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Would something else say flaxseed oil work in the place of fish oil (I am a vegetarian). Also this from the page you linked to "The standards of care recommended treatments address the neurological symptoms of CH as a trigeminal autonomic cephalalgia (TAC) with neurogenic origins in the hypothalamus and manifestations in the trigeminal nerves." Could this affect say Trigeminal Neuralgia in the jaw? As this is the worse that it has been for that as well. As far as the oxygen mask from what I have seen here looking at the files what they gave me is wrong. It is a basic mask, no re-breather. Looks just like what is pictured below.

Hey Chano, The best course of action is to pick up some 5,000 IU vitamin D3 soft gel capsules and 400 mg magnesium softgels, Omega-3 Fish oil and 50+ Adult Mature Mulit shown with daily doses in the following photo. They're available at Cosco and most super markets. Rationale... You're likely vitamin D3 deficient and that deficiency is contributing to the frequency, severity and duration of your CH. Colds are a viral infection so will also respond to large doses of vitamin C and zinc. I take 6 to 8 grams (6000 to 8000 mg/day) of vitamin C and 50 mg/day zinc if I feel a cold coming on. Vitamin D3 and Omega-3 Fish Oil are also natural antiviral agents so will help reduce the length of colds... and help prevent your CH. Take care and please keep us posted. V/R, Batch

I took High dose CBD oil for a month along with 160mg of verapamil 3 times a day and had no problems. I think it helped but it didn’t abort my CH as some one here has reported. If you’re going to do cbd check out https://www.lazarusnaturals.com/shop/ after spending hours researching I found this company makes the highest quality cbd for the money. The flavorless just tastes like coconut oil.

Hi Guys, I am starting to get optimistic now. Finally the severity of the CH symptoms has weakened noticeably. Overall, it's lasted 3 weeks. Finally, the past 3 nights in a row, I had no episodes of CH. However, the achey face feeling--the same area of head--still noticeable when I awaken in the morning, and gradually diminishes late morning. It looks like some sort of biorhythmic cycle still continues. I hope it completely goes away soon. With Batch's recommendation, I added fish oil to the daily regimen. Now taking daily: 10K D3, 240mg MgGlycinate, 2.2g fish oil (1.2g EPA, 0.5g DHA), 200ug MK-7, and a multivitamin.

Batch, thanks for your comments. I bought a fresh bottle of 5K D3 pills, tossed by 2K bottle, in case the pills had lost potency (from last year). Have you ever heard of that? Also taking 240mg MgGlycinate, and 200ug MK-7 daily. I don't have fish oil on hand, but will try to eat more fish. I hate looking for fish oil pills--so many different kinds. You are the one whose advice I followed in 2016, and the CH's disappeared. I am still hopeful that they will go away this time, and soon. The Vitamin D solution does make sense, given all the facts. One thing I don't understand is why the water soluble type that you mentioned would have a quick effect. Absorption might be faster, but doesn't it have to be metabolized just like the solid pills? So it should save some hours, but not be able to act to staving off an attack? Jon, thanks for your ideas. I gave up on the sumatriptan pill--took too long to act. Even if I had an injector, I might not use it. Just worried that pumping that stuff will mess me up eventually. I moved last year from California, and don't have a neurologist nearby, but plan to. I also wish I had cannabis to try--not available where I live now. I do not know why I am sometimes nauseated, but it is a chain reaction of some sort. I might seek the O2 tank route, but could be an uphill battle, implied by some others' posts. I did try O2 once in the ER, and it didn't help. The diagnoses was done first by a ophalmologist. Up til then I had several eye exams that found nothing wrong to explain the eye pain. I have no doubts...symptoms all align with Mayo Clinic description: pain around the eye, droopy eyelid, tearing. Episodes usually at night.. By the way, I had a CH onset this morning for some reason. I was able to get some relief by getting into a hot bath after around 10 minutes. I think it was RussM wrote about putting feet into hot water. I tried that, but was shivering, so just got in. I think this will become my first line response if I am at home.

