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And then there's Snake Oil Willie..."I don't look good naked anymore"... https://music.youtube.com/watch?v=OOgd9hitEAE&feature=share

Hi Mark, My husband suffers from CHA's, and has the same symptoms, though the pain around his right eye radiates into his jaw and neck, even sometimes to the top of his head. He has used Bella Donna ear drops with some success, and uses peppermint oil for temporary pain relief to his jaw and neck. By temporary I mean several times a day. He also uses Magnesium for the CH, and was told to by a Neurologist about 5 yrs ago. He takes Calcium/Magnesium and zinc sold together as 1 tablet. The calcium helps the body absorb the Magnesium. This really had the headaches backing off, but you should research it and ask your doctor also. Keep posting your progress.

Would a vegan version of the D3 regimen work? If so, does anyone have a recommendation for a vegan Omega-3 supplement or a suggestion for how much DHA, EPA, etc., should be in a vegan Omega-3 supplement to match the effectiveness of fish oil? Thanks.

Everyone has a preference, but I have reviewed independent lab tests and through the years tried an entire slew of different Fish Oil supplements. I started with the ones that you could purchase at Target, nothing changed, even approaching 4800mg. Next, I went to MOMS (My Organic Market), and well they said try Now Foods. I used several of their products, most are an industry secret (non-GMO, organic, natural) exceptional product at rock-bottom prices, nope. I didn't see the results. And unlike most brands, they pay to have their products tested by all of the third-party labs. They also do a lot of clinical research. Onward, if you know anything about Meta-Analysis, Amazon reviews are fake. If you buy a product based on reviews that is your ignorance. When adjusted, most products are not anywhere near the quality portrayed. This is important. I managed to acquire the lab results for Nordic Naturals (not hard, but I refuse to pay), and I tried it. In a week I felt what all the hype was about. I realize this was drawn out, but EVERYTHING that I use is evidence-based. Nordic Naturals is at the top for purity standards, meaning you will get that 1400 of EPA/DHA. Most are all on paper, not even close. They have numerous products, no burp, lemon, mixtures with Vitamin D, et cetera. I don't support Amazon, so I provided a link to their webpage. Don't be discouraged go on Vitacost, they have buttloads of Omega 3 products. I will stick my neck out on this. Most of the lab results I have seen had shown evidence of mercury and toxins with other Omega 3 blends, they distill everything! And you get the real purported dose. Yes, there are other products, they cost more. It is not cheap, but it is worth it. If you dose as I do, 3000mg, plan on $60 a month. https://www.nordicnaturals.com/en/professionals/why-omega-3s/536

You can get most of your ALA from flaxseed oil; however, it will not provide the EPA and DHA. Furthermore, fish do not produce EPA or DHA-its their diet from Algae. The product I sent a link to is 100% plant-based, Vegan. It contains your EPA and DHA from Algae and your ALA from flaxseed. The capsules are not Gelatin! I went through a few medical databases and found no differences in outcomes. It works similarly, just differences in approach. I believe that you can purchase this on Vitacost, as I refuse to support cronyism. Anecdotal, but important, I take 3200mg of Nordic Naturals Super Omega 3 and 15,000 iu of D among several other orthomolecular approaches. My 25 Hydroxy maintains at 40. Most push for 30, I have my reasons. The big 2 Omega 3 and D, drastically reduced my fibromyalgia symptoms, all headache symptomology, and it is a potent mood-stabilizer. Even with a severe form of BPD not responsive to DBT or CBT my entire team is wondering what in the hell I am taking. It works. Don't be scared to go heavy. The price is very fair: I don't see the big stink. I pay far more, people don't understand that quality affords an output of cash. This isn't a mass-produced Natures Way loaded with fillers, gelatin, and binders. https://www.ovega.com

