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lookey what I found ... Soooo ,, ( I feel like this is important).. the reason that the Shrooms and Seeds work ,, is because they bind with the excess acetaldehyde in your bodies converting it to LSH,,, I just ordered some for my son Defiance: It is my understanding the acetaldehyde naturally bound to the fresh seed active (the combination I call LSH for ease of communication) evaporates and thus leaves the compound I call LSA (for ease of communication) or something like that that I'll dig up if inquiring minds truly want to know. The evaporation leaves part of the original compound, which I call LSA, ready to react and form an adduct with another aldehyde when it is introduced to the LSA in solution. This is where we get our "Peppermint Tea" CWE for potentiated effects of older seeds... but it only works (well/consistently) with fresh or hermetically sealed peppermint leaves (or rum/sherry) due to the low evaporation temperature of acetaldehyde... the same reason the seeds lower in activity and change in effect from stimulation (LSH) to sedation (LSA) over time. The aldehyde of cinnamon is much more temperature stable... and so is the adduct formed when mixed in solution with the sacred-seed extract. This is mostly from the studies of a mixed group of enterprising entities as I'm sure some of you can relate...

Clusters suck and are immutable part of our existence. I fully agree with advice given. There is no way in hell you can ever get anyone to appreciate the pain or come close to understanding unless its a fellow clusterhead. Even then our experience is our own. People think we exaggerate, embellish or plain seek attention. Of course thats not true at all. The bigger issue is anyone who has experienced the pain of childbirth, kidney stones, gout, a broken limb or othe painful event usually only has it once twice or a few times. We get way worse over and over and over. The way I deal is by trying to be my best self and carry on while in cycle as normally as possible. I do my best to not let the beast win. I do tell my staff when I'm in cycle so they understand my asshole self has a reason but I never expect anyone to understand; s\cause they can't. Yo must constantly work to be the best you and avoid self pity at all cost. Ignore the well intended suggestions of the essential oil, ibuprofen, gratuitous "i have that too", Forgive them for theres no way they can do anything but leave you alone

Thanks CH father, Currently I am just going with Vitamin D (oil) @ 10k IU ...I feel it has lowered the frequency. I am reluctant to do the drugs as I have yet to find a neurologist or DR to help guide me through them. Furthermore am terrified of the potential slap back affect. I have at hand 5mg Zomig Nasal Sprays, as well as pregabalin 25mgs / propranolol HCL 40mg/ Mylan-Verapamil SR 240mg. I've decided to use to the Zomig tonight if the pain becomes uncontrollable tonight. Edit: I am desperately trying to get Oxygen as well but my neuro said that he would not prescribe oxygen and told me to use the drugs first...

Hi all, Thanks to @xxx 's vitamin regime, I seem to be skating past my first cycle after taking an earlier version of the regime, and I thought I'd share my results so far. After my previous cycle about 6 months ago I started taking 10k/day D3 gel tabs plus the magnesium, Mature Multi, Super K, and fish oil supplements recommended (I see Batch has updated the regimen a bit recently, am currently looking into this) Due to Covid, I have yet to test my D levels, but I am planning to see my Dr for a followup soon. None the less, my usual cycles last 6-10 weeks of daily episodes. But so far I believe I may have clipped my current cycle to just one week of very mild headaches. Here's my log from when the cycle started: August 3rd: Woke with a shadow/Kip 1 at 8am. Oxygen for 5 minutes until PF August 5th- Woke at 2am. Kip 2. Oxygen for 5 min until PF August 7th Woke 8:30am . Kip 3. Oxygen 5 min until PF August 7th (2nd) 9pm. Kip 3/4. Oxygen 5 min then early sleep with shadows persisting August 11th 9:45pm Kip 2. Oxygen 8 min until PF August 12th 9:45pm Kip 3. Oxygen 5 min until PF So far no episodes since the 12th. Finger's crossed this cycle is over, which would be wonderful. Many thanks to @xxx and everyone else on here, I haven't been this hopeful in many years.

Hi @Chloe Chriselle ! Yes, for about 6 months I've been taking daily: 10,000 IU D3 400mg Magnesium 1 pill Life Extension Super K 1 Kirkland Mature Multi 1200mg Fish Oil I started doubling my D3 around the time of my last post. Since my last post on August 17th I have had 3 more mild episodes, but none painful enough to need anything but Oxygen. What I've noticed so far is my cycle just hasn't set in to its usual routine. Usually after the first week of my cycle I settle into nightly attacks that wake me up at 4am-ish already at Kip 5 or higher. For this cycle, so far, the regular routine just hasn't set in , episodes are days apart, and pain levels are far milder than normal. My last headache was 5 days ago, so cycle not complete nut very sporatic. I still havn't had any blood tests done, but looking to make appointment this week to check my D levels, ect. Hope this helps!

