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Okay to take Verapamil and Hemp Oil Extract?
CHfather replied to Jimmy Martinez's topic in General Board
(1) Very nice of you to make that call, spiny. (2) spiny, what has been your experience with the CBD oil? I think I have three questions, assuming that you're using it to treat CH: (a) are you using the hemp-based version or the marijuana-based one? (b) are you using it for aborts? if so, is it helping you? (c) are you experiencing any kind of preventive effect from it, as far as you can tell? -
Okay to take Verapamil and Hemp Oil Extract?
Jimmy Martinez replied to Jimmy Martinez's topic in General Board
thank you Spiny! so take the CBD oil 2 hours apart from my Verapamil doses (which are every 3 hours). Hope to talk to you or meet you in person one day. Same with CH father and Batch. You guys are all great people who are so helpful. -
PLEASE HELP ASAP NOT SURE HOW MUCH LONGER I CAN HANDLE THE PAIN
Jimmy Martinez replied to akiva's topic in General Board
HI friend, I'm so so sorry that you are battling this right now. It sounds like you are a pro at battling it. Thanks for the reminder about driving tons of water. Also, for the vitamin D3 regimen, is it crucial to take the FULL regimen or is the vitamin D3 the most important part? I'm taking the calcium, boron, vitamin B, A, Omega 3 fish oil, and a multi vitamin as well as C and B12. I'm taking 7 Vitamin D3 tablets at day which I believe are 10,000 IU. I'm praying for you: nam myth range kyo is what i chant and I am chanting for you. If you can't give me your name, I will chant for CHsurvivor22. take care, jimmy -
Hi Guys, I am starting to get optimistic now. Finally the severity of the CH symptoms has weakened noticeably. Overall, it's lasted 3 weeks. Finally, the past 3 nights in a row, I had no episodes of CH. However, the achey face feeling--the same area of head--still noticeable when I awaken in the morning, and gradually diminishes late morning. It looks like some sort of biorhythmic cycle still continues. I hope it completely goes away soon. With Batch's recommendation, I added fish oil to the daily regimen. Now taking daily: 10K D3, 240mg MgGlycinate, 2.2g fish oil (1.2g EPA, 0.5g DHA), 200ug MK-7, and a multivitamin.
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Okay to take Verapamil and Hemp Oil Extract?
spiny replied to Jimmy Martinez's topic in General Board
To my knowledge, there is not an issue. I take CBD Oil and I just called the manufacturer with your question. Their 'hard - do not cross' line is to separate your CBD by two hours from any other meds, including OTC like Tylenol. People forget Tylenol is a med and often do not think about that one. But it puts two meds in competition without the gap between injestion. Hope this helps you! -
Hi friends, I bought a CBD oil called "Charlotte's web". I don't believe it has any THC and it does not have any psychoactive effects. Do you know if it's okay to take this and also take Verapamil? Thanks for your help! Jimmy
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very very light cluster headaches? does anyone get these?
Jimmy Martinez replied to Jimmy Martinez's topic in General Board
Thank you friends for your help! Last night I got a full blown attack after about 2 weeks of little "shadows". I had to find some old Verapamil and some old Ritatriptan to take as the pain was heavy and constant throughout the night after trying 2 rounds of advil. This is a horrible horrible ailment. Batch: thank you for your advice! I've been taking on average 4 to 5 Vitamin D3 pills (10K MG each) every day for over a year now. I also take fish oil, vitamin A, B, C, Magnesium, Calcium, and B-12, and a multivitamin. I'll bump up my VD3 intake to 6 or 7 a day. Siegfried: Thank you for the information. Oxygen works only as a temporary relief for a few minutes. It doesn't seem to kill the pain long term. I'm so glad it works for you. I will probably have to get some as I am sadly expecting a cycle here. J: thanks for there tip on the Melatonin. I'll give that a try by not taking it. I seem to be getting these attacks every 18-20 months since I was 37 and now I'm 46 next month. It rained here last week. other than that I can't figure out what the cause is. I'm a little stressed but nothing more than usual. I'm eating healthy. Drinking decaf coffee. getting good rest. Very sad and frustrating but I will beat this! -
Thank you, I see that now. I have the mms on hand if I absolutely need them. I am wondering how effective the d3 regimen could be alongside the lithium (or whether it is even beneficial for me to be on lithium during a cycle). I am in the process of getting the vitamins needed for the complete regimen and have taken d3(5,000 iu) and fish oil (1000 mg) today to start I hopes of relief. I always have had clusters and shadows on the right side but the shadow pain seems to have immediately switched to my left side after taking the d3(only 5,000iu).
