three times per day sounds like the short acting variety which is what you want. CHers can need very high doses - up to 900mg or a bit more. You will need to make sure that your Blood Pressure is in a safe range as Verap is a blood Pressure reducing med. All to often the dose prescribed is too low to help. Keep reading and ask questions.

Dear Friends, just wanted to update you on things with me. Believe me, I am thinking about all of you every day. Especially those who are struggling. I wanted to see if anyone has had any any success or somehow broken through to become consistently pain-free? I'm not ready to hit the shrooms but I won't rule it out. Here's what i have done just recently: * Doctor just put me on Verapamil. 80mg tablets 3 times a day. I haven't started yet but will any day now (insurance reasons). * Trying to get dissolvable Maxalt but fighting with insurance company to get more than 9 in a 30 day period. * Been gluten free now for about 4 days,. Also no sugar or dairy. Many are telling me that this could be a game changer. My doctor thinks it won't make a difference. * Trying to conserve the medication I have. was using Frovatriptan as a preventative but only worked 50% of the time. When i get an attack, I have had some Zomeg a friend of mind gave me. * Lately I have been getting more daytime attacks which is odd because I typically get the attacks 2 hours after I fall asleep. * Oxygen working a little better now that I have a higher flow regulator (max 15 LPM). If I catch an attack early I can knock it out, if caught late, the oxygen does;t work. * Have tried migraine excedrin a few times and it actually has worked. * I have also stopped drinking caffeine. * A friend of mine who gets migraines is telling me about Hemp Oil (CBD) which she says helps. * I've reached out to "Batch" to get more info on this vitamin D3 regimen which I am not taking correctly at this time according to CHfather. I will still try this regimen as I hear it has great success. * I've tried taking Benadryl at night and Melatonin/Magnesium but can't say it's helped much or that I have noticed any difference. I might be doing too many things and confusing myself but I feel like I have to try multiple things to get some impactful results. If anyone has had impactful success with anything, please share it with me. I have heard that "busting" works but I'm nervous about that. Thank you and here's to your health and success! Jimmy-

I grow my own. In fact, I'm suppose to be researching different ways to grow them today, and start a new batch. Guess I best get to that. I bought a capsule making kit and a 1000's capsules from Amazon. You can get them in 3 different capsule sizes, and I thin I picked the medium sized one. I also have a set of electronic scales that goes to the 100th of a gram (0.00), so I can get a pretty accurate measurement of their weight. I like mine around 0.20 grams, but my housemate prefers them between 0.15 and 0.17 grams. It is surprisingly easy to do. Grow the mushrooms (the hard part). I then place them in a large wire sieve lined with paper towels and place over a heater on a low heat. A day or so later, and they are cracker dry. And they need to be CRACKER dry. Then, grind them up in a mortar and pestle. Load up the capsule machine with empty capsules, pour in, tap down, pour in, tap down until you're happy then close up the capsules. Takes a few tries to get the hang of getting the quantity right, but is easy. I used to put the mushrooms in peppermint tea, but could not stand the taste. The worst bit, I used to love peppermint tea, but now I associate the smell with mushrooms, and want to vomit when I smell it. Capsules are SO much easier. One capsule a day for micro-dosing, 6-10 capsules for a full bust. MG

Hey John, Sorry you're having problems with the anti-inflammatory regimen. Roughly 1% of CHers experience an increase in the frequency of their CH after starting this regimen. Why this happens is still unknown, but I suspect it involves two possible mechanisms of action. The first is an obvious reaction to one or more of the supplements. The second is an imbalance in the enzymes and/or nutrients needed to hydroxylate vitamin D3 (adds an [OH-] radical at the 25th position on the vitamin D3 molecule) to form 25-Hydroxy Vitamin D3, a.k.a., 25(OH)D3 and a second enzyme that hydroxylates 25(OH)D3 at the first position to form 1,25(OH)2D3 the genetically active vitamin D3 metabolite. If these enzymes are not being produced at the cellular level where vitamin D3 does its magic through genetic expression, we don't get a CH preventative effect. Even worse, a third enzyme may be generating 24,25(OH)2D3 which is genetically inactive and this consumes available 25(OH)D so it can't be hydroxylated to 1,25(OH)2D3. The nutrients needed to support these enzymatic processes are magnesium, zinc and boron. What has worked for the few CHers with this problem who wanted to continue with this regimen is to use the process of elimination to fined the offending supplement. I'd suggest stop taking the entire regimen for at least a day then restart at one supplement at a time on a 24 hour interval to find the culprit responsible for the spike in CH frequency. 