Yes true I have not considered for those taking Verapamil that it would be maybe better to check upfront if cold showers could be a contraindication in regards to lowered blood pressure. I am not sure though its actually an issue if you do it slow. Anyways I highly, highly recommend give yourself a week to 10 days to start the cold shower routine combined with the breathing. You basically flood your cells with Oxygen by doing it correct. We humans are masters of adjustment, I think the regular timeframe to adapt to change whatever it is takes roughly 10 days (which fits to the roughly 15 day busting schedule actually). Just do it, you have nothing to lose. Also you do not have to be hardcore and jump right in, you can slowly adjust your body to it. I.e shower regular warm, then gradually decrease to cold and hold. You dont have to go to "full" cold either for the start, just so its not comfortable and hold for like a minute. After some days you will notice that you can drop the temperature even further. Its also not just the cold, the mindset is important as well. Bottom line is that you should enter a sort of meditation like state of mind - its just cold water, you can overcome your urge to leave the shower. The Mantra could be as simple as as "its just cold water - slower spinning molecules then my bodies so this is what creates the sensation" If you are able to pull this through for a couple of days, you will notice something very interesting. The cold water actually starts to feel warm. Sounds silly but it works. Your lymphatic system still gets the benefits from the cold but your mind starts to develop the capability to "switch off". This whole thing isnt just about enduring cold water or kick starting fat burning or what not (thats what most articles who address this technique speak about, fitness / health benefits etc) but for us CHers there is more to gain. Developing resilience. Strengthen and train your mind when you have to endure a bad attack. Just like cold water, a bad attack is also "just" pain. I am sorry I dont want to be offensive I have the same then you and I understand some might be put off by stating its just pain - but ultimately it is just pain. At least as far as we know CH is no degenerative disease, shortening lifespans or what not. The things that come along might affect our life spans, but not the attacks themselves. I might be wrong, maybe an optical nerve actually ripped in someones head but I have not heard about this yet. I think you get my point. This is no snake oil science or else, Wim Hoff did not invent this either. After the death of a family member he slipped into a bad state and was seeking ways out of it and pulled up some more or less forgotten stuff from back in the days. The whole cold water / breathing combination is age old, at least to 1821 where the Priest Sebastian Kneipp first introduced Hydrotherapy. (check wikipedia on Mr. Kneipp)A And no, this sure is no cure or will help everyone which is the usual disclaimer. Its a tool among many which is harmless, has no costs and can done anywhere. all the best to everyone around here

Hi all - longtime CH sufferer (11 years), first time posting. My cycles have progressively gotten longer and had more headaches during each cycle over the years. I’m currently 3 months into a cycle and still getting 3-13 headaches per day. Historically, oxygen has worked great and I’ve managed by always keeping oxygen close by wherever I go. Now I have 1-2 headaches per day that oxygen isn’t helping, though luckily sumatriptan injections are still doing the trick. I have never tried MM or the D3 regimen but now seems like a good time to start. Also, I take 75 mg nortriptyline a day and have taken this drug for a few years and seems to be a bit better than verapamil for me The supplement instructions aren’t totally clear to me (I found the wiki but the length of the file and posts since then have me a bit confused) and I was hoping someone could check my understanding below so I am taking each step correctly. 1. Go to a lab and ask them to test serum D3 levels 2. if they are above 45 then no need for the regimen? If they are lower, then start regimen 3. Take bio tech d3-50 every day for 2 weeks. Also during these 2 weeks take 1 mature multi a day, 1000-2400mg fish oil a day, 400-800g magnesium a day, mk-4 vitamin k 1000 a day, mk-7 vitamin k 200 a day, 1 vitamin b 50 a day 4. after 2 weeks do all of the above except bio tech d3-50 is just once a week 5. after 3 months drop the vitamin b 50 does that all sound right? Also, if I can only find some of the above supplements today, should I go ahead and start with some of them or wait until I get all of them? Also, how often do I need lab work done after this? I haven’t taken supplements in the past

@Jost you can try taking oil of oregano. It fights both bacterial and viral infections very effectively. Powerful stuff so don't overdo it!

Frankly if I thought I was going back into a cluster cycle (and busting wasn't working for prevention) I think I might be more likely to seek out the Harlequin! I say this just because although I can see the CBD oil is effective for nerve pain, it's been requiring around 6 hits for an effective dose, and I'm afraid that might be too long for me to wait for a CH abort. Although maybe it would be good enough for the initial, not so off the charts, easier to abort attacks that have characterized the very beginning of a cycle for me. Or maybe I'd research into a best quality, faster/easier vaporizer for the CBD... I guess I'm thinking of the time it takes for 6 or more hits of CBD oil to kick in as being like taking an imitrex pill, and 1 to 4 hits of Harlequin potentially being more like an imitrex injection, but hey that's just the noise and wild guesswork rattling around in me noggin at the moment, with admittedly little thought or research put into it. Glad you brought it up though - maybe I could start with seeing how the oil affects a shadow, as I expect to have those randomly pass through now and then.... I'm also trying not to get TOO excited yet about CBD and CH since some CH'ers generally find marijuana to be an actual trigger, and I wouldn't know whether for them that might also apply to the CBD hemp oil or Harlequin. Again, I'm pretty much just free associating with random thoughts here, and very well may change my stance when better informed.