Spiny, As I indicated in an earlier post in this thread, Pepcid (Famotidine) is a histamine H2 receptor blocker. There's evidence Quercetin is a little safer and more effective as an antiviral than Famotidine. That said, the COVID-19 Critical Care Working Group (FLCCC) treatment protocol for COVID-19 patients in the ER calls for intravenous methylprednisone, high-dose ascorbic acid (vitamin C), thiamine (Vitamin B1) and heparin. Optional additions include melatonin, zinc, vitamin D3, atorvastatin, famotidine and magnesium. Quercetin also acts as an ionophore transporting zinc ions across cell walls to help stop viral replication. Vitamin C and quercetin have synergistic effects that make them useful in the prevention and early at-home treatment of COVID-19. Both are part of the MATH+ protocol developed by the Front Line COVID-19 Critical Care Working Group (FLCCC). For COVID-19 prophylaxis, the FLCCC recommends vitamin C, quercetin, zinc, melatonin and vitamin D3 The at-home treatment for mildly symptomatic patients is very similar to the prophylactic regimen, but adds several optional drugs, including aspirin, famotidine (an antacid) and ivermectin (a heartworm medication that has been shown to inhibit SARS-CoV-2 replication in vitro) There are two distinct phases or stages of COVID-19 — the viral replication stage and the immune dysfunction stage — and the treatment must be appropriate for the stage you’re in. Equally crucial is starting aggressive treatment as early as possible. Vitamin D3 boosts immune system functions that help prevent viral infections. Vitamin D3 at a high enough dose and responding 25(OH)D3 serum concentration, also helps prevent immune system dysfunction Quercetin was initially found to provide broad-spectrum protection against SARS coronavirus in the aftermath of the SARS epidemic that broke out across 26 countries in 2003. Now, some doctors are advocating its use against SARS-CoV-2, in combination with vitamin C, noting that the two have synergistic effects. Incidentally, ascorbic acid (vitamin C) and the bioflavonoid quercetin (originally labeled vitamin P) were both discovered by the same scientist — Nobel prize winner Albert Szent-Györgyi. Quercetin’s antiviral capacity has been attributed to five main mechanisms of action: Inhibiting the virus’ ability to infect cells by transporting zinc across cellular membranes Inhibiting replication of already infected cells Reducing infected cells’ resistance to treatment with antiviral medication Inhibiting platelet aggregation — and many COVID-19 patients suffer abnormal blood clotting Promoting SIRT2, thereby inhibiting the NLRP3 inflammasome assembly involved with COVID-19 infection Similarly, vitamin C at extremely high doses also acts as an antiviral drug, effectively inactivating viruses. During the 2003 SARS pandemic, a Finnish researcher called for an investigation into the use of vitamin C after research showed it not only protected broiler chicks against avian coronavirus, but also cut the duration and severity of common cold in humans and significantly lowered susceptibility to pneumonia. I compiled a list of immune boosting COVID-19 prophylaxis people can take at home in the following table provided by experts in nutritional medicine. Column 4 is my summation. Supplement Riordan Orthomolecular EVMS/FLCC Batcheller Vitamin C 1-2g t.i.d. 3 g/d (1g t.i.d.) 500 mg BID 3 g/d (1g t.i.d.) Vitamin D3 5,000 IU/d 10K IU/d for 2 wk* 1000-4000 IU/d 50,000 IU/wk** Vitamin A 10,000 IU/d 3,000-6000 IU/d Vitamin B1 25 mg/d Zinc Picolinate 30 mg BID 30 mg/d 75-100 mg/d 50 mg/d Quercetin 500 mg/d 250-500 mg BID 400 mg BID Selenium 200 mcg/d 200 mcg/d 55 mcg/d Magnesium 500 mg/d 400-800 mg/d Melatonin 1-5mg/d 0.3-2.0 mg/d Omega-3 PUFAs 1500 mg/d Multi Vitamin 1 Tablet/d 1 Tablet/d *** * 10,000 IU/day vitamin D3 for 2 weeks then drop back to 5000 IU/day ** 50,000 IU/day vitamin D3 for 12 days then drop back to 50,000 IU/week. Water soluble vitamin D3 suggested such as Bio-Tech D3-50 as it has a higher bioequivalence than the oil-based liquid softgel vitamin D3 formulations. *** The Kirkland Adult 50+ Mature Multi is an excellent source of vitamin D3 cofactors. It just doesn't have enough magnesium or any vitamin K2 Of course you won't hear anything about this from HHS, the good Dr. Fauci at NIH, the FDA or CDC. They're heavily influenced by the Big Pharmas who don't want people to know how effective vitamins and minerals can be in treating viral infections. Members of these organizations are also heavily invested in vaccine development (at tax payer expense) so don't want the public to hear about any competitive treatments that are more effective, safer and less expensive. Take care, V/R, Batch

