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There are threads here where people report results from CBD oil. Some good, some very good, and some neutral (no effect, or no discernible effect). No bad results, I don't think. You can find all references in this forum to CBD oil by typing CBD into the search bar at the upper right side of each page. I think the ~25mg that you're getting might be a little low based on people that reported good results -- but I could be remembering that wrong.

Ive tryed it as a preventative and a abortive to no positive effect unfortunately. I used full spectrum CBD oil with doses around 25mg, it slightly relaxes me after a attack but not enough to warrant the expense of it in my opinion. Every one is different tho Oxygen is king my friend.

Thanks for the tips CHfather, As soon as one hits (which is always when I'm sleeping) I make myself a cup of high octane coffee. I do take 2 benadryls before bed, and I do dose up with CBD 2x/day (sublingual oil). I also use Colloidal Silver nasal spray. I've found that if I can keep my left nostril clear, the severity is not as bad. I also dab peppermint oil just inside the nostril. I will try and breathe cold air next! Thank you too Moxie! I hope all is well with you on the other side of the pond! CH's were something I learned in school and continuing ed. but never treated. I've had great success treating migrainers. I'm pretty much dictating my treatment with my PCP. Once I finish this round of prednisone, I'll wait 5 days and try dosing with MM. I don't think I've hit a 10, but I average a 7-9 when hit hard. The shadow follows me all day! Thank you all for your input

JJ', Without oxygen and without the other standard pharmaceutical abortives (triptans, usually injectable but sometimes the nasal spray works), you might try quickly drinking an energy shot, such as 5-Hour Energy, at the first sign of an attack. (Since you're getting hit during the night, you probably are waking up with them, so "first sign of an attack" in this case just means ASAP.) That reduces the severity of attacks for most people, and sometimes aborts them. Many people think that the colder the energy shot is, the better. For some people, particularly in their early stages of CH, a strong cup of coffee will work. Caffeine is the most important element, but some people think that other elements in energy shots/drinks, such as taurine, also help. You can also try drinking ice water through a straw aimed at the side of the roof of your mouth where the CH is; the objective here is to create "brain freeze." Standing in a bathtub of water that is as hot as you can stand might help. You can also forcefully inhale and exhale very cold air, from an air conditioning vent or just outside if it's very cold. Some people find that very vigorous exercise helps, particularly vigorous exercise in cold outside air. Some people say that CBD oil has been an effective abortive for them, and apparently DMT is, too, for some people (two entirely different things, which I put together just because of the initializations and because I think they are cannabis derivatives). Since we're covering all the bases, I'll add that a few people have said that vigorous sexual activity, including masturbation, will stop their attacks. Those suggestions are presented in roughly descending order of possible effectiveness (in my view). Benadryl helps a lot of people as a preventive. 25mg three times a day and 50mg at bedtime. Or what you can tolerate. It will make you groggy. Do not delay about getting oxygen. A standard prescription might read something like "Oxygen therapy for cluster headache. 15-25 minutes at 15 liters per minute with non-rebreather mask." (Docs use some abbreviations in there.) Let us know when you have the prescription. Usually a doc will fax it to a provider. Sounds like you might request Apria as the provider. You might check possible triggers in the file of that name in the ClusterBuster Files section. Start on a loading dose of D3 ASAP, along with the other supplements. Most people do not think that chiropractic or other bodywork helps. Some people find that it does help them, so ask around among your peers. Acupuncture has been effective for some people. It is said that there is a medication coming to the market fairly soon that might be an effective CH preventive. If there's any way that you can count yourself as "lucky," it's in having received a fast diagnosis. The average time to a correct diagnosis is 3-5 years, during which time many people continue suffering as well as having unnecessary surgeries, tooth extractions, and many other useless treatments, or are treated as though they are crazy.