Hello All, I've started the D3 regimen (10,000 U + cofactors) for about three days now. I have been up every 2 hours at night with shadows for about a week. I am exhausted! I have been fighting with the O2 company to get it delivered to my house. Hopefully, that will happen next week. I had my D3 tested in January and it was 25.2 ng/ml so my Dr. told me to take D3 supplements and I was taking 2,000 a day. I doubt if my D3 levels are up to standard now. My CH remission cycle is about every 18-24 months and when in effect I have CH's for about 2-3 months. How long does it generally take for the regiment to start working? I just want to get some consistent sleep at night. In combination to the D3 regimen, I have been drinking ginger tea, using ice packs, and lavendar and peppermint oil, caffeine, and Gatorade to try to alleviate the symptoms, but sometimes they are effective and others they are not. When the pain becomes too bad, I just use a small dose of an Imitrex shot. I used to be on Verapermil, but my headaches because worse while on it so my Dr took me off of it. Also, I just finished taking a batch of prednisone last week and I was able to get a couple nights of sleep, but towards the end I had two severe headaches that lasted for hours. I don't know what that was all about. Any suggestions you all may be able to provide will be appreciated. Thanks, BrainFreeze

Thoro, Here (below) is something Ricardo posted recently at another thread about seeds no longer working. In a later post he said, >>One important thing to remember is to let the peppermint tea cool down to at least room temperature before adding the seeds....Both LSA and LSH are supposed to be sensitive to heat.<< Can't vouch for this myself . . . Professor_Tanaka tried it recently but hasn't posted about the results, except to say >>Peppermint + RC == definitely something different, imo.<< Ricardo posted: >>>The real thing I want to throw out there though, is something I've said over and over and kinda surprised no one else seems to have tried it. Once you seem to be getting tolerance to the seeds, get a new batch, grind em up and soak them in cold peppermint tea for a few hours. The peppermint tea is high in acetaldehyde, and according to our good friend (and my avatar) Albert Hoffman, the combination of LSA and acetaldehyde will make LSH--Which he said at low doses is indistinguishable from LSD. Higher doses tend to give some people anxiety so I would start with a small amount and work you're way up (especially if you are an axious person to start with, I am not, and have taken damn high doses without any anxiety) I can not attest to the chemistry behind all this, but what I can say is that it is a different drug (LSA makes me sleepy and kinda narcoticized, This stuff definitely did not make me sleepy--if anything got a slight stimulant effect from it, and it kept me up for 12 hours) and it seems to help my headaches.<<<

I've always used Peppermint Tea when I make my 'herbal tea', as we call it. The peppermint helps with the taste A LOT. I've also started adding honey and lemon, which helps with the taste (and from what I understand, the psilo to break down). After my first cup of 'herbal tea' two years ago, I can't smell peppermint tea without it triggering the taste of mushrooms (which I hate). The smell alone can give me a sickly feeling in my stomach, even though the shrooms themselves don't make me feel ill in any way. They say smell is one of our strongest senses of association, and it certainly plays a part here for me. Does anyone else experience a strong smell sensation? MG

Being CHH does suck but like Jon said it is more like high and low cycles within it. I am stuck in a higher cycle at the moment and it really blows. Going through 02 tanks like they are goin out of style and due to some sort of oxygen shortage in this area I was just limited to what I can get refilled so a little added pressure and panic is starting to set in. Sticking with 02, 5hr drinks and Frankincense oil on the roof of my mouth and hopping that this ends soon. On the up side I do not have to sit around dreading any certain moth or time of year when the hits are going to start coming. I have the joy of knowing I am going to get hit in the side of the head with a brick every day!

Yes I have tried O2 , for a month. result was aborting from KIP10 to KIP4-6 constant shadows. AARRGGH continuously so stopped the O2 and busted with MM. This was two+ years ago at which time I discovered the MM as a preventative/ longer term bust. Haven't tried the O2 since then. .... (..in 2014 my neurologist scripted me Imigran nasal spray as abortive, and verapamil / calcium and beta blockers as preventative, but did not help, on them for more than 12 months with no effect whatsoever) Paracetamol and codeine combo work as abortive, also Imigran nasal spray, but take up to an hour, so a lot of the time I just ride out the storm. Thanks CHF, I have checked the links and info and have recently started D3 with fish oil and ginger as a daily regimen. Also including extra fatty fish and fatty foods and Chinese ginger sweets through the day on top of the vitamins. . Drinking extra ginger tea at night because I fear being woken by a KIP 10 at 2 am Going extra on ginger as understand that it lowers blood pressure. Seems to be helping by extending the time between attacks by up to 30 hours, but have to be super vigilant with the triggers I will start the melatonin soon to include in daily regimen And thanks you for the Benadryl advice. I live on a large property with pets and a dusty shed Some other interesting techniques with the hot water reducing blood pressure so will have to experiment I have been trying to source RC seeds but no joy :/