Late to the party but figured to response as well in case anyone stumbles upon this post. I looked into wobenzym years ago as well as I knew about its strong anti inflammatory ingredients (had it prescribed because of an inflamed knee, worked wonders) Just to state, this isn't any kind snake oil it's a very well known and reputable brand around here, often prescribed for any kind of joint / limb etc issues by doctors. I don't think it's available in the states for whatever reason (it was not back then, maybe it is now or under another brand name) I didn't try for CH myself as I want to stick to the d3 regimen only if possible but yeah if anyone wants to give it at shot I can confirm the stuff is at least not any hokus pokus when it comes to reducing inflammation but actually worked (for my knee but still)

Hey Amholla, Good question. For starters, we've found the 12-Day accelerated vitamin D3 loading schedule at 50,000 IU/day for 12 days, a total loading dose of 600,000 IU of vitamin D3, to be effective in elevating serum 25(OH)D3 concentration by 60 ng/mL above the starting/baseline concentration. You're going to need at least another 10 days loading vitamin D3 at 50,000 IU/day to meet the minimum loading schedule. The following chart illustrates the time to respond to this treatment protocol in days from start of regimen with a significant reduction in CH frequency (from a mean of 3 CH/day down to a mean of 3 CH/week). As you can see, the majority of CHers experiencing a favorable response do so within the first two weeks on this treatment protocol. This next chart illustrates the time in days to a complete cessation of CH from start of regimen. This is a subset of the above time to favorable response. There are several factors that influence time to respond. The first is the starting or baseline 25(OH)D3 serum concentration. Seeing your PCP/GP for this lab test before starting this treatment protocol is important. If the starting 25(OH)D3 serum concentration is low, it takes longer to elevate to a therapeutic concentration above the CH threshold. The following normal distribution chart illustrates the results of baseline labs for 25(OH)D3 among 313 CHers experiencing active bouts of CH before starting this treatment protocol. If you didn't obtain this lab test before starting treatment, you're shooting in the dark when it comes to estimating a response time. The odometer and speedometer on your body's dashboard are not working. You don't know how far you've come or how fast you're going towards a favorable or CH pain free response. This next chart illustrates the normal distribution of 25(OH)D3 lab results after ≥ 30 days on this treatment protocol among CHers who experienced a favorable response with a reduction in CH frequency or a complete cessation of CH. If you look at the blue sigmoid S-shaped cumulative probability curve in this chart, you'll see that 25% of CHers on this treatment protocol have responded by the time their 25(OH)D3 serum concentration reached 60 ng/mL. There's another chart CHers taking this treatment protocol should understand. It's the 25(OH)D3 time course response to various doses of vitamin D3. As you can see at a vitamin D3 dose of 10,000 IU/day it can take a month for the 25(OH)D3 response to reach 60 ng/mL. Clearly, waiting 30 days or more to experience the sought after pain free response while following this treatment protocol is too long for CHers. This is why we start it with an accelerated vitamin D3 loading schedule taking 50,000 IU/day of vitamin D3 for a minimum of 12 days as illustrated in the following graphic. The latest revision to this treatment protocol now calls for loading at 50,000 IU/day with the Bio-Tech D3-50 and all the cofactors illustrated in the photo below until there's been a significant reduction in CH frequency or a CH pain free response or 30 days whichever occurs first, then see your PCP/GP for a second set of labs for serum 25(OH)D3, calcium and PTH. We made this switch as the Bio-Tech D3-50 water soluble 50,000 IU vitamin D3 has a higher bioequivalence in elevating serum 25(OH)D3 at the same dose as the oil-based liquid softgel vitamin D3 formulations. We switched to the Methyl Folate + B complex from the vitamin B 50/100 complex for the same reason. If you're CH pain free and your serum calcium is within its normal reference range, you're good to go. Drop the vitamin D3 intake to a maintenance dose of 50,000 IU/week. If you haven't experienced a significant reduction in CH frequency and your serum calcium is within its normal reference range, continue loading for another 15 days then see your PCP/GP for another round of labs for 25(OH)D3, calcium and PTH. We've had a number of CHers continue loading vitamin D3 under a physician's supervision with frequent labs for 25(OH)D3, calcium and PTH, achieve CH pain free responses between 160 ng/mL and 189 ng/mL 25(OH)D3 and still maintain their calcium serum concentration within its normal reference range. The 3-year chart of my labs for 25(OH)D3, calcium and PTH are a good example. The second pacing factor in time to respond is a combination of body mass and body mass index (BMI). An adult male weighing 90 Kg (198 lbs) with a BMI ≥ 30 can easily take twice as long and need twice as much oral vitamin D3 as an adult male weighing 80 Kg (176 lbs) with a BMI of 24 to achieve a favorable CH response to this protocol. The third factor that causes the most problems for CHers starting this treatment protocol is an allergic reaction. Allergens cause the immune system's Mast Cells to release large quantities of histamine. This histamine in turn triggers neurons and glia in our trigeminal ganglia to express Calcitonin Gene-Related Peptide (CGRP). CGRP is one of four neuropeptides responsible for the neurogenic inflammation and pain we know as CH. As long as mast cells are releasing histamine, none of the CH preventatives (including vitamin D3) will be effective. Bottom line, histamine to a CHer is like Kryptonite to Superman - Bad news. If you do suspect an allergic reaction is interfering with vitamin D3 in preventing your CH, you need to treat the allergy with an antihistamine. In 2019 Quercetin became the antihistamine of choice over Benadryl (Diphenhydramine HCL) when CHers suspect or realize they're having an allergic reaction. 1 gram/day Quercetin is a good starting point and you can titrate the dose p to 3 grams/day. 1 to 3 grams/day Resveratrol and 6 to 8 grams/day vitamin C are also part of the intervention for allergic reactions. If there's no joy after a week of the above interventions for an allergic reaction, start taking the Benadryl at 25 mg every four hours throughout the day. If there's still no joy with vitamin D3 preventing your CH, see your PCP/GP for a 5-day burst dose of prednisone at 50 mg/day. Burst doses of prednisone at 50 mg/day for a period this short should not require a taper. If the burst dose of prednisone results in a reduction in CH frequency, see your PCP/GP for a consult with an allergist to find out what is causing the allergic reaction. This latest revision to the posted version of this treatment protocol is still in work. I hope to have it completed and published on vitaminDwiki.com soon. Take care and please keep us posted. V/R, Batch