Hey SECAuthentics, All of us on the anti-inflammatory regimen experience burnthrough CH at one time or another. The solution is simple. If you haven't switched to the Bio-Tech D3-50 50,000 IU water soluble vitamin D3 now is a good time to do so. You can order it from amazon or iherb. In the mean time most CHers in your shoes, me included, have loaded vitamin D3 at 50,000 IU/day for a week then droped back to the usual maintenance dose. When you switch to the Bio-Tech D3-50, one capsule a week is a good starting maintenance dose. I updated the basic regimen in July of 2018 adding the Bio-Tech D3-50 in place of the oil-based liquid softgel vitamin D3 formulation. In Jan of 2019, I added Methyl Folate + in place of the generic vitamin B 50/100 complex. The following photo illustrates the latest version of this regimen by brand and dose. CHers who stick with the above brands tend to experience a faster rate of response to this regimen. Take care and please keep us posted. V/R, Batch

I've had cluster headache for about 4 years now. I've tested a range of different treatments, both from the doctors and some more experimental, but nothing's helped much. I was travelling to India for work about six months ago, when I was recommended an ayurvedic doctor who had been successful in treating an acquaintance' migraines. Although I was a bit skeptical, I thought 'why the hell not' and went. The doctor had mixed a range of different medicines for me, and I went there for three days for a treatment that consisted of warm oil being dropped in my forehead and rubbed in to the skin around the neck. Already after the first night did I feel better, and after only 3 days of treatment I felt better than in months. Since then I only had slight 'shadow' attacks, so went to an ayurvedic practitioner in my hometown in Europe, and I still have most of the medicine left, and so far I've been able to avoid the clusters. I have no idea what all the medicines contain but one of the bottles have a list of ingredients, so in case someone finds this interesting I post them here: - Terminalia chebula 0.79% - Terminalia belerica 0.79% - Emblica officinalis 0.79% - Swertia chirata 0.79% - Curcuma longa 0.79% - Azardirachta indica 0.79% - Tinospora cordifolia 0.79% - Woodfordia fruticosa 2.534% - Madhuca indica 2.328% - Acacia nilotica 1.1672% - "Guda" 29.14%