95% of CHers have a low vitamin D3 status, i.e., a 25(OH)D serum concentration < 46 ng/mL and 80% of CHers have a 25(OH)D serum concentration < 30 ng/mL so this would suggest adding vitamin D3 back first. However, CHers also tend to be deficient in magnesium so this would suggest adding magnesium back first. What is important here is to drink at least 2 liters of water a day and to maintain an accurate headache log. The supplements you're presently taking may contain irritants/triggers. Accordingly, I suggest the supplements shown in the following photo as they carry the USP logo indicating they've been tested by an independent lab for purity and strength. I've taken the supplements shown below for over 5 years. I'd suggest starting with the magnesium followed 24 hours later by the Matrure Multi as this will cover the nutrients needed to support the enzymatic processes. I would follow 24 hours later with 5,000 IU of vitamin D3 followed 24 hours later with 10,000 IU of vitamin D3. If you get that far without a spike in CH frequency, you're almost home... Moreover, you've got the basics needed to prevent your CH. Next, I'd add the Omega-3 Fish Oil then the Super K. Again, be sure to drink at least 2 liters of water a day... Obviously, if you have a reaction (spike in CH frequency) to any one of the supplements, don't take it and move on to the next supplement. Take care and please keep me posted with your problems an/or questions. That's the only way I can help. V/R, Batch

Hey John, Oxygen therapy is just an abortive... not a preventative... That said you should get at least an hour or more relief after an abort with oxygen therapy... Try hyperventilating with room air for 30 seconds breathing at forced vital capacity tidal volumes, i.e., exhaling with an abdominal crunch at the end of each exhale cycle until your exhaled breath makes a wheezing sound then inhale rapidly and fully then repeat ten times (~30 seconds), then inhale a lungful of 100% oxygen and hold it for 30 seconds. Repeat this entire sequence until the CH pain is completely gone. If you want a lasting pain free existence, you need to start the anti-inflammatory regimen with 10,000 IU/day vitamin D3 plus Omega-3 fish Oil and the vitamin D3 cofactors. You can download the latest version of the anti-inflammatory regimen CH preventative treatment protocol at the following link. Be sure to share a copy with your PCP or neurologist. That way you're both singing from the same sheet music when you ask for the suggested lab test of your serum 25(OH)D, total calcium and PTH (Parethyroid Hormone). http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 You can also scan the following QR code with your smart phone and it will download a pdf copy of the treatment protocol to your phone as a ready reference. If you don't have the QR Code Reader App, it's free and It takes less than 10 seconds to download and install. Take care and please keep us posted. V/R, Batch

Interesting thread, indeed. Not impressed with the name, I must say. I mean, if you are trying to make it NOT sound like snake oil, 'Jesus Shot' is not the best choice (in my humble opinion). I know nothing about Doc Mike, but I can easily picture him standing on an upturned milk crate, stem of wheat between his lips, at the county fair offering this stuff to passers by. "Step right up folks and try my magic elixir, which I like to call the Jesus Shot! It will stop your headaches in their tracks and all your problems will melt away. All at the low, low price of $300!" And then, in a low and quiet voice, speaking very rapidly, "side affects may include, muscle weakness, problems with your vision, severe depression, shortness of breath, rapid weight gain, seizures, confusion, acne, sleep problems, loss of hair....." Sorry, that is probably unfair of me, but over the years I've read about so many 'miracle cures for cluster headaches' I've lost count. Like the