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hey everyone, thanks for accepting me into this group i have been misdiagnosed with migraines for years. The past 4 years i have been experiencing what i now know is episodic cluster headaches. it starts off with one attack a day and shortly escalates to 8+ attacks a day. I am on day 14 and going to the emergency department today to beg to see a neuro, get scans done and try the oxygen. I have had scans when i was 15 (25 now) and nothing was found. i have a referral to see a neuro but cant afford it/the wait times are too long for me. i have trialed numerous preventatives, currently trialling Indometacin. i strongly dislike imitrex, sumatriptans etc as they may stop an attack but make the next ones so much worse. my attacks start at 4am and i am falling asleep around 7pm with the help of cannabis/sleeping tablets. thankfully, unlike most of you im still getting around plenty of sleep. of course i am exhausted and completely useless in this state though. i have some connections and may be able to get some MM (or if anyone is in sydney, australia HMU). the only now medicated relief i get is sitting in a super hot bath with a wet cold towel thats been in the fridge wrapped around my head/neck. questions: 1. has anyone tried indometacin and found relief? 2. in regards to oxygen therapy do people here use the CPAP machines or a the emergency 100% canisters? 3. my following medications (which i basically take the max of each day) are: ibproufen, paracetmol, indometacin, panadeine forte (codeine), aspirin, b12 and magnesium vitamins. i also use oils and tiger balms. would any of these interact with MM dosing? 4. does anyone ins SYDNEY AUSTRALIA recommend a neurologist? preferably closer to the northern beaches/cbd?
So I just watched most of this video and I’m about to finish it. I know there are several people from Australia that I’ve seen here. I don’t know what my local laws are in mm but this guy almost got 25 yrs for possession. It’s sad that it’s our medicine and some of us require higher doses thus higher amount of stockpiled mm if you have to dose weekly like some of us. Hopefully CA, AZ, and Vermont pave the way for legalization in 2020. Click here to watch the YouTube video