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update, still having almost one a day-really mild between K2-4 hit always between 8-10pm(I think he skipped one day this week. Then today he had one at work, lasted about an hour and then he had a 2nd tonite at the usual time. These have all been mild and aborted with ice. It has been two weeks since he has used any meds. Does that still sound like rebound? We added the vitD and fish oil back yesterday. PFD to you

ah phew!! I was hoping to hear that!! [smiley=vrolijk_26.gif] -I feel it is slightly ironic, that since he had not received "proper" treatment all these years, he is probably in a better place to bust... -that is exactly our feelings too, in fact, I don't think I could talk him into DR meds at this point. I just wanted to make sure we weren't overlooking a reason... yes, the oxygen is set up, with the correct valve thanks to good ole' Batch he is the man! Derek tried it a few times and had little success. Not sure if part of it isn't just the knowledge that 1) he had triptans to go to then, and 2)he just really doesn't want o2 to be the solution. His focus has always been to bust. (but he waited until I felt better about the psychosis) But we plan on keeping the valve and making sure we have an ongoing o2 script. We know that you can never guess what the CH will do next. If he needs to, he will try again with more "heart"' in it. yes jeebs, that was the delay, but there doesn't seem to be a clear link, and since Derek did use acid recreationally in his teens, we feel safe with the LSA. wouldn't the doc's have a tizzy fit over this! But that is exactly how we feel after researching. Even the dumb neuro we saw last week couldn't answer any of our questions regarding what the drugs she wanted Derek to take would be doing. Her standard response, "well, on a molecular level, we don't really know what they are doing." Yes, they have their place, and there may come a time when we are grateful to try them, but why do they have SO MUCH POWER over us. It is criminal - just take this drug like a good little boy and don't ask so many questions!! And by all means - don't make any decisions about your health that go against our current regimens! oops sorry - rampage!! :-[ So our plan of attack (assuming these are rebounds and we will get another 2 yr break in his cycle) [smiley=happy.gif] in about 3 months when he is HOPEFULLY clearly out of cycle, go to nice regular doctor and get him to do as many blood/urine tests as possible. Pay for any other tests on line ( I found a cite that sends out kits to test your neurotransmitters, endocrine and hormone levels. http://www.integrativepsychiatry.net/neuroendocrine_expanded.html ) (The neuro, of course, would have nothing to do with checking levels before administering drugs) This will give us a good base line. Set up heavy, but appropriate vitamin and suppliment regimen to bring all of Derek's levels up to the highest suggested ranges. (Assuming he will be low in some areas) Add melatonin, magnesium, Vit D3, fish oil, B6 & 12 and a dash of licorice and a pinch of skullcap to the mix. Test again in 6/9 months. Determine if levels are where we want them and then adjust as necessary. Then wait. We HAVE to see, I know its risky, but we have to see if that will work. At the first sign of a shadow - break out the pestle or hop on a plane to the BVI. Sound okay??? -so now that I have written a book - LOL - sorry!!!! Can I just say again... HOW THANKFUL I AM FOR ALL OF YOU!!! [smiley=dankk2.gif] Hugs, DG

sorry to hear you are in high cycle again Ting :'( that really sucks. I will be praying you find a trick. I know you shake it up and change things around, I hope you find something that works to get you PF, have you tried adding Batch's Vit D3, fish oil and magnesium? Big HUGE Cyberspace Hugs, DG

Hubby has been taking the licorice 3Xday for 10 days. His cycle changed the day before we started any meds - ever. He would usually have one 3 hour head banger a night. He had 4 the night before we got his script for Sumatriptan, and that pattern continued for the next 5 or 6 nights. Now he is all over the place. The licorice has been the only thing he is using - besides Sum. for the really bad ones. He did have a number of HA that seemed to disperse within an 8-12 min period of using the licorice as an abortive. But it was not always successful. We are discontinuing use tonight and switching to fish oil/vit D3 as mentioned in Batchs thread on CH.com http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1291969416 Good luck to you all, hope you have success and PF days and nights!

Same with me, I take a daily magnesium. calcium with Vit D, zinc, Fish Oil and a daily vitamin. Been doing it for years on and off cycle, seems to reduce both number and intensity. Joe

Easy on that oil, that`s my advice. I tried smoke some for a period to try eas on the pain, it just got worse and worse. The reason why we are posting today, or any day, is the fact that we all been there. I`m a chronic, i been for the last seven years. I was hit up to 9 tines a day. I felt i was lurking around underneath that dark world. But i found Clusterbusters, now i live better than before i had CH. And i did for the last year. There is hope, believe us It is not good when bloodpressure goes down, at least not for me. Somedays i can`t sit for more than about 3-5 min. Or lye down. What is important is to get to know your own body, listen to that inner voice, pay attention to the signs you get. I yhink we often get a "feeling" after eating something etc etc, just try to stay away from it then. It might help. F ex onion, bacon, hot dogs, stay away from sweets etc etc. Drink allot of water, try sleep in a more sitting potition. Get up at the same time every morning. That is one of the things that actually helps me more than allot. It may sound overwhelming, but i can assure you, it`s worth the effort!!

