del-boy Posted May 19, 2012 Share Posted May 19, 2012 Hi all, once I understand all the abbreviations i may make some progress, had CH's for several years now, in a cycle right now, hopefully its at its peak because they really are running me down, most people i know have no idea what they are like, only those that have seen me at my worst understand. I've been referred to the neuro hospital in london, having an MRI in the next few weeks, been on steroids (had 2 weeks PF) then as the dose went down...Bang back with avengence, also on Verapamil 120mg 3 times a day increasing every 2 weeks, also Sumaptriptan which do work if i take soon enough, if not equals agony...also have adcal d3 which don't seem to help but were prescribed with the steroids. this cycle has been going on for over 3 months now affecting my work as i have lost a lot of time off work. I just wish they would go away! But I'm learning more and more thanks to this site Del Quote Link to comment Share on other sites More sharing options...
Pixie-elf Posted May 19, 2012 Share Posted May 19, 2012 You should look into getting some Oxygen, on the left side of the page, there's a thing that says "Menu" if you hover your mouse over it and click the page about oxygen it'll tell you all about it. It might help you out a hell of a lot more than the 'trex. So sorry that you've got CH, but glad that you found us! Mystina Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted May 20, 2012 Share Posted May 20, 2012 Hi del, Sadly most every detail of your case looks very typical to me, but fortunately a lot of us here are finding busting to be a more effective preventative than any drug, and you very well may find this to be true too. also Sumaptriptan which do work if i take soon enough, if not equals agony... Sounds like you may have been prescribed the pill form? A headache specialist would be very unlikely to make that prescription error, as the pills are slow and much less effective than the injectible or inhaler. I'll echo Mystina's recommendation of the O2. Legions of CH'ers have found that it can actually be especially effective for aborting attacks if an energy drink with lots of both caffeine and taurine such as Monster or Red Bull is also consumed with it right at onset. Quote Link to comment Share on other sites More sharing options...
Geisha Posted May 22, 2012 Share Posted May 22, 2012 Hi del, hope you are doing ok at the moment. It sucks to be in a cycle like you describe, alot of the things you describe sounds very familiar to myself when I first came to this site. If you can get of the meds and start dosing asap you are going to take the best possible step forward in your life. Its good you live in London as you should be able to access what you need to keep the beast at bay. Good luck mate, and I'm glad you came across this site too. Quote Link to comment Share on other sites More sharing options...
ThatHurtsMyHead Posted May 22, 2012 Share Posted May 22, 2012 O2 O2 O2. Did I mention O2 really works better as an abortive than anything else the dr can presribe. Once you can detox from the big pharma junk, (using O2) I'm sure you'll find like the rest of us here, that busting using mushies or other psychidellics works better than anything for aborting cycles (or even better, preventing them!) PFW, Jeff Quote Link to comment Share on other sites More sharing options...
jojo Posted June 15, 2012 Share Posted June 15, 2012 Hi, I've just been prescibed Verapamil too, how are you getting on with it?? I'm feeling a little off my t**s to be honest!! But hey, if it gets rid of the pain it's a small price to pay!! Nice to see someone else from England on here too, a lot of the drugs etc that get mentioned seem to be American so not a huge help. Still appreciate the support on here though, really helps to talk to other people in the same boat! With ya on the abbreviation front, also new to this site! What's Kip7 etc???? Help! Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted June 15, 2012 Share Posted June 15, 2012 Hey jojo - Kip7 = a 7 on a CH pain scale of 1 to 10. The drugs are pretty much the same in the US/UK but sumatriptan for instance goes by different names (in the UK it is Imigran, in the US, Imitrex) Quote Link to comment Share on other sites More sharing options...
domino Posted June 25, 2012 Share Posted June 25, 2012 O2 O2 O2. Â Did I mention O2 really works better as an abortive than anything else the dr can presribe. Â Once you can detox from the big pharma junk, (using O2) I'm sure you'll find like the rest of us here, that busting using mushies or other psychidellics works better than anything for aborting cycles (or even better, preventing them!) PFW, Jeff Everything that Jeff Says !!!!!!! Busting by far is the best way in my opinion. It is the fastest and easiest way to live pain free. The getting the busting supplies is where most people have the most difficulty. Read the files on here and watch the grow videos. It is never too late to start a grow and you can have all the meds you will need for a while if you do things right. But better to start off and take your time as there is a lot for you to learn with this technique. Quote Link to comment Share on other sites More sharing options...
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