optician that swears his specially tinted glasses can cure clusters. *rolls eyes* I know what it is to be desperate for a cure, even a temporary cure. As someone whose been chronic for 10 years, I even took Topiramate for a year, and had it totally screw up my mind & vision and put me on the brink of suicide, to try and stop the pain. I get it, I really do. But please, I would encourage everyone to who is thinking of taking this Jesus Shot to do your research first. Start by reading the side affects for the 2 main ingredients: Dexamethasone: https://www.drugs.com/dexamethasone.html Kenalog: https://www.drugs.com/kenalog.html If you're not prepared to deal with these side affects (they should add hair loss to the list) then walk away. Because apart from buying the hope that it'll stop the clusters, you ARE buying at least some of the side affects listed. I'm not trying to be negative, but am encouraging everyone to get all the facts. I would do no less than this if I were buying a new car, let alone having someone put a needle in my arm. Heck, I do at least this much research when buying a new waffle iron! Lastly, it would be nice to see some professionally collected data on the people who've tried this, along side a control group. A double-blind study would be the bees knees! I really liked how razorPP kept us posted of his results after getting the shot, and would like to see more data along these lines instead of 2nd hand reports. Would love to know more about the side affects razor experienced too. If you're going to make this drug more popular, then I would advise doing this: (again, just my opinion here) - rename it to something that sounds legit, e.g. Dexalog 12 - get first hand reports, complete with frequency of clusters before receiving the shot, and time period of pain-freeness - keep a complete list of everyone who has received the shot, and how it affected them and if they are chronic or episodic - If episodic, when in their cycle did they get the shot? - a complete list of the side affects everyone experienced, and for how long. Did they eventually recover from these (e.g. did the hair grow back) - get verification from another doctor and a separate set of patients or carry out a double-blind study I'm sorry to harp on about the name, but to someone who lives in England, where the entire world does not revolve around Jesus, it is REALLY off putting. What if Doc Mike worked in the Middle East, and called it the Muhammad Shot, do you think it would go down well in America? "The great Prophet Muhammad spoke to me in a dream and told me that combining these 3 drugs would cure cluster headaches." Because, you know, that doesn't make this Doc Mike sound like a quack AT ALL. MG

Hey Mle and JenniDawn, There is sufficient evidence to say cluster headache (CH) is an autoimmune disorder just like MS. It also interesting to note that both disorders are highest among people who are vitamin D3 deficient... When was the last time you had your serum 25(OH)D tested? 25(OH)D is the serum level metabolite of vitamin D3 that's used to measure its status... The normal reference range for this lab test is 30 to 100 ng/mL... Unfortunately, too many physicians will interpret 31 ng/mL as "Normal." The real vitamin D3 experts say anything less than 50 ng/mL is insufficient and that 50 to 70 ng/mL is optimum for otherwise healthy adults... As a CHer, we need 80 to 100 ng/mL and some need even higher levels. Both CH and MS respond to a regimen of vitamin D3 and the vitamin D3 cofactors/conutrients if the vitamin D3 dose is high enough. I've been working with cluster headache sufferers (CHers) for over six years and have roughly 600 of them taking what I call the anti-inflammatory regimen with 10,000 IU/day vitamin D3, Omega-3 Fish Oil and the vitamin D3 cofactors/conutrients that include 400 mg/day magnesium 12 mg/day zinc, 1-3 mg/day boron, Vitamin B 100 complex, vitamin A (retinol) at RDA and vitamin K2 at 100 mcg/day. I also have a close friend and Vietnam buddy who's wife has RRMS. She's been taking the anti-inflammatory regimen with 10,000 IU/day vitamin D3 for over 4 years and has remained in remission the entire time. You can download the latest version of the anti-inflammatory regimen CH preventative treatment protocol at the following link. Be sure to share a copy with your PCP or neurologist. That way you're both singing from the same sheet music when you ask for the suggested lab test of your serum 25(OH)D, total calcium and PTH (Parethyroid Hormone). http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 You