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How many milligrams of the fish oil daily?

Hey Sharon, Sorry I missed this yesterday. I generally buy most of my supplements at Costco per the photo below. I've recently switched from Nature's Bounty 5,000 IU vitamin D3 to Bio-Tech 50,000 IU water soluble vitamin D3 capsules as this is the least expensive form of vitamin D3 at 23 cents/capsule and it gets into the bloodstream faster than the oil based softgels. As one 50,000 IU Bio-Tech capsule of vitamin D3 is good for 5 days (An average of 10,000 IU/day) the cost per day is less than 5 cents where the Nature's bounty runs around 12 cents/day. The 50,000 IU vitamin D3 capsules come in handy during the 12-Day loading schedule as it beats swallowing 10 of the 5000 iU softgels each day. https://www.amazon.com/Bio-Tech-D3-50-50-000-200/dp/B00IAQUJH0/ref=sr_1_4_a_it?ie=UTF8&qid=1531495610&sr=8-4&keywords=bio+tech+vitamin+d3+50000 I order the Bio-Tech 50 K vitamin D3 and the LEF Super K with advanced K2 Complex from amazon or iherb depending on specials. Hope this helps. Take care and please keep us posted. V/R, Batch

Hey CoryAnn, Has your guy started back up on the anti-inflammatory regimen to control his CH? Vitamin D3 and the rest of this regimen and in particular the Omega-3 fish oil, magnesium and vitamin K2 help normalize blood clotting factors. You can download the latest version of the anti-inflammatory regimen at the following VitaminDWiki link: http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 Take care, V/R, Batch

Hello Gail and all, Newbie here, so I'm surprised to see myself commenting. Wet tissues all over my desk after reading of everyone's posts of success and help to others, and of the realization that there's so many others suffering this terror. No need for my long story, it's too similar to many others. Short version is we're into this demon 12 years now, and episodic has decided to go chronic in 2018. We've got some shrooms incubating at the moment, but they're not cooperating in their growth pattern as best as they could. The dreaded thoughts of suicide crept into my brain the other day so I raided my stash of Prednisone. Well what about the CBD? I'm blown away to hear your results Gail. Makes me want to run home & pop some of our stash immediately, but I'm totally paranoid of triggering an episode. You see, I'm now an aging hippie, with what you might call um, some?, experience in the use of cannabinoids over the course of my days, much more so in my youth, but my wife has been experimenting with CBD oil and topicals for various health issues recently and found remarkable results. My understanding of the effects of the usage of these is that they act as a vasodilator (you know - the dilated pupils effect), as opposed to a constrictor, which is mostly the result I think we want, like what the caffeine is helping do. I was using a bit of the CBD oil late 2017 as an anti-anxiety helper, but since these episodes turned chronic, my wife gets it all to herself. Maybe I'm totally out in left field on this; in fact I hope I am. It would be wonderful to have an additional treatment available. We're learning more & more about the benefits of CBD. Please keep us updated on your experiences with it. Best of luck!