Hello Gail and all, Newbie here, so I'm surprised to see myself commenting. Wet tissues all over my desk after reading of everyone's posts of success and help to others, and of the realization that there's so many others suffering this terror. No need for my long story, it's too similar to many others. Short version is we're into this demon 12 years now, and episodic has decided to go chronic in 2018. We've got some shrooms incubating at the moment, but they're not cooperating in their growth pattern as best as they could. The dreaded thoughts of suicide crept into my brain the other day so I raided my stash of Prednisone. Well what about the CBD? I'm blown away to hear your results Gail. Makes me want to run home & pop some of our stash immediately, but I'm totally paranoid of triggering an episode. You see, I'm now an aging hippie, with what you might call um, some?, experience in the use of cannabinoids over the course of my days, much more so in my youth, but my wife has been experimenting with CBD oil and topicals for various health issues recently and found remarkable results. My understanding of the effects of the usage of these is that they act as a vasodilator (you know - the dilated pupils effect), as opposed to a constrictor, which is mostly the result I think we want, like what the caffeine is helping do. I was using a bit of the CBD oil late 2017 as an anti-anxiety helper, but since these episodes turned chronic, my wife gets it all to herself. Maybe I'm totally out in left field on this; in fact I hope I am. It would be wonderful to have an additional treatment available. We're learning more & more about the benefits of CBD. Please keep us updated on your experiences with it. Best of luck!

Hey Bilal, Good move on switching to the Bio-Tech D3-50. Data for 2019 from the online survey of CHers reporting since 2011, indicated an up-tick in raw efficacy from 82% to 88% of CHers responding with a significant reduction in the frequency of their CH or a complete cessation of CH in the first 30 days after I started suggesting this change due to its higher bioequivalence compared to the oil-based vitamin D3 liquid softgel formulations. There's nothing wrong with zinc glycinate so no need to change. There appears to be a higher bioequivalence in the Methyl Folate + compared to the generic B complex. Regarding safe dosing with vitamin D3. A recent article in the Journal of Steroid Biochemistry and Molecular Biology at the following link, concluded in the results of a seven year study: There were no cases of vitamin D3 induced hypercalcemia a.k.a., vitamin D3 intoxication/toxicity at higher vitamin D3 doses and that long-term supplementation with vitamin D3 in doses ranging from 5,000 to 50,000 IU/day appears to be safe. https://www.sciencedirect.com/science/article/abs/pii/S0960076018306228 The following chart from this study illustrates it takes a long time for a stable dose of 10,000 IU/day vitamin D3 to reach a 25(OH)D3 equilibrium. The takeaway from this graphic points out the need to load vitamin D3 at higher doses (50,000 IU/day to 100,000 IU/day) to reach a therapeutic 25(OH)D3 response for CH in a matter of days where a maintenance dose of 10,000 IU/day can take 10 months. That's clearly too long if the CH beast is jumping ugly and a likely reason too many CHers claim this treatment protocol is ineffective for them. Watching the presentation by Dr. Ryan Cole on vitamin D3 at the following link is a must for everyone. https://www.bitchute.com/video/hfzL5gUeQvxr/ Take care and please keep us posted. V/R, Batch

