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Hi all,

Thanks for letting me join,

I am in Australia and have suffered for 6 yrs, only been diagnosed 2 weeks ago. I haven't as yet been given any meds as the Neurologist is waiting for results of MRI before giving me treatment. It is such a relief to finaly know what I have been suffering with all this time(in silence). Looking forward to some helpful tips.


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Hi Rozzle, and welcome.

Don't worry, MRIs are pretty routine when diagnosed with clusters. You know, just to rule out something worse, as if there is something worse than clusters. Lol

Good group of people here. Have saved my life, and many others.


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Roz, be sure that your neuro prescribes oxygen for you.  High flow (at least 15 litres per minute), non-rebreather mask.  This is the standard medical practice everywhere in the world for aborting cluster headaches -- but only about half of all doctors know (or care) enough to prescribe it.  You can read more about oxygen by opening the MENU on the left side of this page.  I would go to that appointment prepared, either by bringing this article with me or even emailing/faxing/mailing it in advance to the neuro or someone at his/her office: http://jama.jamanetwork.com/article.aspx?articleid=185035.  Getting oxygen is very important (a life-saver, many here would tell you), so do your best to have the doctor prescribe it. 

Also . . . just a thought . . . while you're not taking any meds is a great time to try the "busting" method that most people here use.  You can read basics about it now here -- http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1290127865 -- and then ask questions, if you are interested.  (I recall that one busting agent that's easy to obtain in most countries, rivea corymbosa seeds, is illegal in Australia.)

Also, you might want to consider two other non-pharmaceutical protocols that have helped a lot of people, the "vitamin D3" regimen (http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1314134804) or licorice root (http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1298659068).

Two other tips.  Many people find that drinking an "energy drink" or "energy shot" at the first sign of a CH attack can abort, or reduce the severity of, an attack.  RedBull, Monster, Five-Hour Energy, Six-Hour Power, etc.   And many find that taking melatonin at night has good effects.  Start at the recommended dosage, or a little higher, and go up from there.

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