Hey MG, Gabapentin (Neuronitn) comes with side effects ranging from a 3 martini high to downright nasty psychotic moods depending on the dose. I tried it for two weeks then burned the bottle... It wasn't worth it. Migraineurs respond favorably to the anti-inflammatory regimen, but at higher vitamin D3 doses and higher 25(OH)D serum concentrations (15,000 to 35,000 IU/day vitamin D3 and a 25(OH)D serum concentration between 100 ng/mL and 140 ng/mL). You'll need to double the magnesium dose so split it 400 mg AM and 400 mg PM to avoid osmotic diarrhea. Taking a good vitamin B complex a day is also essential. Be sure to work with your PCP on vitamin D3 doses this high as you'll need labs for serum 25(OH)D, calcium and PTH monthly until you reach a stable vitamin D3 maintenance dose. As long as your serum calcium remains within its normal reference range and your PTH is at or near the low end of its normal reference range, there's no vitamin D3 intoxication/toxicity so your 25(OH)D serum concentration doesen't really matter. For reference, I've run my 25(OH)D serum concentration up between 188 and 200 ng/mL. My serum calcium remained within its normal reference range and my PTH was at the low end of its normal reference range so my PCP went along with doses this high. There are additional supplements required to help prevent migraine. They include 1000 mg/day Co-enzyme Q-10 (CoQ10), 1000 - 2000 mg/day Turmeric (Curcumin), Benadryl (Diphenhydramine HCL) at 25 mg every four hours throughout the day and at bedtime, or if you need to drive during the day, take 50 mg when home for the day and 50 mg at bedtime. Taking 1000 mg vitamin C every 4 hours during the day along with the Diphenhydramine is also helpful. It shouldn't come as a surprise, but oxygen therapy with hyperventilation can be effective in aborting a migraine headaches. Find my post on the "Redneck Oxygen Breathing System" as it explains hyperventilating at forced vital capacity tidal volumes for 30 seconds with room air followed by inhaling a lungful of 100% oxygen and holding it for 30 seconds. Keep repeating this sequence until the headache pain is gone. Where CH aborts with this method of oxygen therapy require an average of 7 minutes... migraine aborts average 10 to 15 minutes. Be sure to start this method of oxygen therapy by drinking a big glass of ice water with lots of ice cubes. (I've found doing this works as well as slamming a can of Red Bull and it's a lot less expensive.) Drinking a minimum of 2.5 liters of water a day is also a must. Diet is also an essential consideration for migraineurs. No sugars of any kind including soft drinks and fruit juices. No wheat products, bread, pasta, pizza or grain oils. Good fats/oils include organic butter, olive oil, avocado oil and my favorite, extra virgin coconut oil. You can eat lots of NON GMO organic green and yellow veggies, onions, mushrooms, fresh ginger and one serving of fresh fruit a day (Blueberries, blackberries and dark red grapes are an excellent choice). Eat organic free range meats, poultry and eggs. Try to eat a serving a week of wild caught fish, clams or oysters. Avoid shrimp and prawns as most are farmed so contain large quantities of antibiotics. My wife was a 20 year episodic migraineur until she started the anti-inflammatory regimen at 15,000 IU/day vitamin D3 in December of 2010. She hasn't had a single migraine since. I don't put out much info on taking the anti-inflammatory regimen with vitamin D3 to prevent migraines. I made a few posts about the results of my study doing this on Facebook... My access to Facebook was denied within 24 hours... I haven't been back since... Big Pharma sponsors at Facebook don't like info like this on vitamin D3 preventing migraines getting out after they've spent $400 to $600 million to develop and test monoclonal antibodies as migraine preventatives... but that's another story and much longer post. Take care and please keep us posted. V/R, Batch

Hi Gail, Are you putting a few drops under your tongue? My best friend uses CBD oil to help relieve muscle spasms associated with her MND/ALS. I'm tempted to try it for my migraines, see if it helps. Unfortunately, my clusters are two short (which is really a good thing) for any abortive to work. Mine usually only last a few minutes, thanks to all the busting I've done. I know people have reported hit and miss success with cannabis to treat clusters. For some, it makes them worse. If it works for you, awesome! Well worth trying. MG

Has anyone used this with success? I have only begun and it broke a cycle after 2 uses. I am hopeful and if you know more about it than I do (which wouldn't have to be much). i'd love to hear from you! Thanks, gail