Hey Dehabel. You're not annoying. You've received some great answers about Benadryl (Diphenhydramine HCL). Diphenhydramine is classified as an anticholinergic - a chemical that blocks the action of the neurotransmitter acetylcholine (ACh) at synapses in the central and the peripheral nervous systems. Accordingly, it should only be taken for a week to 10 days dosing at 25 mg every 3 to 4 hours during the day and at bedtime. As Diphenhydramine a also classified as a first-generation antihistamine, it's antcholinergic properties will make you drowsy so you should avoid driving while taking this much. If you do need to drive during the day, wait until you're home for the day then take 50 mg as you walk through the door and another 50 mg at bedtime. If an allergic reaction is contributing to the frequency, severity and duration of your CH, Benadryl (Diphenhydramine HCL) should start providing relief in a few days. If there's been no change in your CH patterns, after a week, discontinue.' The Diphenhydramine mechanism of action is relatively simple. As a first-generation antihistamine, it crosses the blood brain barrier (BBB) into the brain and blocks histamine H1 receptors at the genetic layer in neurons throughout the brain and in particular, the trigeminal ganglia where histamine released as a result of an allergic reaction, triggers the expression of Calcitonin Gene-Related Peptide (CGRP) and Substance P (SP) another neuroactive peptide. These are two of the four neuropeptides responsible for the neurogenic inflammation and pain we know as cluster and migraine headache. It is also important to note that second- and third-generation (non-drowsy) type antihistamines cannot cross the BBB to block histamine H1 receptors in neurons throughout the brain and CNS so will be less effective. I look at Benadryl (Diphenhydramine HCL) as a diagnostic tool. If it works to reduce the frequency, severity and duration of your CH, histamine is the likely culprit. If it doesn't work, the odds are higher histamine is not your problem. Many of us have found adjusting the vitamin D3 intake to be a more effective and much safer method of controlling and preventing CH than taking Benadryl (Diphenhydramine HCL). The following photo illustrates the supplements by brand in the basic anti-inflammatory regimen CH and MH preventative treatment protocol. All are taken daily with the largest meal of the day at the doses shown for the first 12 days. After that, you reduce the vitamin D3 dose (Bio-Tech D3-50) to one capsule a week and continue taking everything else daily. There's a lot more to this regimen and you'll need to discuss it with your PCP/GP before starting it, when asking for labs of your serum 25(OH)D3, calcium and PTH (Parathyroid Hormone). CHers who stick with the brands illustrated below tend to have higher favorable response rates. With the exception of the Bio-Tech D3-50 50,000 IU water soluble vitamin D3 that I added in place of the 5,000 IU oil-based liquid softgel vitamin D3 formulations in July of 2018 and the Methyl Folate + I added in place of the vitamin B 50/100 complex in January of 2019, the rest of these supplements have remained unchanged since 16 December, 2011. The rationale for these changes is due to the higher bioequivalence and improved efficacy in controlling and preventing CH and MH these two supplements offer. Readers of my webpage at vitaminDwiki.com at the following link have downloaded 51,216 copies of the anti-inflammatory regimen CH and MH preventative treatment protocol since I posted it in January of 2017. https://vitamindwiki.com/Cluster+headaches+substantially+reduced+by+10%2C000+IU+of+Vitamin+D+in+80+percent+of+people You will also find a copy of this protocol at the above link. If you're interested in starting this CH and MH preventative treatment protocol please take a copy to your PCP/GP to discuss and ask for lab tests of your serum 25(OH)D3, calcium and PTH before starting this treatment protocol. You can also download a copy of this treatment protocol by clicking on the following link. http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 I've sent you a PM with more information about this CH and MH preventative treatment protocol. That you experienced an 8-year haitus, free of CH tells me you're a good candidate for the anti-inflammatory regimen. It's likely something changed in your diet or there was a decrease amount of summer sun you were getting that caused your CH to return. This bring us to the burning questions you may have... Will this treatment protocol be effective for me and is it safe? The best answer I can provide comes from data compiled from the online survey of 313 CHers who have started this treatment protocol since 16 December, 2011 when I placed this survey on the Internet. The year over year efficacy of this treatment protocol between December of 2011 and December 2018, finds 80% of CHers experiencing a significant reduction in the frequency of their CH from 21 CH/week down to 4 CH/week in the first 30 days after starting it. 53% of CHers starting this regimen experience a lasting cessation of CH in the first 30 days. It's important to understand that this regimen needs to be taken daily in order to experience results like this. Most of us who take this regimen daily, consider it a way of life that keeps us CH pain free. Moreover, the health benefits that come from taking this regimen are hard to ignore. The exciting news comes from CHers who started this survey during 2019 after I changed the suggested form of vitamin D3 to the Bio-Tech D3-50. The efficacy of this protocol during 2019 finds over 90% of CHers experiencing a favorable response with a significant reduction in the frequency of their CH in the first 30 days from 21 CH/week down to 4 CH/week and 67% of CHers experiencing a complete and lasting cessation of their CH in the first 30 days. I've tracked results from all open source RCTs of CH prophylaxis and none of them come even close to this level of efficacy. Moreover, since this treatment protocol went online, there have been no reports of hypercalcemia, a.k.a., vitamin D3 intoxication/toxicity nor have there been any adverse events reported that required medical attention. The following charts illustrate data from 313 CHers who started this treatment protocol since December of 2011, then took this survey ≥ 30 days later. The following chart illustrates the normal distribution (green curve) and cumulative probability (blue curve) of lab results for serum 25(OH)D concentrations after ≥ 30 days on this regimen. The following two charts illustrate the time to respond after starting this regimen. Taken in concert with the efficacy data, the above charts make a clear case that an inverse relationship exists between the frequency of CH and 25(OH)D3 serum concentration. In simple terms, when the frequency of CH is high, the 25(OH)D3 serum concentration is low around a mean of 24 ng/mL and when the CH frequency is low or the CHer is CH pain free, mean 25(OH)D3 serum concentration is higher around 80 ng/mL. This is why it's important to obtain lab tests of your serum 25(OH)D3, calcium and PTH before starting this regimen and again 30 days after starting it. You can thank the 313 CHers who took the time to take this survey. They came from 35 countries around the world. Take care and please keep us posted should you decide to start this treatment protocol. V/R, Batch

