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MJ

6 ways mushrooms can save the world.

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Not CH related but a wider view on shrooms for the mycologically inclined among us by Paul Stamets. 17 minute video. may 08

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hello to all of you !! i am new to the group cluster victim for more than 14 years i have tried every farmaceutical possible the only efficient one is imitrex but i am more than sure that in the long run it worsens the problem so i have become a continuous cluster sufferer 12 months a year an average of 8 times a week:( i am now considering the use of mushrooms but have no idea of how to grow them because here wherei live in Italy i cannot find the equipment and don't have knowhow ,can someone help me withthat pleeeaasseee:))

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hello to all of you !! i am new to the group cluster victim for more than 14 years i have tried every farmaceutical possible the only efficient one is imitrex but i am more than sure that in the long run it worsens the problem so i have become a continuous cluster sufferer 12 months a year an average of 8 times a week:( i am now considering the use of mushrooms but have no idea of how to grow them because here wherei live in Italy i cannot find the equipment and don't have knowhow ,can someone help me withthat pleeeaasseee:))

http://www.clusterbusters.com/faq.html

3.2.1 Recommended techniques and links

Here is the BEST tek:

Simple Cubensis Growing Technique

and another with great pics:

Fungifun's PF-Tek For Simple Minds

For the experienced grower, here is an excellent casing tek

http://www.shroomery.org/index/par/23536

3.2.1.1 Another Technique:

A simplified process involves ordering the substrate mix, in a pre-measured and pre-mixed bag and innoculating this bag. The mushrooms grow inside the bag.

For additional information and growing details using this method, including supplier links, see ;

MYCOBAG INFO (mushrooms)

MYCOBAG INFO (philosphers stones)

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Kyle and Yury 66:

Just my 2 cents . . . .And a few others here shared my experience . . .The Mycobags were more hype than what they delivered.  Even with no contams, the yield is small, and the process is S . . . .L . . . .O . . .W  ;D

The PF Tek is mucho better!

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I just ordered a complete grow kit, with 4 random spore syringes and a capsule filling machine. This is my last hope for my CH. I've used up all my sick/vacation time at work and now every FMLA day is unpaid which starts to hurt after a while :0(

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This is my last hope for my CH

Hey Fester, mushrooms work for me, they're my busting substance of choice, but there are other ways to bust, and one of them, RC seeds (Rivea Corymbosa) is something you don't have to wait around to grow.

I would strongly encourage you to stay with the mushroom growing, but RC, which comes with very little side effects, is something you could try in the meantime. It is legal to order online and to possess.

Plus in the meantime it might be worth trying the D3 regimen that appears to work for some if you haven't tried it yet:

http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1314134804

Have you tried high flow oxygen (like 25 LPM+) with a non rebreather mask? Most of us can abort attacks with it, and this can come in especially handy since we need to be off imitrex etc. for 5 days before busting.

http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1299901790

Mushrooms are such a powerful CH fighter, I think your chances are good with them, but please don't really make them your last hope.

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Thanks Bejeeber and Davidj, I will take a look at the seeds, I've never heard of them... I guess I have some more research to do!! And I'm also hoping the mushrooms will work as well.

In the early 90's my CH's started, I had a migraine everyday for an entire year... back then I was so drugged up on prescription pills I got written up at work. Then all of the sudden the CH's stopped... fast forward to 2008 and they returned. :-(

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I guess I have some more research to do!!
Welcome, Fester. Here's where you'd start researching seeds: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1290128974

But I think we'd definitely want to hear more about you.  You have a specific diagnosis of Cluster Headache?  If so, what was prescribed to you?  What meds have you taken and what are you taking now?  You have oxygen? Please give us some background.

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Hi Fester,

Not all 'grow kits' are created equal. Mind telling who you ordered yours from and what it contains? And, what are the 'random spore syringes'? Just trying to help here; don't mean to pry.