Hmmm... Lots of good questions so I'll start with the vitamin D3 cofactors... In simple terms, more CHers respond to this regimen if they take all the cofactors than CHers who take only vitamin D3. That some CHers experience a cessation of CH symptoms taking only vitamin D3 likely indicates they're likely eating a diet very rich in the needed vitamin D3 cofactors. To give you an idea of how much dietary sources of magnesium you would need to eat a day in order to satisfy the 400 mg/day requirement for magnesium, you would need to eat: 3/4 pound of dark chocolate or 13 ears of corn or 4 cups of broccoli or 8 cups of peas or 5 cups of Tofu or a cup and a half of Cashews or 13 bananas or 3 cups of black beans... (that could be dangerous) and the list goes on... My SWAG (Sophisticated Wild-Ass Guess) is it will be a lot easier and cheaper to take a 400 mg capsule of magnesium for 11 cents a day than go through the gastrointestinal stress... and expense of eating enough dietary sources of magnesium each day... What we've learned over the last 7 years about this regimen is Magnesium is a must as it is consumed rapidly in the enzymatic process that hydroxylates vitamin D3 to 35(OH)D and on to 1,25(OH)2D3 the genetically active metabolite. Without magnesium supplements, taking 10,000 IU/day or more vitamin D3 will deplete the body's magnesium reserves rapidly (a couple days) and this results in a magnesium - calcium imbalance. As muscle contraction requires calcium and muscle relaxation requires magnesium, a magnesium deficiency will result in muscle cramps. Finger and leg cramps are annoying at best... however when cardiac muscle starts cramping or not relaxing properly, THAT will get your attention with a fluttering feeling in your chest. Solution... take at least 400 mg/day magnesium. The other indication of insufficient magnesium is when CHers take only vitamin D3 they tend to have a favorable response or a pain free response within the first week... They enjoy 2 to 3 days of CH pain free bliss then the CH beast starts jumping ugly again... Why? Vitamin D3 has consumed available magnesium leaving none to support further vitamin D3 hydroxylation. Regarding the rest of the vitamin D3 cofactors... My research and that of experts in vitamin D3 therapy indicate each of the remaining cofactors plays a role in both the D3 pharmacokinetics (What the body does to vitamin D3) and vitamin D3 pharmacodynamics (What vitamin D3 does to the body). As CHers, we need to take this regimen daily as a way of life. Accordingly, I've tried to select the supplements with the best bang for the buck. 10,000 IU/day Vitamin D3 (Nature's Bounty) - 12 cents 400 mg/day magnesium (Nature Made) - 11 cents Kirkland 50+ Mature Multi - 4 cents (The Mature Multi contains nearly all the essential vitamin D3 cofactors. It doesn't have enough magnesium and it doesn't have any vitamin K2), Omega-3 Fish Oil (Nature Made) - 8 cents (The Omega-3 fatty acids act as a potent anti-inflammatory and also help in the absorption of vitamin D3). This brings the total cost per day for the anti-inflammatory regimen essential supplements to 36 cents. Adding the LEF Super K with advanced K2 complex (MK4 % MK7) - 20 cents This brings the total cost of basic anti-inflammatory regimen to 55 cents/day. When to take the anti-inflammatory regimen... For starters, its best to take this regimen with the largest meal of the day. There are two good reasons for doing this. 1. Absorption is highest when these supplements are taken with food high in fats. 2. Taking this regimen with food helps avoid GI tract distress. As an example, taking magnesium on an empty stomach increases the odds of osmotic diarrhea. It's also best to take all of these supplements at the same time each day. Rational... Vitamin D3 absorption starts when it reaches the small intestine and continues as it travels roughly 12 feet until it reaches the large bowel... roughly 12 hours after oral dose where it reaches maximum serum concentration (Cmax). Vitamin D3 (not 25(OH)D3) has a half-life of roughly 18 hours as a fraction of vitamin D3 it is hydroxylated to 25(OH) vitamin D3 each time serum vitamin D3 passes through the liver. What really counts for us as CHers is the hydroxylation of vitamin D3 at the cellular level in neurons and astrocytes within the trigeminal ganglia. Here it's likely hydroxylated at the same rate... and possibly much faster. As this is the site of the genetic expression that down-regulates the expression of CGRP that helps prevent our CH, and the reduction in CH frequency can be as short as 12 hours... hydroxylation to 1,25(OH)2D3 may be even shorter than 12 hours. Getting back to vitamin D3 pharmacokinetics... 10,000 IU of vitamin D3 = 250 mcg = 0.25 mg... That's not much when you consider nearly every cell in the body needs vitamin D3 and we're trying to get as much as possible into neurons and astrocytes within trigeminal ganglia where it's hydroxylated to 1,25(OH)2D3 to support the genetic expression of peptides that down-regulate the expression of CGRP and in doing so, helps prevent our CH... Hope this helps... Take care, V/R, Batch

