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lp3
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Anyone else have suicide plan? Are we tracking how many cb members offed their selves? Not a good day. Not a god day whatsoever. Please don't respond with d3 and busting/ oxygen etc. Just respond to question. Thanks

 

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If you don't want advice why are you here? Are you seriously expecting people to talk suicide with you here? I I feel for you, I've been lucky, many treatments have worked for me but I feel the dread and despair every time one quits working. I'm currently using a dmt vape and it's amazing, hopefully it doesn't end up like imitrex where I build up a tolerance. 

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I sure hope no one else has a suicide plan! Life with CH can be immensely difficult at times, but life between the clusters is just 2 special to give up on. @lp3 to make sure I answer your question, no I don't have a suicide plan but in the beginning of my CH (prior to finding CB), I was definitely guilty of thinking about it. I know you have been on here for quite some time, but I don't think you post all that often (which is absolutely ok). It's just that I wonder, if none of the things you mentioned not wanting to hear about don't work at all for you if maybe you haven't been properly diagnosed?  Maybe try and see a different Doc or better yet a headache specialist. When is the last time you spoke to a Dr. about what you’re going through? I know you’re not looking for advice but that is pretty much what we do here (try and help). In a way I think maybe you are looking for help because how would it change anything for you to know someone else had a plan?  Please excuse the ramble, I just hate to see/hear of a fellow sufferer being in such a bad way. If you change your mind and do want to talk about possible methods that could help, we are here!

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What @big j and @BoscoPiko said.

One prominent member went on record here as having had a specific day on the calendar planned, but successful busting found them decidedly cancelling the plan.

Please forgive though for even mentioning busting, even in that context, if it is something that isn't for you.

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I am just wondering if suicide plans are common. D3, oxygen, busting, etc. Yes, tried em all. FYI. Please just answer these 2 ques. Is cb aware how many member we have lost to suicide and who else has a suicide plan. Thanks. It's a simple 2 questions.

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14 hours ago, lp3 said:

Please just answer these 2 ques. Is cb aware how many member we have lost to suicide and who else has a suicide plan. Thanks. It's a simple 2 questions.

Because an answer seems so important to you, I can tell you that in the last big published study of people with CH in the US (more than 1100 people, mostly members of CB or ch.com), about 13 years ago, this was the report: "55% of the US cluster headache population has had suicidal thoughts while 2% have tried to commit suicide. In addition, 50% of survey responders also demonstrated selfinjurious behavior during attacks."  https://www.clusterheadaches.com/yabbfiles/Attachments/Cluster_Headache_in_USA.pdf  

This doesn't precisely answer first question you are asking, but it might be as close as you can get.  Overall, about one in 30 suicide attempts actually result in death. 

If you would want to try to project those statistics to today, you might want to consider the many recent developments that might affect suicidality, most of which are included in previous posts in this thread (the study that showed effectiveness of "high-flow" oxygen, for example, was published a year before the study I have quoted from).  On the other hand, I wouldn't be surprised if the percentages have remained about the same.

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I can't just reply to questions and be done with it (so you can skip my reply if you wish).

I work in psychiatric ward and get sometimes called to help when there are patients who are suicidal and have CH.

Very, very often when CH is managed to get under control, the suicide plans vanish and again, very, very often never return.

But there are people who have more complex problems and conditions and need help beyond getting CH under control. Then you need to keep reaching for help - relentlessly as long as you need, or better yet - find a support person who helps you fight.

And it's incredibly tough when the things that work for others do not work for you - these people would need a community of their own. People with torturous chronic pain - whatever the diagnosis or no diagnosis at all, who have not yet found help and those who have found something that helps mixed in one group.

I hope you keep reaching out and find help.

Edited by Tony Only
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Ideation, yes. For the numbers on this board, I have no idea. I know we as a demographic are more likely, I mean thus the name.

 

If you have a plan I implore you reach out to a friend, a help line, a doctor, someone, the step from just thinking about wanting this shit to end permanently to having a specific set of steps in mind is a huge step and rather large red flag, so talk to someone, reach out.

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