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European Cluster Headache Survey

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Currently the questionnaire is available in the following languages:

    English

    Czech

    Danish

    Dutch 

    Finnish

    French 

    German

    Italian 

    Norwegian

    Portuguese

    Spanish

    Swedish

Does anybody have a contact to a Czech or Portuguese CH support group and/or medical centre for (cluster-) headaches, to let them know about this survey?

All other European CH support groups have been informed, I think. If not: Please change that and let them know too!

pf wishes

Friedrich

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What is the purpose of the study?

Your participation in this Cluster Headache survey is for the benefit of yourself and other cluster headache patients. The study aims to evaluate the physical, emotional, socio-economic impact of cluster headaches as well as the disease-management satisfaction. The results will help to have a better understanding of cluster headache as a serious health problem and to assess the burden of cluster headache. The obtained information will contribute to evaluating the needs for an optimal disease management and ultimately improving cluster headache services and quality of life. The data will be used for publications in lay and scientific literature as well as reports to the European Commission

More: http://www.eurolight-online.eu/index.cfm/spKey/news.eurolight_news/spId/DE6F4535-9D37-08D4-293C5ED1751B9882.html

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After a little break for server maintenance the Eurolight survey is back. If you live in Europe, suffer from cluster headache and if you havenÂ’t participated yet, please register here to take the survey:

https://www.eurolight-cluster.eu/index.php?sid=64327〈=en

The explanations and the questionnaires are available in twelve languages. Please share this information with any European cluster headache patient you know.

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