Ron

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I bought the Mega Mushroom Growing and Incubator Kit from Midwest Grow kits, which contains the following:

18 Ultimate ½ pint substrate Jars- Pressure sterilized and ready to grow!

Mega Growing, Incubating Chamber System- 56 Quart size!

Grow up to 30 jars at once!

Digital Thermometer with Hygrometer/humidity gauge

Electric 50W Adjustable under-tank heating pad with adjustable thermostat

Custom Hydroponic Humidifier

Electric Air Pump, ultra silent

2 Silicone Air filtration hoses with 2 HEPA filters built in

Heavy duty electric timer with 24 on/off settings per day

2 Grow lights, one incandescent and one LED

2 Gallons of Perlite- Fine, imported, specially formulated horticulture grade

Hospital grade Latex Gloves

Alcohol swabs

Easy to follow growing guide with step by step photo instructions. Includes our secret tips, tricks and hints that other grow guides leave out. Includes how to incubate, how to fruit, casing methods, and quick way to dry your harvest in 24 hours

Midwest Grow Kit's Mega Mushroom growing kit is the biggest shippable kit on the market today! Look around! If quantity is what you desire look no further! This kit comes with 18 jars but can hold up to 30 at once! With 3 cubic feet of room the Mega Mushroom kit comes with a hydroponic humidifier to ensure perfect humidity levels are reached. This kit is completely automated! Perfect temperature and humidity are easily achieved for each stage of the process! Set it up in minutes! We make growing mushrooms easy! All of our kits are extremely easy to use and require only 1 step to start your mushroom adventure! Grow your exotics or edibles in Mega quantities!

This kit will be used as an incubator during the first few weeks. This allows for faster colonizing times! This kit will obtain perfect temperature and humidity levels without you ever being around!

We take you through the entire process from start to finish. The PF style substrate jars are specially formulated to grow faster, larger and quicker than any other kit out there! Growing has never been easier! 1 step easy!

Our Ultimate substrate jars are the quite possibly the best on the net! We have worked for over 10 years looking for perfection! We finally found it! We have combined special organic brown rice flour with vermiculite, mineral water, Liquid worm castings and Bee pollen to create the Ultimate mushroom growing jars! We do not stock pile jars like other sites! We hand make every jar the morning your kit ships so your jars are the freshest possible! They are pressure sterilized at 15 psi in our Autoclave for 120 minutes.

$139 w/ FREE SHIPPING!

And the Mushroom syringes are from Spores101:

Random Grab Bag of 4 Cubensis Syringes

When we have excess stock on certain strains we can offer you a better deal. Its important to move out the product as fast as possible to maintain shelf life.

To help move these items out we have put together a random selection of psilocybe cubensis spore syringes and reduced the price to less than $9.00 per syringe. For $35.00 plus shipping you will get 4 quality spore syringes in a 10ml syringe.

Your Price: $35.00

post-1104-14384707135784_thumb.gif

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I won't know what spore syringes I got until I receive them, but based on customer feedback they have included in the past: Mexi-Cub, John Allen, Ecuador, Amazon, B+, Cambodian, Golden Teacher, Hawaiian, BT, Alacabenzi, and Creeper syringes.

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Looks good to me. Follow the directions. Keep everything as sterile as possible and keep us posted how your jars are doing. Good luck! There're a lot of experts here so please don't hesitate to ask questions when you have them.

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Kyle, that's why I went with a kit, less room for error, it's all there and I didn't have to search half the state to find everything.

I may or may not have experimented with marijuana :-) and it was an expensive fiasco that in the end yielded impressive plants but anemic buds. Too much time and hassle and a hell of a lot of money down the drain.

All in all I'm hoping mushrooms are a much better option. On top of the grow kit and spore syringes I also ordered a "00" capsule filling machine and veggie caps so I can get the dosage more precise.