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Batch, thanks for your comments. I bought a fresh bottle of 5K D3 pills, tossed by 2K bottle, in case the pills had lost potency (from last year). Have you ever heard of that? Also taking 240mg MgGlycinate, and 200ug MK-7 daily. I don't have fish oil on hand, but will try to eat more fish. I hate looking for fish oil pills--so many different kinds. You are the one whose advice I followed in 2016, and the CH's disappeared. I am still hopeful that they will go away this time, and soon. The Vitamin D solution does make sense, given all the facts. One thing I don't understand is why the water soluble type that you mentioned would have a quick effect. Absorption might be faster, but doesn't it have to be metabolized just like the solid pills? So it should save some hours, but not be able to act to staving off an attack? Jon, thanks for your ideas. I gave up on the sumatriptan pill--took too long to act. Even if I had an injector, I might not use it. Just worried that pumping that stuff will mess me up eventually. I moved last year from California, and don't have a neurologist nearby, but plan to. I also wish I had cannabis to try--not available where I live now. I do not know why I am sometimes nauseated, but it is a chain reaction of some sort. I might seek the O2 tank route, but could be an uphill battle, implied by some others' posts. I did try O2 once in the ER, and it didn't help. The diagnoses was done first by a ophalmologist. Up til then I had several eye exams that found nothing wrong to explain the eye pain. I have no doubts...symptoms all align with Mayo Clinic description: pain around the eye, droopy eyelid, tearing. Episodes usually at night.. By the way, I had a CH onset this morning for some reason. I was able to get some relief by getting into a hot bath after around 10 minutes. I think it was RussM wrote about putting feet into hot water. I tried that, but was shivering, so just got in. I think this will become my first line response if I am at home.
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Onglamesh, Alexandrax, Depression and anxiety attacks are part of the cluster headache syndrome. Some CHers experience clinically significant depression. We know what you've been going through and the good news is it doesn't need to be that way. Nearly all CHers are vitamin D3 deficient and that deficiencies contribute to the frequency, severity and duration of their CH. Solve that vitamin D3 deficiency and the odds are high you'll solve your CH problem... depression too. My name is Pete Batcheller, a.k.a., "Batch." I'm a 74 year old retired Navy fighter pilot and long time CHer... chronic since 2004... except I no longer suffer from these terribly painful debilitating headaches. In October of 2010 having experimented with a combination of vitamins and minerals to reduce inflammation, I added 10,000 IU/day vitamin D3... I was mildly surprised when the frequency of my CH dropped from 4 CH/night to 1.5 after the first dose... I blew the first CH away with 2 minutes of oxygen therapy at flow rates that support hyperventilation... The half hit was so minor it went away before I could get to my oxygen... I was totally pain free the second night after the second dose... That very pleasant surprise blew me away. It's stayed that way ever since unless I do a burn down test of my 25(OH)D by stopping the vitamin D3 until I get hit... I know that sounds crazy... That said, I'm so confident in the CH preventative capacity of this regimen, I do this 3 to 4 times a year and never have more than one or two mild hits before returning to a blissful CH pain free status. I've an estimated 800 CHers taking what I call the anti-inflammatory regimen of vitamin D3, Omega-3 fish oil and the vitamin D3 cofactors. I've run this treatment protocol in front of several vitamin D3 experts, endocrinologists, Integrative physicians and a few neurologists experienced in treating CHers. All think it is the best, safest, and most effective CH preventative we can buy... for roughly 55 cents a day if you buy the supplements at Costco or over Amazon... The results of this regimen have been published in the American Academy of Neurology journal Neurology in April of 2014. You can download the latest version of the anti-inflammatory regimen migraine headache (MH) and CH preventative treatment protocol at the following link. Be sure to share a copy with your PCP and in particular, your neurologist. This treatment protocol also contains the results from an ongoing survey of 215 CHers taking this regimen since December of 2011. Having your PCP and/or neurologist up to speed with this headache preventative treatment protocol will have you all singing from the same sheet music when you ask for the 25(OH)D, total calcium and PTH lab tests 30 days after starting this regimen. Henry Lahore, the brains and brawn behind the VitaminDWiki website posted this treatment protocol for me on 21 January, 2017. As of this morning readers of this post at VitaminDWiki had downloaded over 11,050 copies, a little over 17 copies a day so the word is getting out about the efficacy of this regimen to prevent CH… and migraines. http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 This is not a joke and I don't sell anything. I've been providing information outreach