can also scan the following QR code with your smart phone and it will download a pdf copy of the treatment protocol to your phone as a ready reference. If you don't have the QR Code Reader App, it's free and It takes less than 10 seconds to download and install. The really important news for you deals with the Coimbra Protocol for MS developed by Dr. Cicero Coimbra, MD PhD, a neurologist in Sao Paulo, Brazil. His treatment protocol calls for much higher doses of vitamin D3 plus the cofactors. Where the anti-inflammatory regimen with 10,000 IU/day vitamin D3 works out to 100 IU of vitamin D3 per Kg of body weight per day, the Coimbra Protocol calls for upwards of 1000 IU of vitamin D3 per Kg of body weight per day... For a sleek rascal like me weighing in at 95 Kg, that works out to 95,000 IU/day of vitamin D3! What is also exciting is none of his MS patients on this protocol suffer from vitamin D3 intoxication/toxicity... There's a good reason for this... When MS patients start on this protocol, they need to avoid taking any calcium supplements and avoid calcium rich foods, i.e., dairy products... They also need to drink 2.5 liters of water a day to help their kidneys flush excess calcium from their systems. Nearly all of his MS patients find this a very acceptable trade off. You can read about Dr. Coimbra's work with his MS patients at the following links. He and his team of neurologists have treated over 3000 MS patients over the last 10 years and 95% of them are in complete remission. Many have reported their existing MS lesions are shrinking or have disappeared completely. https://www.vitamindwiki.com/Interview+of+Dr.+Coimbra+-+Vitamin+D+protocol+for+Autoimmune+diseases+–+2016 https://www.vitamindwiki.com/Multiple+Sclerosis+and+(lots+of)+Vitamin+D+-+book+by+patient+on+Coimbra+protocol+-+Feb+2016 There's also a very exciting study done by Dr. Jody Burton, MD et al. University of Toronto where she had 25 RRMS patients start an escalating dose of vitamin D3 from 4000 IU/day up to 40,000 IU/day and back down to zero on 6 week intervals for one year. This trial concluded with an averaged a vitamin D3 doses ~14,000 IU/day/year and 32/52 weeks spent at doses ≥ 10,000 IU/day: · • There was no hypercalciuria, hypercalcemia or parathyroid dysfunction o No radiological evidence of calcification o No clinical or biochemical adverse events o Significant reduction in RR and EDSS o Significant reduction in T-cell reactivity/proliferation · • Vitamin D3 intake up to 40,000 IU/day and prolonged intake of ~ 10,000 IU/day appears safe and is associated with improvement in clinical disease activity and T-cell reactivity. http://www.vitamindandms.org/researchers/burton/index.html Take care and please let me know if this information is of interest. V/R, Batch

Every one who has migraines or cluster headaches had found a magic cure in the past. I 'm 100% sure of it. THE ONLY PROBLEM IS , THE "CURE" STOPS WORKING SHORTLY AFTER OUR DISCOVERY. There are many reasons why we find the "magic cure".. from a cycle ending , to pure coincidence,,, to remembering only the times when it works. My discovered magic cures over the past 10-12 years of suffering, that I genuinely wanted to believe and they worked from 1-3 times of repeat use then, It stopped. NOT MAGIC CURES , BUT WORKED 1-3 times in a row ONLY !!! 1.)M-grain essentil oil - on the temple and neck when the attack starts 2.) Drink 2 very cold- close to frozen redbulls at the start of the attack 3.)Cayenne pepper under the tounge at the start of the attack 4.) Feet in hot water for 10s ,,then icy water for 10s ,,repeat ,,,or one foot hot water other cold water... NONE OF THIS WORK ANYMORE WHAT IS STILL WORKING FROM ACCIDENTAL DISCOVERIES -Intense exercise at the first sign ---pull ups,,push -ups,,,,,intense meaning 60push ups in 1 min ,,,rest 1min ---30 pus-ups---rest 2 min 60push-ups,,,,etc,,,500-1000 in 30min - 1h, until the attack is aborted works for me about 30% of the time,,,,sometimes combined with O2 and energy drink. -home made food, makes cycle a bit shorter HERBAL MEDICINE IS FREAKING WASTE OF YOUR HOPES,TIME AND MONEY, EVEN IF A PERSON BELIEVES THAT IT REALLY WORKS. CLUSTER HEADACHES SUFFERERS ARE DESPERATE ,BUT NOT STUPID. WE RESEARCH AND RESEARCH AND RESEARCH AND RESEARCH , MAYBE THAT IS THE REASON WHY WE CAN'T BE FOOLED EASILY BY THIS NON-SENSE, BECAUSE WE HAVE TO KNOW ,,,WHY AND HOW IT WORKS. Trying to offer magic herbal medicine to cluster headache sufferer is about as difficult as trying to sell a perpetual motion device to a Phd physicist, even if it is " free."