Hi Freud I would ask you to try with a radical short nutritional change. Whenever my cycle does not want to end, then I do it. It works within 4 days with me when I'm iron and stick to it. It's very easy to eat there are only a few things during this time. Apples, potatoes, oatmeal, coffee, water. Approx. 1 kg apples a day, from the supermarket without shell! Own anzeits best with shell. 1-3kg Potatoes I cook with shell without salt! Until they are quite through, rather too little. Then I peel it in cold water. 500gr mix at work The oatmeal I eat with a mixture of water and apple porridge and linseed oil. I only drink water without carbon dioxide, and with extremely low calzium salary with 26mg. For values over 100mg developed I strangely strong pain. And the hardest for me. Absolutely no chocolate! coffee without milk! Little sugar! (and no sugar-free things, sweets etc ..) Only these things otherwise nothing 4-5 days! Would be glad if you try it, and tell us .. yes it worked!! If not I would order a pizza home for compensation :-) ps: If it is only possible somehow, forget these drugs for your thought head. I am a damaged by you, Restless Legs.. Greetings and painless hours!

It seems bizarre that I cannot read any posts on safari, despite flushing DNS, Cache, and History, even switching to 1:1:1 and then a freaking proxy. From there, a Tunnel and proxy. No luck, and while I could resolve the read error, just got internal server errors on the private browsers that everyone knows about. Well, hope they don’t come knocking, I’m freaking using the onion to try. No idea, seems suspect. I’m not IT. My background is HVAC/R primarily AC/R and Controls, and Oil Heat, Hydronic. Mostly light to Mid Commercial/Polyphase systems. My academic is majors in Econ, Finance, and Accounting, whatever is going on seems suspicious and above my pay grade. I just wanted to reach out and say hi, hopefully connect with some of you-you can email me. While controversial to speak freely, I don’t and refuse to follow Woke Culture. I always was and still am a rough boy, over educated and broke (sadly). It seems, and I honestly forgot, taboo in these communities to speak of truth and reality. While I encourage everyone to try, try, try, when you hit the point of no return, it begs the question should I accept, or pursue useless false pretenses? I always tell the new to seek help, but be cautious of the Cleveland Clinic Caliber docs, many are pushers (and you know that). Even despite me vehemently opposing the medical establishment, I am trying to find the money to pay to see Dr. Mickey at the world renowned-if not best-brain clinic, Pitt, UPMC. My Part C won’t cover, and I can drive but without a car it’s a huge expense. My life was hell, but is fundamentally better. Once you partake in radical acceptance, and accept reality, the pain becomes bearable. I hope everyone understands, but for some of us (the ones you try to expurgate) it ain’t sunshine and rainbows. This destroyed me, my life, and I can only dream of having six figures, fast barely street legal factory rice burners, a beautiful wife, and all the luxuries that it affords. I studied the Harvard studies and lived/confirmed that after $80,000 you don’t get much happier, take it higher, about $120,000. Anyway, unlike most, I won’t deny it. I love money, I love six figures in the bank, and a shitload in index funds. Am I wrong, no! This life on the welfare rolls, you can have it. Poverty sucks. Anyway, I won’t get myself in a further hole. Live life, go with what you know, and what works. FYI, I tried to delete my post, and my account-no luck. That seems odd that you can’t. Again, was presenting my side, and was looking to reconnect with the few I did link up with. My iCloud wasn’t a cloud, and I lost all my contacts. Finally, for those that don’t go postal or have psychotic episodes on psychoactive, stay positive. There is considerable promise on the litigious side. In MD, you can have up to an O of grass, you can conduct business in an open drug market (Bmore, PG county), and NMDA and the stuff you guys want (won’t name drop), is already legal in DC. Not injecting politics, but if it’s far left, it’s legal. Olay, I’m out.