Thanks so much everyone. I am now pretty much headache free for over 24h. I had a small one later on yesterday.. Today I actually feel pretty good and even went out and watched a little tv this morning. I am glad you told me that about fermented foods since I like kombucha and thought of having one. I have been eating fermented vegan protein bars but luckily they did not seem to trigger one. I don't feel quite out of the woods yet and am still taking it easy. Thanks to clusterbusters this is sooo not as bad as the last time I got them. Its been less than 2 weeks since they started and I feel like I'm turning a corner. I feel some traces of a headache here and there but its not escalating. I am going to wait 5 days since the last shroom dose and take them one more time. I have been taking cbd oil 2-3x per day since Saturday and I think that might be helping as well. Hopefully I'm on my way out of this and can be someone who can help others with it. I am seeing a lot of lists of trigger foods.. And am wondering what actually is ok to eat.

Hi MaskedMarvel, (good nick, btw) Welcome to the group, sorry you have to be here. Most people, probably 90% or so, find alcohol to be a trigger, and many also find pot to trigger attacks. I don't with either item, thankfully, but many do. Many people use alcohol to see if they are out of cycle or not. Obvious advice, avoid them for a month or so. Means an alcohol free New Year's, but better than the alternative. No idea about CBD oil and its affects on clusters, others might comment. Waiting 3.5 days between shrooms is good, 4 days is better. We typically recommend 5 days, but it sounds like you are already aware of that. Often, after busting, you'll get what we call 'slapbacks', which will be oddly timed attacks, or stronger, or sharper, or shorter/longer, etc. Basically, an attack that doesn't fit into the norm. This is a good sign that the shrooms are working. But, it sounds like CBD oil might be holding these off, which is interesting. Most people find it difficult to stay still during an attack. Cold, fresh air should help, along with a cold drink. Caffeine, coffee, energy drinks are all also really good to abort attacks with, I usually keep an energy drink in the fridge for just such an occasion. For more serious aborting methods, look into high flow oxygen. I don't know a lot about it personally, am sure others will jump in with advice. Also, read up on the Vitamin D3 Regimen (aka Anti-Inflammatory Regimen). It's very effecting for a lot of people. You'll also want to read up on busting between cycles to prevent cycles. All this info is in the Clusterbuster Files section. As a trained massage therapist, huge thumbs up for myofascial release techniques. I generally find massage helpful for several forms of headaches, and stretching and releasing your soft tissue is a huge benefit. Don't give up hope. I was suicidal before I found this site. There are solutions and ways of managing this illness. Hang in there, and ask questions, we're here to help. MG

Hello I have gotten these for about a month in 2012, 2015, Feb of 2017 and now starting about a week ago. This is the first time that I really know what it is. The day before I got them I was drinking a few beers with friends. I rarely ever drink but have a history of smoking weed a lot and depression.. I am sort of kicking myself now for being depressed before this as I feel like if I could just be free from CH I would be so much more willing to accept what life brings. My sister happened to have shrooms so I ate them here and there on Christmas morning from 10am and had the last bit around midnight. Boxing day I got a couple but they were only about half strength. I thought I was good to go on the 27th but I learned the hard way that cheese can trigger a headache.. And trying to smoke weed that day kind of brought them back a bit as well.. They were milder until yesterday morning.. I went and got some cbd oil. I have been taking the cbd regularly and they seem to be keeping them at bay but I still feel traces of CH and am afraid to do anything. I took shrooms again yesterday evening and it seems like I waited long enough (3.5 days or so) because I felt the affects of the shrooms.. However they were less effective on the CH this time. If anyone can help me "bust this cycle" I would be very grateful. My heart goes out to people who have gotten them more frequently than me. A few insights I had that might help others.. If you are getting one do not curl up in a ball or sit holding your head etc.. I find walking outside while breathing deeply into your lower abdomen makes it a lot more bearable. Maybe this is old news, or maybe some will disagree but I am certain chronic tension is playing a role here. In my early 20s I started getting pain\discomfort in a specific area\pattern on the left side of my neck. When the headaches started it was almost like the familiar neck pain had mutated into a painful headache following a period of great stress. I have spent a lot of time over the last 5 years or so doing a lot of stretching and self myofascial release (foam roller, lacrosse ball etc) and I feel like that might account for my relatively low frequency of CH over the years. Recent discoveries in fascia "fascial research" has shed light on a lot of physical issues. Searching for Tom Myers on youtube would be a good place to start.. Also a book called Move Your DNA by Katy Bowman really opened my eyes on how our bodies adapt to our "mechanical environment" (how often we sit or do repetitive movements etc).