to migraineurs and CHers on the benefits of this regimen and vitamin D3 since December of 2010. If you've any doubts about starting this regimen, click on the following VitaminDwiki link. It will take you to a page at that site that's all about my work with CHers taking this regimen with vitamin D3 and the cofactors. http://is.gd/clustervitd If you’re still in doubt about starting this regimen, click on the links below to read posts by other CHers who started this regimen. I have hundreds more just like them. http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1291969416/798/#798 http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1393027277/2/#2 http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1291969416/1425/#1425 http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1291969416/1465/#1465 http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1324046404/278/#278 Please feel free to ask questions... Most CHers have them when starting this regimen... I'm here to help. I’d also suggest you order some Bio-Tech D3-5 (5000 IU water soluble vitamin D3 capsules) and a 12 capsule bottle of Bio-Tech D3-50 (50,000 IU water soluble vitamin D3 capsules from Amazon.com. It is proving to be more effective with greater bioavailability than the liquid soft gel vitamin D3 formulations. https://i.imgur.com/TtwD4qw.jpg Take care and please keep us posted, V/R, Batch
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Thanks for your advices. Got 3 attacks this night... Fortunately, i have 2 free days, so i went to hospital with the mask i usually use at home, but the flow seemed very low although it was written 15l/mn and it was the max they could do hère ! Then i went to a drugstore, i could find fish oil (epa-dha 241,2mg), multiple vitamin&minerals, calcium (500mg) + magnesium (250mg), zinc, but no vitamine K, no boron, and no B50. I could find only "super D" (1000 IU). Should i begin and take 10 pills of it, or should i wait to order the missing things by internet ???
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Hubby, type CBD into the search bar at the top right of the page. It will lead you to several accounts from people who say they were significantly helped by CBD oil.
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No but Would be hard to hold a job that drug test randomly. And looking for relief with low dose solutions. We have cbd oil she could try right now but haven't read where that had really helped anyone
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Thanks so much for reading such a long post and for your replies. Really touched me. I take triptans with nasal spray (imigrane 20mg/0,1ml), i guess it's not possible to split the dose. I first have tried pills but couldn't feel no effects. I fortunately could find CBD oil, it helps to feel the shadows lighter. I'll check gamma-core, and alternate medicines you mentioned (erenumab, naproxen, topiramate / never heard about these). About D3 regimen, i meant "this" winter, as soon as i'll be back home. I've already downIoaded the file and talked to my doctor about it (the guy who first told me about CH). I understood that i need to ask for blood analyse before starting it, don't i ??? Busting seems very interesting too, just hard to find vitamin M or L in France and even more in Japan. I'll try to find some from Netherlands. And if anyone can help me about this in France, welcome ! I read interesting posts about welding O2 and appropriate regulator. It seems to be available here in Japan, not that convenient while touring and moving everyday, but can help. I'll also have an acupuncture session next month, last year it could break a 10 weeks cycle. And thanks also for deleting the previous post about holystic whatever which was obviously not serious. Yann
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Yann, this is of course very painful to read for those of us who understand what you are going through. It's not clear to me why you're only planning to do the D3 regimen "starting next winter." It's something you should do right now, I think. Have you looked into the GammaCore device at all -- a portable method for aborting attacks. http://gammacore.co.uk/ Mixed reviews, apparently not as effective for people with chronic CH, and quite expensive in the US (don't know about Europe), but I'd think it could be worth trying. Also, the new preventive medicine erenumab (Aimovig) is approved in the EU, at least for migraine, and I think it can be expected to be helpful for CH, if you can get a doctor to prescribe it. As I understand it right now, you have to go to a doctor's office to get an injection every two months -- but I could be wrong about that. CBD oil as an abortive and possible preventive? Lots of good reviews here. You can look it up by typing CBD into the search bar at the top right of the page. Do you know about splitting triptan injections so you use a lot less each time, and therefore have a lot less side effects? https://clusterbusters.org/forums/topic/2446-extending-imitrex/ As you say, many people have found relief from busting. I can see how it doesn't really fit your schedule right now, but of course it's something you should consider. You would not be the first person to come here thinking it would be better to not be alive, and to find life a lot better.