Yes, you can do that. Then get rid of/replace the floaters. Then pat dry all the seeds. Then grind, then soak, then drink. Don't grind with anything that gets too hot (e.g., coffee grinder). I think the typically preferred method is more "crushing" than grinding -- with a mortar and pestle, for example -- but a hand-operated spice grinder is also fine. There was a time when 50 was considered a high first dose. I guess we've seen enough now to think that it's unlikely that you'll really "trip" at all from that number of seeds. I think around 35 is still the recommended first dose (up from about 20-25 when I first got here 18 months ago), but if you're comfortable with 50, go for it. I didn't feel like typing the procedure again with seeds and found this post from another thread from CHfather. I started with 60, them 80, then 90 (or something like that), then a fourth bust 2 days ago as I was feeling the CH crawling back in. For this 4th time, I used 90 good seeds (non floaters), and extracted the LSA using about one ounce of vodka mixed with cold peppermint tea and some orange juice. With the help of some cannabis, I can say it was getting close to a somewhat trip. I asked TrancePlants on what basis they had judged their seeds efficient following their own testing, assuming there were not CH sufferers and that if it is psychedelic trip the testing basis, how many seeds they use. Answer: shamanic use, 100 to 200 seeds depending on the person. So I'd say therapeutic for CH: 30-50 seeds if you want to stay conservative, up to 100 if you don't mind risking some (low) tripping. You will get infos here also http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1320275720/0 and here http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1283257635/0 where you will find also tingeling's "extreme situations" potion recipe. From my 4th busting experience, extracting with vodka and orange juice and peppermint tea seemed to have more power and that is what I will do next time, letting it soak a day or two (2 hours this time). Peppermint tea and/or alcohol is said to turn the LSA into LSH. Is that true? I don't know. Is LSH more effective for CH? I don't know. The turning of LSA into LSH seems to come from trippers Web sites, looking for the buzz from the seeds, but maybe LSH is more efficient on CH... I think no one knows for sure. Mj, please note that the amount of seeds mention here only concern RC seeds. For MG or for HBWR seeds, it's quite different

Hi Treelove, I would continue with the seeds because they seem to work. It's not uncommon to bust five times. I use essential oil of peppermint for the shadows and that even can abort mild attacks, maybe it could help you. Be carreful with it, it's really strong. Wish you the best.

Hi big j...I am hoping you will hear from someone with WAY more knowledge on Vit D than I EVER will have... ...meanwhile...trust your instincts...clusterheads tend to have a much more refined "feeling" about their body and its functions than most others... ...different forms of the exact same med or supplement can have TOTALLY different efficacy.....perhaps due to differing blood serum levels...or how/how much absorbed.. ...different forms are absorbed differently by the body...some directly to bloodstream (like sub-lingual or IV)... some through stomach or small or large intestine....some directly affected by the surrounding ingestions (e.g oil soluble vitamins are absorbed better when accompanied by oil containing foods) .....seniors and alcohol abusers tend to have deficient levels of B12 (my belief this deficiency rivals the near universal VitD deficiency)....it may not be absorbed well by the gut...sublingual/injectable frequently work betta than tablets.... ....in my case...extended release verapamil was totally worthless.... while immediate release proved about 70% effective ...this is a large subject...alas...I can only touch the surface.... Best Jon PS....to add...NEVER crush or chew a med or supplement without specific instruction from a knowledgeable professional...it changes intended absorption characteristics...as described above ...