Maybe a $7-12 bottle of castor oil will make them bring down the price, Castor oil stopped my CH cycle it worked for me on the first night. And the only side affect a smelly shirt. Please read all you can on castor oil before you use it. You can see how I used it by looking at my post. Castor oil should not be taken internally. It should not be applied to broken skin. It should not be used during pregnancy, breastfeeding, or during menstruation It should not be injected

OK, reportin' back now because I think there have been some pertinent-ish results with the CBD oil and my relative's nerve pain/mood: 1) the thinner, clearer oil offered pain relief and mood uplift when administered sublingually or vaporized (vaporizing was the more economical route). 2) the thicker "waxy" oil has been the most potent of the 2 versions when vaporized. 3) A way was found to get a wholesale price. I think this has brought the cost for a few good vaped doses spread throughout the day to maybe under $10 total per day, as it is in the 1/4 to 1/3 gram per day range. That still add$ up aplenty but is much better than what was first feared. Any members here interested in how to get the wholesale thing going on for their individual needs can PM me and I'll tell ya what I know.

Rimantas, I'd suggest sticking to the method most of us have found works and works consistently. 1- 5 days between doses. (if it's taken sooner, there's a high likelihood it won't work). 2- Don't take it with food. (Mixing mm with chocolate has a lot of oil in it and oil / fat reduces the absorption in the intestines) Eat a light fat fee meal about 2 to 3 hours before taking your dose. Drink plenty of water or gatorade (but not too much) during your dose. Some people have a natural tolerance to mm, but hitting a mild trip most of us have found is very important to how well it works on our CH. If you're only feeling mild effects of the mm and it's not working, then wait 5 days and move your dose up. (in my opinion). PFW, J

Spiny, There are two changes to the supplements listed in the posted version of this treatment protocol that will appear in the updated version I hope to have available later this month. They include switching to the Bio-Tech D3-50 50,000 IU water soluble form of vitamin D3 that's suggested at a dose of one (1) D3-50/week as the initial maintenance dose. Rationale: The Bio-Tech D3-50 is proving to be faster acting with a higher bioequivalence in elevating serum 25(OH)D3 than the same dose of the oil-based liquid softgel vitamin D3 formulations. The D3-50 is also less expensive at one 23 cent capsule a week or ~3 cents/day. Bio-Tech D3-50 https://www.amazon.com/Bio-Tech-Pharmacal-D3-50-100-Count/dp/B000A0F2B2?ref_=ast_bbp_dp&th=1&psc=1 https://www.iherb.com/pr/Bio-Tech-Pharmacal-Inc-D3-50-Cholecalciferol-100-Capsules/55186 The other change is a switch to Methyl Folate + (vitamin B complex) in place of the vitamin B 50/100 complex. Rationale: This form of Folate and B complex appears to have a higher bioequivalence in preventing CH and MH. These are also the same B vitamins called for in the Coimbra protocol used to prevent MS and other autoimmune disorders. Methy Folate + Vitamin B Complex https://www.amazon.com/Bioactive-Formulated-Pharmaceutical-Methylcobalamin-Synergistically/dp/B01MQJVHHC?ref_=ast_bbp_dp https://www.iherb.com/pr/Doctor-s-Best-Fully-Active-B-Complex-with-Quatrefolic-30-Veggie-Caps/50940?refid=1c105ef4-ca2e-4f09-bcc7-bddc10c426b9&reftype=rec Take care and please keep us posted. V/R, Batch

CBD oil works for migraine, but it works better before you have an episode rather than during you have an episode. I used to have migraines usually once or twice a month and then they would last for about 3 to 4 days, but now, I take CBD Harlequin Feminized, 2 drops daily under my tongue empty stomach in the morning, and I am free of these migraine pains.

@Cluster S welcome to the site I don’t have a direct link to the article but just to get you started Bio tech D3-50 once a week (you need to do a loading dose for a week or two. More explained in the article I’m sure someone will post soon) order these on amazon k2 advanced once a day fish oil 1200 mg (I take 2 per day) magnesium 500 mg once per day multi vitamin once per day (Kirkland brand sold on amazon if you don’t have a Costco membership. I got 800 for like $30) needs to be taken year round.