Any updates on CBD oil?

Hello fellow clusterheads. Ive recently started getting cluster headache attacks after having them controlled for 5 years of taking Vitamin D. The first 3 years after I started the D regimen I was able to taper down to only 4,ooo IU of Vit D and had control of the headaches. After that I started getting attacks in the fall(which had changed from the episodic attacks I had every spring like clockwork) that I could manage by just increasing the Vitamin D to 10,000 for a few weeks then was able to taper down again to 4,000. A year and a half ago I had an episode that I had to go to the 50,000 loading dose, then taper down and again was able to control them. This year, I am struggling to control the attacks. I had accidentally stopped taking the vitamin D in August for almost 2 weeks when traveling. I started taking it after that but then started getting attacks about a month later(September 2018) that I have not been able to control. Initially I was taking 25,000 IU of Vitamin D and 1500 Fish oil, but the attacks got worse, now Im on the complete regimen, taking 25,000 IU of Vit D, 1500 mg Fish oil, 1000 mg Magnesium, and a multi vitamin for vitamin A and K. I've been on the 25,000 IU of Vitamin D and 1500mg of fish oil for 3 months. I started the magnesium and vit A and K about 3 weeks ago since I wasn't having success managing the attacks. Im still getting the headache attacks, 5 nights a week and about 4 days a week they carry on into the day. They were initially manageable with some aleve and excedrin migraine meds on top of the rest of the Vit D regemin, but that too seems to be loosing its effectiveness in aborting the headaches. Im just wondering do I continue to up the Vit D dose or should I start to consider going back on/trying Verapamil again. Any suggestions? I've had the headaches since I was 14(now 41) and the problem Ive always had was that after 2 years medications would no longer work to control the attacks. As most with these headaches know, its hell, especially when trying to work full time and take care of a 1 year old. Has any one else had the vitamin D lose it's effectiveness?

Would something else say flaxseed oil work in the place of fish oil (I am a vegetarian). Also this from the page you linked to "The standards of care recommended treatments address the neurological symptoms of CH as a trigeminal autonomic cephalalgia (TAC) with neurogenic origins in the hypothalamus and manifestations in the trigeminal nerves." Could this affect say Trigeminal Neuralgia in the jaw? As this is the worse that it has been for that as well. As far as the oxygen mask from what I have seen here looking at the files what they gave me is wrong. It is a basic mask, no re-breather. Looks just like what is pictured below.

Hiya MG...maybe the water based (vs oil based) version would work better... ...and EXCELLENT point re meds...SO TRUE. For example... I have GI issues with Mg Oxide that are non existent with Mg Citrate...go figure... Best Jon

Small suggestion here. You currently have a non-rebreather mask with a bag that does not support your breathing. You can take an unscented fresh garbage bag and use that instead of that little thing giving you a hard time. Tie up the open end tightly. As in air won't leak tight. Now, cut a hole in a corner where you are going to either push the stub of the previous bag or the bag with the bottom cut out. Remove or open the bottom of the bag on your mask and insert what is still attached into the garbage bag. Tape that up really well. Now you have a really big bag to hold your O2! Then you will have the pleasure of plenty of O2 for your next breath waiting for you - not you waiting for it. Not the best rig, but beats out running your O2. Turn on your O2 and grab a few slurps of that caffeine while it gets up to speed. Less than a minute and you are on it. That should get you through until your cluster mask gets there. Personally, if I can't get the high flow needed, it is a waste of money to use it. Takes a looong time to get relief and the relief is not lasting at all. Like executing a bat turn in the living room and heading back to the office cause it is back not lasting. When doing your post hit breathing, dial the O2 back to match your breathing. You should be breathing at a normal rate at that time, so you won't likely need 15 or 25lpm. And no grease or oil or anything on the threads of anything where you are pumping O2. THMH gave you a great primer on that one. One more item. Try holding a full inhale of O2 for 10-20 seconds. It really does help. Then exhale with that crunch. Works great. As your pain levels drop, you can relax a bit on your breathing technique. By the end, you should be breathing normally.

