Jump to content
ClusterBusters
Sign in to follow this  
mrweekend

Clusterbusters 9th Annual Conference Presentations

Recommended Posts

The Clusterbusters, Inc.  9th Annual Cluster Headache Conference is only 48 days away. This year's lineup of speakers will educate, entice and hopefully entertain all that attend. Here is a list of the speakers and a small background on most of them. We are waiting on some info on a few and I will post them when they come in. If you have never attended one of these conferences, I urge you to consider coming to Nashville this Sept 18-21. The speakers are wonderful, and it will likely be the largest collection of clusterheads ever assembled. My first convention was a life changing event. You will not want to miss this convention! The links to register and make hotel reservations are below.

http://events.r20.constantcontact.com/register/event?oeidk=a07e8pr6aa003823ed7&llr=asfwt7iab

Bob Wold - Bob is founder and President of Clusterbusters, Inc., a 501c3 non-profit charitable organization dedicated to the research of cluster headache and to support people with cluster headache and their families. Based in greater Chicago with his wife and 4 children, Mr. Wold has talked to 1000s of cluster sufferers. In fact, over 25 years of his adult life was burdened with severe cluster headache that was resistant to all standard treatments. That all changed after he tried psilocybin, which has helped regain control over this illness for him and now hundreds to perhaps thousands of other cluster headache patients all over the world.  Recently, along with Dr. Larry Shcor and Dr. Robert Shapiro, Bob helped develop the "Cluster Headache Fact Sheet" for use by the National Suicide Prevention Lifeline 1-800-273-TALK. The  sheet can be downloaded from this page:  http://www.crisiscentersblog.com/?p=2382. Bob will present a brief history of Clusterbusters, review the last year, and address plans for the coming year.

Lee Markins - Lee has experienced cluster headache for most of his life, having gone from chronic for 19 years to episodic for 28 years and now back to chronic.  A strong advocate for CH, he has attended the last three Headache on the Hill meetings in Washington DC.  This is his second year as Chair Person for the Clusterbusters Annual Headache Conferences. 

Brian E. McGeeney, M.D. , MPH - Dr. Brian E. McGeeney, is a neurologist at Boston Medical Center and full time faculty (Assistant Professor of Neurology) at Boston University School of Medicine. Dr McGeeney is a Diplomat of the American Board of Psychiatry and Neurology, with the added qualification in Pain Medicine. Dr McGeeney is also boarded by the American Board of Pain Medicine and holds the United Council on Neurologic Subspecialties board in Headache Medicine. Dr. McGeeney will explore some historical aspects of this disorder, some important people in the initial description and treatment and how to make a good diagnosis. The discussion will also review some related disorders that can mimic cluster headache. The treatment of cluster headache will feature prominently in the presentation. Dr. McGeeney will be the keynote speaker.

Larry Schor, Ph.D. - Dr. Schor is a Professor of Psychology at the University of West Georgia and a licensed psychotherapist, who will focus on the psychological aspects of CH. He is a Licensed Professional Counselor and Certified Professional Counselor Supervisor in Georgia. His research, teaching, and practice focus on the psychological effects and treatment of trauma. He is particularly interested in states of consciousness associated with trauma and pain; especially alterations in consciousness associated with cluster headaches.

Mr. Bill Mingus - Bill is a long time veteran of cluster headache.  He has been active in the online community and was a member of OUCH USA for many years.  Considered by many as an expert on the use of oxygen in the management of cluster headache, Bill will share his knowledge during a breakout session "Oxygen - Making It Work For You.  A Hands On Demonstration and Discussion".  This will be an opportunity to learn more about oxygen use including tips and tricks to optimize its effectiveness.

Lisa Hertz - Lisa is an English Teacher and marathon swimmer from St. Petersburg, FL. She was diagnosed with chronic cluster headaches in 2006, and started seeking alternative treatment methods in the summer of 2007 after being hospitalized with cluster headaches and serious asthma complications. Last year, Lisa won a 12 mile marathon swim race around Charleston, SC and was only one of five swimmers to make it across rough conditions of the 24 Mile Tampa Bay Swim. In LisaÂ’s presentation, she will discuss overcoming multiple health issues and the importance of a positive mindset.

Emmanuelle Schindler, M.D., Ph.D. - Dr. Schindler is a Neurologist at Yale School of Medicine. She received a B.S. in Biological Psychology at the College of William & Mary in 2003 graduating Summa cum laude. She received her MD and PHD in Neuroscience from Drexel University College of Medicine. She has won several awards and honors including the American Academy of Neurology Award, Excellence in Neurology-May 2012. She has numerous publications. Dr. Schindler will be presenting the results of Clusterbusters Medication Use Survey.

James Fadiman, Ph.D. - Dr. Fadiman did his undergraduate work at Harvard and his graduate work at Stanford, doing research with the Harvard Group, the West Coast Research group in Menlo Park, and Ken Kesey. A former president of the Institute of Noetic Sciences and a professor of psychology, he teaches at the Institute of Transpersonal Psychology, which he helped found in 1975. An international conference presenter, workshop leader, management consultant, and author of several books, he lives in Menlo Park, California, with his filmmaker wife Dorothy. Dr. Fadiman will present on the safety and setting of using alternative treatments for cluster headaches.