I suffer migraine and fibromyalgia. I make my own CBD hash oil from industrial hemp which is easily available online in the UK. If you google "BHO" you'll find lots of information online about how to make it. Ignore all the fancy equipment. You can use any metal or glass tube and collect it on a piece of baking parchament placed in a soup bowl. I take a small dab when I get home from work and another when I go to bed. I also mix the hash oil with propylene glycol so I can carry it around in a vape pen in case I get an attack of pain when I'm out and about. Just plop 4 grams of hash oil in 100ml of PG and heat and stir until it dissolves . I prefer CBD with as little THC as possible because I hate being stoned that's why I start from industrial hemp rather than weed. If you live in the states you'll probably have acess to high CBD/Low THC weed. We don't in the UK. Some strains to look for are AC/DC, Cannatonic, Sour Tsunami, Harlequin, Remedy, Charlotte's Web. When I first tried CBD I was on 7 pills a day. Now I don't take any.

As Pixie says, getting a diagnose first is absolute key. Depending on your access to a real specialist who really knows his stuff the best thing as with many other diseases is to be as good informed as possible to not get sent away with an unsatisfying answer. This is an obscure disease however with plenty good (and many of them harmless) options to ease the burden - if she has CH. Please correct me if this is a bad advice but from my personal experience and many others reporting similar, a diet change can already show some improvement. In case you need to wait too long for an appointment you might consider giving this a try already and see what happens. There should be limited risk as you just avoid what isn't good for most "normal" people anyways when consumed constantly. Some weeks ago I have removed a lot of things from my diet and feel overall way better and only have a single, very mild attack each morning at 7am coming from 3-8 attacks per night (I am now working on getting rid of the remaining attack as well of course) What I did: - no sugar, no meat, no cow diary products, no wheat, no alcohol, no glutamate, very reduced coffee consumption, no food with high histamine or purine levels.Smoking is very bad as well obviously, I can't stop though yet. Only eat self prepared food, so you know what's in it. Most of these things raise your PH level and / or are high in purine. There is clear evidence that many if not all of us have an imbalanced PH level (constantly too acidic) You will ask what's left to eat - there is plenty left actually to keep your calorie count positive and get all vital nutritions. - Most vegetables (avoid histamine rich ones like tomatoes), also check if your wife has pollen allergies. Some veggies share the same allergen as certain pollen so there is a chance for a cross allergy. ( example = Arlen pollen allergic person may be allergic to potatoes and carrots as well). Being allergic does not necessarily mean you have to have clear symptoms like hey fever / itchy eyes etc !! - Butter and goat cheese - Most berries (very rich in antioxidants), be careful with strawberries - many fruits but be careful with some like bananas or citrus - self baked bread, takes literally 5 minutes to prepare .Gluten free wheat, no yeast, baking powder, joghurt lactose free, some seeds, salt, water. Mix and bake for 40 minutes, done. -Fish (only salt water like Pacific salmon) - eggs are technically not great when it comes to purine but I seem to tolerate them - all native / cold pressed oils are very good and many like coconut oil have great anti inflammatory effects and provide with omega 3 fats and good calories. Hemp oil, olive oil, coconut etc, do some reading maybe. Now this is a pretty tough switch both from an organising perspective as well as a mental one (sugar withdrawal...) But it's doable. No cheating, or you can't assess if it helps. Took me a week or 2 until I saw the benefits but they are undeniable and I don't crave anything anymore. To be clear, I don't think this is neither cause nor cure for CH but it may drastically help. I am convinced though there is a link, there is more and more clear scientific evidence showing up the recent years that your gut is actually the root cause triggering off many bad things that have originally been thought of originating somewhere else. Parkinson, Alzheimer's, MS, even depression and many forms of cancer you name it are tracked back to an damaged gut system. Even if your Wife doesn't have CH, I recommend read up leaky gut syndrome or one of the pre stage causes namley Candida overgrowth. (Hello again sugary diet...) Again, this maybe isn't a good idea to do without a doctor monitoring if there are other conditions like diabetes or else but you can sure assess this on your own. I just type all of this because even if it's not CH, being more carefully on what we eat should only benefit us on many levels. (If not done too extreme of course Let us know what you think

