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Joshua

Anyone in NYC?

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Sorry, man. Living large in the land of Laverne and Shirley.

Come to the CB conference in Las Vegas on 09/21 & 22. There'll be so many of us you won't have time to meet everybody. Seriously, it is guaranteed to be a life-changing experience.

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Odds are there are about 80000 cluster headache sufferers in NYC with a population of 8MM. There is a guy named Anthony G. In NYC. I have talked to several times. Seems like a good guy....as we all are  :)

You can go to MEMBERS and click on names and it will alphabetize by name. Send him a PM and tell him I sent you to him.

Dan

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Hi Joshua!  I live in a suburb of NYC and am new to this site and clusters.  Just happened to me a few months ago and am in the process of looking for doctors to work with and finding ways to cope in the meantime...How long have you been suffering?

Marlene

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Welcome, Marlene.  Most people with CH have experiences with doctors that are disappointing or frustrating.  For example, inhaling pure oxygen is the best abortive there is, and it's the medically-recommended abortive . . . but a large percentage of doctors don't know about it/don't prescribe it/won't prescribe it.  Here is a link to doctors that have been recommended by people with CH: http://www.ouch-us.org/chgeneral/OUCH%20DOCS%20-%20US%2005-20-2012.pdf

(Not sure whether you're in NY, NJ, or maybe CT, so you can find the locations that work for you.  Recommend that you go to this list quickly and get the info you need, since it's apparently not certain how long it will remain posted at the URL I gave you.)

Most people find energy drinks--something high in caffeine and taurine, such as RedBull or Monster brands--to be a helpful abortive if you drink it as soon as you feel an attack coming on.

So . . . in the short run, try that (there are some other strategies you can try right now that others might want to mention if you want to ask us for more info: melatonin, kudzu root, licorice root, and a vitamin-D3-based regimen have all helped people).  But getting a good doctor who will prescribe oxygen is essential.  At the least, try to get to a headache center, not just a general-practice doctor or even a neurologist.

Most folks here have turned away from the kinds of meds any doctor is likely prescribe, for a variety or reasons--very yucky side effects, extending cycles and worsening individual attacks, etc.--and found that busting is the way they prefer to go.

Here are links to some info about some of the things I've mentioned. Like I say, just ask and the great folks here will help you as best they can.

Oxygen: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1299901790

Busting: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1290127865

Licorice root: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1298659068

The "D3" method: http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1324046404

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