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FunGuy

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On 1/31/2014 at 7:12 PM, FunGuy said:

Updated on the web site:  https://clusterbusters.org/?page_id=455

Share where possible.

Thanks Bill.    :-)

FG

I would add Dr Brian Grossberg in West Hartford CT ‭(860) 696-2925‬ he specializes in HAs takes a while to get in but it’s worth the wait. 

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Would love to put together and send over some UK relevant information for you - would it be welcome, or is this site primarily for US / Canadians audiences?

The NHS has finally added cluster headache to the at home oxygen list so all UK GP's should be able to prescribe easily, some are just completely unaware however.

https://www.networks.nhs.uk/nhs-networks/london-lungs/documents/oxygen-treatment-for-cluster-headache-adults-for-patients

https://www.uhb.nhs.uk/Downloads/pdf/PiOxygenTherapyClusterHeadaches.pdf

Above documents may be helpful if you have been turned away or denied at a UK GP Surgery.

The Oxygen company AirLiquide - which handles the South East of the UK (London) have been very helpful, and the delivery guys are well versed in cluster-headache, providing what seems to be the mask and regulator that OUCH (cluster headache charity UK) say is the best option. BOC Gas (handles part of the north) were also very helpful and knowledgeable on the phone, even offering to just sell me a canister and rental options if the NHS took much longer to get things sorted!

There is hope out there, now :) 

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