Yeah are you talking about Sinol-M? The all-natural nasal spray? Cause if your talking about this and your cured because of this stuff then your a one in a million. It provided little relief most of the time and sometimes it helped decently. But overall it's not going to cure you Active Ingredients: Capsicum 4X (capsaicin) Inactive Ingredients: Purified Water, Eucalyptus Oil, Aloe Vera Extract, Rosemary Extract, Sea Salt, Vitamin C, Benzalkonium Chloride

Thanks both. Ah Pebbles , you got me wrong. I didnt mean such sites promoting snake oil or whatever, I really just meant regular boards on the same topic like this one here. Someone around the globe might have recently discovered something similar like MMs , D3 or whatever. Yes, this will make it onto here at some point if valid but it may take awhile. I am not interested in taking risks either and research is key as you say. Still and at least for additional theoretical input it may be there is new stuff around we haven't heard of (yet) due to a language barrier. As you say it is / will be bits and pieces but why not. Up to everyone themselves to consider if BS or an actual piece of the puzzle

ther·a·peu·tic ˌTHerəˈpyo͞odik/ adjective adjective: therapeutic 1. relating to the healing of disease. "diagnostic and therapeutic facilities" synonyms: healing, curative, remedial, medicinal, restorative, salubrious, health-giving, tonic, reparative, corrective, beneficial, good, salutary "the therapeutic effects of acupuncture" antonyms: harmful administered or applied for reasons of health. "a therapeutic shampoo" having a good effect on the body or mind; contributing to a sense of well-being. "a therapeutic silence" noun: therapeutics 1. the branch of medicine concerned with the treatment of disease and the action of remedial agents. 2. a treatment, therapy, or drug. "current therapeutics for asthma" -------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------- I have looked around, for what kind of therapeutic treatments folk will use during an attack, sure there is no one therapy that fits all, but thought there should be a all go to list of sorts to refer to, as I suffered 2 attacks today, said hey, why not post a thread as to what I use during an attack. To me the best title for this is therapeutic remedies, as it aids one during an attack, and some therapeutic methods work for one, will not for another. But at least if this helps just one, well makes me happy. Feel free to add your regimen, your toolbox of what you tend to do during an attack. ------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------- Massage I tend to use mechanical, electronic massagers. Home medics make a fine assortment of these, usually around 30$-50$.. In my arsenal I have three at home go to models. For me these some time aid in getting me relaxed, I use them on skull, temple, neck, and sometimes these make a huge difference during the two hour attack, "HoMedics HHP-350 Percussion Action Massager" This one is my big gun, main tool in the box, it's powerful vibrate motion, just somehow helps at times, not all, but got to bet used to it, as it will pound on a hard skull, but with practice, can do wonders around eye and my favorite, is inducing a sneeze attack... To me a sneeze attack is an adrenaline rush... much like you feel relief after vomiting.. a sneeze to me is more pleasant with a bit of relief, even if it is only like 2 minutes.. well worth it in my book. "HoMedics NMS-375 Shiatsu Neck and Shoulder Massager with Heat" This is a rather new addition to my tool box... like this as it is like having a spare set of fingers , will really get the neck great, and even still will use it around skull and eye, a set of fingers at times helps me when coming down from an attack. "HoMedics SP-100H 3D Shiatsu and Vibration Massage Pillow with Heat" This one I have along with the HHP-350, and comes in handy as it is almost hands free, unlike the NMS-375 which requires hand arm use, this one does the same, just one hand operation. Now, the above works well with power, but I also carry a EDC (Every Day Carry) Kit when these episodes come on... and when out power can be tricky to come across, as well as these are rather bulky.. RIght? lol .. be warned this section at bottom of post... it is not for everyone, just be warned and if you