MoxieGirl Posted February 28, 2015 Share Posted February 28, 2015 I have an issue with that statement, and it has been bugging me for awhile. Many cluster heads, myself included, tout that statement about to gain sympathy from a public that does not understand us. It's as if that statement is meant to encapsulate the seriousness of our condition. We often lack other words to describe (or perhaps describe in one sentence) the Hell that is Cluster Headaches. And I get that. Like I said, I've used it myself. I saw a post recently that said.. "... Some doctors and scientists have described the pain resulting from cluster headaches as the most intense pain a human can endure - worse than burns, broken bones or child birth." WHAT!! I appreciate their well meaning intensions, but, WHAT! First off, scientists? Really, do we have scientists involved in the study of cluster headaches? But that's actually a trivial point. The real thing there for me are the statements 'most intense pain a human can endure' and 'worse than burns, broken bones and child birth'. OK, clusters are painful, very painful. The only other medical condition I know off the top of my head that comes close is Trigeminal Neuralgia, which I would say is about a 9.5 on the pain scale if clusters are a 10. They are a Hell in and onto themselves. But there are other things out there that cause phenomenal pain. I know of a kid who has a very rare chronic pain condition in his stomach that easily rivals clusters. I wish I could remember what it is called, but there are probably only 10 people in the world that have it. I also wonder about things like the Australian Box Jellyfish sting, or the fire ant. Get stung by enough of these jellyfish and you're dead! That sounds pretty intense. The fire ant is said to be like being shot by a gun! And yet, everyone compares clusters to child birth. I know they are trying to relate it back to a pain that everyone can understand, or at least 1/2 the population can. But I know people who had a really easy birthing experience, and others really bad. I've never had a broken bone, so can't say how clusters compare. The thing is, the pain of a cluster headache (in my very humble opinion) is just one part of the whole picture of the condition. What about the frequency, the sleepless nights, the sheer terror of not knowing when the next one will come, or perhaps worse, knowing that going to sleep will bring one on. Remember the film Nightmare on Elm Street? Remember how the kids were terrified of going to sleep? That's what it's like for a cluster head who gets attacks at night. The list goes on, and my rant could go on, but I'll stop here. I feel that we, as a cluster suffering community need to find an effective way to communicate the absolute Hell that having clusters is to people who are unable to experience them themselves. We must find the words to describe the condition in a way everyone (not just those who've given birth) can relate to. Rant over. MG Quote Link to comment Share on other sites More sharing options...
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