Hey Ammo, Excellent! As you've just finished the loading schedule, your serum 25(OH)D is still climbing. Stay at 10,000 or 15,000 IU/day vitamin D3 as your maintenance dose for at least two weeks to let your 25(OH)D stabilize then see your PCP for lab tests of your serum 25(OH)D, calcium and PTH (parathyroid hormone). As long as you're CH pain free or mostly so, your serum calcium is within range and your PTH is in the lower half to third of its normal reference range, you're good to go at the present maintenance dose... and your actual 25(OH)D doesn't really matter... even if it's over 100 ng/mL. The next step is diet... For the next month no sugar or sugary products. I'd even stay away from diet pop and artificial sweeteners. In short, if it's sweet... don't eat it. No wheat or grain products including grain oils like canola, mazola or margarine blends. Good oils include organic butter, olive oil, avocado oil, and my favorite extra virgin coconut oil. No bread, cereal, pasta or pizza. You can eat all the organic NON GMO green and yellow veggies you want. You can also have one serving of fresh fruit/day but no fruit juice unless you buzz your own in a blender as a smoothie. you can eat all the free range organic meats, poultry and eggs you want. A serving of wild caught fish, oysters, muscles or crab is really good for you. Avoid farmed fish and nearly all shrimp & prawns, they're farmed too. You never know what they've been fed and for sure, they're given antibiotics and growth hormones we don't need. Other vitamins and supplements to add are: 4 to 6 grams/day vitamin C, CoQ10, 1000 mg/day turmeric (curcumin) and a baking soda tonic first thing in the morning before breakfast. You make it with a half teaspoon of good old Arm & Hammer Baking soda in 4 ounces of cold water. I take all of the above... Take care and please keep us posted. V/R, Batch

Hi guys , i am taking all the cofactors- 325mg magnesium,omega 3 fish oil 1000mg,zinc 30mg,vitaminA 5000IU, vitamin k2 200mcg,calcium 600mg,vitamin d3 50000IU, vitamin b-50. As for busting No, is this referring to psilocybin ect..

Hi big j...I am hoping you will hear from someone with WAY more knowledge on Vit D than I EVER will have... ...meanwhile...trust your instincts...clusterheads tend to have a much more refined "feeling" about their body and its functions than most others... ...different forms of the exact same med or supplement can have TOTALLY different efficacy.....perhaps due to differing blood serum levels...or how/how much absorbed.. ...different forms are absorbed differently by the body...some directly to bloodstream (like sub-lingual or IV)... some through stomach or small or large intestine....some directly affected by the surrounding ingestions (e.g oil soluble vitamins are absorbed better when accompanied by oil containing foods) .....seniors and alcohol abusers tend to have deficient levels of B12 (my belief this deficiency rivals the near universal VitD deficiency)....it may not be absorbed well by the gut...sublingual/injectable frequently work betta than tablets.... ....in my case...extended release verapamil was totally worthless.... while immediate release proved about 70% effective ...this is a large subject...alas...I can only touch the surface.... Best Jon PS....to add...NEVER crush or chew a med or supplement without specific instruction from a knowledgeable professional...it changes intended absorption characteristics...as described above ...

been reading up on vitamin d and that the powdered d doesn't work as well as the oil based. my ch have been well controlled on d but recently I had been lowering my dose and I had switched to powered d pills and I started getting headaches again, cant be sure if the powder was the problem but I wont be using it anymore. just a fyi and no expert but at about the same price I wont risk it

Hey Sontye and Bilal, You're vitamin D3 deficient... so it's not what you're doing that's affecting your cluster headache (CH)... It's what you're not doing... i.e., You're not taking enough vitamin D3 and the vitamin D3 and cofactors and that's what is contributing to the frequency, severity and duration of your CH... See your PCP or neurologist for a lab test of your serum 25(OH)D. A dime will get you a dollar if your results don't come back under the following normal distribution curve of lab results reported by 257 CHers who took this lab test before starting the anti-inflammatory regimen with at least 10,000 IU/day vitamin D3 plus Omega-3 fish oil and the vitamin D3 cofactors... The odds are better than 80% you'll have a favorable response with a reduction in the frequency of your CH from an average of 3 CH/day down to 3 or 4 CH/week in the first 30 days after starting the anti-inflammatory regimen with at least 10,000 IU/day vitamin D3, Omega-3 fish oil and the vitamin D3 cofactors. Better than 50% of the CHers who start this regimen experience a complete cessation of CH symptoms within the first 30 days after starting this regimen... You can find a copy of this regimen at the following VitaminDWiki web site at the following link. Discuss it with your PCP or neurologist when you ask for the lab test of your serum 25(OH)D. http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 The 25(OH)D lab results for CHers experiencing a favorable response to this regimen or a complete cessation of CH symptoms are illustrated in the following normal distribution curve. At 55 cents a day for a very safe, very effective and very healthy alternative to the Rx meds you've been taking to prevent your CH... Why are you waiting? Take care and please keep us posted. V/R, Batch