Hey Dandownunder, There is almost always a reason why some CHers don't respond to the anti-inflammatory regimen. Have you had a recent lab test for your serum 25(OH)D concentration? The most common reason for non-response is a low 25(OH)D response below the therapeutic range around 80 ng/mL, (200 nmol/L). If that's the case, a higher dose of vitamin D3 may be needed. Several CHers including me have found the Bio-Tech D3-50 water soluble vitamin D3 is more effective than the liquid soft gel vitamin D3 formulations. Taking all the cofactors... including Omega-3 fish oil and a 3-month course of vitamin B 100 Complex is essential. If your serum 25(OH)D concentration is up in this therapeutic range and you're still getting whacked... the problem is either an allergic reaction or diet related allergy. Allergic reactions are a spoiler for this regimen as they result in a flood of histamine that makes nearly all forms of CH intervention ineffective, A week to 10-Day course of a first-generation antihistamine like Benadryl (Diphenhydramine HCL) at 25 mg every 4 hours throughout the day addresses most allergic reactions. Just be careful and not drive as this much Diphenhydramine HCL will make you drowsy. If you need to drive during the day, wait until you're home for the day then take 50 mg Benadryl as you walk through the door and another 50 mg at bed time. If there's no favorable change in CH patterns after a week of Benadryl, discontinue. Diet is an important consideration for all CHers and migraineurs... The first two diet rules are zero sugars of any kind and no wheat products including bread, pasta, cereals, pizza and grain oils like Canola. Canola and grain oils come from GMO grains so are almost are contaminated with glyphosates (Roundup resistant genetically modified grains). You can eat all the organic grass fed meats and free range poultry including eggs, wild caught fish, green and yellow veggies, tomatoes and avocados you want. Whole fresh NON GMO Organic foods are best. Limit the fruits to a serving a day of blueberries, blackberries, raspberries or strawberries. Basically you're looking for a low carbohydrate diet, the Atkins diet or a good ketogenic diet that switches your metabolism from sugar burning to fat burning. Metabolizing dietary fats and any excess fat you may have around your middle and backside results in ketones being eliminated in urine. Pick up some keto test strips at your local chemist/pharmacy. A few drops of urine on the keto test strip will tell you if you're doing good or cheating on your diet. As long as the test patch turns pink to purple, you're diet is good. If the test patch remains beige, you've been cheating... A Big Mac or two slices of toast is all it takes to revert back to a sugar burning metabolism... Better living through chemistry... A 24 hour fast will help kick-start any of these diets. Be sure to drink at least 2.5 liters of water a day. Take care and please keep us posted. V/R, Batch