love politically correctness.. well you may want to just skip the end section between red!! HOT/COLD I often use the shower, sink, using hot water, cold water, hot usually can calm me down a brief moment, while cold numbs it for just a ever so brief moment, till it creates the ice cream head effect as I call it. But often not I also use hot cold compress. I used to purchase such things from the store. But soon realized they would break down, get lost, what have you. One item I like is the disposable water bottle, the flimsy bottles work wonders, for both hot cold. Just consume half the water, or all, and fill or leave half full, carefully push out the air, and recap.... not you can place some in a cold fridge when needed.. 40 degree water works great.. will mold to face skull just fine, also, can be frozen, or microwaved for no more than 30-45 seconds in my tests. Often times I utilize tap water if it is at 130-140 degrees, but if it is an EDC situation.. mircowave nearby.. marvelous.. helps a bit at times, but again, not fully. The rest is basic stuff found pretty common 1. Towel Icy hot/Tiger Balm 2. DRINK WATER- both for me, hot/cold 3. The ol Towel massage. 4. I often tend to pace .. and sometimes pacing my backyard really helps. 5. Oxygen.. not in my toolbox yet, am looking into it, cost and such, time will tell. As for medication, I am no expert, just do what I think or knows will help, right now Sumatriptan and Pampermil seemed to work in the past , prescript only of course. Just learned of goodrx.com... have not used it formally yet seems like the old, to good to be true element to it in my eyes, but if insurance plays games on my suma, well again everything is on the table from A-Z in my book. Also trying Magnesium, B2, and Benadryl... not to sure of the effects thus far. Heard Melatonin is good as well, and am looking to add it to my tool box as well. ---------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------- END SUMMARY.. THANKS, BELOW IS A QUICK VERSION OF MY ABOVE RANTINGS SUMMARY--IE- QUICK REFERENCE POINT Well that is my list in long form, just a quick summarry for those that just need a quick reference point: Massage -- A great set of tools for aiding me in my attacks, mileage will vary "HoMedics HHP-350 Percussion Action Massager" "HoMedics NMS-375 Shiatsu Neck and Shoulder Massager with Heat" "HoMedics SP-100H 3D Shiatsu and Vibration Massage Pillow with Heat" EDC (Every Day Carry) - A must for me, a kit with most of my EMC theraputic kit In mine, I have the following: Carmex Capsule of Icy Hot Tiger Balm Vicks Pepermint/Lavendar oil Meds-- Usually Suma and pampermil Exedrin Extra strength migraine Wash Cloth Sink plug/ suction cup for gps in car etc.. (Why, often I need to dunk my head in a sink, and paper towels are not available, so, I use a suction cup to do this job) Frozen 1/2 bottle water compressed, as well as one empty The black bullet/ and chargeable massager The rest is basic stuff found pretty common 1. Towel Icy hot/Tiger Balm 2. DRINK WATER- both for me, hot/cold 3. The ol Towel massage. 4. I often tend to pace .. and sometimes pacing my backyard really helps. 5. Oxygen.. not in my toolbox yet, am looking into it, cost and such, time will tell. As for medication, I am no expert, just do what I think or knows will help, right now Sumatriptan and Pampermil seemed to work in the past , prescript only of course. Just learned of goodrx.com... have not used it formally yet seems like the old, to good to be true element to it in my eyes, but if insurance plays games on my suma, well again everything is on the table from A-Z in my book. Also trying Magnesium, B2, and Benadryl... not to sure of the effects thus far. Heard Melatonin is good as well, and am looking to add it to my tool box as well. Well that is my therapeutic arsenal/tool box now for just a quick wrap up, summary, I look forward to hearing how everyone else copes, as I know it is a battle, and wish you all good luck, may the force be with you as well, and last reminder, read between the red with an open mind, and be safe, not recommending these as tools to use, just as a guide so to speak, they help me often, and with that just wanted to share in hopes it helps others, even if just one person gets relief or help from this, was well worth my time and effort, figure if