Thank you everyone!!! I have had CH for almost 20 years and yes a mixed bag of headaches! I am currently on Verapamil for my preventative. I also take Magnesium and recently added Vitamin D as well as fish oil! Currently I don't have an abortive that works, but I am going to ask my doc to try oxygen again. I tried it the other day at work, and it worked! I am hopeful that maybe something will work. I have tried over 20 meds and many more supplements in the past and this so far is the best I have been able to come up with. I have looked up other hemicranias before, but I will look at them again. Thank you everyone for your support!

Hey CoolestNurse, Welcome to Clusterbusters... Having a medical professional in our midst is always a treat... even more so when the medical professional suffers from the same headaches as the rest of us... What I would suggest is you need to see your PCP about lab tests of your serum 25(OH)D. 8 years providing information outreach on the benefits of vitamin D3, Omega-3 fish oil and the vitamin D3 cofactors has produced a wealth of data... For starters, cluster headache sufferers (CHers) and migraineurs presenting with active bouts of headache are almost always vitamin D3 deficient/insufficient... i.e., a serum 25(OH)D less than 30 ng/mL (75 nmol/l). Moreover, if these headache sufferers take sufficient amounts of vitamin D3, (10,000 IU/day plus all the cofactors, better than 80% of them experience a significant reduction in the frequency of their headaches from an average of 3 CH/day down to an average of 3 CH/week. 54% of them experience a complete cessation of CH symptoms. Migraineurs have a similar response to this regimen except they need a higher maintenance dose of vitamin D3 in a range between 15,000 and 25,000 IU/day. Download a copy of the anti-inflammatory regimen CH and MH preventative treatment protocol at the following link and discuss it with your PCP... http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 This is not a joke and I don't sell anything. I've been providing information outreach to migraineurs and CHers on the benefits of this regimen and vitamin D3 since December of 2010. If you've any doubts about starting this regimen, click on the following VitaminDwiki link. It will take you to a page at that site that's all about my work with CHers taking this regimen with vitamin D3 and the cofactors. http://is.gd/clustervitd If you’re still in doubt about starting this regimen, see your PCP for the 25(OH)D lab test. The normal reference range for 25(OH)D is 30 to 100 ng/mL. It's a very safe bet your results will come back less than 30 ng/mL. As CHers and migraineurs, we need to keep our serum 25(OH)D concentration up between 80 and 120 ng/mL. I also suggest you read the following posts by other CHers who started this regimen. I have hundreds more just like them. http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1291969416/798/#798 http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1393027277/2/#2 http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1291969416/1425/#1425 http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1291969416/1465/#1465 http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1324046404/278/#278 Please feel free to ask questions... Most CHers have them when starting this regimen... I'm here to help. Take care and please keep us posted. V/R, Batch

Hi Mark, My husband suffers from CHA's, and has the same symptoms, though the pain around his right eye radiates into his jaw and neck, even sometimes to the top of his head. He has used Bella Donna ear drops with some success, and uses peppermint oil for temporary pain relief to his jaw and neck. By temporary I mean several times a day. He also uses Magnesium for the CH, and was told to by a Neurologist about 5 yrs ago. He takes Calcium/Magnesium and zinc sold together as 1 tablet. The calcium helps the body absorb the Magnesium. This really had the headaches backing off, but you should research it and ask your doctor also. Keep posting your progress.

Hello All, I've started the D3 regimen (10,000 U + cofactors) for about three days now. I have been up every 2 hours at night with shadows for about a week. I am exhausted! I have been fighting with the O2 company to get it delivered to my house. Hopefully, that will happen next week. I had my D3 tested in January and it was 25.2 ng/ml so my Dr. told me to take D3 supplements and I was taking 2,000 a day. I doubt if my D3 levels are up to standard now. My CH remission cycle is about every 18-24 months and when in effect I have CH's for about 2-3 months. How long does it generally take for the regiment to start working? I just want to get some consistent sleep at night. In combination to the D3 regimen, I have been drinking ginger tea, using ice packs, and lavendar and peppermint oil, caffeine, and Gatorade to try to alleviate the symptoms, but sometimes they are effective and others they are not. When the pain becomes too bad, I just use a small dose of an Imitrex shot. I used to be on Verapermil, but my headaches because worse while on it so my Dr took me off of it. Also, I just finished taking a batch of prednisone last week and I was able to get a couple nights of sleep, but towards the end I had two severe headaches that lasted for hours. I don't know what that was all about. Any suggestions you all may be able to provide will be appreciated. Thanks, BrainFreeze