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I guess I have some more research to do!!
Welcome, Fester. Here's where you'd start researching seeds: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1290128974

But I think we'd definitely want to hear more about you.  You have a specific diagnosis of Cluster Headache?  If so, what was prescribed to you?  What meds have you taken and what are you taking now?  You have oxygen? Please give us some background.

Well, I started with cluster migraines in the early 90's. I've been on quite a few meds, nose spray, oxygen, imitrex, Vicodin, Percocet. All sorts of pills you have to take daily, although I am not good at taking pills every day, day in and day out.

I went to a headache specialist (who turned out to be quite flakey!)

Now all I use are percocet and Sumavel DosePro needle free delivery system.

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Thanks, Fester.  The Sumavel is sumatriptan -- It's Imitrex using a different delivery system.  It is very unlikely that you will be able to bust successfully while using this -- a five-day "detox" period is almost certainly required.  Percocet rarely helps with cluster headaches, and it, too, is said to block busting, requiring a detox period.  Here's a file about all that: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1290130731

Did oxygen not work for you?  Was it a high-flow (15 liters per minute or more) system with a non-rebreather mask?  Because a good oxygen system is very beneficial if you're going to get off the meds that block busting.

Forgive me if I'm being a jerk about this, but "cluster migraine" is not really an accurate term: You could have migraines, or cluster headaches, or even cluster headaches and migraines, but not "cluster migraines."  I'm not picking at your word choice, I'm just wondering whether you actually are sure you have CH, because you might be barking up some wrong trees here if you don't. Do you have classic CH symptoms: the icepick pain on one side of your head near or behind your eye; conjunctival injection (the mucous membrane that covers the front of the eye and lines the inside of the eyelids looks red/inflamed: “red eye”); lacrimation (the flow of tears); nasal congestion; rhinorrhea (nasal discharge/”runny nose”); forehead and facial sweating; miosis (excessive constriction/tightening of the eye’s pupil); ptosis (drooping of the upper eyelid); eyelid edema (swelling/”puffiness” of the eyelid from excessive watery fluid collection); inability or near inability to remain still or lay down during an attack? 

Assuming that you do have CH, given what you're now taking and the "detox" that's required before busting, and the fact that you don't have O2 as an abortive, I would recommend that you look into one of the alternative treatments that can at least tide you over during a detox if you decide to bust (and that might help you quite quickly in and of themselves).  Two of those that have worked well for a lot of people are the anti-inflammatory vitamin D3 regimen and licorice root/skullcap.

D3: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1314134804

Licorice root: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1298659068

And I'd also urge you to seriously consider trying oxygen again, since it does work for about 4 out of 5 people with CH.  If you had the "right" setup before (15 lpm, non-rebreather mask) and it didn't work, maybe you'd want to try a higher-flow system. Part of my curiosity about your diagnosis is that while proper oxygen systems generally will help people with CH, it's my understanding that they are considerably less effective for migraines.

I know I'm repeating here some of what Bejeeber told you, but I figure it's worth emphasizing.

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CHFather,

I opted for the needle free version of the Imitrex because I don't like needles very much! When I was on Oxygen it was cost prohibitive given my budget at the time, it was years ago and I probably didn't give it a fair trial at the time but, like I said it was cost prohibitive given my budget at the time. As for the set-up, I don't remember anything special about it, it was just a small bottle of oxygen with a cheap plastic type mask.

I used the term Cluster Migraines because that is the term my Doctor has been using. I know when I was diagnosed in the early 90's I was told they were cluster headaches.

