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I was diagnosed with CH this month. I kept thinking I had sinus problems because of the stuffy nose and pain behind my eye. Looking back over the years, I now realize that I may have been experiencing CH for years, but now, at age 62 it is much worse! They started when I got home from hiking to the top of Mt Kilimanjaro (19300 ft). My neurologist has prescribed low dose of Verapamil and Zomig nasal spray (which I can't take until my MRI has been read). She said getting Oxygen in nearly impossible. As the rest of you, I have found that over-the-counter pain meds have NO impact at all,
I am 72 now and have CH since I was 21. Episodic. Went to headache specialist back in the 60's and was diagnosed. I have tried every drug there was. Some which worked and most didn't. The ones that worked had such bad side effects I would stop taking them. For the past 10 years I have been using Sumatriptan injections which work great but has been noted had some side effects. Are there anyone here that is over 70 and what have you been using to combat CH?