cludster Posted April 8, 2012 Share Posted April 8, 2012 I have had bad headaches since I was a teenager and was only recently diagnosed with clusters. But I have also had another disabling problem since I was a child: namely the need for 10 to 12 hours of sleep every night. I can't nap. If I do not get that amount of sleep I am constantly groggy and coffee doesn't wake me up but instead makes me tired and hyper, and I am more prone to a cluster later that night. I also go to sleep at 2am or later. If I try to sleep earlier I just sleep longer and do not wake up any earlier. I also do not have much of an appetite even though I work out with weights and am fit and muscular. I do eat a superfood diet so I was thinking that has been suppressing my appetite. Now I am convinced that my sleepiness and lack of appetite are connected to the same hypothalamus malfunction that is part of cluster syndrome. BTW my cluster headaches last for hours - never minutes. I am familiar with recent sleep studies that claim the old belief that people only need 6-8 hrs is false. Some people seem to need more - but is this a hypothalamus malfunction again? Anyhow I am just wondering of any of you have similar issues with sleep and appetite. The clusters and the excessive need for sleep have prevented me from achieving a number of major life goals and its getting worse even though I'm in my 40s. Your thoughts would be appreciated. Quote Link to comment Share on other sites More sharing options...
spiny Posted April 8, 2012 Share Posted April 8, 2012 Lack of appetite or anorexia can be a hypo. problem. It also affects or controls sleep/wake cycle. Quote Link to comment Share on other sites More sharing options...
blueballs Posted April 10, 2012 Share Posted April 10, 2012 My first thought is get a sleep study done. Some of your complaints sound like apnea symptoms....just a thought. bb Quote Link to comment Share on other sites More sharing options...
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