Hey Batch, I am still having 1 to 2 hits a day but thankfully they are at night and I'd take night headaches over one during the day while I am at work.... Admittedly I am on what I think is the old D3 regimen that consists of (x2 D3 @10,000 I/U, x1 magnesium citrate @250mg, x1 calcium @600mg and x1 fish oil @1200mg) and unfortunately I haven't had any labs drawn for a while but about 6 months ago I did and they were fine

Hey Sontye and Bilal, You're vitamin D3 deficient... so it's not what you're doing that's affecting your cluster headache (CH)... It's what you're not doing... i.e., You're not taking enough vitamin D3 and the vitamin D3 and cofactors and that's what is contributing to the frequency, severity and duration of your CH... See your PCP or neurologist for a lab test of your serum 25(OH)D. A dime will get you a dollar if your results don't come back under the following normal distribution curve of lab results reported by 257 CHers who took this lab test before starting the anti-inflammatory regimen with at least 10,000 IU/day vitamin D3 plus Omega-3 fish oil and the vitamin D3 cofactors... The odds are better than 80% you'll have a favorable response with a reduction in the frequency of your CH from an average of 3 CH/day down to 3 or 4 CH/week in the first 30 days after starting the anti-inflammatory regimen with at least 10,000 IU/day vitamin D3, Omega-3 fish oil and the vitamin D3 cofactors. Better than 50% of the CHers who start this regimen experience a complete cessation of CH symptoms within the first 30 days after starting this regimen... You can find a copy of this regimen at the following VitaminDWiki web site at the following link. Discuss it with your PCP or neurologist when you ask for the lab test of your serum 25(OH)D. http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 The 25(OH)D lab results for CHers experiencing a favorable response to this regimen or a complete cessation of CH symptoms are illustrated in the following normal distribution curve. At 55 cents a day for a very safe, very effective and very healthy alternative to the Rx meds you've been taking to prevent your CH... Why are you waiting? Take care and please keep us posted. V/R, Batch

Hey Drewbie, All, The basic regimen posted on vitaminDwiki is still valid for CH and MH. I was in the process of updating it with results from the online survey when the COVID-19 pandemic hit the US in early February. At that point I had two changes to supplements in the posted version. The first is we've found the Bio-Tech D3-50 50,000 IU water soluble form of vitamin D3 to be faster acting with a higher bioequivalence in elevating 25(OH)D3 serum concentrations than the same dose of the oil-based liquid softgel vitamin D3 formulations. I began suggesting this switch in 2019 here on this forum. The same goes for the switch from the vitamin B 50/100 complex to the Methyl Folate + B complex as it also has a higher bioequivalence. I began suggesting this switch from the vitamin B 50/100 complex to Methyl Folate + B Complex in December of 2019. Vitamin C (Ascorbic Acid) and Turmeric (Curcumin) are also covered in the 2017 posted version of this regimen on vitaminDwiki.com. I began posting about Quercetin some time in mid 2019 and if you attended the Clusterbusters Conference in Dallas in 2019, I briefed Quercetin as an addition to the basis regimen. I also posted about Quercetin as a supplement in an immune boosting strategy to help prevent viral infections in early June of 2020. The rational for the switch from Benadryl (Diphenhydramine HCL) to Quercetin was based on the capacity of Quercetin as an antihistamine. As Diphenhydramine is an anticholinergic that easily leads to drowsiness and Quercetin has an excellent safety profile, the switch to Quercetin for CHers suspecting an allergic reaction makes good sense. The emergence of the Wuhan virus and COVID-19 pandemic in early 2020 have posed additional considerations on the update to the posted version of this treatment protocol. For example, I've always known a healthy immune system played an important role in helping to prevent CH and MH. What I didn't fully grasp was the detrimental effects of a dysregulated immune system can be on CH. The results of several studies of COVID-19 and treatments practiced by emergency medicine physicians in the Front Line COVID-19 Critical Care Alliance (FLCCC) focused on a dysregulated immune system as the primary threat to survival from COVID-19. Their treatments include large doses of vitamin D3 (480,000 IU) on admission, Quercetin, zinc as well as IV vitamin C, and Thiamine (vitamin B1). See attached. I'm still working on the updated version of this treatment protocol. That said the updating process is not a simple task. Once I have a clean draft, it will go out to a select group of experts in nutritional science, nutritional medicine and headache specialists for chop and comments. That will take at least a month or longer depending on the comments and suggested changes. Until then, I'll keep you posted. Take care, V/R, Batch FLCCC_Alliance-MATHplus_Protocol_v6-2020-11-12-ENGLISH.pdf

As it happens, I do have some peppermint tea. Or rather, it's green tea with peppermint -- will that do? If not, I'm sure it's possible to get some actual peppermint tea from somewhere nearby. I really want this thing to work, I'm a little wary of trying the 'harder' stuff, like mushrooms. Hallucinations really aren't my cup of tea.