Does anyone get all their vitamins and co-factors in the anti-inflammatory regimen (Batch regimen/Vitamin D protocol) from iHerb ? I have been struggling with this for years, buying locally (in Finland) those that I can find and buying from iHerb the ones hard to find locally (vitamin K2 and such). It's been difficult since our local products are very lightweight for this use. For the first time I am down to 6 different producs (Vitamin D, vitamin K2, magnesium, fish oil, 2 multivitamins) but I think I am still getting way too much things that are not required in the regimen. I have been thinking of buying everything from iHerb (now that finnish customs will tax every shipment anyway) and wanted to ask if you have been able to build the whole regimen easily from products available at iHerb ? Please list the products if you can. This could help others too in different countries since iHerb is shipping all around the world. I think there are other countries where some vitamins and co-factors are hard to find too.

Thank you for the response. I appreciate you taking the time and I will check out the new user link. I have watched some of the videos on here about the use of oxygen and proper masks which led me to purchase the ClusterO2 kit from this site and a regulator that lets me go up to 25 (the one I was given from the Doc has never helped and was exactly what the video said was "nothing"). I did receive what I thought was an auto response about vitamin D3 but I still have read a lot about it in my desperate search and went out and bough the fish oil today. I already have everything else except the Super-K and one other item I cant remember the name of at the moment foliate something or another. I have been taking D3 in pretty high doses but i suppose it wont help if my body is not absorbing it. I did see the mention of Busting boy do i hope that means busting out of this!!! Thank you again!

Hey DD, AlanK, All, The 80 ng/mL "sweet spot" (target 25(OH)D3 serum concentration) is actually the mean 25(OH)D3 serum concentration reported by 80% of participants in the online survey who experienced a favorable response to this treatment protocol. If you look at the following normal distribution chart of CHer reported lab results for 25(OH)D3 after ≥ 30 days on this treatment protocol below, half of these CHers required a higher 25(OH)D3 serum concentration up to 180 ng/mL to achieve a CH pain free response. What this really means is they needed a larger vitamin D3 loading dose/longer loading schedule and higher vitamin D3 maintenance dose than 10,000 IU/day. I've spent a good deal of time working with the CHers (and their doctors) who didn't respond to this treatment protocol using a 25(OH)D3 serum concentration target of 80 to 100 ng/mL. What they had in common was their serum PTH was still in the mid-Normal range. When they increased their vitamin D3 intake with loading doses between 100,000 IU/day and 150,000 IU/day, their PTH dropped to a low-Normal range and they started responding with a significant reduction in CH frequency or they experienced a CH pain free response. What's also significant is their serum calcium concentration remained within its normal reference range. This vitamin D3 treatment protocol has evolved slightly over its 10 years existence. When we shifted the type of vitamin D3 from the oil-based liquid softgel formulations to the Bio-Tech D3-50 50,000 IU water soluble form of vitamin D3 in mid 2018, we saw an increase in the 30 day significant response rate from 80% to nearly 90% and an increase in the 30 day CH pain free response rate from 54% to 60%. Shifting from the generic vitamin B 50/100 complex to the Methyl Folate + B complex also helped. It's important to note these changes were not made in a vacuum. This is a patient-centered and patient developed treatment protocol so "we" made these changes after observing the increase in efficacy. The "We" is critical here as these changes/improvements could not have been made without input, feedback and active participation by the CHers and their PCP or neurologists following this treatment protocol. Accordingly, in a very real sense, this is Your treatment protocol. It's also important to note that I have also actively participated in these changes to the treatment protocol taking larger vitamin D3 loading doses elevating my serum 25(OH)D3 higher and taken higher vitamin D3 maintenance doses to maintain that higher 25(OH)D3 serum concentration. Over the last four months, several of us have taken a loading dose combination of two (2) Bio-Tech D3-50 capsules and 0.5 mL of the Micro D3 nanoemulsion taken sublingual, for a total daily loading dose of 140,000 IU of vitamin D3. This combination resulted in a rapid and effective elevation of the 25(OH)D3 serum concentration and more importantly, a cessation of CH without going bust on serum calcium or PTH. The following 4-Year chart of my labs for serum 25(OH)D3, calcium and PTH tells the story. My PCP had no problem with my 25(OH)D3 serum concentration at 277 ng/mL as my serum calcium remained within its normal reference range and my PTH serum concentration didn't get too low. He did order a 24 Hr urine collection to make sure I wasn't dumping calcium in urine. Here are the results: Tests: (1) Calcium, 24Hr, Ur w/Creatinine (003324) 28 May, 2021 Calcium, Urine 24hr 146 mg/24 hr 26-354 Calcium/Creat. Ratio 118 mg/g creat. 14-318 Serum 25(OH)D3 at 277 ng/mL (692 nmol/L). No Hypercalcemia and No Hypercalciuria At this point I need to make the following disclaimer. The vitamin D3 treatment protocol discussed above is solely for educational purposes regarding potentially beneficial therapies for Cluster and Migraine Headache. Never disregard professional medical advice because of something you have read on our website and releases. It is not intended to be a substitute for professional medical advice, diagnosis, or treatment in regards to any patient. Treatment for an individual patient should rely on the judgement of your physician or other qualified health provider. Always seek their advice with any questions you may have regarding your health or medical condition. Take care and please keep us posted, V/R, Batch