Your friend can't get nearly enough D from foods. Batch's recommended minimum daily dose of D3 is 10,000IU. Your friend would have to eat between 5 and 10 pounds of salmon in a day to get 10,000IU (depending on whether the salmon is wild caught or farmed). More than ten pounds a day of fresh herring; more than 20 pounds of pickled herring. More than 6 tablespoons per day of cod liver oil. Pills are a lot easier. https://www.healthline.com/nutrition/9-foods-high-in-vitamin-d#1

My best friend has started Vitamin-rich food rather than taking Vitamins D3 regarding this. He used to eat vitamins 3d rich food such as Salmon, Herring and sardines, Cod liver oil and Canned tuna

Finance, Batch is the man for the D3 regimen, so I can only partially answer your questions. He'll be here soon, I'm pretty sure, or you can send him a PM (click on the envelope icon at the top of any page and then type Batch into the "To" line). He is amazing at responding to questions, here and by PM. Plus, you can type either "Batch" or some key words ("Kirkland," for example, as I mention below) into the search bar at the top of each page and get virtually all the information you might need, though it's a lot to read through. So . . . 1. Verapamil comes into two versions, "standard" ("immediate") release and extended release. The extended release form is, for some reason, generally ineffective. (BTW, docs will sometimes prescribe a course of steroids, such as prednisone, to quell your pain while the verap is getting into your system. A few fans of verap here, but many are unhappy with the side effects and not thrilled with the preventive effects. Doses that are quite high (even up above 1000mg/day are sometimes needed for it to be effective.) 2. I think some of these co-factors are good in themselves, but they also combat the side effects. 3. You have to take a whole lot of D3 over an extended period of months to get D toxicity, and the effects are reversed when you stop taking it. But Batch is insistent that the co-factors do what is needed to prevent hypercalcemia, and I don't think he's seen a situation where that developed as he has been in touch with several hundred people taking the regimen. I can say I know of one person who thought she could slide by on less than the full regimen and did become hypercalcemic. The symptoms are quite evident if you have them. 4. You can get most of the supplements, including fish oil, in large enough doses to reduce your pill intake. Batch gets many of his from COSTCO's store brand, Kirkland. Batch is now taking a 50,000IU D3 pill (not Kirkland Brand) every x days (I don't remember if it's every 5 days or more days than that). 5. If Batch says that, I assume that it is correct. I think Batch would also advise you to take Benadryl at 25mg several times a day. That has helped a lot of people. 6. (You don't have a 6. I'm just using this to say again, GET THAT OXYGEN. Your doctor, of course, should have prescribed it. I am assuming that s/he was more comfortable with the sumatriptan because it's the kind of thing s/he typically prescribes . . . but O2 is the winner here, and the Imitrex should only be used for breakthrough attacks, if they occur. You can also get sumatriptan in vials, so you can measure out your own doses, and some people do fine with the triptan nasal spray. Please be sure to read that "basic non-busting info" file that I linked you to -- one or two things there (such as energy shots and melatonin) can help you quite a bit.)

@Luis have you also tried taking melatonin at night? I take 6 mg every night to help regulate my sleep pattern. I also doubled up on the fish oil, @Batch suggested it to help fight my depression

@Banjer Taylor welcome to the forum! I too just recently joined in july. I was very fortunate to obtain oxygen pretty early on. It was very challenging. Not so much to get the script, but to find a place that actually provides the tanks. I got the proper mask from cluster02kit and it works very well. I’m still learning the proper breathing techniques and everything. I got on the D3 regimen a month after I started feeling terrible. I still get a lot of shaddow pain and I’m sure the D3 has helped tons. I take extra fish oil to help with the depression. My next step is to try busting with mm. I would read up on that if I were you. I would absolutely put all your focus on getting that oxygen. It’s imperative to abort the attacks. You’ll hear back from more experienced members soon. @Batch has all the answers for the D3 regimen. take care Kat