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Not to rebut CHF's excellent post, but I would suggest one 60 and one 90. The 60 is not required to be capped when traveling, so you can have your mask attached to it on the road. It is not an issue for me to lift and load. BTW - I am old with a torn rotator cuff, so that says something. A 90 will last longer of course and I have found the 60 very hard to come by. So, I use one of each and try to keep at least one completely full at all times. Yes, I can haul the 90 too, but it is heavy. Of course the shortage of 60's may be just the people I have to deal with! It really is easy to set up. Just know not to use grease, oil or any lubricant or teflon tape on the threads of the tank when you screw on your mask. You never use those around O2. All that you really need is a big adjustable crescent wrench to attach the mask to the tank. Tighten the nut on the regulator as tight as you can. Turn the regulator off with the dial. Open the valve on the tank and listen - no sound means no leakage. With the regulator off, any hiss of escaping gas would be coming from the nut you just screwed on. I bought them for 'my welding set up' and needed two due to high cutting torch usage. Never had a question asked, just made the statement and paid for the tanks. Owning them, I can have them filled anywhere, not just at the company I rent them from. It is a plus if you travel. And I can go on a 'welding binge' and buy as often as I want with a smile. Hopefully this helps a bit!
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Newbie - Clusters and lower / irregular heartbeat?
CHfather replied to 3800sc's topic in General Board
Chuck, it sounds like CH pain, for sure, and the timing is CH-like. I don't think we've seen anyone here say that they have discovered a link between marijuana smoking and CH (and there are more than a few here who use it), but CH experiences are so different that it can't be dismissed. CBD oil, interesting, has been an effective abortive or preventive for many people. In the short run, if you're still getting attacks you could try quickly drinking an energy shot such as 5-Hour Energy at the first sign of an attack. Often that reduces the severity of an attack or at least reduces its severity. Read as much as you can in these pages for other ideas. And of course try to get to a headache center, where you're most likely to find a doctor who can give you a good diagnosis and possibly good prescriptions. Most general practice doctors and even most general neurologists are bad at diagnosing and treating CH. Consider the D3 regimen, which probably will help. Read about it in the ClusterBuster Files section, and look through some of the other files there, too. -
Hey Lizzy, I realize my next comments may appear to be coming from left field... or outer space... That said, here we go... You're very likely vitamin D3 deficient and that deficiency is contributing to the frequency, intensity and duration of both your cluster and migraine headaches. You don't need to take my word for this condition. All you need to do is call your primary care physician/general practitioner (PCP/GP) and ask for the lab test of your serum 25(OH)D concentration. This is the serum level vitamin D3 metabolite that's used to measure its status. The normal reference range for the 25(OH)D lab test is 30 to 100 ng/mL (75 to 250 nmol/L). Print out a copy of the anti-inflammatory regimen CH preventative treatment protocol from the following VitaminDWiki link and take it along to discuss when you ask for the 25(OH)D lab test. The anti-inflammatory regimen consists of 10,000 IU/day vitamin D3, 1000 mg/day Omega-3 fish oil, 400 mg/day magnesium and a good adult 50+ Mature Multi. Most of these CHers started this regimen with a vitamin D3 loading schedule of 50,000 IU/day vitamin D3 for 12 days. I've been running an online survey of CHers taking this regimen to prevent their CH since December of 2011. As of January of this year, 257 CHers have completed and submitted this survey. It's important to note that the mean baseline 25(OH)D serum concentration for these 257 CHers, before start of regimen is 23.6 ng/mL. The following chart illustrates the normal distribution of their baseline 25(OH)D lab test data before start of regimen. Again, it's important to note that all these CHers were having active bouts of CH when they had the blood draw for this lab test. The following normal distribution chart illustrates the resulting serum 25(OH)D concentrations after 30 days or more taking this regimen. 80% of these 257 CHers experienced a significant reduction in the frequency, severity and duration of their CH from an average of 3 CH/day down to 3 or 4 CH/week. 50% of the 257 CHers experienced a complete cessation of CH symptoms in the first 30 days after starting this regimen. This isn't a joke and I don't sell anything. I've been providing information outreach on the benefits of taking 10,000 IU/day vitamin D3 plus the cofactors as a safe and effective method of preventing CH since December of 2010. I estimate over 800 CHers have started this regimen since then. If you've any doubts about starting this regimen, click on the following VitaminDwiki link. It will take you to a page at that site that's all about my work with CHers taking this regimen with vitamin D3 and the cofactors. http://is.gd/clustervitd The following link will download a pdf copy of the anti-inflammatory regimen treatment protocol. Readers of the above vitamin D3 web page have downloaded over 10,000 copies of this regimen since January 21, 2017. http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 If you’re still in doubt about starting this regimen, click on the links below to read posts by other CHers who started this regimen. I have hundreds more just like them. http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1291969416/798/#798 http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1393027277/2/#2 http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1291969416/1425/#1425 http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1291969416/1465/#1465 http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1324046404/278/#278 Please feel free to ask questions... Most CHers have them when starting this regimen... I'm here to help. Take care and please keep us posted, V/R, Batch
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Hey All - CH Going on 40 days now... Just wanted to say Hello!