My daughter has been using 5-Hour Energies with good success for aborting (along with O2) for many years. Sometimes her attacks break through and last a long time (couple of hours), and she often uses more than one 5-Hour Energy. That many 5-Hour Energies, as many as four or five a day some days, makes her feel pretty crappy. About a week ago she just couldn't take another 5-Hour, so she went with some coffee she had sitting around. Got a very fast abort with it and O2. Since then, she's been using coffee and consistently aborting pretty quickly (~10 minutes), and her gut feels 100% better. I suppose it's possible that like other meds, too much of whatever's in energy shots might turn out to be counterproductive. (Or, as you all know, it could be any number of other things. For example, she was taking hemp oil for the CBD right about until the time she switched to coffee; so maybe the oil/CBD was making things worse instead of better.) She doesn't use triptans or any preventive except D3. She's also been drinking ginger tea every day for about a week. Maybe that has something to do with it.

Hey Katrina, Welcome aboard. I suspect you are vitamin D3 and magnesium deficient. These deficiencies can easily contribute to SUNCT/SUNA and the rest of the TACs. The Standards of Care recommended treatments for SUNCT are frequently Antiepileptic medications which are useless as you already know and do more harm with adverse side effects that any good in preventing these headaches... I usually suggest headache sufferers see their PCP/GP for a lab test of their 25(OH)D serum concentration. However, there in the UK, your NHS guidelines usually prohibit this lab test unless there's suspected hypervitaminosis D. Accordingly, if you run into this problem, telling your PCP/GP a little white lie that you're taking 50,000 IU/day vitamin D3 should do the trick. On the other hand, data from several sources including the online survey of 257 CHers taking the anti-inflammatory regimen have found most are vitamin D3 insufficient/deficient as illustrated in the normal distribution chart of 25(OH)D lab test results taken prior to starting the anti-inflammatory regimen. As you can see, the majority of the 257 CHers taking this lab test prior to starting the anti-inflammatory regimen had 25(OH)D serum concentration below 30 ng/mL or 75 nmol/L as its measured there in the UK. The optimum range for 25(OH)D that results in a decrease or cessation of CH is 80 to 100 ng/mL (200 to 250 nmol/L). Accordingly, obtaining this lab test now is not as important as having it done 30 days after starting the anti-inflammatory regimen. As most CHers have found taking a vitamin D3 loading dose of 50,000 IU/day for 12 days elevates their serum 25(OH)D into the therapeutic range rapidly and usually with favorable results, then dropping back to a maintenance dose of 10,000 IU/day, it wouldn't be a lie if you told your PCP/GP you've been taking 50,000 IU/day vitamin D3. Your best course of action is to do what many cluster headache sufferers (CHers) there in the UK do, and that's to order some 5000 IU vitamin D3 soft gels. I work with hundreds of new CHers a year and have recently found that Bio-Tech D3-50, a 50,000 IU water soluble form of vitamin D3 from Bio-Tech Pharmacal is faster acting and more effective at the same dose as the liquid soft gel vitamin D3 formulations. I've been providing information outreach to nearly 2000 CHers over the last eight years on the benefits of taking what I call the anti-inflammatory regimen. It consists of 10,000 IU/day vitamin D3, 400 mg/day of magnesium, 25 mg/day zinc, 3 mg/day boron, 1000 mg/day Omega-3 fish oil and vitamin A at RDA. The results have been amazing with 80% of CHers reporting a significant reduction in the frequency of their CH from an average of 3 CH/day down to 3 to 4 CH/week in the first 30 days. Moreover, 50% of CHers who start this regimen experience a complete cessation of their CH in the first 30 days. As SUNCT/SUNA are the evil cousins of cluster headache with similar pathogenesis, they should respond to this regimen as well. While you're waiting for the vitamin D3 there are several things you can do now to help reduce the frequency and severity of your headaches. These include hydration, drinking at least 2.5 liters of water a day. It sounds too simple, but it works. You shouldn't have any problems picking up magnesium, zinc, boron and vitamin A supplements. To this many CHers and migraineurs have added 300 to 900 mg/day CoQ10 (very important if you're taking statins), 1000 to 2000 mg/day Turmeric (Curcumin), liposomal vitamin C at 4 to 6 grams/day, Quercetin and Resveratrol at 500 mg/day. We've also found diet can play a key role in successful headache preventative treatments. The Atkins Diet or Ketogenic DIte are both very effective. They call for a complete abstinence of all sugars, wheat products and a very limited intake of carbohydrates or high starch food types. You can eat all the free range organic meats, poultry, eggs and wild caught fish you want. NON GMO organic green and colored veggies are also on the list of good things to eat. Restrict fruits to dark berries and grapes. A good anti-inflammatory diet should also include garlic, ginger, lemon, and apple cider vinegar. You can combine fresh ginger, garlic, lemon juice and apple cider vinegar with some extra virgin olive oil and blend as an emulsion salad dressing over fresh spinach, sweet onions, portabella mushrooms, boiled eggs and some smoked or kippered salmon. That's a great meal all in one... Take care and please keep us posted. V/R, Batch