Ohayou Geisha, You're on the right track upping the daily maintenance dose to 20,000 IU/day. There are a couple other things to try. The first is to take a 50,000 IU/day loading dose of vitamin D3 for two to three days then drop back to your usual maintenance dose. If you're still experiencing shadows after three days of loading, add another day or two of the50,000 IU/day loading dose. The second thing is switch to the Bio-Tech D3-50 50,000 IU water soluble form of vitamin D3. Many of us have found it to be faster acting with a higher bioequivalence in elevating serum 25(OH)D3 as the same dose of the oil-based liquid softgel vitamin D3 formulations. https://www.amazon.com/Bio-Tech-D3-50-50-000-200/dp/B00IAQUJH0 I buy it from amazon.com. Due to its higher bioequivalence, most CHers, me included, take one D3-50 a week as a maintenance dose. That works out to an average of 7,140 IU/day. If that's not enough to keep the CH symptoms away, decrease the dosing interval to one capsule every 6 days. That said, some CHers, usually the chronic types, need to reduce the dosing interval to one capsule every other day to remain CH pain free. It's a good idea to double the magnesium dose while loading from 400 mg/day up to 800 mg/day split 400 mg with breakfast and 400 mg with the evening meal to prevent osmotic diarrhea. It's best to take these supplements 10 minutes after eating the largest meal of the day. Stomach acid is highest at this point to digest the food you've eaten and this also helps dissolve the supplements for better absorption and less GI tract problems. Take care and please keep us posted. V/R, Batch

Hey Emmalou, CHfather is spot on saying your 25(OH)D3 serum concentration target is a therapeutic range between 200 nmol/L and 250 nmol/L so the anti-inflammatory regimen is definitely for you as your serum 25(OH)D3 concentration at 86 nmol/L (34.4 ng/mL) is still too low. The following photo illustrates the supplements by brand and dose I take and suggest to other CHers as we've found they have the best response in preventing CHIf you live outside the US you can order most of these supplements through iherb.com when you're ready to reorder. If you live in the US, you can order all of them from amazon.com. If you haven't already done so, you can download a PDF copy of the anti-inflammatory regimen CH preventative treatment protocol at the following VitaminDWiki link: http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 The best course of action is to start loading vitamin D3 at 50,000 IU/day for at least 10 to 12 days or until you've experienced 24 hours CH pain free, whichever occurs first. At that point you can reduce your vitamin D3 intake to 10,000 IU/day as an initial maintenance dose. The Bio-Tech D3-50 is important. We've found this 50,000 IU water soluble form of vitamin D3 is faster acting with a higher bioequivalence than the oil-based liquid softgel vitamin D3 formulations in elevating serum 25(OH)D3. I'd suggest ordering it now and take one a day as your loading dose when it arrives. You'll only need one (1) of the D3-50 vitamin D3 capsules a week as your maintenance dose. Be sure to double the magnesium to 800 mg/day split AM/PM with meals while loading. Take all the remaining supplements 10 minutes after eating the largest meal of the day. Stomach acid will be highest at that point to digest the food you've eaten and that helps dissolve the supplements. Be sure to drink at least 2.5 liters of water a day. When you've completed the loading schedule and been on a vitamin D3 maintenance dose of 10,000 IU/day for 30 days, be sure to see your PCP/GP for lab tests of your serum 25(OH)D3, calcium and PTH. As long as your serum calcium remains within its normal reference range, even if it's at the top of this reference range and not over, there's no hypercalcemia, a.k.a., vitamin D3 intoxication/toxicity so your actual 25(OH)D3 serum concentration doesn't really matter except as a reference for being CH pain free. When you have the lab results in hand, please find the time to take the online survey of CHers taking this regimen to prevent their CH. To start this survey, click on the following link: http://www.esurveyspro.com/Survey.aspx?id=fb8a2415-629f-4ebc-907c-c5ce971022f6 I'm not a fan of Amitriptyline primarily due to the fact that tricyclic antidepressants tend to have too many adverse side effects. It's up to you, but I would ditch the Amitriptyline and start a week to 10 day course of a first-generation antihistamine like Benadryl (Diphenhydramine HCL). I would do this anyway if you haven't responded to the loading dose by day 5. Ask your PCP/GP about starting the first-generation antihistamine as depending where you live, Diphenhydramine may not be available, but there are other first-generation antihistamines. Take care and please keep us posted. V/R, Batch

Personally I never want to discourage the free exchange of information and ideas because you never know when the next "Flash moment" will appear. We are all aware that when folks get desperate they are vulnerable to any idea or snake oil salesperson. Evidence of this includes offering unsubstantiated surgical procedures at great cost and risk which people consider and actually agree to. In this particular situation I suspicion there may be a mental health issue in play. Whether the initial poster is attention seeking, manipulative or well intentioned their verbose nonsensical communication style speaks to a lost soul. Now that the story is out each person can judge it for themselves, take pity and move on.