Send me a PM. I would love to get me hands on oil. I did it in the early 70's.

I know this is going to sound really silly, but, I have the biggest Phobia about hospitals and especially IV/IM injections, and now I know the pain will pass I find I'm a lot more well equipped to cope with it, just been out for a couple of hours in the cold but now I'm feeling the sudden warmth I may have inadvertently found a trigger, this message might take me a minute or two longer than i wanted. It's just hit me how careful I will have to be with the psychedelic remedies. It feels like a whole new dark world I've just discovered, a place I never knew existed.. Or could that be the hash oil I've just smoked?? anyway don't know if it's the cold or you mentioning Norway but it feels like the atmosphere of the film 30 days and nights or is that just my stoned ramblings and the dread of the tightness creeping up my neck and the spike in my temple? got to get up now.. why does relaxing make it worse? >

Well as we all know by now, they have finally stopped the oil from flowing (at least temporarily). What they didn't say in the news was how. They used a wedding band. Once in place, it immediately stopped putting out. ;D bb

Each year at our conferences, we hold an auction to raise funds. Over the years we've been able to raise quite a bit and those funds have allowed us to not only continue to offer great speakers and programs at the conference, but have helped fund our research expenses. We'll be doing this again this year so whether you can be there or not, you have an opportunity to participate. If you're planning on being there and would like to bring something along to donate, it's very much appreciated. if you'd rather ship it ahead of time, you can do that. For those that can't make it but would like to donate an item, please send it to: Clusterbusters C/O: Chris Runyard 3942 SE Salmon St. Portland, OR 97214 Chris would appreciate it of items are sent to arrive AFTER August 1st. We've had a wide range of items donated in the past. Everything from bottles of wine to handmade craft items. Oil paintings to Oxygen masks. Books autographed by the authors and sports memorabilia. Thanks to all the people that have not only donated items in the past but those that have purchased them. Any questions, just post here or drop me a PM. Bob P. S. in addition, for those that may have missed this on the conference page, we do offer advertising in the conference syllabus. For details on this, contact Fun Guy here. P.P.S. If you need a tax deduction, it's one way to get the government to help fund our cause. (shhhhhh) ;-)

CNN just reported that BP replaced the oil well cap with a wedding ring and it has immediately stopped putting out. News at 10. Sorry, but it felt like this board could use a little levity.

I was always told that smoking contributes to the attacks cause of the lack of oxygen, but like I said, I was told this..never read anything that smoking causes or triggers them.. one thing that stands in the back of my mind is what I did read about "shift work" I worked for 2 service companies that I was on call 24/7 for 20 years..one vacation in all those years, ther were times when I was awake and working for 3 days straight back when oil was booming. but it was not out of the norm for me to be up 24 to 48 hours on end quit often.. I was a driver so I was on the clock more than off. that's the only thing I read that keeps me wondering if it may have been my cause of getting this beast.   Darrin Texas Cluster

hello Tony. you have found a good bunch of people here that care. we all know and understand what it is you are going through and we have all been in your shoes when it comes to others understanding, people look at me like I am crazy when I am being attacked by the beast, and if nothing is broken or bleeding they wont get it until they research what a ch is all about, then its all apologies.. and as far as growing out of them, from what I have learned from my experience and reading..they get worse..and once you go chronic its even harder to deal with...I still haven't found my remedy yet, and have been chronic for 3 years now..but you cant stop looking..I was prescribed verapamil and ergotamine and they seem to make the numbers and severity worse..I cant seem to get control of them..but ready for the psilocybe. and I can relate to the "being made to take time off" I worked in the oil field and did work in chemical plants up and down the gulf coast...last three years I have not been able to do anything but wait for the next one to hit..I don't want to discourage you in any way..I have heard some good outcomes on positive effect from many different things, we each have to find our own, as everyone is finding different ways of treatment fighting this beast.. my fingers are crossed you find something even if you have to try psilocybe, its not what others think about you, NOW its all about whats going to help you. Wish you the best and glad you found clusterbusters Darrin Texas Cluster

Ok, ignore the obvious - alcohol. I'm interested in what else can set off a cluster for you. For me, occasionally (even when out of cycle), I have a severe (cluster) reaction to random greasy foods, and I'm working on the theory that I may be allergic to some kind of cooking oil, so curious as to whether any others having the same sort of problems. Let's do some collective research...