I called and asked and seemingly clueless as she said mg/ml but as she prescribes me the vitamin d in medical oil grade D-Cura 25.000ie ampules she won't prescribe me any more until I get it lowered. A huge spanner has been thrown in the works though, I am just home from the hospital where I spent 6 days. I have never had gallbladder problems in my life but it seems it had gone necrotic and had to have it removed in an emergency, I had a huge infection inside so had to stay in hospital. So besides being off the regimen now for 10 days plus (I stopped taking them as I felt ill 4 days before the ER) I now have also learnt that the body without a gallbladder has problems absorbing fat soluble vitamins (D, E, A and K) which presents me with new problems. I could cry... I need to start all over again and wonder what the impact will be on the vitamin intake. I just wish I had a doctor who knew the protocol that could talk me through it and make sure it is going right via blood tests etc. I only got these measurements as I had not been feeling well. Sorry for venting, I have had a rough time lately.

There are threads here where people report results from CBD oil. Some good, some very good, and some neutral (no effect, or no discernible effect). No bad results, I don't think. You can find all references in this forum to CBD oil by typing CBD into the search bar at the upper right side of each page. I think the ~25mg that you're getting might be a little low based on people that reported good results -- but I could be remembering that wrong.

Hi MaskedMarvel, (good nick, btw) Welcome to the group, sorry you have to be here. Most people, probably 90% or so, find alcohol to be a trigger, and many also find pot to trigger attacks. I don't with either item, thankfully, but many do. Many people use alcohol to see if they are out of cycle or not. Obvious advice, avoid them for a month or so. Means an alcohol free New Year's, but better than the alternative. No idea about CBD oil and its affects on clusters, others might comment. Waiting 3.5 days between shrooms is good, 4 days is better. We typically recommend 5 days, but it sounds like you are already aware of that. Often, after busting, you'll get what we call 'slapbacks', which will be oddly timed attacks, or stronger, or sharper, or shorter/longer, etc. Basically, an attack that doesn't fit into the norm. This is a good sign that the shrooms are working. But, it sounds like CBD oil might be holding these off, which is interesting. Most people find it difficult to stay still during an attack. Cold, fresh air should help, along with a cold drink. Caffeine, coffee, energy drinks are all also really good to abort attacks with, I usually keep an energy drink in the fridge for just such an occasion. For more serious aborting methods, look into high flow oxygen. I don't know a lot about it personally, am sure others will jump in with advice. Also, read up on the Vitamin D3 Regimen (aka Anti-Inflammatory Regimen). It's very effecting for a lot of people. You'll also want to read up on busting between cycles to prevent cycles. All this info is in the Clusterbuster Files section. As a trained massage therapist, huge thumbs up for myofascial release techniques. I generally find massage helpful for several forms of headaches, and stretching and releasing your soft tissue is a huge benefit. Don't give up hope. I was suicidal before I found this site. There are solutions and ways of managing this illness. Hang in there, and ask questions, we're here to help. MG