Hey CHMom and Muggle, Welcome to the anti-inflammatory regimen CH preventative treatment protocol with vitamin D3, Omega-3 fish oil and the vitamin D3 cofactors. You've both made a very good decision starting this safe, effective and healthy regimen. The following chart from the online survey of 283 CHers taking this regimen illustrates the reported time to respond by day. As you can see, the 80% of CHers who respond to this regimen do so within the first 30 days and the majority of them respond in the first two weeks. Muggle, you're doing great as an early bird responding in three days. Given the results obtained from the online survey of 283 CHers taking this regimen, the cessation of your CH attacks is not a coincident. CHMom, this chart tells you what to expect. The accelerated 12-Day vitamin D3 loading schedule at 50,000 IU/day for 12 days is still a good idea for both of you for several reasons. The typical CHer needs a total oral loading dose of 600,000 IU of vitamin D3. This can be taken in a single oral dose or spread out over 12 days to two weeks. There are several vitamin D3 studies using a single oral loading dose this high resulting in a 25(OH)D response of 60 ng/mL (150 nmol/L) on top of the baseline (starting) 25(OH)D serum concentration with no adverse events. Both molecular vitamin D3 and its first metabolite, 25(OH)D3 enter cells throughout the body to initiate genetic expression. When they reach neurons in the trigeminal ganglia, they flip a genetic switch that down-regulates, (suppresses) the expression of calcitonin gene-related peptide (CGRP) and Substance P (SP). These are the two neuropeptides headache experts think are responsible for cluster and migraine headaches. This loading schedule builds 25(OH)D reserves into the therapeutic range around 80 ng/mL in 12 days to act as a reserve in preventing CH. A vitamin D3 intake of 10,000 IU/day works to prevent CH as long as its taken daily but at this dose, it can take two to three months to build 25(OH)D serum concentration reserves to 80 ng/mL. If you miss a day or two, the CH preventative effect drops as there are no reserves to cover the missed doses. This loading schedule also helps eliminate shadows. A lab test for 25(OH)D before start of regimen is nice to have for several reasons of which the most important is establishing a link between the frequency of your CH and a low 25(OH)D serum concentration in your neurlogist's mind. When your neurologist sees the results of your second 25(OH)D 25(OH)D lab test taken 30 days after start of regimen and you're either CH pain free or CH frequency is greatly reduced, it connects the dots... Low 25(OH)D = increased CH frequency and 25(OH)D around 80 ng/mL (200 nmol/L) = complete cessation of CH or a significant reduction in CH frequency. That's the "A-Ha" moment where the neurologists sees the light... that there's an inverse relationship between the frequency of CH and 25(OH)D serum concentration. In simple logical terms, IF A THEN B. This is the clinical evidence that tends to make neurologists a believer in this regimen. When that happens, you've got a neurologist who is willing to work with you while taking this regimen instead of prescribing pharmaceutical preventatives that don't work as well and which carry onerous side effects. This is also where the lab tests for serum calcium and PTH are important. Without these two lab tests, too many physicians will pitch a hissy over a 25(OH)D serum concentration around 80 ng/mL (200 nmol/L) saying you're "toxic." In reality, the lab test for 25(OH)D is a poor indicator of vitamin D3 intoxication/toxicity. Only the lab test for serum calcium should be used in this case. As long as serum calcium remains within its normal reference range, there is NO VITAMIN D3 TOXICITY a.k.a., hypercalcemia (too much serum calcium). Serum parathyroid hormone (PTH) concentration is also a good biomarker to use while taking this regimen. When 25(OH)D is low, PTH tends to be near the high end of its normal reference range. With a 25(OH)D up around 80 ng/mL or higher, PTH tends to be near the low end of its normal reference range. For reference, I've run my serum 25(OH)D up to 180 ng/mL (450 nmol/L), but my serum calcium remained within its normal reference range and my PTH was low as expected. I gave my PCP a copy of the anti-inflammatory regimen treatment protocol so he knew what to expect... Accordingly he had no problem with my 25(OH)D serum concentration being this high. Take care and please keep us posted. V/R, Batch.