Melissa, A CHer with active CH nursing a 7 month old baby... BINGO!!! You really need to be taking 10,000 IU.day vitamin D3 plus Omega-3 fish oil and all the vitamin D3 cofactors. If not, your baby needs a minimum of 400 IU/day supplemental vitamin D3. Yes... I can hear the wheels turning... Who is Batch and what are is qualifications for saying this? Good question... Although my answer may not be sufficient for you to follow the suggestion as I'm a 73 year old retired US Navy fighter pilot with a degree in Chemistry, 24 years as a CHer (chronic since 2005) and full time student of vitamin D3 since October of 2010. That's when I discovered that 10,000 IU/day vitamin D3 plus Omega-3 fish oil and all the vitamin D3 cofactors prevented my chronic CH... I've been CH pain free ever since. This regimen is so important for good health and among other benefits, it builds a T-Rex immune system, that I have my entire family taking it and none of them have CH. Of particular interest to you are my daughter and niece. Both have been taking this regimen for years. My daughter gave birth to her second child in July. This baby and his sister, now 3 years, were both bathed in maternal vitamin D3 at a dose of 10,000 IU/day since conception. Both pregnancies and deliveries were flawless. Moreover their neuromotor, physical and learning development while breastfeeding at this maternal vitamin D3 dose are nothing short of phenomenal. My niece took this same regimen through her pregnancy and is still taking it like my daughter while breastfeeding. Orrin, 5 months and Fred, a.k.a., Winefred, 3 years... Yes, I'm a doting old grandfather... but I've never seen more healthy babies... and Fred speaks English and Hochdeutch... I credit their excellent health and rapid development to their mother taking 10,000 IU/day through pregnancy and while breastfeeding... Fred also takes vitamin D3 at a dose of 50 IU per pound of body weight a day... She's a 40 pounder so that works out to a vitamin D3 dose of 2000 IU/day... and not the 600 IU/day recommended by bureaucrats at the National Academy of Medicine, formerly called the Institute of Medicine (IOM). Now to the experts with the sheepskins in the appropriate fields and years of professional experience with vitamin D3 studies who suggest 10,000 IU/day during pregnancy and while breastfeeding... Bruce W. Hollis, PhD, Professor of Pediatrics, Biochemistry and Molecular Biology, and Director of Pediatric Nutritional Science at The Medical University of South Carolina, Charleston, SC. The Institute of Medicine has set the “upper limit” of recommended intake at 4000 IU. Is it safe for an adult to take 6400 IU? "The IOM setting a limit of 4,000 IU per day was subjective and not based on any trials. The Endocrine Society guidelines state that 10,000 IU per day is safe. In my own experience with our trial and several other trials in which I have been involved (involving tens of thousands of patients), not a SINGLE adverse event has been observed due to vitamin D intake. I personally take 6,000 IU per day and have for years, and my daughter just had a child and is taking 10,000 IU per day while lactating (going on a year now). Totally safe." Hmmm... How about that... A highly qualified PhD, Professor of Pediatrics, Biochemistry and Molecular Biology and Director of Pediatric Nutritional Science at The Medical University of South Carolina, Charleston, SC recommends a maternal vitamin D3 dose of 10,000 IU/day... and that's what his daughter has been taking while breastfeeding... "Totally Safe." See the following link for more details: https://kellymom.com/nutrition/vitamins/vitamin-d-and-breastfeeding/ This was an interesting study where one group of 74 breastfeeding mothers took the "Old School" recommended prenatal vitamins and minerals with 400 IU/day vitamin D3 during pregnancy and while breast feeding... After 7 months of breastfeeding their mean serum 25(OH)D was only 79 nmol/L (36.6 ng/mL). 25(OH)D lab tests of their babies indicated 78% of them were vitamin D3 deficient until provided with 400 mg/day supplemental vitamin D3. The other group of 78 breastfeeding mothers took the same prenatal vitamins and minerals with 400 IU/day vitamin D3 PLUS another 6,000 IU/day vitamin D3. After 7 months of breastfeeding their mean serum 25(OH)D concentration was 151.2 nmol/L (60.5 ng/mL) and more importantly, their babies had a mean serum 25(OH)D concentration of 106.9 nmol/L (42.8 ng/mL) WITHOUT supplemental vitamin D3. Grassrootshealth recommends a maternal vitamin D3 intake during breastfeeding of 6400 IU/day... as a minimum... to ensure breast milk contains ≥ 400 IU/liter 25(OH)D. See the following link for more details. https://grassrootshealth.net/blog/vitamin-d-for-breastfeeding-mother/ Grassrootshealth.net also has a wonderful 25(OH)D home blood spot test kit for $70, no Rx needed and you'll get the results back in less than two weeks. I've used their DIY 25(OH)D test kits for years. See the following link for details. https://grassrootshealth.net/project/daction/ So there you have it... You can continue suffering from CH... or you can download the anti-inflammatory regimen, take a copy to your PCP, discuss it, then ask for the 25(OH)D lab test. When the results of that lab test come back indicating you're vitamin D3 deficient, start this regimen and follow it carefully. I'd go one step further and take your baby to the pediatrician and ask for the same 25(OH)D lab test. If you do this, your CH will become a thing of the past and your baby will be getting more than sufficient vitamin D3 while breastfeeding. Over the last seven years, at least 4 ladies with CH started this regimen and continued it through pregnancy and while breast feeding... Results... No standard CH medications with all the side effects, no CH and 4 very healthy babies. Take care and please keep us posted. V/R, Batch