Hello gang: I need to report in. I'm Checkin' in like Gunga Din. As I posted over a year ago: "However those of you who have let me whine here for the last decade or more know that I keep the [ triptan] injections handy - and I take a healthy dose of Verap. every day all year - I have the big big O2 tank in the hall all year - I have tried a visit to the Portuguese wizard, busting with shrooms, Chinese doctor and herbs - nothing but licorice water for a week, water water water, exercise rapidly, ice on the carotid artery, steroid dose pak, Cluster vitamin regimen, Opioids, benzos, advil, melatonin, a Shaman in the Navajo tradition, Hot water pads, every other god dam thing. In the end; every single cluster cycle required absolute submission to the Beast in varying amounts before I can see the light. " By chance, this year in April which is the inevitable early part of my annual cycle, my mother-in-law brought me a bottle of CBD oil made from Hemp - no cannabis no THC . Having tried all of the crazy stuff above I am open to anything. The beast came knocking one evening in April it was the first of the season that was more than a shadow. I assumed the position on the floor and got my ice bag. Then I took a full ml. of the CBD sublingual. The attack aborted in minutes. I used that small hemp oil vial in a bout 15 days. My research led me to understand the "Entourage Effect " of cannabanoids. (I don't like to drop links in this board so Google it) I got my medical card and bought a CBD compound which is "Whole Plant Medicine". Not enough THC to even contemplate the tiniest buzz, but medially, enough to keep the CBD in concert with the other the other therapeutic compounds in cannabis. I have not had another attack since April. This is the first year in 10 or more years that that has happened. I know CH Father has commented that the results and reports on CBD are all over the place and this I see as I have looked on the boards. However - having been here since the early days of the "old board" I just had to let you know of this amazing outcome. Now - I have felt the beast trying to break in on a few occasions, which to me only adds credence to the results I am having being attributed to the CBD. A PF summer -- who ever heard of such a thing ? I hope to keep reporting these positive results. Wishing you all well. TomSwift

In a study, eating fatty fish and flaxseed while reducing linoleic acid consumption had a big effect on migraines (40% reduction). ("The major dietary sources of linoleic acid are vegetable oils, nuts, seeds, meats, and eggs. The consumption of linoleic acid in the US diet began to increase around 1969 and paralleled the introduction of soybean oil as the major commercial additive to many processed foods.") There's a suggestion here that eating the fish and flaxseed is better than taking Omega-3 supplements, and a suggestion that the diet affects pain pathways, which is why I thought it might be relevant here. https://www.bmj.com/content/374/bmj.n1448

I find that getting my Omega 3's from flax oil doesn't bring any burping issues. What this means though is that I'm not buying into the assertions I've seen from the very vocal (and sometimes hysterical IMO) Dr. Mercola that animal source Omega 3's are the way to go. As loathe as I am as a vegetarian about advising anyone regarding chowing down on animules, there is this claim from Dr. Mercola about Krill oil and fishy burps avoidance: "...it is now best to obtain the important omega-3 fats with DHA and EPA fatty acids from a high quality krill oil. In addition to being very high in omega-3, krill also contains almost 50 times more antioxidants than fish oil, which prevents the highly perishable omega-3 fats from oxidizing before you are able to integrate them into your cellular tissue. Additionally, the omega-3 in krill is attached to phospholipids that increase its absorption. This means you need less of it, and it will not cause belching or burping like many fish oil products."