Hi, well I don't have the same clusters as you do, but I do have chronic migraine and narcolepsy with cataplexy. The cataplexy is new, scary. But we do have some things in common lol, I once had a migraine last 3 month's. I would have ate my own hand to make the pain stop. My neurologist said in order to avoid the migraine or in your case headache is obey the rules. Eat regularly, most of the time its set off by low blood sugar, avoid harsh light like florescents avoid using the computer or your phone for long periods of time. Avoid harsh chemicals, cleaners and perfumes, anything that may aggravate your headache. Unfortunately this is something you would have to do regularly. Also avoid caffeine, alcohol and anything else that my irritate your conditions. And for natural remedies it helps to use rosemary and lavender as aroma therapy. I use two drops of each in a roller with liquid coconut oil and rub it on my temples, or you could put a drop of each on a cotten ball and just smell it. It helps. I hope this helps you.

Regarding the dosages. I started vitamin d loading at 40,000 IU (with coconut oil for adsorption) last Saturday. Magnesium 800mg a day started on monday. I figure the regimine calls for essentially a 600,000 IU loading dose program on the d3 so that means 15 days at that dosage then dropping down to the 10k IU a day. Vitamin K 100 mcg a day. Verapamil 240 mg ER (again, I know...hopefully the neuro will fix that for me.) Just finished the 100 total mg the doctor gave me of prednisone. I am hoping for oxygen. Even injections. I dont know how effective a nasal spray can be if one of the primary symptoms of CH is congestion. Either way I am trying to stay off the triptans for the moment. I have read through the "busting" articles. I have a lot of experience "busting" before I had CH. I grew my own for a long time. Hoping to regain access soon. Until then, keeping energy drinks and ice packs around and crushed ice to induce brain freezes as needed.

Hey Lynn, I'd bump the vitamin D3 dose to 50,000 IU/day for another week then drop back to an initial maintenance dose of 10,000 IU/day. Make sure you're taking the Omega-3 fish oil and all the vitamin D3 cofactors: 400 mg/day magnesium, 10 mg/day zinc, 1 to 3 mg/day boron and 100 mcg vitamin K2. Magnesium is most important as the enzymatic processes that metabolize vitamin D3 to its genetically active metabolite consume magnesium at a high rate. As far as when to start oxygen therapy, any indication of an approaching CH is time to start O2. Make sure you're drinking 2.5 liters of water a day. That may help the sneezing problem... The nausea is likely due to Substance P (SP), a potent vasodilator and pain stimulant associated with the pain phase of CH. Take care and please keep us posted. V/R, Batch

I am taking 20,00 vitamin D3, 1000 magnesium, vitamin A, 200 mg calcium, 150 Boron. I didn't start the fish oil yet I've been to 3 different Neurologist and final got diagnosed with cluster headaches. Some of my symptoms are cluster and some are not. I get nauseous, within 30 minutes to an hour I sneeze, then the attack. Maybe 2 to 3 hours later the nausea starts again and then the sneeze. This happens all day long. As soon as the nausea hits I know I'm going to sneeze and them the headache. When the headache hits it is severe and then it lets up for 15 minutes, and then it is severe again. I take Percocet for pain and that's the only thing that helps. We are working on getting oxygen therapy, but it's a slow process. I've tried all kinds of meds from different neurologists and nothing worked. I'm really curious if anyone has the nausea, sneeze and cluster thing. The other thing is that don't sound like cluster is the headache is on both sides on the temples. Going to try the vitamin d regimen and waiting on the oxygen.

