milly Posted May 14, 2012 Share Posted May 14, 2012 I live in New Zealand and just finished watching a documentary in which a man uses mushrooms to ease his cluster headaches. My mother has suffered from chronic headaches which donot end and have been happening for 10 years. She has had many surgeries, many medications and the doctors have said there is nothing else to do apart apart from morpheine for the rest of her life. She is extremely suicidal and i am prepared to help her in any way and we have no other options. She has no means of existence and its a very sad, lonely, painful life for her. Please help us get her life back or at least ease her headaches so she can have some kind of normalcy. Please Help, i need any articles, anything on this, i am prepared to do anything at this point. And finally i am so thankful to have found this website and this forum... thank you for giving us some hope Quote Link to comment Share on other sites More sharing options...
blueballs Posted May 15, 2012 Share Posted May 15, 2012 You have to do what is best for her personal situation. You know the particulars better. I can say read the clusterbuster files throughly. You should have all the background information there to make an informed decision for your mother. Chronic headaches compounded with surgery and medications presents a complex situation that would be difficult,and irresponible to present suggestions. read, read, read,http://clusterbusters.clusterheadaches.com/ There is alway's hope. ;)bb Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted May 15, 2012 Share Posted May 15, 2012 I can say I sure as heck hope that clusterbusting could be of help to your mom (but I don't know at this point whether it's advisable).  Has any headache specialist given her a diagnosis of exactly what she has, or have they not been able to come up with anything definitive? As BB said, reading those files should be a good resource. You may have better results getting to those files with this link here: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?board=files Dan, the guy in that documentary, hangs around on this forum BTW, so you may run into him. Please let clusterbusting or something work for Milly's mom!  Quote Link to comment Share on other sites More sharing options...
milly Posted May 15, 2012 Author Share Posted May 15, 2012 thank you blueballs and Bejeeber. She has seen brain specialists, teeth specialists, eye specialists, had to wear mouth guards, have all her teeth removed, radiation therapy (this started because she had a tumour on her pituitary gland, she had it partially removed through brain surgery, they dont know what happened nor can they find why it is happening, all doctors and specialists have given up) this was in 2000. From there on in she has had headaches ranging in severity but it mostly keeps her debilitated in pain. She is constantly in pain on the left side of her face and has only found marijuana as a way to ease it but if they are bad which is most of the time marijuana does nothing for her but ease the stress. So to answer the question, has she been diagnosed.. yes.. Chronic Migraines is what they have called it... they believe her tumour was pushing on a nerve but in the end they could not confirm it or deny it.. they have told my mother there is nothing they can do.. she is in a rare percentage of people who get this, 2 people in the whole of new zealand as far as we know... this was 9 years of research, 9 yeaars of specialists, tears and so far, nothing at all has worked, we swapped to eastern medicine on the advice of a specialist once being told there is nothing else they can offer, rakei, massage, hot oils, meditation, accupunture etc, it certainly helps her to focus but she struggles very much with the pain and the ability to focus... in nz, the medical field is EXTREMELY behind and there is a massive lack in new up to date medications.. I am slowly reading all the information on the page and i am extremely thankful... i know i sound very desperate but to be honest, we are desperate.... thank you very much for the links, so so so helpful to have some sort of information that we can relate to! Quote Link to comment Share on other sites More sharing options...
spiny Posted May 15, 2012 Share Posted May 15, 2012 Milly, All the best to you and your Mom. I have found that we have to be our own advocate with this mess and take matters and treatment into our own hands. Has she been given O2? Or, is it contraindicated due to her condition? Does she have any relief from the pain so that she can tell when another is starting? That might give her a chance to drink strong coffee or an energy drink to see if it helps. Has the diagnosis of chronic migraines been confirmed? It is awful that they cannot find a medication to relieve that one!!!!!! I too would be afraid to proceed with anything stronger based on the info you have. MJ does not usually help clusters but benefits migraines I think. Busting helps both conditions, but must be handled carefully. Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted May 16, 2012 Share Posted May 16, 2012 Well as Spiny said, migraines have been known to respond - and respond very well - to busting, but I know figuring out whether that's something that could help in your mom's case won't be easy, what with this having started with the pituitary gland tumor and all. Thanks for the further details, really hoping there with be a breakthrough for you. Quote Link to comment Share on other sites More sharing options...
blueballs Posted May 16, 2012 Share Posted May 16, 2012 i know i sound very desperate but to be honest, we are desperate. We know desperate.! Cannabis also works on migraine..ingestion is the preferred method. Not smoking. I hope you find some positive information and your moms has some relief. You might want to check out this website as well....MAPS.org bb Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.