dgman77 Posted April 11, 2016 Author Share Posted April 11, 2016 Update: He went to see a new neurologist, place recommended on the list. Was good with the D3 regimen. Added another steroid taper and Verapamil. His blood pressure normally is 90/50. I bought him a blood pressure cuff to keep track. So far so good. 0 headaches since he started on Tuesday April 4th. The doc wants to slowly wean him off all meds (eventually). He couldn't believe he has been on daily meds for 5 years. I am so hopeful and can't thank everyone enough! This is the shortest cluster to date in 5 years. Signed, A very happy wife Quote Link to comment Share on other sites More sharing options...
ChrisSelf Posted April 14, 2016 Share Posted April 14, 2016 I just learned a ton and am so happy for your husband! Quote Link to comment Share on other sites More sharing options...
adamryan Posted April 22, 2016 Share Posted April 22, 2016 Congrats on the improvements, looking forward to the next update Quote Link to comment Share on other sites More sharing options...
spiny Posted April 23, 2016 Share Posted April 23, 2016 All wonderful news! And getting that cuff is a great idea. I too have low bp and used a cuff with bp measurements to convince my neuro that anymore verapamil was a bad idea for me. Some folks can take 600+ mg of it and be fine. Others cannot. You are a rock star for all the work that you have done. Just think, you have accomplished more for your husband in a few weeks than past doctors ever did. How cool is that?? Quote Link to comment Share on other sites More sharing options...
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