I do not share it, what good is it, it helps me at times and could be of use to others under attack, so again, be safe, and realize this is just one suffer to another trying to provide something useful. ---------------------------------------------------------------------XXX ADULTS STUFF XXX----------------------------------------------------------------------------- OK, kinda not to sure how this will go, but think it should be in here, but if you get easily offended, or just so politically correct, may want to skip this section, just sayying it is a little of the track. Created the font small, you can C/P it to read, just want to be sure everyone is warned ahead of time, as I know how some can be, and really am in no mood for a battle of wits. So, these next items come from well x rated area. But if they help, why not. As I was often wondering about micro massagers, as such like a hand held option, these are usually quite weak for my needs, and still quite bulky. So, long story short, was at a store with the wife one day, when there was a display of well, vibrators out, and realized this could be utilized for something otherwise. However, that kind of organ , yeah leave it at that. But, next shelf over, was the reverse entry vibrating thing, and well, bought it, not for the intended purpose but rather for my therapeutic EDC.. and it works great in a pinch, compact, strong, awesome, but ran on batteries and is tethered by wire , which often failed as well, so got looking at some other sites and found something that was rechargeable, And not tethered, as well as it is stronger than my brick store version, but still carry both, "Trinity Vibrating Silver Egg" "Hush" This next item, is well rather shocking ,electonic shock "toy" remember this is not medical advice, I am not a doctor, this is just what I use when under attack, with that said, use this at your own judgment, it can be risky , but for me, it has helped, not on a regular basis, as sometimes the pads are lost, and it is relatively new to my arsenal... thus far have tried it twice, on neck, and it does distract my mind a bit, but well again, when under attack anything seems to be fair play.. if it can be used as a sex toy, why not for therapuetic use? .. well see for your self....Again I have not fully tried this, maybe once or twice, but it has potential. "Zeus Handheld Power Box" -----------------------------------------------------------------END ----XXX ADULTS STUFF XXX---END--------------------------------------------------------------------------

I suffer migraine and fibromyalgia. I make my own CBD hash oil from industrial hemp which is easily available online in the UK. If you google "BHO" you'll find lots of information online about how to make it. Ignore all the fancy equipment. You can use any metal or glass tube and collect it on a piece of baking parchament placed in a soup bowl. I take a small dab when I get home from work and another when I go to bed. I also mix the hash oil with propylene glycol so I can carry it around in a vape pen in case I get an attack of pain when I'm out and about. Just plop 4 grams of hash oil in 100ml of PG and heat and stir until it dissolves . I prefer CBD with as little THC as possible because I hate being stoned that's why I start from industrial hemp rather than weed. If you live in the states you'll probably have acess to high CBD/Low THC weed. We don't in the UK. Some strains to look for are AC/DC, Cannatonic, Sour Tsunami, Harlequin, Remedy, Charlotte's Web. When I first tried CBD I was on 7 pills a day. Now I don't take any.

Thanks Urs, Everything was the same, same side, same areas of pain, only difference was the acuteness of the pain over the past couple weeks. Sharper less vice like and more searing, localized. On an AMAZINGLY better note, I had a pain free night and nothing this morning! I upped my D3 yesterday to 15,000 mg, was my 3rd day of dosing MM, took 10mg melatonin, and 50mg of Benadryl. Also probably consumed at least 10 liters of H2O all day. Had some phantom pain around 10pm just before I took the Benadryl and Melatonin. Then I was out. Ill dose again MM later today when I get some work done. As for the D3. Ive been taking 600mg magnesium, omega fish oil's, 600mg calcium, 1000 mg lyposphric vitamin C, and my multi vitamin. Keep you posted.