I am taking 20,00 vitamin D3, 1000 magnesium, vitamin A, 200 mg calcium, 150 Boron. I didn't start the fish oil yet

Melissa, A CHer with active CH nursing a 7 month old baby... BINGO!!! You really need to be taking 10,000 IU.day vitamin D3 plus Omega-3 fish oil and all the vitamin D3 cofactors. If not, your baby needs a minimum of 400 IU/day supplemental vitamin D3. Yes... I can hear the wheels turning... Who is Batch and what are is qualifications for saying this? Good question... Although my answer may not be sufficient for you to follow the suggestion as I'm a 73 year old retired US Navy fighter pilot with a degree in Chemistry, 24 years as a CHer (chronic since 2005) and full time student of vitamin D3 since October of 2010. That's when I discovered that 10,000 IU/day vitamin D3 plus Omega-3 fish oil and all the vitamin D3 cofactors prevented my chronic CH... I've been CH pain free ever since. This regimen is so important for good health and among other benefits, it builds a T-Rex immune system, that I have my entire family taking it and none of them have CH. Of particular interest to you are my daughter and niece. Both have been taking this regimen for years. My daughter gave birth to her second child in July. This baby and his sister, now 3 years, were both bathed in maternal vitamin D3 at a dose of 10,000 IU/day since conception. Both pregnancies and deliveries were flawless. Moreover their neuromotor, physical and learning development while breastfeeding at this maternal vitamin D3 dose are nothing short of phenomenal. My niece took this same regimen through her pregnancy and is still taking it like my daughter while breastfeeding. Orrin, 5 months and Fred, a.k.a., Winefred, 3 years... Yes, I'm a doting old grandfather... but I've never seen more healthy babies... and Fred speaks English and Hochdeutch... I credit their excellent health and rapid development to their mother taking 10,000 IU/day through pregnancy and while breastfeeding... Fred also takes vitamin D3 at a dose of 50 IU per pound of body weight a day... She's a 40 pounder so that works out to a vitamin D3 dose of 2000 IU/day... and not the 600 IU/day recommended by bureaucrats at the National Academy of Medicine, formerly called the Institute of Medicine (IOM). Now to the experts with the sheepskins in the appropriate fields and years of professional experience with vitamin D3 studies who suggest 10,000 IU/day during pregnancy and while breastfeeding... Bruce W. Hollis, PhD, Professor of Pediatrics, Biochemistry and Molecular Biology, and Director of Pediatric Nutritional Science at The Medical University of South Carolina, Charleston, SC. The Institute of Medicine has set the “upper limit” of recommended intake at 4000 IU. Is it safe for an adult to take 6400 IU? "The IOM setting a limit of 4,000 IU per day was subjective and not based on any trials. The Endocrine Society guidelines state that 10,000 IU per day is safe. In my own experience with our trial and several other trials in which I have been involved (involving tens of thousands of patients), not a SINGLE adverse event has been observed due to vitamin D intake. I personally take 6,000 IU per day and have for years, and my daughter just had a child and is taking 10,000 IU per day while lactating (going on a year now). Totally safe." Hmmm... How about that... A highly qualified PhD, Professor of Pediatrics, Biochemistry and Molecular Biology and Director of Pediatric Nutritional Science at The Medical University of South Carolina, Charleston, SC recommends a maternal vitamin D3 dose of 10,000 IU/day... and that's what his daughter has been taking while breastfeeding... "Totally Safe." See the following link for more details: https://kellymom.com/nutrition/vitamins/vitamin-d-and-breastfeeding/ This was an interesting study where one group of 74 breastfeeding mothers took the "Old School" recommended prenatal vitamins and minerals with 400 IU/day vitamin D3 during pregnancy and while breast feeding... After 7 months of breastfeeding their mean serum 25(OH)D was only 79 nmol/L (36.6 ng/mL). 25(OH)D lab tests of their babies indicated 78% of them were vitamin D3 deficient until provided with 400 mg/day supplemental vitamin D3. The other group of 78 breastfeeding mothers took the same prenatal vitamins and minerals with 400 IU/day vitamin D3 PLUS another 6,000 IU/day vitamin D3. After 7 months of breastfeeding their mean serum 25(OH)D concentration was 151.2 nmol/L (60.5 ng/mL) and more importantly, their babies had a mean serum 25(OH)D concentration of 106.9 nmol/L (42.8 ng/mL) WITHOUT supplemental vitamin D3. Grassrootshealth recommends a maternal vitamin D3 intake during breastfeeding of 6400 IU/day... as a minimum... to ensure breast milk contains ≥ 400 IU/liter 25(OH)D. See the following link for more details. https://grassrootshealth.net/blog/vitamin-d-for-breastfeeding-mother/ Grassrootshealth.net also has a wonderful 25(OH)D home blood spot test kit for $70, no Rx needed and you'll get the results back in less than two weeks. I've used their DIY 25(OH)D test kits for years. See the following link for details. https://grassrootshealth.net/project/daction/ So there you have it... You can continue suffering from CH... or you can download the anti-inflammatory regimen, take a copy to your PCP, discuss it, then ask for the 25(OH)D lab test. When the results of that lab test come back indicating you're vitamin D3 deficient, start this regimen and follow it carefully. I'd go one step further and take your baby to the pediatrician and ask for the same 25(OH)D lab test. If you do this, your CH will become a thing of the past and your baby will be getting more than sufficient vitamin D3 while breastfeeding. Over the last seven years, at least 4 ladies with CH started this regimen and continued it through pregnancy and while breast feeding... Results... No standard CH medications with all the side effects, no CH and 4 very healthy babies. Take care and please keep us posted. V/R, Batch