JavanHead replied to JavanHead's topic in General Board
Hey thanks everybody for the support I really really appreciate it. Some really great ideas here and I'm going to set aside some time today to read up on the D3 regimen and see if it's something that can help me. I'm 100% up to try it either way. Also, Jon the Zomig sounds pretty righteous. You use that exclusively now? Does it just "bust" the headache or keep them away for any sort of time ? As I've mentioned I've been "medicating" with caffeine mostly - got some sugar free red bulls yesterday and a few starbucks coffee shots. Drank one when I woke up at noon, and then drank unsweetened iced tea all throughout the day. I honestly felt great until about 10pm when I felt a bad headache coming on. I then drank half a red bull and a little bit of coffee and the pain dissipated within 20 minutes or so, which was good - but then I was up till 5am! I then took 1 tablet of excedrin tension and went to bed until about 11am. Real quick - I know that pills can tear your stomach up, but the excedrin tension that ONLY contains acetaminophen and caffeine - that's not as bad for your tummy as the regular excedrin right ? The O2 sounds interesting and I would be willing to try, I'm just not sure if I can keep that up lifelong as I try to be as active as I can. I guess I could take it with me camping and my long car drives but it seems like a lot. But this condition is a whole lot and I am willing to do anything to seek relief ! Also a friend of mine did give me a few topamax pills and a sumatriptran injection box, and I havent taken any of them. His wife has MS and said it helps with her headaches heavily. Thing is, I've read about the effects and seems they can be pretty severe. Obviously I'm the kind of guy that would rather smoke a joint, flap my arms and pray the pain goes away but...perhaps I'll shoot one in my forehead tonight ! Joking of course ;) Also a doctor friend of mine had said this when I was texting him today - "Sounds like your symptoms fall into a diagnostic group of diseases called Trigeminal Autonomic Cephalalgias (TACs).The five diagnoses in the group are: 1. Cluster 2. Paroxysmal hemicrania 3. SUNCT 4. SUNA 5. Hemicrania continua Even if the symptoms are textbook and diagnosis (usually by a neurologist) is made, treatment can be difficult to get “right” Another diagnosis in the group is called hemicrania continua and responds to a drug called indonethacin (basically ibuprofen) - also prescription Well if we’re going with CH - which I think is right - it seems that the best place to start is a triptan" So I'll be researching that information today as well. But topamax and sumatriptan are...triptans right? Anyhow - just wanted to give you guys an update, thank you again for all of the kind and heartfelt replies! I am in the doctors office now (normal doc not neurologist or headache specialist), and will relay all of this information to her as well and let you know what they think ! Have a great day all and be well! Ps. Will be researching CBD oil and the poster you mentioned thank you for that! -
Hey All - CH Going on 40 days now... Just wanted to say Hello!