Hey CSA, Thanks for the reply. While you're looking for a new PCP/GP, I'd restart vitamin D3 therapy. The following photo illustrates the brands and daily doses my wife, the rest of our family and I have been taking for many years. This is also what I suggested in the posted version of this protocol since 2011. It will also be in the updated version of this protocol I hope to have ready for prime time and downloads from VitaminDWiki.com in December. You'll find the "How To" instructions at the following link. Take a copy to your new PCP/GP when you find one. http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 The Bio-Tech D3-50 is a recent addition to the anti-inflammatory regimen since July. of 2018. It's a 50,000 IU water soluble form of vitamin D3 that I've found to be faster acting with a higher bioequivalence in elevating serum 25(OH)D3 at the same dose as the oil-based liquid softgel vitamin D3 formulations. It's also more convenient and least expensive. You take one D3-50/day while loading and when the loading schedule is complete, you drop back to an initial maintenance dose of one D3-50/week. At 23 cents per capsule, that works out to a little over 3 cents a day for a an average of 7000 IU/day vitamin D3. The daily cost of the least expensive liquid softgel vitamin D3 is 12 cents/day for 10,000 IU. Most CHers taking the Bio-Tech D3-50 have found the 12-Day loading schedule taking one D3-50 capsule a day for 12 days is sufficient to elevate serum 25(OH)D3 to a therapeutic range that prevents CH. When the loading schedule is complete, one D3-50 a week should be sufficient to maintain the therapeutic 25(OH)D3 serum concentration. In short, I'd get back on that horse and send the CH beast running by restarting this regimen now. When you find a willing PCP/GP, the next set of labs for 25(OH)D3, calcium and PTH should confirm a therapeutic 25(OH)D3 range (80 to 100 ng/mL) with normal calcium and PTH in the lower third of its normal reference range. Don't forget to get your daughter on vitamin D3 at 50 IU per pound of body weight/day along with calcium chews. At 2 to 3 years the average weight is around 30 lbs so that works out to 1500 IU/day vitamin D3 or 10,000 IU/week. I'd pick up some Bio-Tech D3Plus. This is an ideal vitamin D3 formulation for kids as it contains the essential vitamin D3 cofactors all in one capsule. It just needs calcium and phosphorus, the two primary building blocks needed to build strong growing bones. https://www.amazon.com/D3Plus-Vegetable-Capsules-Bio-Tech-Pharmacal/dp/B0085F3K2C/ref=sr_1_10?keywords=Bio-Tech+D3&qid=1574813439&s=hpc&sr=1-10 The dose for a 2 to 3 year old with the D3Plus is one capsule every other day (48 hours) for an average of 1250 IU/day vitamin D3. The calcium gummy my grand kids take comes from Vitafusion. It's formulated with tricalcium phosphate. https://www.amazon.com/Vitafusion-Calcium-Gummy-Vitamins-100ct/dp/B003DRD3PG/ref=sr_1_4?keywords=Calcium+Gummies&qid=1574851736&s=hpc&sr=1-4 One of these a day is great for 2 and 3 year olds. Take care and please keep us posted. V/R, Batch

Thank you @Batch! You've always been helpful! About the Vit D3 regimen, I followed it last year before my cycle, and initially, my Vit-D3 were very low, around 10ng/mol, and in a months time, I was able to safely take it up to 80+. However, unfortunately, I still entered my cycle that year and had quite a bad experience managing it that year. It started around the end of December and stretched around the end of Feb this year. I thought I needed to raise my vit D higher so I continued loading and last I checked was 110ng/mol with no luck. That time around, when the cycle was at peak with intense attacks, oxygen didn't help much either. It wouldn't abort the attacks and as soon as I took the mask off the headache would rebound. Still, some great advice I borrowed from the regiment were GOMBS diet, multi-vits that I take every other day now, along with fish-oil and vit D, which was very low (around 10), when I first checked before the regimen. I just wish the regimen worked for me. I also have my thread here where I reported my conditions while I was on vit-d3-regimen, in case you wish to read about it. I would love to offer more information if it helps. Thank you again Batch. I am relieved to hear that oxygen helps in this headache too. And by the way, isn't migraine one-sided? Or is that knowledge obsolete? Because the symptoms of my headache are all like a migraine only that its bilateral.