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Found 7 results

  1. Does anyone have a strong support group for Cluster Headaches? I've been trying to see if people are willing to start some type of support group. Maybe via zoom, or Skype call. I know that people that suffer from cluster headaches fall into isolation and it's hard to find other C/H patients. I would like to try and start a weekly zoom call if enough people are willing and discuss things like. Treatments Dealing with pain Depression Anxiety Loss of job Disability Dealing with family and friends Anything related to Cluster Headach
  2. What if someone really found the cause of and a cure for cluster headaches? What would happen? How would they get the word out? Might they be suppressed? So often the answer to these questions just comes down to the money involved in treating, rather than CURING many debilitating "diseases". I have no idea how much money has gone into CH research, but I do know the COST of treatment. About 18 years ago, I began suffering from intense headaches around my left eye, which were first diagnosed as sinus headaches and treated with typical antibiotics, to no avail. Then it was diagnosed as s
  3. I've been thinking a lot about the psychological toll CH can have on someone. Even before CH suicidal thoughts always seemed to follow me wherever i go. I always had my doubts in myself. I've always had doubts i was strong enough to be able to keep going. I had trouble coming to terms with having CH and that it even existed. The pain was always a reminder that this is real. That i have this. That too many people have this. I'm still pretty new but I'm not quite as helpless as i was before i first joined I've been finding my way. I don't have much in the way of super helpful advice for an
  4. I am curious as anyone experiences shadows on the opposite side of their head from the side they get attacks on? I seem to experience shadows on the left side of my head and behind my eye during my cycle more than on the right side in which my attacks occur. Is this normal or something others experience?
  5. Hi my name is Brian and I am new here and have a quick question! I am 28 I have been having cluster headaches since my early 20s and as you all know the pain is unreal. My question though is about the nature of my cycles as I seem to have 2-4 cycles a year lasting only from a single day or two up to 10 days (longest it’s ever been). Is this abnormal as everything I read about cluster headaches suggests cycles are much longer than just a few days, I have all the normal symptoms of the headaches, the triggers associated with the headaches as well but my cycles don’t seem to fall at the exact sam
  6. Finally! I have found way out! The medicine which helped! No more Cluster pain! I overcame the season which lasted for one year just in three pains! Sounds like a miracle but it is true. The cluster pains started in 2000. You know how it is. I have tried everything! The course of Prednisolone has damaged my health. Here in Post Soviet country lithium is also popular, I tried this too. Lithium just ruined my health, it limited my movements, I was handicapped and needed crutches, but the pain did not go away. Of course everyone knows the course of Verapamile, which I don’t even know why was inve
  7. Hi All, this is my first post, but I've spent a lot of time on the site reading posts. It's a great community, thanks so much! So here's my hypothesis: I'm convinced that cluster headaches are caused by extreme muscular tension in the neck. If you eliminate the muscular tension, you eliminate the cluster headaches. Here's how we can start to test this hypothesis: I would love if each person who reads this checks themselves. My bet is that every one of you has a knotted muscle in the neck that's so tense it feels like a bone. And it's especially bad on the side where you get the headaches.
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