G'day my friends. I had my 5 th hit of 1.5 grams of MM powder in tablets yesterday, taking them 5 days apart and I'm still getting CH. Is there anywhere in Australia that I can buy CBD oil? Hope someone can help me. Cheers Douglas

There are 4 RCTs registered in cinicaltrials.gov using mAbs (monoclonal antibodies - 3 for Fremanezumab and one for Galcanezumab) as the intervention for CH and more are likely to follow. Three of the mAbs tested with migraine had an appetite for calcitonin gene-related peptide (CGRP) and a fourth that plugs the CGRP receptor. IMHO... the use of mAbs is still focused on the treatment of symptoms (neurogenic inflammation and the pain caused by CGRP) and not on one of the underlying causes. If you follow the basic antibody antigen mechanism of action where an antibody attaches to an antigen (in this case CGRP), marking it for destruction by killer cells and larger white blood cells, the cow (CGRP in this case) is already out of the barn... To my way of thinking, this means that monoclonal antibodies that attack CGRP or block its receptors will never be fully effective as they're playing a catch-up game from the get go... Using an objective statistical measure of efficacy called the Number Needed to Treat (NNT) to prevent one migraineur from having a sever (not complete cessation) migraine headache attack, the mAb Erenumab has an NNT of 6. That means you need to treat 6 episodic migraineurs to prevent one episodic migraineur from having a sever attack. In other words... Erenumab was ineffective for 5 out of 6 episodic migraineurs (83%) treated. In reality, any NNT of 10 or less is considered "good." See the following link for more details: http://journals.sagepub.com/doi/abs/10.1177/0333102417732504?url_ver=Z39.88-2003&rfr_id=ori:rid:crossref.org&rfr_dat=cr_pub%3dpubmed In comparison, Torpiramate and Propranolo each had NNTs of 5 in preventing one episodic migraineur from having a severe attack. Erenumab was equally effective for chronic migraineurs with an NNT of 6. In comparison, BOTOX had an NNT of 9 and two RCTs for Torpiramate had NNTs of 13 and 4. We won't know the efficacy of mAbs in prevneting CH until some time in 2018 or longer. FDA approval following phase 3 studies will still be needed so two years to market as a CH prophylactic is an optimistic guess at this point. Moreover, as these are man-made, genetically engineered foreign antibodies with no physiological means of production from within the human genome, they will need to be replaced periodically (like monthly) in order to maintain a therapeutic serum concentration... The cost of these mAbs is still unknown at this point... However, I strongly suspect it will be in the same price range per month as Humira (Adalimumab)... $100 to $185 out of pocket copay ($5 if AbbVie covers the injection) to $6.600 without assistance. For reference, vitamin D3 plus Omega-3 fish oil and the vitamin D3 cofactors has a mechanism of action that downregulates/suppresses the expression of CGRP at the genetic layer... In other words, vitamin D3 bars the barn doors to prevent the cows (CGRP) from escaping the genetic layer. Using the above statistical method of expressing efficacy, the anti-inflammatory regimen has a raw NNT of 3 or 2 in preventing one CHer from having a CH... Numbers count... Take care, V/R, Batch .