CHfather replied to JavanHead's topic in General Board
Javan, it is possible but not likely that you'll be attack free for some number of years after this episode ends. It's possible that your cycle will only last six weeks, but there is no "normal" or "typical." You really need to not assume that you won't get hit again in six months or a year, or even that this cycle won't go on another six weeks, and be ready. The effectiveness of simple caffeine typically lessens over the years for people with CH. I strongly recommend that you read about the D3 regimen and start it. http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 As spiny says, do what you can to get oxygen -- the best abortive there is, with no side effects. A doctor can -- but, for crazy reasons, often won't -- give you a prescription. Without insurance, your best route might be welding oxygen, for which you don't need a prescription. Your mushroom experiment wasn't unusual. People can get attacks while taking them. Most people use them to stop a cycle or try to prevent cycles through "maintenance dosing." 5 days apart. Some people are finding CBD oil to be very effective. There's a search bar at the top right of each page. Type in CBD to find that content. Most recently, SwiftLaw posted that it has helped him tremendously. Read in the ClusterBuster Files section. Look at the Triggers document there. Keep asking. -
Hello gang: I need to report in. I'm Checkin' in like Gunga Din. As I posted over a year ago: "However those of you who have let me whine here for the last decade or more know that I keep the [ triptan] injections handy - and I take a healthy dose of Verap. every day all year - I have the big big O2 tank in the hall all year - I have tried a visit to the Portuguese wizard, busting with shrooms, Chinese doctor and herbs - nothing but licorice water for a week, water water water, exercise rapidly, ice on the carotid artery, steroid dose pak, Cluster vitamin regimen, Opioids, benzos, advil, melatonin, a Shaman in the Navajo tradition, Hot water pads, every other god dam thing. In the end; every single cluster cycle required absolute submission to the Beast in varying amounts before I can see the light. " By chance, this year in April which is the inevitable early part of my annual cycle, my mother-in-law brought me a bottle of CBD oil made from Hemp - no cannabis no THC . Having tried all of the crazy stuff above I am open to anything. The beast came knocking one evening in April it was the first of the season that was more than a shadow. I assumed the position on the floor and got my ice bag. Then I took a full ml. of the CBD sublingual. The attack aborted in minutes. I used that small hemp oil vial in a bout 15 days. My research led me to understand the "Entourage Effect " of cannabanoids. (I don't like to drop links in this board so Google it) I got my medical card and bought a CBD compound which is "Whole Plant Medicine". Not enough THC to even contemplate the tiniest buzz, but medially, enough to keep the CBD in concert with the other the other therapeutic compounds in cannabis. I have not had another attack since April. This is the first year in 10 or more years that that has happened. I know CH Father has commented that the results and reports on CBD are all over the place and this I see as I have looked on the boards. However - having been here since the early days of the "old board" I just had to let you know of this amazing outcome. Now - I have felt the beast trying to break in on a few occasions, which to me only adds credence to the results I am having being attributed to the CBD. A PF summer -- who ever heard of such a thing ? I hope to keep reporting these positive results. Wishing you all well. TomSwift
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OOOoo with the Legalization in Canada coming into effect October 2018, I was thinking of CBD oil to use as a preventative, I will have to read up on other posts regarding this.
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I finally got authorization for O2. I was sleeping today and missed call from O2 Co. Already started D3 regimen 10,000 IU a day; should I take more? Tomorrow going shopping for fish oil. I tried amitriptyline as preventive a long time ago and I couldn't do it, the higher that milligrams the worse the adverse side effects, I stopped at 30 milligrams. No, have never tried Trex. I am chronic and the only prescription drug that works for me to stop the pain is Relpax/Eletriptan, very expensive even with insurance ( $12.88 per one pill) never tried injections nor have I been offered them by any neuro.
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Yep. The standard Fish Oil at the grocery or pharmacy. I suggest the 'burpless' variety. Fish burps suck! Botox is very helpful for some, some migraine suffers. From my reading, it is not so effective for CH and the doctor administering it needs to know how to do that for Clusters, not just Migraines. Insurance can suck when you are trying to get O2. You likely will need the help of your doc. It can be a fight, but you can win that fight. I strongly suggest you start the D3 Regimen. It is easy, over the counter, and a huge help for many. What preventative were you given by the neuro? None? Did he just prescribe Trex and not a Pred Taper or Verapamil? Yes, Trex works. It is also bad for you over the long haul. And if you are getting hit 3-5 times a day, which two do you treat with the Trex? Using that med alone leaves you in a bad position. Remember - two shots in 24 hours max. There is a way to split the injections that can help. You are getting injections and not nasal spray or pills, right?
