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CHfather

Conference takeaways?

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Would love to hear what some of y'all's top takeaways from the conference were, in terms of improving treatment.  Microdosing?  Anything new on O2, D3, or anything else (GammaCore; ketamine)??  Anything that gave you hope for better treatments down the road?

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CHF,

 

TONS were discussed, but the only take away that I got that seemed to work was "Up the dose".  It sounds like more of us that are on MM long term are running into it slowly stopping it's magic.  The good news is continuing to change substances seems to help.  While psychedelics are cross tolerant for recreational use, they don't seem cross tolerant for our CH.  Of course me personally am on my third substance after the first two stopped keeping my CH away.  (but I got most of 6 years pain free from the first two!!!  Wahoooo). :) 

 

J

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ThatHurtsMyHead,

How often do you maintenance dose? I am so afraid that this will happen to me just like every other drug that seemed to work and stopped! For now I am using Seeds and MM changing up every maintenance dose.

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1.Restarting the D3 regimen because I am stupid and stopped.  My test came back with 30.2 so I am ready to boost it to 100.

2.I am going to try the new O2 steps of hyperventilating before I start it

3.Going to talk to Dr. Plato about DHE and also the other options for the ATI Stimulation

4.Starting back on 5-meO-DALT after I learned that the maintenance dose should be taken every 5 days instead of once a month :P 

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This was my first conference, it will not be my last. The fact that the established medical community (docs & pharma) were in attendance just reinforces the validity of these alternative therapies. There many options put on the table, it's hard to know where to begin.

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Thanks for the feedback. I would really like to attend these conferences but travel is not possible right now. It's good to hear the responses from those who attended.

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ZGreek,

I agree with ThatHurtsMyHead. When I dose with seeds I drink it just before i go to sleep at night. For me I do not feel the upset stomach or any other side effects this way. With MM I can not take it before bed, if I do I can not sleep.

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It was another amazing Conference.  Inspiration levels are again boosted to the ceiling.

 

I'd have to take away an incredible chat with "Batch", to get me going on the D3 and extra push on the exhaling techniques for O2.  Mixing-up preventatives also seems like a great way to go.

 

Can't wait to see what my doctor has to say now! 

 

weatherman

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zgreek,

 

I'd start low maybe 30 RC seeds.  

 

1) Grind (coffee grinder works great)

2) Soak for 2 hours in Distilled water with a few drops of lemon (real lemon).  Use a shot glass, half filled.

3) drink the entire sludge, slimy stuff down (it's pretty vile)

 

Some people filter the liquid, but I've always had problems getting all the liquid out, as it' makes a sorta slimy jello like almost stuff.

 

Make sure you have some benadryl and emitrol (anti nausea liquid) close by.  benadryl if you get any uncomfortable vaso constriction.  (I usually get a little).  If you get any stomach cramps or nausea, take a few sips of emitrol and it usually leaves in 5 to 10 minutes.  If not feeling better by then take more.  It's just glucose, so you can take as much as you need to stop the nausea. 

 

Some people take it just before bed.  I prefer to take it around 3pm.  That gives me enough time for it to work through my system before bed (around midnight).

 

Ping with questions. :)

J

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I posted on this two nights ago but either I goofed it up or it was yanked for reasons I don't understand.  I suspicion the former.  I found the conference to be extremely informative.  it was my first conference and coming off the most brutal cycle for me to date it was surprisingly helpful to be among individuals will actually understand.  It also made me strangely grateful that I am able to deal with this beast most of the time and able to work. Many are not quite as lucky and my support and heart goes out to them.

 

Other than the spirit of family and support that permeated the conference I am most impressed by the willingness to share valuable information and experiences in a self-help sort of way directed at finding a way to managing the beast. The presence of health care providers who have a true interested in treating this condition really warmed my heart. The physicians provided tangible evidence that folks are actively looking at ways of managing this condition. The advice on how to interact with your physician was invaluable. The research comparing psylocibin to placebo in an IRB approved study will prove to be invaluable and hopefully validate the experience of all the citizen scientists who paved the way for alternative treatments.I hope the work being done proves to be landmark research in traditional medicine. For a highly credentialed academic to engage in such a study is nothing short of courageous.

 

The work with electrical stimulation was also exciting and I will anxiously await the updates. Unfortunately I suspect the price point for such a device is given a be fairly formidable and there will be a lot of push back from third party reimbursement.  nevertheless it's exciting technology and if it works should also help understand what causing these problems.

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Zgreek,

I do the same as THMH except I drink it just before bed time. For me I do not feel any symptoms at all and sleep like a baby. When I take it during the day I get an upset stomach, feels like I need to throw up. I do not feel any other effect from seeds much different than MM for me.

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