I'm not sure the percentage. I take 1/2 mL 2x a day. Then I smoke CBD or take another dose if I feel an onset of a cluster. This is the CBD I use. https://cbdamericanshaman.com/water-soluble-full-spectrum-hemp-oil-30ml

Hi Patheticfern, May I ask you what doses you take ? I both a 10 ml bottle a while ago that has 15% CBD oil. The seller told me this is the lightest form of CBD for medical application. Can go up to 30 %. For me to have a little bit of an effect, I need around 20 drops while the guy in the store advised 3 drops per 3 hours... so much it makes me unwell. Maybe I need a higher concentration ? And how do you dose that ? Once a day or several times a day ? I have chronic paroxysmal hemicrania and chronic migraine. For the CPH, I need to take indomethacin to get it under control. Unfortunately, indomethacin makes my migraine attacks worse and resistant against triptans. I am currently experimenting again with topiramate. It has a clear effect on both headaches but I am too sensitive to it and too many side effects. siegfried

Hey TSmith, Sorry to be so slow in responding. My bird dog must have missed your post or I missed its email alert. My suggestion is to see your doctor for the lab tests of your serum 25(OH)D3, calcium and PTH. If your serum 25(OH)D3 is still over 150 ng/mL and your serum calcium still in the normal range, there's something else going on. Reviewing the bidding. From your earlier post, you indicated you were taking the supplements illustrated in the following photo. The Bio-Tech D3-50 is proving to be faster acting with a higher bioequivalence in elevating serum 25(OH)D3 than the same dose of the oil-based liquid softgel vitamin D3 formulations. The Methyl Folate+ is proving to be more effective as well for the same reasons. You're also indicated you're taking the following supplements in the next two photos. If you're taking all of the above, please let me know. There are a few more supplements and an additional lab test that may point us in the right direction to getting you CH pain free. The next supplement to add is N-Acetyl-Cysteine (NAC). It is a precursor to L-Cysteine. This is an amino acid that enables the enzymatic processes that among other things, up-regulates the expression of the vitamin D receptor (VDR) molecule. VDR attach to molecules of the vitamin D3 metabolite, 1,25(OH)2D3 at the cellular/nuclear level and that enables vitamin D3 to attach to a strand of DNA to initiate genetic expression. It's this genetic expression that helps prevent CH. In short, no VDR and there's no genetic expression no matter how high the 25(OH)D3 serum concentration. I order the NOW NAC at the following link. https://www.amazon.com/Now-Supplements-N-Acetyl-Cysteine-1000-Tablets/dp/B00KT3H13C/ref=sr_1_4?dchild=1&keywords=L-Cysteine&qid=1605713283&sr=8-4 Again, it's very important that we see you labs for 25(OH)D3, calcium and PTH. Take care and please keep us posted. V/R, Batch

lookey what I found ... Soooo ,, ( I feel like this is important).. the reason that the Shrooms and Seeds work ,, is because they bind with the excess acetaldehyde in your bodies converting it to LSH,,, I just ordered some for my son Defiance: It is my understanding the acetaldehyde naturally bound to the fresh seed active (the combination I call LSH for ease of communication) evaporates and thus leaves the compound I call LSA (for ease of communication) or something like that that I'll dig up if inquiring minds truly want to know. The evaporation leaves part of the original compound, which I call LSA, ready to react and form an adduct with another aldehyde when it is introduced to the LSA in solution. This is where we get our "Peppermint Tea" CWE for potentiated effects of older seeds... but it only works (well/consistently) with fresh or hermetically sealed peppermint leaves (or rum/sherry) due to the low evaporation temperature of acetaldehyde... the same reason the seeds lower in activity and change in effect from stimulation (LSH) to sedation (LSA) over time. The aldehyde of cinnamon is much more temperature stable... and so is the adduct formed when mixed in solution with the sacred-seed extract. This is mostly from the studies of a mixed group of enterprising entities as I'm sure some of you can relate... Back to top