Freud 290 Posted August 15, 2018 On 1/31/2014 at 7:12 PM, FunGuy said: Updated on the web site: https://clusterbusters.org/?page_id=455 Share where possible. Thanks Bill. :-) FG I would add Dr Brian Grossberg in West Hartford CT (860) 696-2925 he specializes in HAs takes a while to get in but it’s worth the wait. 1 Share this post Link to post Share on other sites
Oli 7 Posted August 23, 2018 Would love to put together and send over some UK relevant information for you - would it be welcome, or is this site primarily for US / Canadians audiences? The NHS has finally added cluster headache to the at home oxygen list so all UK GP's should be able to prescribe easily, some are just completely unaware however. https://www.networks.nhs.uk/nhs-networks/london-lungs/documents/oxygen-treatment-for-cluster-headache-adults-for-patients https://www.uhb.nhs.uk/Downloads/pdf/PiOxygenTherapyClusterHeadaches.pdf Above documents may be helpful if you have been turned away or denied at a UK GP Surgery. The Oxygen company AirLiquide - which handles the South East of the UK (London) have been very helpful, and the delivery guys are well versed in cluster-headache, providing what seems to be the mask and regulator that OUCH (cluster headache charity UK) say is the best option. BOC Gas (handles part of the north) were also very helpful and knowledgeable on the phone, even offering to just sell me a canister and rental options if the NHS took much longer to get things sorted! There is hope out there, now Share this post Link to post Share on other sites
Scott1973 0 Posted November 2, 2019 On 1/31/2014 at 7:12 PM, FunGuy said: Updated on the web site: https://clusterbusters.org/?page_id=455 Share where possible. Thanks Bill. :-) FG I cant believe there isn't a Dr . In Pa Share this post Link to post Share on other sites
CHfather 1,047 Posted November 2, 2019 Maybe you're looking in the wrong place? https://clusterbusters.org/wp-content/uploads/2014/10/OUCH-DOCS-US-07-22-14-PA-TN.pdf Share this post Link to post Share on other sites
wing_nut 0 Posted December 30, 2019 Does anyone have a good doctor in the Seattle area that doesn't take 6 months to get into? Share this post Link to post Share on other sites
jon019 421 Posted December 30, 2019 (edited) 49 minutes ago, wing_nut said: Does anyone have a good doctor in the Seattle area that doesn't take 6 months to get into? ...dunno about the lead time but Lilly Jung Henson at Swedish (usta be at Issaquah branch...not sure now)...MS specialist but she knows CH...delightful person too... Edited December 30, 2019 by jon019 Share this post Link to post Share on other sites
wing_nut 0 Posted December 31, 2019 Thanks jon! I will check it out Share this post Link to post Share on other sites
ThatHurtsMyHead 321 Posted March 2 BOF, Where is it something isn't working? J Share this post Link to post Share on other sites
ThatHurtsMyHead 321 Posted June 10 Updated link: https://clusterbusters.org/resource/cluster-resources/ Cheers, J Share this post Link to post Share on other sites
Jteira 33 Posted June 12 One of the doctors listed in Houston is actually deceased. Share this post Link to post Share on other sites