The symptoms I have are:

Icepick pain on one side of your head near or behind your eye - YES, sometimes to the point that I cry and have been known to punch myself in the head to try to gain relief somehow (o.k., I'm not very proud of that fact, but I have done it)[br]

Red/inflamed: “red eye” - YES[br]

lacrimation - YES[br]

Symptoms that last for up to 3 days at a time - YES[br]

Sensitivity to light - YES[br]

Nasal congestion; rhinorrhea - YES[br]

Forehead sweating - YES[br]

Ptosis - YES (In the early 90's when this first started my one Eye looked partly closed, but hasn't happened since)[br]

Eyelid edema - YES[br]

Inability or near inability to remain still or lay down during an attack - NO[br]

/me

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Thank you for responding so thoroughly, Fester.  I doubt that there is anyone with CH who hasn't cried or punched him/herself in the head -- at the least.   Since you added "symptoms that last for up to three days at a time," and I'm not quite sure what that means, and you added "sensitivity to light," which is not a typical CH symptom (although some have it) but is a typical migraine symptom, and from some of your other answers, I wonder whether you should see a non-flakey headache specialist. (And also because your doctor calls it "cluster migraine," which is a term that is sometimes used, but I don't think should be used by a medical professional.)  At the bottom of this page I'll post a list of doctors in Illinois who are recommended by people with CH.  They seem to all be in the Chicago area.  If you live closer to another state, you could look at the whole list here (for example, there are some in Merrillville, IN, if that's closer to you):  http://www.ouch-us.org/chgeneral/OUCH%20DOCS%20-%20US%2011-17-2011.pdf

At the least, I'd strongly recommend asking your current doc for oxygen again (at least 15 lpm with a non-rebreather mask) and, as I said, trying the D3 regimen or licorice root. When you get your O2 system, if it doesn't work for you,  you can upgrade it with a better mask and a higher-flow regulator, which will give you a high likelihood of success.  Those things might make it at lot easier for you to "detox" and give busting the best chance of success (maybe with RC seeds while you're growing your other crop).

If your doctor's not inclined to prescribe oxygen, we do have some resources here (such as the article in the Journal of the American Medical Association proving the effectiveness of O2) that might help persuade him/her.  You can also create your own oxygen system, as many people with CH have done, using welding oxygen and parts you can buy online.

Here's that list of Illinois doctors:

Aurora:

Dr. Karen Burgner (PCP)

Dreyer Medical Clinic

Chicago:

Diamond Headache Clinic

Dr. Robert Wright

University Neurologists

Dr. Kenneth L. Moore

Glenview:

Dr. Thomas Freedom

NorthShore - Glenbrook Hospital

Highland Park:

Dr. Trupti Gokani

North Suburban Wellness

Maywood:

Dr. Matthew McCoyd

Loyola University Medical Center

Northbrook:

Dr. Lawrence Robbins

Robbins Headache Clinic

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Since you added "symptoms that last for up to three days at a time," and I'm not quite sure what that means, and you added "sensitivity to light

By symptoms that last up to 3 days, sometimes my headaches last for a period as long as 3 days in a row. Sensitivity to light doesn't happen often, but where I work there are bright fluorescent lights that I sit under that sometimes cause me problems when I'm having a headache and I have to shield my eyes. Again, that doesn't happen all the time either.

My Wife went to Diamond Headache Clinic, she saw Dr. Pepper. She no longer has headaches, after she stopped taking birth control the headaches stopped for her. I used to have to inject her with Toradol, and I wasn't at all comfortable injecting someone using a syringe with a 2 1/2 inch needle.

The headache specialist I saw came in the room, said "Hi" and walked out. 15 minutes later she came in and says "Oh, you didn't change into a gown" I said "You didn't tell me to change into a gown, you just came in and said hi and then left the room for 15 minutes" She said "I didn't give you a gown to put on?" I said "No, I don't have a gown do I?"

She tells me I don't get headaches enough for preventative medicine. Then the next visit she tells me "Oh, you get quite a few headaches, we should put you on preventative meds"

The meds she ended up giving me made me unable to walk/talk/think/function for a whole weekend.

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You'll soon learn enough here that a clown like that won't be able to play you like she did. You'll be able to question everything she says or suggests that you try. I'm guessing that she won't be your doctor for long. Unclear if she works at the Diamond Headache Clinic. If so, I'm surprised, as they have a pretty good reputation.

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