Hey Dandownunder, We ran a pilot study of the oxygen demand valve method of aborting CH back in 2008 with Seven (7) CHers (6 CCHers and 1 ECHer) collecting abort time and pain level data on every abort with this method of oxygen therapy for a period of 8 weeks each. I developed this method of oxygen therapy as a CH abortive in 2005 using a flow rate type oxygen regulator good to over 70 liters/minuet and modified it to work with an oxygen demand valve in late 2007. I also hold a patent for the method of oxygen therapy. An oxygen demand valve delivers oxygen on demand just the same as a SCUBA diver's 2nd stage regulator. The harder you try to inhale, the higher the oxygen flow rate. You basically control the oxygen flow rate with respiration rate at deep tidal volumes. The procedures I developed call for a respiration rate high enough to support hyperventilation. That respiration rate equates to an oxygen flow rate of roughly 40 liters/minute. 3 of the 7 CHers used a 0 to 60 liter/minute "InGage" regulator from FloTec set at a flow rate of 40 liters/minute with the Cluster Kit mask from CH.com with the 3 liter reservoir bag. We also had one of the CHers in this pilot study, very experienced in the use of oxygen therapy as a CH abortive, collect abort time and pain level data for a week using the standard disposable oxygen mask with 1 liter reservoir bag and an oxygen flow rate of 15 liters/minute (curve shown in red). The results are illustrated in the following graphic. As you can see, oxygen therapy at flow rates/respiration rates that support hyperventilation result in significantly shorter abort times and higher efficacy rates than that experienced at a flow rate of 15 liters/minute with a disposable oxygen mask. We used ≤ 20 minutes to an abort as the primary endpoint for efficacy. All but two aborts took ≤ 20 minutes so there were 364 successful aborts for 366 attempts for a 99.6% efficacy. The two failed attempts occurred when the CHer got trapped away from home and his demand valve system when his CH hit. He was either locked out of his home or away from home shopping. Both times he was unable to start this therapy until his CH pain level had already reached 10 on the 10-Point Headache Pain Scale. There were no differences in abort times between the oxygen demand valve and InGage regulator set at 40 liters/minute. Moreover, the mean abort time across all pain levels was 7 minutes flat for oxygen therapy at flow/respiration rates that support hyperventilation. This graphic also provided an interesting finding that no other study of oxygen therapy as a CH abortive has reported. The higher the CH pain level at start of therapy, the longer the abort time. This little factoid should make it obvious to start oxygen therapy at the first sign of an approaching CH while the pain level is still low. We also discovered a curious phenomenon where the frequency of CH increased for 3 to 4 weeks after starting the demand valve method of oxygen therapy. This up-tic in CH frequency continued to a maximum at week 5 of the 8 week long study then dropped to less than the starting frequency by week 8. All seven CHers in this pilot study experienced this same up-tick in CH frequency. All this happened before I developed and started taking the anti-inflammatory regimen CH preventative treatment protocol with 10,000 IU/day vitamin D3, Omega-3 fish oil and vitamin D3 cofactors in October of 2010. Since then, my oxygen demand valve has been stored in a zip lock bag unused. The anti-inflammatory CH preventative treatment protocol has proven to be effective in the first 30 days by 80% of the CHers who start this regimen. They experience an 80% reduction in the frequency of their CH from an average of 3 CH/day down to 3 to 4 CH/week. 50% of the CHers who start this regimen experience a complete and lasting cessation of all CH attacks in the first 30 days after start of regimen. This regimen is effective for both episodic and chronic CH although ECHers tend to respond at a slightly higher rate. You can download a copy of the anti-inflammatory CH preventative treatment protocol at the following link. Take a copy to your PCP/GP to discuss and ask for the lab test of your serum 25(OH)D. This is the serum level metabolite of vitamin D3 that's used to measure its status. The normal reference range for this lab test is 30 to 100 ng/mL (75 to 250 nmol/L) CHers with active bouts of CH tend to have a mean 25(OH)D serum concentration around 23 ng/mL at baseline before starting this regimen and a 25(OH)D serum concentration around 80 ng/mL (200 nmol/L) after 30 days on this regimen. http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 There are plenty of CHers down under taking this regimen who will be happy to help you source the needed supplements. Take care and please keep us posted. V/R, Batch