Alexis Williams - Alexis will present a discussion for family members and friends who support cluster headache patients. As support is one of if not the most important part of living with cluster headaches, itÂ’s as important for us to listen to their concerns and understand their part in a family with clusters, as it is for sufferers to be understood. We are all in this together and the emotional strain and pain we all deal with needs to be explored and understood.

Advocacy Panel - An update on CBs advocacy efforts including a report on this yearÂ’s Headache on the Hill. The Clusterbusters advocacy team will address updates on our efforts and the progress we've made and discuss the coming year's events. An interactive session looking at our work on Capitol Hill, Television, Radio and print as well as our presence on the internet.

Anjan Chatterjee, M.D., MPH, MBA -Dr. Chatterjee is board certified in Neurology and Psychiatry. Dr. Chatterjee has more than two decades of direct patient care experience, treating patients with a wide variety of neurological and psychiatric disorders. Over the last decade, Dr. Chatterjee has worked at Merck Research Labs and Pfizer to develop neuroscience medicines. Recently, Dr. Chatterjee founded VR1 Inc. VR1 focuses on providing treatments to address acute pain associated with migraine and other severe headache conditions, including Ausanil®– a non-prescription, homeopathic nasal spray for severe headaches and migraines.

There will be two medical device company presentations. I am not sure who will be speaking.

ElectroCore, LLC - ElectroCore is a US based electroceutical healthcare company, which is developing a range of non-invasive Vagus Nerve Stimulation (nVNS) patient administered therapies for the treatment of multiple conditions in neurology, psychiatry, gastroenterology and other fields. Initial focus is on primary headache (migraine and cluster headache), with trials continuing in epilepsy, gastric motility disorders, and depression and anxiety.

Autonomic Technologies Inc - is a medical device company focused on the development and commercialization of innovative therapies for the treatment of severe headache. The companyÂ’s initial product, the ATI Neurostimulation System, is approved in Europe for the treatment of cluster headache and is currently being investigated in a multi-center, randomized study for the treatment of high frequency, high disability migraine.

Questions?  info@clusterbusters.com

Share this post


Link to post
Share on other sites

The Clusterbusters, Inc. 9th Annual Cluster Headache Conference in Nashville TN, is now only 45 days away. This year's lineup of speakers will educate, entice and hopefully entertain all that attend during the September 18 to 21, 2014 weekend.

If you are planning on making it to this event, we urge you to register and make your hotel reservations, if you need them, as soon as possible.   Attendance is running higher than last year and we have a limited number of rooms remaining.  There are other hotels nearby if the room block at the Inn at Opryland fills.

There are many things that need to be planned based upon total attendance and the earlier we have a good number on how many are attending, the easier it is for us to plan ahead and make the conference as enjoyable for everyone as we can.  Please register through the link below to assist us in planning.

http://events.r20.constantcontact.com/register/event?oeidk=a07e8pr6aa003823ed7&llr=asfwt7iab

What a line-up of speakers!!  (see above)

Questions:  info@clusterbusters.com

Share this post


Link to post
Share on other sites

I missed one of the speakers on the syllabus. Sorry about that, Hipshot!

•Dan Ervin

Dan is a 56 year old man who has experienced chronic cluster headaches since the onset of the disorder eleven years ago. He has tried most every medication available and every surgical procedure short of deep brain stimulation. Known as “Hollywood” among the cluster headache community, Dan volunteered to host a National Geographic film crew from London to document his use of mushrooms to successfully treat cluster headaches.

Share this post


Link to post
Share on other sites

It's very late for me to putting in this two-cents-worth, but I wonder whether there would be any way to create some kind of organized discussion about obtaining SSI Disability status.  Maybe there's not much to say, and maybe there's not much interest, but it is a topic we've discussed here at the board from time to time, and I'm curious about stories of success (and non-success) in getting disability.

Share this post


Link to post
Share on other sites

Hello Jerry,

I think that SS Disability in order to get Medicare is a very important issue.

It took me four long years of denials and appeals to finally get approved.

I'm sure a lot of people quit in disgust after the first or second denial. That is by design.

The SS Administration is betting those that apply will die or give up during a deliberately designed lengthy approval process.

See you guys next week

:)

Share this post


Link to post
Share on other sites
is Bill Mingus on Facebook?

can't find him

I have his wife on FB but cannot find Bill. I didn't ask her if he's on I just told her to let him know we all missed him in Nashville and feel terrible about what happened. Basically just said that they'd be in my thoughts and that if they need anything to just ask me.

Share this post


Link to post
Share on other sites
is Bill Mingus on Facebook?

can't find him

Nah......never have done the FB thing. On Twitter, CH.com and here....that's about all I can keep up with.  ;)

I have his wife on FB but cannot find Bill. I didn't ask her if he's on I just told her to let him know we all missed him in Nashville and feel terrible about what happened. Basically just said that they'd be in my thoughts and that if they need anything to just ask me.

I certainly appreciate the kind words. The past week has been a very rough one but it's getting better in small.....very small ways.

Not much would keep me from attending a CH conference but family is always the top priority.

Share this post


Link to post
Share on other sites

Thanks for heading up the best conference to date Lee.

For those who haven't attended, it will change your life.

I look forward to seeing y'all in DC and Chicago next year.

Dan

Share this post


Link to post
Share on other sites

Bob W. now has pictures from 2014 Nashville.  He  had indicated  that he wanted to be able to make them available on the website.

I simply have too many to be able to send them via email.....

Perhaps I need to check out photobucket ?

jr

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
Sign in to follow this  

×