Alicia Clusterhead Posted January 25 Share Posted January 25 I wanted to get some advice and opinions from you guys on this site. I went to a neurology specialist today and I wasn't all that impressed with the advice I received. First of all, she told me that she doesn't believe that I fit the profile for cluster headaches based on what is written on my file (I have no idea what the previous doctors have written about me as they usually don't share that information). I described them as intense headaches located behind my left eye with a quick onset(usually within seconds to minutes) that peak and last approximately 30-45min. Now, (I didn't used to) I have lingering headaches(shadows) that can last anywhere from 12-24hrs. The peak is so intense that I can't sit still and I can't talk, usually only whimper or groan. I can get upwards of 8 attacks in a day for a period of 1-3 months before they go away in remission. This remission period can last anywhere from 1-2 years. The pain is so severe it feels like a hot poker is being stabbed into brain through my eye and I have never felt anything as painful. Still, the neurologist believes that this is a type of migraine, not cluster. She wants me to stop oxygen and the Imitrex, telling me that I will probably have a stroke and may have already caused scarring in my brain. These treatments are the only thing that work during an acute attack. I am on the Vitamin D regime which I believe is working as I haven't had a cluster since my Prednisone treatment stopped. The thing is, she wants me to stop the Vit D treatment as well. I'm terrified guys. I'm afraid that she will prevent me from being able to get the injectable Imitrex with this diagnosis change and I probably will no longer be able to get the oxygen. Hopefully My cycle for this year is over so I wont have to worry about it for a while, but I am feeling really discouraged. She recommends that I start an antidepressant called Amitriptyline which is apparently affective for Migraine prevention. She also said during my next "migraine" I should drive to the ER (as if I can take myself anywhere when I'm having an attack" explain my symptoms (as if I can talk) and get migraine cocktail IV to abort the headache. Sorry for the long rant, I just needed to vent. Let me know what you guys think, does this sound more like a migraine than the clusters you guys get? Quote Link to comment Share on other sites More sharing options...
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.