Hey Chano, The best course of action is to pick up some 5,000 IU vitamin D3 soft gel capsules and 400 mg magnesium softgels, Omega-3 Fish oil and 50+ Adult Mature Mulit shown with daily doses in the following photo. They're available at Cosco and most super markets. Rationale... You're likely vitamin D3 deficient and that deficiency is contributing to the frequency, severity and duration of your CH. Colds are a viral infection so will also respond to large doses of vitamin C and zinc. I take 6 to 8 grams (6000 to 8000 mg/day) of vitamin C and 50 mg/day zinc if I feel a cold coming on. Vitamin D3 and Omega-3 Fish Oil are also natural antiviral agents so will help reduce the length of colds... and help prevent your CH. Take care and please keep us posted. V/R, Batch

Antibiotics are a necessary evil when treating significant bacterial infections. They do nothing for viral infections. That's where a healthy immune system comes into play as that's how the body fights off viral infections. Again, there are no pharmaceutical silver bullets for viral infections. The best response to a course of antibiotics is to start at least a month long course of probiotics to rebuild and recolonize the friendly bacteria in the GI tract called the microbiome that were destroyed by antibiotics. This is an important course of action as the majority of our immune system centers around the GI tract. A healthy microbiome helps ensure a healthy immune system. Vitamin D3 and Omega-3 fish oil also help build a healthy microbiome and immune system. Take care, V/R, Batch

This is my post. This is an update since August when I first posted this. I said, "I have not had another attack since April. This is the first year in 10 or more years that that has happened." November now and still PF. I take the CBD in a dropper under my tongue every day - I simply leave it in my car and use about 1ml a day The strength of the CBD varies a lot so in one bottle a ML might be 250mg and in another only 50mg. Read carefully and adjust your dose till you are conformable. Front load the dosage - ie double up the first 3 days. The oil is pleasant in a natural surfactant like a seed oil and I spend approx $60.00 every month. Not only has this aborted the April 2018 cycle but it carried all the way through today. I am still skeptical a bit as the Beast has penetrated everything else over the last 30 years. I will become confident if I get through say, May of 2019. In the meanwhile again its been over 10 years since I had any relief and my cycles are like clockwork virtually to the week every year. CBD oil is working for me. My thought is that it may not break a cycle in progress ie when the talons of the Beast have already been embedded in your head, but with my experience when I was in the very first episode of an impending cycle - I have been completely PF for 8 months. I will check in again in a few months. Merry Christmas to all my Clusterheads.

I ended up buying a bottle of CBD oil today to try when I go to bed tonight. The brand I purchased is called "Saving Grace Oil." I have no idea what the concentration is; I'm concerned it may not be concentrated enough, according to what @Freud recommended. It looks like the oil I bought only contains 11 mg of hemp extract, so I'm gathering I didn't buy the highest-quality oil, unfortunately. Not sure if that will affect the effectiveness. Sigh. I'm really hoping this will prevent a cycle.

Thanks Swiftlaw, I too have tried it all, with very little success ( except for the wonder drug imitrex, which I robustly abused ). Your story of CBD oil is fascinating, could it be that simple? I hope so, I bust now and it takes planning and work. Freud, I went on the Lazarus website, just to make sure.. You are referring to the "Flavorless High Potency Tincture"? Thanks guys, the more ammo I carry, the better to fight the beast.

Hi all, I'll get straight to the point. My wife has just been diagnosed with chronic cluster headaches having suffered a single episode approx 6 months ago. This CH started 3 days ago and shows no sign of stopping. She is 31 years old, a mother of two boys, does not smoke / drink and has an underactive thyroid. She had suffered migraines in the past but we now understand the difference between the two. She has the bright red eye in her left side and is suffering approx 8 attacks a day. The most difficult thing for me is watching her writhe in pain and feel utterly helpless. She has been prescribed 50mg tablets of sumatriptan which help a very little. And yesterday in the hospital I believe she had sumatriptan as an injection which help a lot more. We cannot get this at home at the moment as the pharmacist told us there is a supplier issue. My wife is currently on her way down to the hospital to hopefully get another injection which I hope will help as she has ran out of the tablets this morning. She was also on oxygen yesterday which did not help much. I have picked up CBD 500mg oil which she is willing to try in vape from. Can anyone provide a starting point for help, especially within the UK with having the NHS.

Hi guys thanks for the quick reply, I get them all day every day(Also just to clarify never have had a headache/migraine in my life up until now). There is a constantly pressure and pain behind and around my right eye and the actual eye gets bloodshot and swollen/hurts to the touch. I went to the ER multiple times for the pain and just looked at the medications they gave me. I was given percs 375mg x 2 every 6 hours for 3 days for the first time. 2nd visit was given multiple Toradol injections followed by maxeran and a steroid. 3rd visit same thing but the torodol did not work very effective but got me really high. Took away 70% of the pain but the headache was still there. 4th visit was given a high dose of maxeran with a steroid, did pretty much the same thing as the torodol but a little less relief. After that they had no other medication to give me, the ER by my area doesn't take the headache very seriously neither does my doctor. They didn't try oxygen on me. I begged my doctor for it but because " she hasn't heard of anyone doing that" she wont prescribe me oxygen. The neurologist I saw recently just gave me verapamil to try but reading the side effects and problems that can come to your heart I am a stiff no go for that one, I have bad side effects to many medications. There has to be a better way. I don't drink or do drugs, i smoke marijuana and cigarettes which I know can be a cause for clusters. As for right now I am in a 7/10 pain constantly throughout the day, with spikes every little while in behind my eye/around it that happen every hour or hour and a half and are really painful. My entire face hurts but I am just battling it out. I would rather live with the pain than have to deal with bad side effects from medication even if I cant do anything. Also if this is helpful, I have intense TMJ problems, my jaw is out of place a good 50% of the time and it is always swollen/ clicking and grinding on the joints. Could this be part of the problem associated to my headaches? I had a wisdom tooth pulled about a year and a half ago and they messed something up in my face on the left side and it has been going numbing and painful since. Now I have these headaches on the right that started august 13th exactly. Also am seeing double/blurred vision out of right eye, and very dizzy. I just use ice packs on head all day and smoke weed. Also i know MM will take time to grow but I have all the time in the world and know I could grow a good batch and use a low dose in pill form preferably. I could try and get through a friend but don't trust the quality. Meds I am on right now: Tramadol 375 x 1 when needed. Ibruprofen as needed. Xtra strength 400mg. over the counter tylenol. Advil as needed. Naproxxen 500mg x1 as needed for Joint pain. .75-1.25 ML of CBD oil. 2-3 joints a day with marijuana. Took a 2 month break and had no effect. So Would rather smoke and deal with the pain.

Thank you Batch and spiny for your replies. You guys have been so strong and have endured so much pain. I'm guessing you guys don't "bust" at all. I promise every day for the rest of my life to chant and pray for you guys to be pain free and for there to be a cure. There has to be a rhyme or reason to this. There has to be a cause to this effect. I wonder what constitutes a barometric pressure drop? higher elevations, rain coming, windy weather.. Tonight I took so CBD oil (no THC) and I'm praying for a good night's sleep. Take good care and we will beat this together! Jimmy-

HI Batch, I hope you are 100% pain free and your family is very well. I am taking the calcium, boron, Zinc, Vitamin A, B, C, and D3 (6 pills at 10,000 IU each pill). I'm also taking fish oil, magnesium, and a multi-vitamin. I ran out of the Vitamin K2. I've asked my doctor about the serum levels but haven't heard back. Hopefully the regime I'm on now is the correct one. I'll try the Bio Tech stuff once me current VD3 supply runs out. Thanks for all you do sir, Jimmy-

I took High dose CBD oil for a month along with 160mg of verapamil 3 times a day and had no problems. I think it helped but it didn’t abort my CH as some one here has reported. If you’re going to do cbd check out https://www.lazarusnaturals.com/shop/ after spending hours researching I found this company makes the highest quality cbd for the money. The flavorless just tastes like coconut oil.